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- Helping Surrogates Make Decisions #226- Hospice Referral: Moving from Hospital to Home #139- Implementation of a Family Presence During Resuscitation Protocol #233- Information for Patients and Families About Ventilator Withdrawal, 2 nd Ed. #35- Preparing for the Family Meeting #222- Responding to Emotion in Family Meetings #224- Teaching the Family What to Expect When the Patient is Dying #149- The Family Meeting: Causes of Conflict #225- The Family Meeting: End of Life Goal Setting and Future Planning #227- The Family Meeting: Starting the Conversation #223- What Do I Tell the Children, 2 nd Ed. #47Website: http://www.mcw.edu/EPERC/FastFactsandConcepts.2. Partners in Healing- This site provides practical tools, encouragement and inspiration to those wanting to be a source of healing for a lovedone. Book, instructional DVD, and CD. Focuses on simple massage and touch techniques that caregivers can use for theirloved ones.Website: http://www.partnersinhealing.net/index.htm.3. And Thou Shalt Honor- A PBS Series, forums and support for caregivers, patients, and health care professionals.Website: http://www.pbs.org/thoushalthonor/caregivers/index.html4. Averting the Caregiving Crisis: Why We Must Act Now (October 2010)- Rosalynn Carter Institute for CaregivingWebsite: http://www.rosalynncarter.org/UserFiles/File/RCI_Position_Paper100310_Final.pdf.5. Family Caregivers in Cancer: Roles and Challenges—Health Professional Version- National Cancer InstituteWebsite: http://www.cancer.gov/cancertopics/pdq/supportivecare/caregivers/healthprofessional/allpages/print.6. NASW Standards for Social Work Practice with Family Caregivers of Older Adults- National Association of Social WorkersWebsite: http://www.socialworkers.org/practice/standards/NASWFamilyCaregiverStandards.pdf.Other Organizational LinksAging Parents and Elder CareAARP: Caregiving Resource CenterAARP: Valuing the Invaluable: The Economic Valueof Family Caregiving, 2008 updateAmerican Cancer Society (ACS)Caring for the Patient with Cancer at Home: AGuide for Patients and FamiliesListen with Your HeartAmerican College of Physicians Ethics,Professionalism and Human Rights CommitteeInformation Resources for Physicians SupportingFamily CaregiversAssisted Living DirectoryAssociation of Oncology Social WorkResources and Links for Patients and FamiliesCancerCare:CaregiversFinancial Assistancehttp://www.aging-parents-and-elder-care.com/http://www.aarp.org/relationships/caregiving-resource-center/http://www.aarp.org/relationships/caregiving/info-11-2008/i13_caregiving.htmlhttp://www.cancer.orghttp://www.cancer.org/Treatment/TreatmentsandSideEffects/PhysicalSideEffects/DealingwithSymptomsatHome/caring-for-the-patient-withcancer-at-home-treatment-at-homehttp://www.cancer.org/Treatment/UnderstandingYourDiagnosis/TalkingaboutCancer/ListenwithYourHeart/indexhttp://www.acponline.org/running_practice/ethics/issues/policy/caregivers_appendix.pdfhttp://www.assisted-living-directory.com/http://www.aosw.org/html/patfam-links.phphttp://www.cancercare.org/http://www.cancercare.org/get_help/loved_one.phphttp://www.cancercare.org/get_help/assistance/cc_financial.php48
Cancer Hope NetworkCancer: You can talk to someone who’s been thereAll About HopeCaregiver.comAn Interview with Cokie Roberts about caregiversCaregiver Resource DirectoryCaregiving.comCareguideCaring.comFamilies Facing CancerFamily Caregiver AllianceFamily Caregiver Support NetworkFamily Caregiving 101Full Circle of CareInternational Palliative Care Family CarerResearch CollaborationJoe’s House: A Lodging Guide for Cancer PatientsJourney ForwardLeukemia & Lymphoma Society:Long-Distance CaregivingCaregivers’ Guide for Bone Marrow/Stem CellTransplant: Practical PerspectiveLong Term Care Planning NetworkNational Alliance for CaregivingNational Cancer Institute:Caring for the CaregiverCoping with Cancer: For Caregivers, Family, FriendsDeep Water: Making Sense of a Cancer Diagnosis(YouTube video)Facing Forward: Life After Cancer TreatmentFamily Caregivers in Cancer: Roles & ChallengesFactors to Consider in Caregiver AssessmentWhen Someone You Love Has Advanced CancerWhen Someone You Love Has Completed CancerTreatmentWhen Someone You Love Is Being Treated forCancerWho Is a Caregiver?National Coalition for Cancer SurvivorshipThe Cancer Survival ToolboxNational Comprehensive Cancer Network (NCCN)About: Caregiver Concerns ColumnAsk Jai: Advice for Caregivers (right side of page)National Family Caregivers AssociationNational Marrow Donor ProgramNavigating CancerCancer Caregiver Survey Resultshttp://www.cancerhopenetwork.org/index.php?page=homehttp://www.cancerhopenetwork.org/index.php?page=brochureshttp://www.cancerhopenetwork.org/index.php?page=brochureshttp://www.caregiver.comhttp://www.caregiver.com/articles/interviews/cokie_roberts_interview.htmhttp://www.netofcare.org/crd/resource_form.asphttp://www.caregiving.comhttp://www.thecareguide.com/Home.aspxhttp://www.caring.com/http://familiesfacingcancer.org/http://www.caregiver.org/caregiver/jsp/home.jsphttp://www.caregiversupportnetwork.org/default.asp?id=1http://www.familycaregiving101.org/http://www.fullcirclecare.org/http://www.centreforpallcare.org/index.php/research/ipcfcrc/http://www.joeshouse.org/http://journeyforward.org/http://www.lls.org/diseaseinformation/forcaregivers/longdistancecaregiving/http://www.lls.org/resourcecenter/suggestedreading/adultpatientcaregivers/caregiving/caregiversguideforbonemarrowhttp://www.ltcplanningnetwork.com/http://www.caregiving.org/http://www.cancer.gov/cancertopics/coping/caring-for-the-caregiver.pdfhttp://www.cancer.gov/cancertopics/coping/familyfriendshttp://www.cancer.gov/cancertopics/coping/life-after-treatmenthttp://www.cancer.gov/cancertopics/pdq/supportivecare/caregivershttp://www.cancer.gov/cancertopics/pdq/supportivecare/caregivers/ HealthProfessional/page6http://www.cancer.gov/cancertopics/coping/when-someone-you-lovehas-advanced-cancerhttp://www.cancer.gov/cancertopics/coping/someone-you-lovecompleted-cancer-treatment.pdfhttp://www.cancer.gov/cancertopics/coping/when-someone-you-love-istreatedhttp://www.cancer.gov/cancertopics/coping/caring-for-the-caregiverhttp://www.canceradvocacy.orghttp://www.canceradvocacy.org/toolbox/http://www.nccn.com/http://www.nccn.org/about/news/ebulletin/2011-02-07/jai_pausch.asphttp://www.nccn.com/http://www.nfcacares.orghttp://www.marrow.org/PATIENT/Caregiving/index.htmlhttp://www.navigatingcancer.com/http://www.navigatingcancer.com/caregiver_survey_results49
Page 1 and 2: August, 2012 edition(updated monthl
Page 3 and 4: CITY OF HOPE PAIN & PALLIATIVE CARE
Page 5 and 6: 24. Krouse, R. S., Grant, M., Rawl,
Page 7 and 8: 58. Bhatia, S., Robison, L. L., Fra
Page 9 and 10: 30. Handbook of Cancer Survivorship
Page 11 and 12: Journey ForwardLeukemia & Lymphoma
Page 13 and 14: 15. Ando, M., Morita, T., Okamoto,
Page 15 and 16: 6. GWish SOERCE: Educational and cl
Page 17 and 18: 15. Grant, M., Elk, R., Ferrell, B.
Page 19 and 20: 50. Ferrell, B. R., Virani, R., Gra
Page 21 and 22: 16. Harper, J., Hinds, P. S., Baker
Page 23 and 24: their end-of-life wishes. CE credit
Page 25 and 26: 4. End-Stage Renal Disease Workgrou
Page 27 and 28: 5. American Society of Pain Managem
Page 29 and 30: 9. Augustine, M. M., & Pawlik, T. M
Page 31 and 32: 2. Fast Facts and Concepts - End of
Page 33 and 34: 10. Sullivan, M., & Ferrell, B. (20
Page 35 and 36: - Subcutaneous Opioid Infusions, #0
Page 37 and 38: 16. Reflex Sympathetic Dystrophy/Co
Page 39 and 40: 8. Park, H. (2010). Effect of music
Page 41 and 42: 44. Barnes, P. M., Powell-Griner, E
Page 43 and 44: V. Special PopulationsA. Family Car
Page 45 and 46: 19. The Caregiver’s Path to Compa
Page 47: 52. Salmon, J. R., Kwak, J., Acquav
Page 51 and 52: 4. Memorial Sloan-Kettering Cancer
Page 53 and 54: 3. Kelly, K., Thrane, S., Virani, R
Page 55 and 56: 3. Pain Care Fast Facts: 5-Minute C
Page 57 and 58: 2. Patel, S. K., Mullins, W., Turk,
Page 59 and 60: 29. Fraser, J., Harris, N., Berring
Page 61 and 62: 64. Schiff, D., Klin, C., Meltzer,
Page 63 and 64: 98. Nursing Care of Children & Adol
Page 65 and 66: 3. Neonatal Pain, Agitation, & Seda
Page 67 and 68: - The Use of Pediatric Sedation and
Page 69 and 70: 24. DeSanto-Madeya, S., Nilsson, M.
Page 71 and 72: 2. Fast Facts and Concepts - End of
Page 73 and 74: 13. Zempsky, W. T., Loiselle, K. A.
Page 75 and 76: Sickle Cell Disease Association of
Page 77 and 78: - Bartlett, J. G., Cheever, L. W.,
Page 79 and 80: 6. Fibromyalgia: The Complete Guide
Page 81 and 82: M.A.G.N.U.M. Awareness GroupMigrain
Page 83 and 84: Education Materials/Curriculum1. Ad
Page 85 and 86: - Pain Resource Nurse Role: Descrip
Page 87 and 88: 16. Ferrell, B. R., & Rivera, L. M.
Page 89 and 90: - Coping Financially with the Loss
Page 91 and 92: 25. Patient Medication Information
Page 93 and 94: 5. Suffering- Ferrell, B. R. (1996)
Page 95 and 96: Other Organizations LinksCenter to
Page 97 and 98: Emerging Solutions in Pain Legal an
Page 99 and 100:
17. Memorial Symptom Assessment Sca
Page 101 and 102:
32. Toolkit of Instruments to Measu
Page 103 and 104:
28. Pain Medicine - official journa
Page 105 and 106:
American Headache Society - http://
Page 107 and 108:
End-of-Life ~ AARP - http://www.aar
Page 109 and 110:
National Children’s Cancer Societ
Page 111 and 112:
United Hospital Fund - http://www.u
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