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NewsInaugural laryngectomyconference a successMore than 100 people who had undergonea laryngectomy met with professionals nearCambridge earlier this year for the area’sfirst laryngectomy conference.September28 SeptemberWorld’s Biggest Coffee Morningwww.macmillan.org.uk/coffeeOctoberBreast Cancer Awareness Monthwww.breastcancercare.org.uk1 OctoberInternational Day of Older Personswww.macmillan.org.uk/ageoldexcuseNovemberLung Cancer Awareness Monthwww.macmillan.org.uk/lungcancer8–9 NovemberMacmillan professionals eventwww.macmillan.org.uk/professionalsevent30 NovemberCarers Rights Daywww.macmillan.org.uk/carersThe aim of the day was to discusstreatment and survivorship issuesand to enable attendees to sharetheir own experiences followingthis life-changing surgery.Relatives, friends and carersalso attended.The event had originallybeen the idea of BarbaraBlagnys, former Speech andLanguage Therapist at Norfolkand Norwich Hospital, and cametogether after 10 months ofcareful planning.The morning includedpresentations about swimmingafter laryngectomy, physiotherapyfor laryngectomees and thefuture of laryngeal cancertreatment. These proved to bethought-provoking, inspiring andgenerated lots of discussion andquestions for the speakers.Lunch and refreshments wereprovided and there was timefor the attendees to browse thestalls, which included stands fromover 15 companies and charitiesinvolved in laryngectomy care.Discussion tables were setup in the afternoon to allow forsmaller, group sessions on topicssuch as nutrition, voice prosthesesand communication. Delegateschatted, shared experiences andstories, and the feedback fromthe attendees was very positive.The event was made possibleby a grant from Macmillanand through sponsorship fromcompanies involved in healthand laryngectomy care. Wehope the conference will becomean annual event and we havealready received suggestions forfuture topics and speakers.More InformationContact Sarah Pilsworth,Macmillan Senior Specialist SLT(H&N/ENT) at Addenbrooke'sHospital on 01223 216 200.DecemberChildhood Cancer Awareness Monthwww.clicsargent.org.uk6 Mac Voice Autumn 2012
NewsBoots and Macmillanbroaden local supportWe know that there are peopleaffected by cancer who find it difficultto seek out help and support. Theymay not know where to turn forprofessional advice, be unsure aboutwhat local services are available ormay not be comfortable seeking help.The Boots Macmillan informationpharmacist role seeks to address andbreakdown these barriers. It was bornout of Macmillan and Boots’ visionthat everyone, wherever they are inthe UK, has access to the best cancerinformation and support in theirlocal area.Connecting servicesThe pharmacist role will signpostpeople affected by cancer to expertise,and set out the services available tothem in their local community. Thecreation of the role provides anotherchannel people can choose to accessthe information they need locally. BootsMacmillan information pharmacists willoffer advice in Boots stores, which forlots of people is a trusted, informaland familiar environment. Theywill also raise awareness of widerMacmillan services.Working with other professionalsAs well as supporting people living withcancer, the pharmacist role is designedto support Macmillan professionalsand assist the work of local informationservices. Boots Macmillan informationpharmacists are encouraged to buildlinks and raise the profile of localMacmillan services.To complement the work ofMacmillan information professionals,Boots Macmillan informationpharmacists will deliver cancerinformation at the Macmillan InteractionLevels 1–2 for information and supportservices. These will enable BootsMacmillan information pharmacists tounderstand and identify that peoplehave a variety of information needs,and signpost them to more specialisedsupport, both locally and nationally.PreparationTo become a Boots Macmillaninformation pharmacist, allpharmacists need to complete ane-learning programme, which wasdeveloped in consultation withBoots and Macmillan’s Learningand Development Team. It includescompulsory sign up to a Charter ofCommitment in which pharmacistsagree to seek out ongoing CPDopportunities to improve customercare for people affected by cancer.Becoming a Boots Macmillaninformation pharmacist is voluntary,but over 100 pharmacists havesigned up so far. It is anticipated thatthere will be at least 250 trainedpharmacists in Boots stores across theUK by the end of September.Speaking about her role as a BootsMacmillan information pharmacist,Kim Baker said, ‘I like to be on hand togive advice to people on the high streetand be that first port of call if anyonehas any questions. You get regularcustomers who really benefit from theadvice you’ve given them. It’s alsogreat to be more linked to Macmillan.The training has helped me becomethe pharmacist I wanted to become.’Want to know more?Visit macmillan.org.uk/bootsor call 020 7840 4901.www.macmillan.org.uk/macvoice 7
Page 1 and 2: For Macmillan professionalsIssue 62
Page 3 and 4: EditorialRarer cancersA cancer may
Page 5: Survival variationsTwo separate rep
Page 9 and 10: NewsChanges to onlineinformation fo
Page 11 and 12: NewsDemonstrating impactHow Macmill
Page 13 and 14: delivery, such as ensuring complian
Page 15 and 16: Follow-up FeaturePiloting a nurse-l
Page 17: added benefit that someone trainedt
Page 21 and 22: Primary care Featurechronically ill
Page 23 and 24: In this section24 Access to treatme
Page 25 and 26: Penile cancerSarah Henderson, Macmi
Page 27 and 28: Hodgkin lymphomaTrish Hughes, Macmi

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