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Kidsaid - 2 Kids, 4 Kids, By KidsLiam’s Foundation for Pediatric Palliative CareMake a Wish FoundationNational Children’s Cancer SocietyNational Hospice and Palliative Care OrganizationPediatricsConcurrent Care for Children Requirement:Implementation ToolkitOrgan Procurement and Transplantation NetworkPartnership for ParentsPediatric Art Therapy:Art Therapy ProgramCreative Expression ProgramExpressive TherapyOrgan Procurement and Transplantation NetworkPost PalsSHARE, Pregnancy and Infant Loss Support, Inc.Sharing Wisdom: Pediatric Palliative Carehttp://kidsaid.com/http://www.liamlawsonfoundation.org/http://www.wish.orghttp://www.nationalchildrenscancersociety.com/http://www.nhpco.orghttp://www.nhpco.org/i4a/pages/index.cfm?pageid=3409http://www.nhpco.org/i4a/pages/index.cfm?pageID=3689&zbrandid=3022&zidType=CH&zid=4860951&zsubscriberId=766757093&zbdom=http://nhpco.informz.nethttp://optn.transplant.hrsa.gov/http://www.partnershipforparents.orghttp://www.lhsc.on.ca/Patients_Families_Visitors/Childrens_Hospital/Programs_and_services/Art_Therapy.htmhttp://www.rch.org.au/cah/services.cfm?doc_id=10984http://www.uchicagokidshospital.org/specialties/childlife/programs/expressive-therapy.htmlhttp://optn.transplant.hrsa.govhttp://www.postpals.co.uk/http://www.nationalshareoffice.comhttp://www.sharingwisdom.us/Position Statements/Standards1. American Academy of Pediatrics (AAP)- Assessment and Management of Acute Pain in Infants, Children, and AdolescentsAcute pain is one of the most common adverse stimuli experienced by children, occurring as a result of injury, illness, andnecessary medical procedures. Website: http://aappolicy.aappublications.org/cgi/content/full/pediatrics;108/3/793.- Circumcision Policy StatementPolicy Statement regarding giving a child procedural analgesia (EMLA cream) before performing a circumcisionprocedure. Website: http://aappolicy.aappublications.org/cgi/content/full/pediatrics;103/3/686.- Health Supervision for Children with Sickle Cell DiseaseTimely and appropriate treatment of SCD is critical, because life-threatening complications develop rapidly. It isessential that every child with SCD receive comprehensive care that is coordinated through a medical home withappropriate expertise. Website: http://aappolicy.aappublications.org/cgi/content/full/pediatrics;109/3/526- Palliative Care for ChildrenThis statement presents an integrated model for providing palliative care for children living with a life-threatening orterminal condition. Website http://aappolicy.aappublications.org/cgi/content/full/pediatrics;106/2/351- Prevention and Management of Pain and Stress in the Neonate: An UpdateThe objectives of this statement are to increase awareness that neonates experience pain; provide a physiological basis forneonatal pain and stress assessment and management by health care professionals; make recommendations for reducedexposure of the neonate to noxious stimuli and to minimize associated adverse outcomes; and recommend effective andsafe interventions that relieve pain and stress.Website: http://aappolicy.aappublications.org/cgi/content/full/pediatrics;118/5/2231.2. The American Academy of Pediatrics (AAP) and the American Pain Society (APS)- The Assessment and Management of Acute Pain in Infants, Children, and Adolescents. Joint issue statement to underscorethe responsibility of pediatricians to take a leadership and advocacy role to ensure humane and competent treatment of painand suffering in all infants, children, and adolescents.Website: http://aappolicy.aappublications.org/cgi/reprint/pediatrics;108/3/793.pdf3. American College of Emergency Physicians (ACEP) Policy Statements- Guidelines for Care of Children in the Emergency DepartmentWebsite: http://www.acep.org/practres.aspx?id=2913466
- The Use of Pediatric Sedation and AnalgesiaWebsite: http://www.acep.org/practres.aspx?id=32884.4. American Pain Society (APS)- Pediatric Chronic Pain - This position statement is the result of a special committee formed of experts in pediatric painmanagement. It addresses issues pertinent to pediatric chronic pain such as the definition of chronic pain, assessment,treatment, education issues, research, policy implications, along with references.Website: http://www.ampainsoc.org/library/bulletin/jan01/posi1.htm- The Assessment and Management of Acute Pain in Infants, Children, and AdolescentsWebsite: http://www.ampainsoc.org/library/bulletin/sep01/article1.htm.- Progress and Needs in Pediatric Palliative Care Pain ManagementWebsite: http://www.ampainsoc.org/library/bulletin/mar04/pall1.htm.5. American Society of Pain Management Nurses (ASPMN)- Neonatal Circumcision Pain Relief- The ASPMN opposes the participation of nurses and other healthcare professionals in the performance of maleneonatal circumcision without an anesthetic to treat the pain inherent in the procedure.Website: http://www.aspmn.org/pdfs/Pediatric%20Circumcision.pdf.V. Special PopulationsD. Cultural Considerations in Palliative CareSection Description: This section offers resources related to cultural issues in pain and palliative care and guidelines forcultural competency.City of Hope Publications1. Thrane, S. (2010). Hindu end of life: Death, dying, suffering, and karma. Journal of Hospice & Palliative Nursing, 12(6), 337-342. DOI: 10.1097/NJH.0b013e3181f2ff11.2. Fineburg, I. C., Grant, M., Aziz, N. M., Payne, R., Dunn, G. P., Kagawa-Singer, M., Palos, G., Kinzbrunner, B. M., Shinagawa-Matsuko, S., & Krouse, R. (2007). Prospective integration of cultural consideration in biomedical research for patients withadvanced cancer: recommendations from an international conference on malignant bowel obstruction in palliative care. Journalof Pain and Symptom Management, 34(1S), 34-39. DOI: 10.1016/j.jpainsymman.2007.04.009.3. Knobf, T., Juarez, G., Lee, S., & Sun, V. (2007). Challenges and strategies in recruitment of ethnically diverse populations forcancer nursing research. Oncology Nursing Forum. 34(6), 1187-1194.Website: http://ons.metapress.com/content/y6352142067p0255/fulltext.pdf .4. Ricker, C. N., Hiyama, S., Fuentes, S., Feldman, N., Kumar, V., Uman, G. C., et al. (2006). Beliefs and interest in cancer risk inan underserved Latino cohort. Preventive Medicine, 44(3), 241-245. DOI: 10.1016/j.ypmed.2006.08.018.Recommended Publications1. Transcultural Concepts in Nursing Care- Andrews. M. M. & Boyle, J. S. (2011). PA: Lippincott Williams & Wilkins. ISBN: 0781790379.Website: http://www.lww.com.2. Wilson, L. D. (2011). Cultural competency: Beyond the vital signs. Delivering holistic care to African Americans. NursingClinics of North America, 46, 219-232. DOI:10.1016/j.cnur.2011.02.0073. McCormick, A. J. (2011). Self-determination, the right to die, and culture: A literature review. Social Work, 56(2), 119-128.4. Tung, W-C. (2011). Hospice care in Chinese culture: A challenge to home care professionals. Home Health CareManagement & Practice, 23(1), 67-68. DOI: 10.1177/1084822310383000.5. Boehmer, U., Miao, X., & Orzonoff, A. (2011). Cancer survivorship and sexual orientation. Cancer, 117(16), 3796-3804.DOI: 10.1002/cncr.25950.6. Robinsin, K. M. & Monsivais, J. J. (2011). Acculturation, depression, and function in individuals seeking pain management ina predominately Hispanic southwestern border community. Nursing Clinics of North America, 46, 193-199.DOI:10.1016/j.cnur.2011.02.009.67
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August, 2012 edition(updated monthl
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CITY OF HOPE PAIN & PALLIATIVE CARE
Page 5 and 6:
24. Krouse, R. S., Grant, M., Rawl,
Page 7 and 8:
58. Bhatia, S., Robison, L. L., Fra
Page 9 and 10:
30. Handbook of Cancer Survivorship
Page 11 and 12:
Journey ForwardLeukemia & Lymphoma
Page 13 and 14:
15. Ando, M., Morita, T., Okamoto,
Page 15 and 16: 6. GWish SOERCE: Educational and cl
Page 17 and 18: 15. Grant, M., Elk, R., Ferrell, B.
Page 19 and 20: 50. Ferrell, B. R., Virani, R., Gra
Page 21 and 22: 16. Harper, J., Hinds, P. S., Baker
Page 23 and 24: their end-of-life wishes. CE credit
Page 25 and 26: 4. End-Stage Renal Disease Workgrou
Page 27 and 28: 5. American Society of Pain Managem
Page 29 and 30: 9. Augustine, M. M., & Pawlik, T. M
Page 31 and 32: 2. Fast Facts and Concepts - End of
Page 33 and 34: 10. Sullivan, M., & Ferrell, B. (20
Page 35 and 36: - Subcutaneous Opioid Infusions, #0
Page 37 and 38: 16. Reflex Sympathetic Dystrophy/Co
Page 39 and 40: 8. Park, H. (2010). Effect of music
Page 41 and 42: 44. Barnes, P. M., Powell-Griner, E
Page 43 and 44: V. Special PopulationsA. Family Car
Page 45 and 46: 19. The Caregiver’s Path to Compa
Page 47 and 48: 52. Salmon, J. R., Kwak, J., Acquav
Page 49 and 50: Cancer Hope NetworkCancer: You can
Page 51 and 52: 4. Memorial Sloan-Kettering Cancer
Page 53 and 54: 3. Kelly, K., Thrane, S., Virani, R
Page 55 and 56: 3. Pain Care Fast Facts: 5-Minute C
Page 57 and 58: 2. Patel, S. K., Mullins, W., Turk,
Page 59 and 60: 29. Fraser, J., Harris, N., Berring
Page 61 and 62: 64. Schiff, D., Klin, C., Meltzer,
Page 63 and 64: 98. Nursing Care of Children & Adol
Page 65: 3. Neonatal Pain, Agitation, & Seda
Page 69 and 70: 24. DeSanto-Madeya, S., Nilsson, M.
Page 71 and 72: 2. Fast Facts and Concepts - End of
Page 73 and 74: 13. Zempsky, W. T., Loiselle, K. A.
Page 75 and 76: Sickle Cell Disease Association of
Page 77 and 78: - Bartlett, J. G., Cheever, L. W.,
Page 79 and 80: 6. Fibromyalgia: The Complete Guide
Page 81 and 82: M.A.G.N.U.M. Awareness GroupMigrain
Page 83 and 84: Education Materials/Curriculum1. Ad
Page 85 and 86: - Pain Resource Nurse Role: Descrip
Page 87 and 88: 16. Ferrell, B. R., & Rivera, L. M.
Page 89 and 90: - Coping Financially with the Loss
Page 91 and 92: 25. Patient Medication Information
Page 93 and 94: 5. Suffering- Ferrell, B. R. (1996)
Page 95 and 96: Other Organizations LinksCenter to
Page 97 and 98: Emerging Solutions in Pain Legal an
Page 99 and 100: 17. Memorial Symptom Assessment Sca
Page 101 and 102: 32. Toolkit of Instruments to Measu
Page 103 and 104: 28. Pain Medicine - official journa
Page 105 and 106: American Headache Society - http://
Page 107 and 108: End-of-Life ~ AARP - http://www.aar
Page 109 and 110: National Children’s Cancer Societ
Page 111 and 112: United Hospital Fund - http://www.u
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