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End-of-Life/Palliative Education Resource Center (EPERC)European Association for Palliative CareGetpalliativecare.orgGriefnet.orgGrief Recovery Online for ALL Bereaved (GROWW)Growth House, Improving Care for the DyingHarvard Medical School Center for Palliative CareHospice and Palliative Nurses AssociationHospice Foundation of AmericaHospice Home PageHospice For Patients and FamiliesInter-Institutional Collaborating Network on End of Life CareNational Hospice and Palliative Care OrganizationNational Palliative Care Research CenterNational Prison Hospice AssociationOn Our Own Terms: Moyers on DyingPalliative Care NetworkPallipedia: Online Palliative Care DictionaryPathways, Education & Consultation in End of Life CarePromoting Excellence in End-of-Life CareReclaiming the End-of-LifeStop PainSuncoast HospiceSupportive Care CoalitionTIME: Toolkit of Instruments to Measure End-of-Life Carehttp://www.mcw.edu/EPERC/FastFactsandConceptshttp://www.eapcnet.org/http://www.getpalliativecare.orghttp://www.griefnet.org/http://www.groww.org/http://www.growthhouse.org/http://www.hms.harvard.edu/cdi/pallcare/http://www.hpna.org/http://www.hospicefoundation.org/http://www.scu.edu/Hospice/http://www.hospicenet.org/http://growthhouse.org/iicn.htmlhttp://www.nhpco.org/http://www.npcrc.org/http://www.npha.org/http://www.pbs.org/wnet/onourownterms/http://palliativecarenetwork.com/http://pallipedia.org/http://www.pathwayseol.com/http://www.promotingexcellence.org/http://www.ReclaimTheEnd.orghttp://www.stoppain.org/http://www.thehospice.orghttp://www.supportivecarecoalition.org/http://www.chcr.brown.edu/pcoc/toolkit.htmPosition Statements/Standards1. A position statement from American Nursing Leaders- Advanced Practice Nurses Role In Palliative Care Position StatementWebsite: http://www.dyingwell.org/downloads/apnpos.pdf.2. American Academy of Hospice and Palliative Medicine- Access to Palliative Care and Hospice- Clinical Practice Guidelines for Quality Palliative Care- Palliative SedationWebsite: http://www.aahpm.org/positions/default/index.html.3. American Nurses Association (ANA) Position Statements- Assisted Suicide- Foregoing Nutrition and Hydration- Nursing and the Patient Self-Determination Acts- Nursing Care and Do-Not-Resuscitate Decisions- Privacy and ConfidentialityWebsite: http://www.nursingworld.org/EthicsHumanRights.4. American Pain Society Position Statement- Treatment of Pain at the End of LifeWebsite: http://www.ampainsoc.org/advocacy/treatment.htm.26
5. American Society of Pain Management Nurses (ASPMN) Position Statements- Assisted Suicide- Pain Management at the End-of-LifeWebsite: http://www.aspmn.org/Organization/position_papers.htm.6. Hospice and Palliative Nurses Association (HPNA) Position Statements- Artificial Nutrition and Hydration in End-of-Life Care- Complementary Therapies in Palliative Care Nursing Practice- Evidence-Based Practice- Legalization of Assisted Suicide- Pain Management- Palliative Sedation at End-of-Life- Providing Opioids at the End-of-Life- Spiritual Care- Value of Nursing Assistant in End-of-Life Care- Value of Nursing Certification- Value of Professional Nurse in End-of-Life CareWebsite: http://www.hpna.org/DisplayPage.aspx?Title1=Position%20Statements.7. NHPCO Task Force Statement on Ethics of Hospice Participation in Research- This task force statement discusses the important of hospices’ potential contributions to research and describes waysin which characteristics of hospice patients, and hospices’ structure, create ethical challenges that may limit thesecontributions. It concludes by proposing ways in which hospices and national professional organizations can begin toovercome some of these challenges.Website: http://www.liebertonline.com/doi/pdfplus/10.1089/109662101753381566.8. Oncology Nursing Society (ONS) and Association of Oncology Social Work (AOSW) Joint Position Statements- Palliative and End-of-Life CareWebsite: http://www.ons.org/Publications/Positions/EndOfLife.9. Oncology Nursing Society (ONS) and Geriatric Oncology Consortium Joint Position Statement- Cancer Care in the Older AdultWebsite: http://www.ons.org/Publications/Positions/Geriatric/.10. Oncology Nursing Society (ONS) Position Statements - 28 Position Statements- Cancer Pain Management- Quality Cancer Care- The Nurse's Responsibility to the Patient Requesting Assisted SuicideWebsite: http://www.ons.org/publications/positions/.III. Palliative Care/End-of-Life/BereavementA. Palliative SurgerySection Description: This section includes City of Hope publications and other resources and publications related topalliative surgery.City of Hope Publications1. Juarez, G., Ferrell, B. R., Uman, G., Podnos, Y., & Wagman, L. D. (2008). Distress and quality of life concerns of familycaregivers of patients undergoing palliative surgery. Cancer Nursing 31(1), 2-10. DOI: 10.1097/01.NCC.0000305682.13766.c2.2. Smith, D. D., & McCahill, L. E. (2008). Predicting life expectancy and symptom relief following surgery for advancedmalignancy. Annals of Surgical Oncology, 15(12), 3335-3341. DOI: 10.1245/s10434-008-0162-1.3. Podnos, Y. D., & Wagman, L. D. (2007). The surgeon and palliative care. Annals of Surgical Oncology, 14(4), 1257-1263.DOI: 10.1245/s10434-006-9222-6.4. Wagman, L. D. (2007). Progress in palliative surgery—is it a subspecialty? Journal of Surgical Oncology, 96(6), 449-450.DOI: 10.1002/jso.20825.5. Podnos, T. D., Juarez, G., Pameijer, C., Uman, G. C., Ferrell, B. R., & Wagman, L. D. (2007). Surgical palliation of advancedgastrointestinal tumors. Journal of Palliative Medicine. 10(4), 871-876. DOI: 10.1089/jpm.2006.0174.27
Page 1 and 2: August, 2012 edition(updated monthl
Page 3 and 4: CITY OF HOPE PAIN & PALLIATIVE CARE
Page 5 and 6: 24. Krouse, R. S., Grant, M., Rawl,
Page 7 and 8: 58. Bhatia, S., Robison, L. L., Fra
Page 9 and 10: 30. Handbook of Cancer Survivorship
Page 11 and 12: Journey ForwardLeukemia & Lymphoma
Page 13 and 14: 15. Ando, M., Morita, T., Okamoto,
Page 15 and 16: 6. GWish SOERCE: Educational and cl
Page 17 and 18: 15. Grant, M., Elk, R., Ferrell, B.
Page 19 and 20: 50. Ferrell, B. R., Virani, R., Gra
Page 21 and 22: 16. Harper, J., Hinds, P. S., Baker
Page 23 and 24: their end-of-life wishes. CE credit
Page 25: 4. End-Stage Renal Disease Workgrou
Page 29 and 30: 9. Augustine, M. M., & Pawlik, T. M
Page 31 and 32: 2. Fast Facts and Concepts - End of
Page 33 and 34: 10. Sullivan, M., & Ferrell, B. (20
Page 35 and 36: - Subcutaneous Opioid Infusions, #0
Page 37 and 38: 16. Reflex Sympathetic Dystrophy/Co
Page 39 and 40: 8. Park, H. (2010). Effect of music
Page 41 and 42: 44. Barnes, P. M., Powell-Griner, E
Page 43 and 44: V. Special PopulationsA. Family Car
Page 45 and 46: 19. The Caregiver’s Path to Compa
Page 47 and 48: 52. Salmon, J. R., Kwak, J., Acquav
Page 49 and 50: Cancer Hope NetworkCancer: You can
Page 51 and 52: 4. Memorial Sloan-Kettering Cancer
Page 53 and 54: 3. Kelly, K., Thrane, S., Virani, R
Page 55 and 56: 3. Pain Care Fast Facts: 5-Minute C
Page 57 and 58: 2. Patel, S. K., Mullins, W., Turk,
Page 59 and 60: 29. Fraser, J., Harris, N., Berring
Page 61 and 62: 64. Schiff, D., Klin, C., Meltzer,
Page 63 and 64: 98. Nursing Care of Children & Adol
Page 65 and 66: 3. Neonatal Pain, Agitation, & Seda
Page 67 and 68: - The Use of Pediatric Sedation and
Page 69 and 70: 24. DeSanto-Madeya, S., Nilsson, M.
Page 71 and 72: 2. Fast Facts and Concepts - End of
Page 73 and 74: 13. Zempsky, W. T., Loiselle, K. A.
Page 75 and 76: Sickle Cell Disease Association of
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- Bartlett, J. G., Cheever, L. W.,
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6. Fibromyalgia: The Complete Guide
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M.A.G.N.U.M. Awareness GroupMigrain
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Education Materials/Curriculum1. Ad
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- Pain Resource Nurse Role: Descrip
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16. Ferrell, B. R., & Rivera, L. M.
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- Coping Financially with the Loss
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25. Patient Medication Information
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5. Suffering- Ferrell, B. R. (1996)
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Other Organizations LinksCenter to
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Emerging Solutions in Pain Legal an
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17. Memorial Symptom Assessment Sca
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32. Toolkit of Instruments to Measu
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28. Pain Medicine - official journa
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American Headache Society - http://
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End-of-Life ~ AARP - http://www.aar
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National Children’s Cancer Societ
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United Hospital Fund - http://www.u
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