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- Helping Surrogates Make Decisions #226- Hospice Referral: Moving from Hospital to Home #139- Implementation <strong>of</strong> a Family Presence During Resuscitation Protocol #233- Information for Patients and Families About Ventilator Withdrawal, 2 nd Ed. #35- Preparing for the Family Meeting #222- Responding to Emotion in Family Meetings #224- Teaching the Family What to Expect When the Patient is Dying #149- The Family Meeting: Causes <strong>of</strong> Conflict #225- The Family Meeting: End <strong>of</strong> Life Goal Setting and Future Planning #227- The Family Meeting: Starting the Conversation #223- What Do I Tell the Children, 2 nd Ed. #47Website: http://www.mcw.edu/EPERC/FastFactsandConcepts.2. Partners in Healing- This site provides practical tools, encouragement and inspiration to those wanting to be a source <strong>of</strong> healing for a lovedone. Book, instructional DVD, and CD. Focuses on simple massage and touch techniques that caregivers can use for theirloved ones.Website: http://www.partnersinhealing.net/index.htm.3. And Thou Shalt Honor- A PBS Series, forums and support for caregivers, patients, and health care pr<strong>of</strong>essionals.Website: http://www.pbs.org/thoushalthonor/caregivers/index.html4. Averting the Caregiving Crisis: Why We Must Act Now (October 2010)- Rosalynn Carter Institute for CaregivingWebsite: http://www.rosalynncarter.org/UserFiles/File/RCI_Position_Paper100310_Final.pdf.5. Family Caregivers in Cancer: Roles and Challenges—Health Pr<strong>of</strong>essional Version- National Cancer InstituteWebsite: http://www.cancer.gov/cancertopics/pdq/supportivecare/caregivers/healthpr<strong>of</strong>essional/allpages/print.6. NASW Standards for Social Work Practice with Family Caregivers <strong>of</strong> Older Adults- National Association <strong>of</strong> Social WorkersWebsite: http://www.socialworkers.org/practice/standards/NASWFamilyCaregiverStandards.pdf.Other Organizational LinksAging Parents and Elder CareAARP: Caregiving <strong>Resource</strong> <strong>Center</strong>AARP: Valuing the Invaluable: The Economic Value<strong>of</strong> Family Caregiving, 2008 updateAmerican Cancer Society (ACS)Caring for the Patient with Cancer at Home: AGuide for Patients and FamiliesListen with Your HeartAmerican College <strong>of</strong> Physicians Ethics,Pr<strong>of</strong>essionalism and Human Rights CommitteeInformation <strong>Resource</strong>s for Physicians SupportingFamily CaregiversAssisted Living DirectoryAssociation <strong>of</strong> Oncology Social Work<strong>Resource</strong>s and Links for Patients and FamiliesCancerCare:CaregiversFinancial Assistancehttp://www.aging-parents-and-elder-care.com/http://www.aarp.org/relationships/caregiving-resource-center/http://www.aarp.org/relationships/caregiving/info-11-2008/i13_caregiving.htmlhttp://www.cancer.orghttp://www.cancer.org/Treatment/TreatmentsandSideEffects/PhysicalSideEffects/DealingwithSymptomsatHome/caring-for-the-patient-withcancer-at-home-treatment-at-homehttp://www.cancer.org/Treatment/UnderstandingYourDiagnosis/TalkingaboutCancer/ListenwithYourHeart/indexhttp://www.acponline.org/running_practice/ethics/issues/policy/caregivers_appendix.pdfhttp://www.assisted-living-directory.com/http://www.aosw.org/html/patfam-links.phphttp://www.cancercare.org/http://www.cancercare.org/get_help/loved_one.phphttp://www.cancercare.org/get_help/assistance/cc_financial.php48
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