7. A Lion in the House - LION- Educational DVD modules based on A Lion in the House documentary film at http://www.lioninthehouse.com/.The real-life intimate case studies serve as conversational starters to assist health care pr<strong>of</strong>essionals and students tosensitively explore issues <strong>of</strong> childhood and young adult cancer. The seven modules include: Nurse-Patient-FamilyRelationships, Pediatric End-<strong>of</strong>-Life Case Studies, Siblings Stories, Disparities, Spirituality and Childhood Cancer,Childhood Cancer and School Issues, and Childhood Cancer Survivorship Stories. These modules are available for thepr<strong>of</strong>essional and educational communities at Aquarius Healthcare Media:http://www.aquariusproductions.com/Cart/subcat.php?subcat_id=384&session_id=2006121913565264.56.112.88&pid= .8. Capturing a Short Life- Capturing a Short Life is a beautiful, intimate and life-affirming documentary about families dealing with infant loss. Itexplores how critical it is to remember and celebrate the beautiful babies who are only with us for a moment, and howimpossible it is to forget them (from the website)Website: http://www.capturingashortlife.com/home/9. <strong>Pain</strong> Care Fast Facts: 5-Minute Clinical Inservice - UW Health, University <strong>of</strong> Wisconsin Hospital & Clinics, Madison, WI- EMLA Cream (for needle sticks)Website: http://www.uwhealth.org/healthfacts/B_EXTRANET_HEALTH_INFORMATION-FlexMember-Show_Public_HFFY_1126660673362.html- Intranasal Analgesia Prior to Insertion <strong>of</strong> Nasogastric TubeWebsite: http://prc.coh.org/FF%20Intranasal-A3-11.pdf.- Sucrose Analgesia for InfantsWebsite: http://prc.coh.org/SucAnal.pdf- Topical Lidocaine – L.M.X.4 (for needle sticks)Website: http://www.uwhealth.org/healthfacts/B_EXTRANET_HEALTH_INFORMATION-FlexMember-Show_Public_HFFY_1126663168419.html- Where do you hurt? ¿Donde le duele? – PediatricWebsite: http://www.uwhealth.org/healthfacts/B_EXTRANET_HEALTH_INFORMATION-FlexMember-Show_Public_HFFY_1103038141131.html10. <strong>Pain</strong> <strong>of</strong> Circumcision and <strong>Pain</strong> Control - Circumcision Information and <strong>Resource</strong> Pages (CIRP)- This website indexes material on the pain <strong>of</strong> neonatal male circumcision, its effects, and attempts to controlcircumcision pain. Website: http://www.cirp.org/library/pain/.11. <strong>Pain</strong> Management in Children with Cancer Handbook- The <strong>Pain</strong> Management in Children with Cancer handbook is a printable version <strong>of</strong> most <strong>of</strong> the contents <strong>of</strong> the Cancer<strong>Pain</strong> Management in Children website, funded by the Texas Cancer Council.Website: http://www.childcancerpain.org/frameset_nogl.cfm?content=handbook.html.12. Pediatric <strong>Pain</strong> ~ Science Helping Children - Dalhousie University, Halifax, Nova Scotia, CAN- <strong>Pain</strong>, <strong>Pain</strong> Go Away: Helping Children with <strong>Pain</strong>.Website: http://pediatric-pain.ca/files/02/18/PPGA2003.pdf- Making Cancer Less <strong>Pain</strong>ful: A Handbook for Parents.Website: http://pediatric-pain.ca/files/01/95/MakingCancerLess<strong>Pain</strong>ful.pdf.13. Pediatric <strong>Pain</strong> & Symptom Management Algorithms for Palliative Care- A pocket-sized book that has dozens <strong>of</strong> symptom management algorithms for hospice and palliative care. This is a bookwith core information needed for medical pr<strong>of</strong>essionals working with pediatric hospice, home care, palliative careresource teams, oncology services, and long-term care facilities.Website: http://www.intelli-card.com/hospicekids.html.Guidelines/Clinical Pathways1. CRIES Tool - Judy Bildner, Neonatal Clinical Nurse Specialist; University Hospital & Clinics, Children’s Hospital, Columbia, MO- Behavioral assessment tool for pain in neonates. Includes self-learning module and documentation forms.Website: http://prc.coh.org/pdf/CRIES.pdf.2. FLACC Scale (Face, Legs, Activity, Cry, Consolability) - CS Mott Children’s Hospital, University <strong>of</strong> Michigan Medical <strong>Center</strong>- Behavior assessment scale for use in non-verbal children or others unable to provide reports <strong>of</strong> pain. Reliability andvalidity information provided at http://www.childcancerpain.org/content.cfm?content=assess08.64
3. Neonatal <strong>Pain</strong>, Agitation, & Sedation Scale (N-PASS) - Hummel & Puchalski- The N-PASS is a valid and reliable clinical pain/agitation and sedation tool for neonates. Nurses find the N-PASSeasy to use clinically, facilitating documentation and management <strong>of</strong> pain and sedation.Website: http://www.n-pass.com/assesment_table.html.4. Pediatric Clinical Practice Guidelines & Policies Book/CD Set, 11 th Edition - American Academy <strong>of</strong> Pediatrics- Have the latest clinical practice guidelines and policies at your fingertips with both the book and the easy-search CD.Website: https://www.nfaap.org/netFORUM/eweb/DynamicPage.aspx?webcode=aapbks_productdetail&key=a507f8bb-314f-4611-bacb-e1688d44b5e1.5. Pediatric Nurses’ Knowledge and Attitudes Survey Regarding <strong>Pain</strong> – © Manworren- Instrument to access pediatric nurses’ knowledge and attitudes regarding pain in children. Answer key also provided.Contact: Renee Manworren, MS, RN-BC, CNS, Director, Clinical Practice Development, Texas Scottish Rite Hospitalfor Children, 2222 Welborn St, Dallas, TX 75219, 214.559.8502, Renee.Manworren@tsrh.org.Website: http:// prc.coh.org/pdf/ped_KA_survey.pdf.Answer key: http://prc.coh.org/pdf/ped_KA_key.pdf.6. Pediatric Nurses’ Knowledge and Attitudes Survey – © Manworren and Shriners Hospitals for Children, Version 2002- Modified Pediatric Nurses Knowledge and Attitudes Survey (PNKAS) regarding pain in burns, orthopedics and spinal cordinjuries. The answer key is also included.Website: http://prc.coh.org/pdf/PNKAS-2002.pdf. Answer key website: http://prc.coh.org/pdf/PNKAS-AK2002.pdf.7. Paediatric <strong>Pain</strong> Pr<strong>of</strong>ile - Institute <strong>of</strong> Child Health, University College, London and Royal College <strong>of</strong> Nursing Institute- The Paediatric <strong>Pain</strong> Pr<strong>of</strong>ile (PPP) is a behaviour rating scale for assessing pain in children with severe physicaland learning impairments. Website: http://www.pppr<strong>of</strong>ile.org.uk/.8. Wong-Baker Faces <strong>Pain</strong> Rating Scale – Donna Wong & Connie Baker- Translations <strong>of</strong> the Wong-Baker Faces <strong>Pain</strong> Rating Scale ($5.00/copy)Website: http://www3.us.elsevierhealth.com/WOW/.Other Organizations LinksAmerican Academy <strong>of</strong> PediatricsAssociation <strong>of</strong> Pediatric Hematology/Oncology NursesAssociation <strong>of</strong> Pediatric Oncology Social WorkersBandaides and Blackboards<strong>Center</strong> to Advance Palliative Care (CAPC) CustomizedTraining for Pediatric Palliative Care Programs<strong>Center</strong> for Advanced Illness Coordinated CareChild & Adolescent Health (AHRQ)Children’s Hospice InternationalChildren’s Project on Palliative/Hospice Services (ChiPPS)Compassion BooksCompassionate Friends, After a Child DiesCureSearchEnd-<strong>of</strong>-Life Care for ChildrenEnd <strong>of</strong> Life Nursing Education Consortium (ELNEC)Families <strong>of</strong> Spinal Muscular AtrophyGriefnet.orgInitiative for Pediatric Palliative Care.International Children’s Palliative Care NetworkInternational Loving Touch Foundation, Inchttp://www.aap.orghttp://www.aphon.orghttp://www.aposw.orghttp://www.lehman.cuny.edu/faculty/jfleitas/bandaides/http://www.capc.org/palliative-care-leadership-initiative/overviewhttp://www.coordinatedcare.nethttp://www.ahrq.gov/child/http://www.chionline.orghttp://www.nhpco.org/i4a/pages/index.cfm?pageid=3409http://www.compassionbooks.com/http://www.compassionatefriends.orghttp://www.curesearch.org/http://www.childend<strong>of</strong>lifecare.org/http://www.aacn.nche.edu/ELNEC/http://www.fsma.orghttp://www.griefnet.org/support/sg2.htmlhttp://www.ippcweb.org/home.asphttp://www.icpcn.org.ukhttp://www.lovingtouch.com/65
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CITY OF HOPE PAIN & PALLIATIVE CARE
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24. Krouse, R. S., Grant, M., Rawl,
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58. Bhatia, S., Robison, L. L., Fra
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30. Handbook of Cancer Survivorship
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Journey ForwardLeukemia & Lymphoma
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