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82. Welch, S. B. (2008). Can the death of a child be good? Journal of Pediatric Nursing, 23(2), 120-125.DOI:10.1016/j.pedn.2007.08.015.83. Hospice Care For Children, 3rd Edition- Armstrong-Dailey, A., & Zarbock, S. (2008). NY: Oxford University Press. ISBN #: 0195340701.Website: http://www.oup.com/us/catalog/general/subject/Medicine/PalliativeMedicine/?view=usa&ci=9780195340709.84. Empty Arms: Coping After Miscarriage, Stillbirth and Infant Death- Ilse, S. (2008). MN: Wintergreen Press. ISBN: 978-0960945665Website: http://www.wintergreenpress.com/catalog_store_mal.htm85. Living with Grief: Children and Adolescents- Doka, K. (2008). DC: Hospice Foundation of America. ISBN #: 978-1-893349-09-4Website: http://store.hospicefoundation.org/product.php?productid=140&cat=2&page=1.86. Baker, J. N., Barfield, R., Hinds, P. S., & Kane, J. R. (2007). A process to facilitate decision making in pediatric stem celltransplantation: The individualized care planning and coordination model. Biology of Blood and Marrow Transplantation, 13,245-254. DOI: 10.1016/j.bbmt.2006.11.013.87. Kelly, K. M. (2007). Complementary and alternative medicines for use in supportive care in pediatric cancer. Supportive Carein Cancer, 15, 457-460. DOI 10.1007/s00520-006-0162-2.88. A Guide for Fathers: When a Baby Dies- Nelson, T. (2007). MN: Tim Nelson. ISBN: 978-0965084840Website: http://www.amazon.com/Guide-Fathers-When-Baby-Dies/dp/0965084841/ref=cm_cr_pr_product_top#_.89. Home Care for Seriously Ill Children: A Manual for Parents- Orloff, S., & Huff, S. (2007). VA: Children’s Hospice International. ISBN #: 0932321046.Website: http://www.chionline.org/publications/programs_support.php.90. Pediatric Oncology Nursing: Scope & Standards of Practice- Nelson, M. B., Forte, K., Freiburg, D., Hooke, M. C., Patterson, K., & O'Neill, J. B. (2007). IL: Association of PediatricHematology/Oncology Nurses (APHON). ISBN #: 0966619307.Website: http://www.association-office.com/APHON/etools/products/showdescr.cfm?primary_id=2009-263.91. Hinds, P. S., Burghen, E. A., Haase, J. E., & Phillips, C. R. (2006). Advances in defining, conceptualizing, and measuring qualityof life in pediatric patients with cancer. Oncology Nursing Forum, 33(1-Suppl.), 23-29. DOI: 10.1188/06.0NF.S1.23-29.92. Herr, K., Coyne, P., Manworren, R., McCaffery, M., Merkel, S., Pelosi-Kelly, J. & Wild, L. (2006). Pain assessment in thenonverbal patient: Position statement with clinical practice recommendations. Pain Management Nursing, 7(2), 44-52.Website: http://www.aspmn.org/Organization/documents/NonverbalJournalFINAL.pdf.93. Tear Soup: A Recipe for Healing After Loss- Schweibert, P., & DeKlyen, C. (2005). OR: Grief Watch. ISBN: 0961519762.Website: http://www.griefwatch.com/tearsoup/. Also available in Video and DVD.94. Children with Cancer: The Quality of Life- Eiser, C. (2004). Mahwah, NJ: Lawrence Erlbaum Associates, Inc. ISBN: 080583544.Website: http://www.amazon.com/Children-Cancer-Quality-Christine-Eiser/dp/080583544X.95. Essentials of Pediatric Oncology Nursing: A Core Curriculum (2 nd Edition)- Kline, N. E. (2004). IL: Association of Pediatric Nurses. ISBN: 0966619382.Website: http://www.apon.org/files/public/05_prodbro.pdf.96. When Children Die: Improving Palliative and End-of-Life Care for Children and Their Families- Field, M., & Behrman, R. (2003). DC: The National Academies Press. ISBN: 0309090768.Read it online at http://www.nap.edu/books/0309084377/html/index.html.97. Hannah’s Gift: Lessons from a Life Fully Lived- Housden, M. (2003). NY: Bantam. ISBN: 0553381229.Website: http://www.amazon.com/Hannahs-Gift-Lessons-Fully-Lived/dp/0553381229.62
98. Nursing Care of Children & Adolescents with Cancer, 3 rd Edition- Association of Pediatric Oncology Nurses (APON). (2002). PA: Saunders. ISBN: 0721687180.Website: http://www.association-office.com/APHON/etools/products/showdescr.cfm?primary_id=2010-264.99. Shelter from the Storm: Caring For A Child With A Life-threatening Condition- Hilden, J., Tobin, D., & Lindsay, K. (2002). CO: Perseus Book Group. ISBN: 0738205346.Website: http://www.perseusbooksgroup.com/perseus/book_detail.jsp?isbn=0738205346.100. When Children Grieve: For Adults to Help Children Deal with Death, Divorce, Pet Loss, Moving, and Other Losses- James, J., Friedman, R., & Matthews, L. L. (2002). NY: HarperCollins Publishers. ISBN: 0060084294.Website: http://www.harpercollins.com/books/When-Children-Grieve/?isbn=9780060084295.101. Living with Childhood Cancer: A Practical Guide to Help Families Cope- Woznick, L. A. & Goodheart, C. D. (2001). DC: American Psychological Association. ISBN: 1557988722.Website: http://books.apa.org/books.cfm?id=4441001.102. Healing Children’s Grief: Surviving a Parent’s Death from Cancer- Christ, G. (2000). NY: Oxford University Press. ISBN: 0195105915.Website: http://www.oup.com/us/catalog/general/subject/SocialWork/?view=usa&ci=9780195105919.103. Guiding Your Child Through Grief- Emswiler, J., & Emswiler, M.A. (2000). NY: Bantam. ISBN: 0553380257.Website: http://www.randomhouse.com/catalog/display.pperl/9780553380255.html.104. Life & Loss: A Guide to Help Grieving Children, 2 nd Edition- Goldman, L. (2000). NY: Taylor & Francis Group. ISBN: 1559590521.Website: http://www.amazon.com/Life-Loss-Guide-Grieving-Children/dp/1560328614.Educational Materials/Curriculum1. APON’s Foundations of Pediatric Hematology/Oncology Nursing: A Comprehensive Orientation & Review Course- This course is designed to provide participants with an overview of nursing issues involved in caring for children andadolescents with cancer and blood diseases. A course evaluation form and posttest are provided to assist in measuringthe effectiveness of the program.Website: http://persweb.connect2amc.com/aphon/OnlineStore/ProductDetail/tabid/55/Default.aspx?ProductId=6.2. Children’s Cancer Pain Can Be Relieved, A Guide for Parents and Families - Wisconsin Cancer Pain Initiative- A 12-page booklet in Q&A format. Website: http://trc.wisc.edu/items.asp?itemID=15.3. Compendium of Pediatric Palliative Care - National Hospice and Palliative Care Organization (NHPCO)- The compendium is divided into four sections covering the major elements of the field: Models of PediatricPalliative Care; Communication, Ethics, and Decision Making; Management of Pain and Other Symptoms inChildren; and Psychosocial and Spiritual Care of Children Living with Life-Threatening Conditions.Website: http://iweb.nhpco.org/iweb/Purchase/ProductDetail.aspx?Product_code=810030.4. Essentials of Pediatric Oncology Nursing: A Core Curriculum, 3 rd Edition - Association of Pediatric Oncology Nurses- Written and edited by the top experts in the field of pediatric hematology/oncology nursing, the Core Curriculumcovers every component of the job.Website: http://persweb.connect2amc.com/aphon/OnlineStore/ProductDetail/tabid/55/Default.aspx?ProductId=22.5. Fast Facts and Concepts – End of Life/Palliative Education Resource Center (EPERC), Milwaukee, WIFor a complete list of Fast Facts http://www.mcw.edu/EPERC/FastFactsandConcepts.- Grief in Children and Developmental Concepts of Death #138- Pediatric Pain Assessment Scales #1176. Initiative for Pediatric Palliative Care (IPPC)- IPPC curriculum materials are available—free of charge—through their website. The modules are designed to facilitateindividual clinician learning and strengthen an institution’s programs and services. The six modules include: Engagingwith Children and Families; Relieving Pain and Other Symptoms; Analyzing Ethical Challenges in Pediatric End-of-LifeDecision Making; Responding to Suffering and Bereavement; Improving Communication and StrengtheningRelationships; and Establishing Continuity of Care. Website: http://www.ippcweb.org/curriculum.asp.63
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CITY OF HOPE PAIN & PALLIATIVE CARE
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24. Krouse, R. S., Grant, M., Rawl,
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58. Bhatia, S., Robison, L. L., Fra
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30. Handbook of Cancer Survivorship
Page 11 and 12: Journey ForwardLeukemia & Lymphoma
Page 13 and 14: 15. Ando, M., Morita, T., Okamoto,
Page 15 and 16: 6. GWish SOERCE: Educational and cl
Page 17 and 18: 15. Grant, M., Elk, R., Ferrell, B.
Page 19 and 20: 50. Ferrell, B. R., Virani, R., Gra
Page 21 and 22: 16. Harper, J., Hinds, P. S., Baker
Page 23 and 24: their end-of-life wishes. CE credit
Page 25 and 26: 4. End-Stage Renal Disease Workgrou
Page 27 and 28: 5. American Society of Pain Managem
Page 29 and 30: 9. Augustine, M. M., & Pawlik, T. M
Page 31 and 32: 2. Fast Facts and Concepts - End of
Page 33 and 34: 10. Sullivan, M., & Ferrell, B. (20
Page 35 and 36: - Subcutaneous Opioid Infusions, #0
Page 37 and 38: 16. Reflex Sympathetic Dystrophy/Co
Page 39 and 40: 8. Park, H. (2010). Effect of music
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Page 43 and 44: V. Special PopulationsA. Family Car
Page 45 and 46: 19. The Caregiver’s Path to Compa
Page 47 and 48: 52. Salmon, J. R., Kwak, J., Acquav
Page 49 and 50: Cancer Hope NetworkCancer: You can
Page 51 and 52: 4. Memorial Sloan-Kettering Cancer
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Page 79 and 80: 6. Fibromyalgia: The Complete Guide
Page 81 and 82: M.A.G.N.U.M. Awareness GroupMigrain
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Page 87 and 88: 16. Ferrell, B. R., & Rivera, L. M.
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Page 91 and 92: 25. Patient Medication Information
Page 93 and 94: 5. Suffering- Ferrell, B. R. (1996)
Page 95 and 96: Other Organizations LinksCenter to
Page 97 and 98: Emerging Solutions in Pain Legal an
Page 99 and 100: 17. Memorial Symptom Assessment Sca
Page 101 and 102: 32. Toolkit of Instruments to Measu
Page 103 and 104: 28. Pain Medicine - official journa
Page 105 and 106: American Headache Society - http://
Page 107 and 108: End-of-Life ~ AARP - http://www.aar
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Page 111 and 112: United Hospital Fund - http://www.u
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