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2. Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs – The National Academies Press- Psychosocial health care addresses the emotional challenges that can accompany a serious illness as well as the lifechallenges that can prevent good healthcare and patient's ability to take care of themselves. Read the book online, free.Website: http://www.nap.edu/catalog.php?record_id=11993.3. Cancer Pain Education for Patients and the Public (CPEPP)- City of Hope investigators (Betty Ferrell, Marcia Grant, and Gloria Juarez) conducted an education project fundedby the National Cancer Institute to address the multiple opportunities for cancer pain education and to provideresources for successful implementation. The project materials include outlines, Power Point presentations,handouts and a comprehensive bibliography for each module. An article summarizing this project was published inthe Journal of Pain and Symptom Management, 2002, 23(3), 7-8, which provides further detail regarding thetraining program. Website: http://prc.coh.org/Pt-familyEd.asp under Educational Materials.Module I: Pain Management for Individual Patient EducationModule II - Cultural Considerations in Patient and Public EducationModule III - Pain Education provided through group settingsModule IV - Public Education for Pain ManagementModule V - Telephone EducationModule VI - The JCAHO Imperative; Improved Pain ManagementModule VII - Professional Education as a Prerequisite to Patient Education; Involving Colleagues in Pain EducationModule VIII - Overcoming Institutional Barriers to Pain Education4. Cancer Pain: Your Guide to Relief - HealthMark Multimedia- HealthMark Multimedia is a health-related, interactive solution for patients and healthcare organizations. It is used bypatients in making treatment and self-care decisions, health care professionals for education purposes, and parents andchildren to learn about prevention and staying healthy.Website: http://www.healthmarkmm.com/cancerPain/index.html.5. Coping with Cancer - National Cancer Institute- Care for Children and Adolescents With Cancer: Questions and AnswersWebsite: http://www.cancer.gov/cancertopics/factsheet/NCI/children-adolescents- Financial Assistance and Other Resources for People with CancerWebsite: http://www.cancer.gov/cancertopics/factsheet/support/financial-assistance- National Organizations That Offer Services to People With Cancer and Their FamiliesWebsite: https://cissecure.nci.nih.gov/factsheet/FactSheetSearch8_1.aspx- Pain Control: Support for People with CancerWebsite: http://www.cancer.gov/cancertopics/paincontrol- Control del dolor: Guía para las personas con cáncer y sus familias (Pain Control in Spanish)Website: http://www.cancer.gov/espanol/control-del-dolor.pdf- El Dolor Relacionado con el Cancer - (Understanding Cancer Pain in Spanish)Website: http://www.cancer.gov/espanol/dolor-relacionado-con-cancer.6. Easing Cancer Pain - Michigan State University- An interactive CD program designed to empower people with cancer who suffer from pain. It provides a wealth ofresources to help them understand their pain and seek effective treatment.Website: http://commtechlab.msu.edu/products/ecp/index.html#price.7. End-of-Life: Helping with Comfort and Care – U.S. National Institutes of Health , National Institute on Aging- This booklet provides an overview of issues commonly facing people caring for someone nearing the end-of-life.Website: http://www.nia.nih.gov/healthinformation/publications/endoflife/.8. Fact Sheets – International Association for the Study of Pain (IASP), Seattle, WAAvailable in Spanish, French, Portuguese, Russian, Arabic, and Chinese.- Barriers to Cancer Pain Treatment- Cancer Pain- Cancer Pain Treatment- Partners and Caregivers of Cancer Patients Having PainWebsite: http://www.iasp-pain.org/.9. Financial Issues and Cancer - American Cancer Society- Advanced Illness: Financial Guidance for Cancer Survivors and Their FamiliesWebsite: http://www.cancer.org/acs/groups/content/@healthpromotions/documents/document/acsq-020184.pdf88
- Coping Financially with the Loss of a Loved One: Financial Guidance for Families –Website: http://www.cancer.org/acs/groups/content/@nho/documents/document/copingfinanciallywiththelossof.pdf- Costs of CancerWebsite: http://www.cancer.org/docroot/MIT/content/MIT_3_2X_Costs_of_Cancer.asp- Health Insurance and Financial Assistance for the Cancer PatientWebsite: http://www.cancer.org/docroot/MLT/content/MLT_1x_Medical_Insurance_and_Financial_Assistancefor_the_Cancer_Patient.asp?sitearea=&level=1.10. Health Facts for You – UW Health, University of Wisconsin Hospital & Clinics, Madison, WI- Over 30 categories of patient education materials developed by University of Wisconsin Hospital experts.Website: http://www.uwhealth.org/healthinformation/healthfactsforyou/11128.11. Managing Pain Begins with You- This downloadable brochure is easy to read and understand pain for pain sufferers and health care providers and theirpractice settings. It is also available in SpanishWebsite: http://www.missouripain.org/pain_initiatives/marketplace/managing_pain.pdf.12. Mesothelioma Causes- Lean on Me - Cancer Through a Carer's Eyes Website: http://www.asbestos.com/book/- 100 Questions & Answers About Mesothelioma Website: http://www.asbestos.com/book/Website: http://www.asbestos.com/mesothelioma/.13. Pain Control: Support for People with Cancer - National Cancer Institute- Important facts about cancer pain treatment that will help you learn about pain control for people with cancer,including how to work with your doctors, nurses, and pharmacists to find the best method to control your pain.Website: http://www.cancer.gov/cancerinfo/paincontrol.14. Pain Control: A Guide for People with Cancer & Their Families - American Cancer Society- Learn about a variety of methods for pain control and discover how to achieve the optimal balance between painrelief and potential side effects of pain medication. This resource can help people with cancer partner with theirhealth care teams to create effective pain-relief plans tailored to their unique situations.Website: http://www.cancer.org/docroot/MIT/content/MIT_7_2x_Pain_Control_A_Guide_for_People_with_Cancer_and_ Their_Families.asp.15. Pain Control After Surgery - Cleveland Clinic Health Information Center- Types of pain control treatments including Patient-Controlled Epidural Analgesia, Patient-Controlled IntravenousAnalgesia, NSAIDS, and narcotics.Website: http://my.clevelandclinic.org/services/pain_management/hic_pain_control_after_surgery.aspx.16. Pain Management - University of Michigan Health System- A resource for patients, families and health care providers on pain management options.Website: http://www.med.umich.edu/pain/index.htm.17. Pain Management Facts – The Leukemia & Lymphoma Society- The latest information for patients, caregivers and healthcare professionals.Website: http://www.leukemia-lymphoma.org/attachments/National/br_1222354169.pdf.18. Pain Multimedia Library - StopPain.org- Visit the Pain Multimedia Library for the latest information and treatment options for common pain syndromes.These Flash presentations include CRPs, Low Back Pain, Migraine Headache, Shingles, and Sickle Cell Pain.Available in Spanish and Russian.Website: http://www.stoppain.org/pain_medicine/content/chronicpain/library.asp.19. Passport to Comfort: Reducing Barriers to Pain & Fatigue Management – City of Hope, Duarte, CA- This model addresses patient, professional and system barriers to the relief of pain and fatigue and is based onestablished guidelines developed by the National Comprehensive Cancer Network (NCCN). An NCI supportedprogram. Most available in English and Spanish. Website: http://prc.coh.org/Pt-familyEd.asp #27- Passport to Comfort – Pain Management &Fatigue Management- Key Teaching Points: Pain Assessment & Pain Management- Key Teaching Points: Fatigue Assessment- Key Teaching Points: Fatigue Management89
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August, 2012 edition(updated monthl
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CITY OF HOPE PAIN & PALLIATIVE CARE
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24. Krouse, R. S., Grant, M., Rawl,
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58. Bhatia, S., Robison, L. L., Fra
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30. Handbook of Cancer Survivorship
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Journey ForwardLeukemia & Lymphoma
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15. Ando, M., Morita, T., Okamoto,
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6. GWish SOERCE: Educational and cl
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15. Grant, M., Elk, R., Ferrell, B.
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50. Ferrell, B. R., Virani, R., Gra
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16. Harper, J., Hinds, P. S., Baker
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their end-of-life wishes. CE credit
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4. End-Stage Renal Disease Workgrou
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5. American Society of Pain Managem
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9. Augustine, M. M., & Pawlik, T. M
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2. Fast Facts and Concepts - End of
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10. Sullivan, M., & Ferrell, B. (20
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- Subcutaneous Opioid Infusions, #0
Page 37 and 38: 16. Reflex Sympathetic Dystrophy/Co
Page 39 and 40: 8. Park, H. (2010). Effect of music
Page 41 and 42: 44. Barnes, P. M., Powell-Griner, E
Page 43 and 44: V. Special PopulationsA. Family Car
Page 45 and 46: 19. The Caregiver’s Path to Compa
Page 47 and 48: 52. Salmon, J. R., Kwak, J., Acquav
Page 49 and 50: Cancer Hope NetworkCancer: You can
Page 51 and 52: 4. Memorial Sloan-Kettering Cancer
Page 53 and 54: 3. Kelly, K., Thrane, S., Virani, R
Page 55 and 56: 3. Pain Care Fast Facts: 5-Minute C
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Page 59 and 60: 29. Fraser, J., Harris, N., Berring
Page 61 and 62: 64. Schiff, D., Klin, C., Meltzer,
Page 63 and 64: 98. Nursing Care of Children & Adol
Page 65 and 66: 3. Neonatal Pain, Agitation, & Seda
Page 67 and 68: - The Use of Pediatric Sedation and
Page 69 and 70: 24. DeSanto-Madeya, S., Nilsson, M.
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Page 73 and 74: 13. Zempsky, W. T., Loiselle, K. A.
Page 75 and 76: Sickle Cell Disease Association of
Page 77 and 78: - Bartlett, J. G., Cheever, L. W.,
Page 79 and 80: 6. Fibromyalgia: The Complete Guide
Page 81 and 82: M.A.G.N.U.M. Awareness GroupMigrain
Page 83 and 84: Education Materials/Curriculum1. Ad
Page 85 and 86: - Pain Resource Nurse Role: Descrip
Page 87: 16. Ferrell, B. R., & Rivera, L. M.
Page 91 and 92: 25. Patient Medication Information
Page 93 and 94: 5. Suffering- Ferrell, B. R. (1996)
Page 95 and 96: Other Organizations LinksCenter to
Page 97 and 98: Emerging Solutions in Pain Legal an
Page 99 and 100: 17. Memorial Symptom Assessment Sca
Page 101 and 102: 32. Toolkit of Instruments to Measu
Page 103 and 104: 28. Pain Medicine - official journa
Page 105 and 106: American Headache Society - http://
Page 107 and 108: End-of-Life ~ AARP - http://www.aar
Page 109 and 110: National Children’s Cancer Societ
Page 111 and 112: United Hospital Fund - http://www.u
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