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Connections Summer 2010.indd - BC Cancer Agency

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Survivorship Care Needs of Head and Neck <strong>Cancer</strong> Patientsat Vancouver Island CentreAn inter-disciplinary team ofresearchers at the <strong>BC</strong> <strong>Cancer</strong> <strong>Agency</strong>Victoria <strong>Cancer</strong> Centre is undertakinga qualitive study on the survivorshipinformation and care needs of locallyadvanced head and neck cancerpatients living on Vancouver Islandand treated with curative intentradiotherapy for locally advanced baseof tongue and tonsil. The project isfunded by the VIC Catalyst grant.Patients with cancer of base of tongueand cancer of the tonsil experiencelong term reductions in quality of life,which impacts on treatment outcomesand survival. Their survivorshipinformation needs are not currentlybeing met, as evidenced by anecdotalself reporting by patients who returnto the <strong>Cancer</strong> Centre for radiationfollow-up. Patients living outside ofVictoria have less access to supportiveTeam members (from left to right):Helen Wong, Cheri Cosby, Andrea FimriteTeam members missing from photo:Tracy Lister, Beverly Gerbis, Sally Smithresources and information. A sample of12 patients, 6 living in Victoria and 6living up island close to Nanaimo will beinterviewed on an individual, one-ononebasis.We hope to get better insight and beable to identify specific issues thatsurvivors of these head and neckpatients face as they transition backinto their communities.The project is composed of amultidisciplinary team that includesprinciple investigator, Cheri Cosby, RD(Nutrition Services) and co-investigatorsAndréa Fimrite, RD (Nutrition Services),Tracy Lister, RD (Manager of NutritionServices, VIHA-Nanaimo GeneralHospital), Dr. Sally Smith (RadiationOncology), Beverly Gerbis, RN(Nursing), and Helen Wong (Patient &Family Counselling).Supportive Needs of <strong>Cancer</strong> Survivors WorkshopA recent Pre-MASCC (Multinational Associationof Supportive Care in <strong>Cancer</strong>) Symposium studygroup workshop, “<strong>Cancer</strong> Survivorship: Creatinginternational collaborations to study the supportivecare needs of cancer survivors”, was held inVancouver, <strong>BC</strong> on June 23rd, 2010. The workshop aimedto bring together leading international researchers andclinicians to highlight international work in the field ofcancer survivorship, and to explore ways of facilitatingcollaborative partnerships.Due to advances in screening, prevention, andtreatment, an increasing number of people are survivingcancer diagnoses. Embracing survivorship issues hastherefore become a priority at both research and practicelevels. However, there are challenges to advancingthe science and practice work in cancer survivorship,including, a limited number of people working in thearea of survivorship, and constraints on funding. Atthis time, it is essential to consolidate knowledge andexpertise internationally.The collaborative study workshop encouraged experts incancer survivorship to come together to share informationand form alliances to advance international survivorshippriorities under a single consortium. This internationalconsortium will provide a platform for researchers andpractitioners to communicate regardless of geographiclocation.The objectives of the workshop were to highlight existingcancer survivorship initiatives at national and internationallevels, discuss the benefits and challenges of establishingan international survivorship consortium, identify potentialcollaborations among researchers, clinicians and funders,and a process for knowledge dissemination, exchangeand translation, and establish a commitment to developpartnerships under the umbrella of a cancer survivorshipresearch consortium.Priority research areas identified for short-term team projectsincluded a catalogue of currently implemented survivorshipguidelines, a survey of health care providers, and a survey ofcancer survivors and caregivers’ unmet needs.CONNECTIONS / SUMMER 2010 3


Upcoming EventsInternational Union against <strong>Cancer</strong> (UICC). 2010 World <strong>Cancer</strong> Congress.August 18-21, 2010. Shenzhen, China.http://2010.worldcancercongress.orgPalliative Care Division, McGill University. 18th International Congress onPalliative Care.October 5-8, 2010. Montreal, Quebec, Canada.www.pal2010.comOncology Congress. 6th Annual Oncology Congress.October 15-17, 2010. San Francisco, California, USA.www.oncologycongress.comSociety for Integrative Oncology (SIO). 7th Annual International Conference ofthe Society for Integrative Oncology.November 11-13, 2010. New York, New York, USA.www.integrativeonc.orgCanadian Interdisciplinary Network for Complementary & Alternative MedicineResearch (IN-CAM). 6th Annual IN-CAM Symposium.November 19-21, 2010. Vancouver, British Columbia, Canadawww.incamresearch.ca<strong>BC</strong> <strong>Cancer</strong> <strong>Agency</strong> (<strong>BC</strong>CA). Annual <strong>Cancer</strong> Conference.November 24-27, 2010. Vancouver, British Columbia, Canada.www.bccanceragencyconference.comPsychosocial Oncology RoundsJoin us from 12:00 p.m. to 1:00 p.m. every second Wednesday of the month forlunch time learning. Videolink to all 5 cancer centres. Location TBA. For moreinformation on upcoming speakers and topics, contact Elaine Shearer:eshearer@bccancer.bc.caThe next rounds will take place on September 1st and 8th.Oncology Nutrition Lunch & LearnJoin us on the third Wednesday of every month for lunch time learning from12:00 p.m. to 1:00 p.m. by teleconference. For information on upcomingspeakers and topics, contact Angela Bowman: abowman@bccancer.bc.caStaff UpdatesTracey Brickell, D.Psych, was a Research Scientist at the SRC. Tracey hasmoved to a new position as Senior Scientist with the USA Defense and VeteransBrain Injury Center.Heather Rennie, MA, MSc, has taken over as the new Professional PracticeLeader for the Abbotsford Centre’s Patient and Family Counselling department.Svetlana Ristovski-Slijepcevic, PhD, was a Research Coordinator for theCIHR Team in Supportive <strong>Cancer</strong> Care at the SRC. Svetlana has accepted a newposition with the School of Population & Public Health at U<strong>BC</strong>.Kirsten Smillie, MA, is the new Research Coordinator for the CIHR Team inSupportive <strong>Cancer</strong> Care at the SRC.Pam Whiting Vickars, MSW, is the new Professional Practice Leader for theFraser Valley Centre’s Patient and Family Counselling department.<strong>Cancer</strong> RehabilitationNetwork<strong>BC</strong>CA’s <strong>Cancer</strong> RehabilitationNetwork coordinates regionalcancer centre activities forpatient and family counselling,psychiatry, and nutritionservices. The RehabilitationNetwork also works with hosthospitals to provide speechpathology and physiotherapyservices. Community activitieswith practitioners are providedthrough the psychosocialoncology and nutrition oncologynetworks.SubscribeTo submit a story idea or to sign upto receive the <strong>Connections</strong>Newsletter in print or PDF format,please contact:Kimberly Burrust: (604) 877-6000 ext. 4612e: kburrus@bccancer.bc.caMore InformationTo learn more about the <strong>Cancer</strong>Rehabilitation Network’s activities,please contact:Joanne Magtotot: (604) 877-6000 ext. 3274e: jmagtoto@bccancer.bc.caOn the Web<strong>Connections</strong> Newsletterwww.bccancer.bc.ca/RES/ResearchPrograms/SBR/News<strong>Connections</strong>Oncology Nutritionwww.bccancer.bc.ca/HPI/NutritionalCarePsychosocial Oncologywww.bccancer.bc.ca/PPI/copingwithcancerSociobehavioural ResearchCentrewww.bccancer.bc.ca/RES/ResearchPrograms/SBR4 CONNECTIONS / SUMMER 2010

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