Exploring Bioethics - NIH Office of Science Education - National ...

1Retinitis PigmentosaFoundation Fighting Blindness. 2008. What is retinitis pigmentosa? Retrieved March 29, 2008,from http://www.blindness.org/content.asp?id=45.Griggs, P. 2006. Retinitis pigmentosa. Retrieved March 29, 2008, from http://www.nlm.nih.gov/medlineplus/ency/article/001029.htm.General Genetic TestingKolata, G. 2008. $300 to learn the risk of cancer of the prostate. New York Times, January 17.Lewin, T. 2000. Boom in gene testing raises questions on sharing results. New York Times, July 21.2VideosCanadian Broadcasting Corporation. 2001. Amanda’s Choice. For more information, seehttp://www.filmakers.com.This film looks at a rare form of the disease—early-onset Alzheimer’s—and how it affects numerousgenerations of one family.3Kartemquin Films. 2008. In the Family. For more information see http://inthefamily.kartemquin.com/.This is a documentary film about hereditary breast and ovarian cancers and predictive testing for them.Oregon Public Broadcasting. 1997. A Question of Genes: Inherited Risks. For more information,contact Oregon Public Broadcasting at 800-440-2651.This program covers seven vignettes about genetic testing and genetic information, including topics such asprenatal testing for cystic fibrosis and a gene that serves as a marker for heart disease as well as Alzheimer’sdisease; the relevant scientific goals and business interests of a company involved in genetic research;accessibility to genetic testing; and testing for a predisposition to breast and ovarian cancers.Schwerin, Noel. 2003. Bloodlines: Technology Hits Home. For more information, seehttp://www.pbs.org/bloodlines.The Bloodlines project reveals how new life technologies are raising ethical, legal, and social questionsas cutting-edge science intersects with the law.45Module 4 4-336