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NCSI updateThe National Cancer Survivorship Initiative (NCSI) was launched in 2008as a partnership between the Department of Health and Macmillan, withsupport from NHS Improvement. It set a vision to help people living withcancer to lead an active and healthy lifestyle for as long as possible.Four years on, the partnershiphas a much greater understandingof the needs and numbers of peopleliving with cancer; where they arein the cancer care pathway; theprofessional cultural shifts required;and what evidence-based serviceswill be necessary for the future.NCSI 2012 next steps documentThis document looks at whathas been achieved; what we nowknow; and what needs to happennext. It will be available this autumnat ncsi.org.ukThe NCSI's next steps will be to:• share learning around managingdiagnosis, treatment, recoveryconsequences of treatment andactive and advanced disease• describe the necessary changesto the cancer care pathway,and the proposed changesto enable implementation• emphasize the importanceof a ‘recovery package’for every person finishingtreatment, consisting of a holisticassessment, care planning,a Treatment Summary, anda transition event such as aMacmillan Health andWellbeing clinic• set the direction for survivorshipwork in England to 2015.Cancer Care ReviewA full evaluation report of the NCSI’sIT templates for Cancer Care Review(CCR) is now available on theNCSI website.The Quality and OutcomesFramework (QOF) requires everyonediagnosed with cancer to receive aCCR by their GP within six months oftheir diagnosis. However, the QOFlacks clarity on what the CCR shouldconsist of and what is helpful andnecessary to include.To help GPs conduct high-qualityCCRs, Macmillan worked with themain GP IT system providers – INPSand EMIS – to develop and test settemplates with GPs.The evaluation of these templatesidentified that 79% of GPs found thetemplate ‘fairly useful’ or ‘very useful’and that they appreciated the promptsfor reviewing medication or noting thecarers’ details. Work is now underwayto encourage widespread adoptionof the templates.Active and advanced diseaseThis work stream has looked at issuesfaced by people living with advancedcancer. These include: keeping well,accessing other support services,re-entering the healthcare system(eg at a time of recurrence), and theprogression of illness to palliativecare and end of life.Part of the group’s work has includedtesting a new model of care forpeople affected by lung cancer inBrighton and Hull. Themodel includes:• having a structured assessmentprocess and a personal careplan that offers support andinformation to enableself-management• rehabilitation and support throughsocial and emotional care, aswell as physical care with servicesclearly signposted• survivors and health professionalshaving access to prompt specialistcare and treatment on recurrenceor when encountering problems• the early introduction of palliativespecialists so that palliative andend-of-life care decisions can bemade in a timely way by patientsand professionals.The data is currently being analysed,however initial reports suggest thatpatients who receive early support andinformation show an improvementin their quality of life. For moreinformation, visit the NCSI website.Coming up ...We'll be including updates on otherareas of the NCSI in future editionsof Mac Voice.10 Mac Voice Autumn 2012