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What Works for Women and Girls

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more likely to have disclosed their status to someone than non-participants, <strong>and</strong> to havedone so prior to delivery. M2m seeks to reduce PMTCT, empower pregnant <strong>and</strong> postpartumwomen to improve their health <strong>and</strong> the health of their babies, fight stigma <strong>and</strong>encourage <strong>and</strong> support disclosure. The program offered education <strong>and</strong> psychosocialsupport to HIV-positive pregnant women <strong>and</strong> new mothers, assisted women to accessPMTCT services, <strong>and</strong> followed up to ensure care of mothers <strong>and</strong> infants after delivery(Baek et al. 2007). (Gray IV) (PMTCT, support groups, mothers, South Africa)In-depth interviews conducted from 2000 to 2001 with ten pregnant women in Thail<strong>and</strong>following their HIV diagnosis found that peer support groups were critical <strong>for</strong> womenwhen they were ready to share their struggles with others (Ross et al., 2007). (Gray V)(support groups, Thail<strong>and</strong>)A qualitative study in rural <strong>and</strong> per-urban Malawi explored the acceptability of a caregiver’straining <strong>and</strong> support group <strong>for</strong> Malawian women. Twenty women caregivers wererecruited <strong>for</strong> in-depth interviews. Questions address the actions that could be conductedin the group, the reasons to participate, the barriers to participation, <strong>and</strong> the benefits ofa caregiver group. Reponses from women show that a caregiver support group wouldbe acceptable to Malawian women. Rural <strong>and</strong> peri-urban women said a group couldtake action by sharing household chores, finding material resources, <strong>and</strong> developingbusiness ideas to generate income. Barriers to the group were community “gossiping”,<strong>and</strong> husb<strong>and</strong> <strong>and</strong> family disapproval. Benefits of the group were the opportunity tolearn <strong>and</strong> share in<strong>for</strong>mation, share patient care, <strong>and</strong> offer emotional support. In addition,women expressed the hope that direct access to antiretroviral treatment could beobtained through the group. This group of Malawian women caregivers felt they couldbenefit greatly from a caregiver support group. While the caregiving dem<strong>and</strong>s are vast,these women have many skills <strong>and</strong> abilities to care <strong>for</strong> patients <strong>and</strong> a support groupcould enhance the sharing of treatment, care, <strong>and</strong> support to alleviate the impact ofHIV/AIDS <strong>for</strong> families (Hatchett et al., 2006). (Gray V) (support groups, Malawi)A study in South Africa based on interviews with 317 pregnant HIV-positive womenfound that women reported benefiting from a structured support group. Program material<strong>for</strong> the support group meetings was based on a needs assessment. The meetingsprovided in<strong>for</strong>mation on HIV; the emotional experience of being HIV-positive; sharingcoping with difficult situations, using role plays; planning <strong>for</strong> disclosure; what theywanted from their partners; dealing with stigma; <strong>and</strong> goal setting <strong>and</strong> future planning.Masters level psychology students facilitated the support groups. Interviewers followingthe support group sessions found that the women found the support group valuable:“It was a shelter to hide away where I could talk freely. I can tell others now. Now I amstronger, I can st<strong>and</strong> on my own” (Visser et al., 2005: 339). Another woman stated: “Itwas a positive picture of HIV. I did not feel alone <strong>and</strong> embarrassed anymore” (Visseret al., 2005: 339). Role-playing was especially helpful. In addition, the introduction ofhuman rights helped women to realize “that they were not at fault, but that other people350 CHAPTER 12 CARE AND SUPPORT

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