Alzheimer’s Disease Education & Referral (ADEAR)American Assisted Living Nurses AssociationAmerican Association for Long Term Care NursingAmerican Chronic <strong>Pain</strong> AssociationAmerican Geriatrics SocietyAmerican Society on AgingCaregiving.comCaring.comClinical GeriatricsGeriatric <strong>Pain</strong>GeriPal: A Geriatrics and Palliative Care BlogGerontological Advanced Practice Nurses AssociationGerontological Society <strong>of</strong> AmericaIn the Face <strong>of</strong> <strong>Pain</strong>Long Term Care Planning NetworkMySeniorCare.comA community for senior housing, home care & healthM.I.S.S. FoundationNational Family Caregivers AssociationNational Gerontological Nursing AssociationNational Institute on AgingNurses Improving Care for Healthsystem EldersRheumatoid Arthritis (RA) Learning <strong>Center</strong>SeniorNetStop<strong>Pain</strong>.orgTopics for Older Persons (National Coalition for CancerSurvivorship)http://www.nia.nih.gov/alzheimershttp://www.alnursing.org/http://ltcnursing.org/http://www.theacpa.org/http://www.americangeriatrics.orghttp://www.asaging.orghttp://caregiving.com/http://www.caring.com/http://www.clinicalgeriatrics.comhttp://www.geriatricpain.org/Pages/home.aspxhttp://www.geripal.org/https://www.gapna.org/cgi-bin/WebObjects/GAPNAhttp://www.geron.org/http://intheface<strong>of</strong>pain.com/http://www.ltcplanningnetwork.com/http://www.myseniorcare.com/http://www.missfoundation.org/index.htmlhttp://nfcacares.org/http://www.ngna.org/http://www.nih.gov/nia/http://nicheprogram.org/http://www.healthline.com/search?q1=rheumatoid-arthritishttp://www.seniornet.orghttp://www.stoppain.org/http://www.canceradvocacy.org/toolbox/older-persons/Key References1. Bjoro, K., & Decker, S. (2006). Tools for assessment <strong>of</strong> pain in nonverbal older adults with dementia: a state-<strong>of</strong>-the-sciencereview. Journal <strong>of</strong> <strong>Pain</strong> & Symptom Management, 31(2), 170-191. DOI: 10.1016/j.jpainsymman.2005.07.001.2. Herr, K. (2002). <strong>Pain</strong> assessment in cognitively impaired older adults. American Journal <strong>of</strong> Nursing, 102(12), 65-68.V. Special PopulationsC. PediatricsSection Description: This section covers perinatal through young adults and includes City <strong>of</strong> Hope publications, recommendedbooks, studies, informational articles, and pamphlets as well as policy statements from pr<strong>of</strong>essional organizations on pediatrictopics. Topics include pain & symptom management, palliative and hospice care, spirituality, ethics, advance directives, grief &bereavement. Additional sections include educational materials and related organizational links.Additional assessment tools for pediatrics can be found under the Section IX. Research Instruments/<strong>Resource</strong>s.City <strong>of</strong> Hope Publications1. Cooke, L., Chung, C., & Grant, M. (2011). Psychosocial care for adolescent and young adult hematopoietic cell transplantpatients. Journal <strong>of</strong> Psychosocial Oncology, 29(4), 394-414. DOI: 10.1080/07347332.2011.582636.56
2. Patel, S. K., Mullins, W., Turk, A., Dekel, N., Kinjo, C., & Sato, J. K. (2010). Distress screening, rater agreement, and services inpediatric oncology. Psycho-Oncology, EPub. DOI: 10.1002/pon.3. Landier, W., & Tse, A. M. (2010). Use <strong>of</strong> complementary and alternative medical interventions for the management <strong>of</strong> procedurerelatedpain, anxiety, and distress in pediatric oncology: An integrative review. Journal <strong>of</strong> Pediatric Nursing, 25(6), 566-579.DOI:10.1016/j.pedn.2010.01.009.4. Casillas, J., Kahn, K. L., Doose, M., Landier, W., Bhatia, S., Hernandez, J., & Zeltzer, L. K. (2010). Transitioning childhoodcancer survivors to adult-centered healthcare: Insights from parents, adolescent, and young adult survivors. Psycho-Oncology, 19,982-990. DOI: 10.1002/pon.1650.5. Harrington Jacobs, H., Ferrell, B. R., Virani, R., & Malloy, P. (2009). Appraisal <strong>of</strong> the pediatric end-<strong>of</strong>-life nursing educationconsortium training program. Journal <strong>of</strong> Pediatric Nursing, 24(3), 216-221. DOI: 10.1016/j.pedn.2008.03.001.6. Landier, W., & Bhatia, S. (2008). Cancer survivorship: A pediatric perspective. The Oncologist, 13, 1181-1192.DOI: 10.1634/theoncologist.2008-0104.7. Malloy, P., Sumner, E., Virani, R., & Ferrell, B. R. (2007). End-<strong>of</strong>-life nursing education consortium for pediatric palliative care(ELNEC-PPC). MCN: The American Journal <strong>of</strong> Maternal/Child Nursing, 32(5), 298-302.DOI: 10.1097/01.NMC.0000288000.87629.de.8. Malloy, P., Ferrell, B. R., Virani, R., Wilson, K., Uman, G. (2006). Palliative care education for pediatric nurses. PediatricNursing, 32(6), 555-561.9. Landier, W., Wallace, W. H. B., & Hudson, M. M. (2006). Long-term follow-up <strong>of</strong> pediatric cancer survivors: Education,surveillance, and screening. Pediatric Blood Cancer, 46, 149-158. DOI: 10.1002/pbc.20612.Recommended Publications1. Lindley, L. C. (2011). Healthcare reform and concurrent curative care for terminally ill children: A policy analysis. Journal <strong>of</strong>Hospice and Palliative Nursing, 13(3), 81-88. DOI: 10.1097/NJH.0b013e318202e308.2. Cantrell, M. A. (2011). A narrative review summarizing the state <strong>of</strong> the evidence on the health-related quality <strong>of</strong> life amongchildhood cancer survivors. Journal <strong>of</strong> Pediatric Oncology Nursing, 28(2), 75-82. DOI: 10.1177/1043454210377901.3. Fitchett, G., Lyndes, K. A., Cadge, W., Berlinger, N., Flanagan, E., & Misasi, J. (2011). The role <strong>of</strong> pr<strong>of</strong>essional chaplains onpediatric palliative care teams: Perspectives from physicians and chaplains. Journal <strong>of</strong> Palliative Medicine, 14(6), 704-707.DOI: 10.1089/jpm.2010.0523.4. Anghelescu, D. L., Oaks, L. L., & Hankins, G. M. (2011). Treatment <strong>of</strong> pain in children after limb-sparing surgery: Aninstitution’s 26-year experience. <strong>Pain</strong> Management Nursing, 12(2), 82-94. DOI:10.1016/j.pmn.2010.02.002.5. Puckey, M., & Bush, A. (2011). “Passage to paradise” ethics and end-<strong>of</strong>-life decisions in children. Paediatric RespiratoryReviews, 12, 139-143. DOI:10.1016/j.prrv.2010.10.003.6. Rogers, S. K., Gomez, C. F., Carpenter, P., Farley, J., Holson, D., Markowitz, M., et al. (2011). Quality <strong>of</strong> life for children withlife-limiting and life-threatening illnesses: Description and evaluation <strong>of</strong> a regional, collaborative model for pediatric palliativecare. American Journal <strong>of</strong> Hospice & Palliative Medicine, 28(3), 161-170. DOI: 10.1177/1049909110380594.7. Simpson, E. C. & Penrose, C. V. (2011). Compassionate extubation in children at hospice and home. International Journal <strong>of</strong>Palliative Nursing, 17(4), 164-169.8. Griffiths, M., Schweitzer, R., & Yates, P. (2011). Childhood experiences <strong>of</strong> cancer: An interpretative phenomenological analysisapproach. Journal <strong>of</strong> Pediatric Oncology Nursing, 28(2), 83-92. DOI: 10.1177/1043454210377902.9. Johnston, C. C., Fernandes, A. M., & Campbell-Yeo, M. (2011). <strong>Pain</strong> in neonates is different. <strong>Pain</strong>, 152, S65-S73.DOI: 10.1016/j.pain.2010.10.008.10. Conte, T. M., (2011). Pediatric oncology nurse and grief education: A telephone survey. Journal <strong>of</strong> Pediatric Oncology Nursing,28(2), 93-99. DOI: 10.1177/1043454210377900.57
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End-of-Life ~ AARP - http://www.aar
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National Children’s Cancer Societ
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United Hospital Fund - http://www.u