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V. Special PopulationsA. Family CaregivingSection Description: This section includes publications regarding the experiences of family caregivers in caring for a loved onein pain or at the end- of- life.City of Hope Publications1. Mazanec, P., Daly, B., Ferrell, B. R., Prince-Paul, M. (2011). Lack of communication and control: Experiences of distancecaregivers of parents with advanced cancer. Oncology Nursing Forum, 38(3), 307-313. DOI: 10.1188/11.ONF.307-313.2. Ferrell, B. R., Grant, M., Koczywas, M., Hurria, A., Loscalzo, M., Juarez, G., Otis-Green, S., Uman, G., & Borneman, T. (2011).Family caregiver QOL and self-care concerns in lung cancer. Journal of Clinical Oncology, 29, (15) May 20 Suppl e19606.3. Bevans, M., Castro, K., Prince, P., Shelburne, N., Prachenko, O., Loscalzo, M., et al. (2010). An individualized dyadic problemsolvingeducation intervention for patients and family caregivers during allogeneic hematopoietic stem cell transplantation.Cancer Nursing, 33(2), e24-e32. DOI: 10.1097/NCC.0b013e3181be5e6d.4. Cooke, L., Gemmill, R., Kravits, K., & Grant, M. (2009). Psychological issues of stem cell transplant. Seminars in OncologyNursing, 25(2), 139-150. DOI: 10.1016/j.soncn.2009.03.008.5. Juarez, G., Ferrell, B. R., Uman, G., Podnos, Y., & Wagman, L. D. (2008). Distress and quality of life concerns of familycaregivers of patients undergoing palliative surgery. Cancer Nursing, 31(1), 2-10.DOI: 10.1097/01.NCC.0000305682.13766.c2.6. Muñoz, C., Juarez, G., Muñoz, M. L., Portnow, J., Fineman, I., Badie, B., et al. (2008). The quality of life of patients withmalignant gliomas and their caregivers. Social Work in Health Care, 47(4), 455-478. DOI: 10.1080/00981380802232396.7. Morris, M. E., Grant, M., & Lynch, J. C. (2007). Patient-reported family distress among long-term cancer survivors. CancerNursing, 30(1), 1-8.8. Borneman, T., Chu, D., Wagman, L., Ferrell, B. R., Juarez, G., McCahill, L., & Uman. G. (2003). Concerns of family caregiversof patients with cancer facing palliative surgery for advanced malignancies. Oncology Nursing Forum, 30(6), 997-1005.9. Ferrell, B. R., Chu, D., Wagman, L., Juarez, G., Borneman, T., Cullinane, C., & McCahill, L. (2003). Patient and surgeondecision-making regarding surgery for advanced cancer. Oncology Nursing Forum, 30(6): E106-E114.DOI: 10.1188/03.ONF.E106-E114. Website: http://ons.metapress.com/content/4808g616u1104p29/fulltext.pdf.10. Borneman. T., Stahl, C., Ferrell, B. R., Smith D. (2002). The concept of hope in family caregivers of cancer patients at home.Journal of Hospice and Palliative Nursing, 4(1), 21-33.11. Ferrell, B. R., Ervin, K., Smith. S., Maret, T., Melancon, C. (2002). Family perspectives of ovarian cancer. Cancer Practice,10(6), 269-276.12. Ferrell, B. R. (2001). Pain observed: The experience of pain from the family caregiver’s perspective. Clinics in GeriatricMedicine, 17(3), 595-609.Recommended Publications1. Wittenberg-Lyles, E., Demiris, G., Oliver, D. P., & Burt, S. (2011). Reciprocal suffering: Caregiver concerns during hospice care.Journal of Pain and Symptom Management, 41(2), 383-393. DOI: 10.1016/j.jpainsymman.2010.04.026.2. Oxford Textbook of Palliative Social Work- Altilio, T. & Otis-Green, S. (2011) NY: Oxford University Press. ISBN: 978-0199739110.Chapter 21: Caregivers in Palliative CareChapter 22: Families and Family ConferencingChapter 26: The Why’s and Wherefores of Support GroupsChapter 27: Social Work and Technology: The Software and Hard Drive of Patient and Family CareChapter 37: Palliative Social Work with Older Adults and Their FamiliesChapter 43: Social Work and Child Life: A Family’s Journey with Childhood CancerWebsite: http://www.oup.com/us/catalog/general/subject/Medicine/PalliativeMedicine/?view=usa&ci=9780199739110.43