End-<strong>of</strong>-Life/Palliative Education <strong>Resource</strong> <strong>Center</strong> (EPERC)European Association for Palliative CareGetpalliativecare.orgGriefnet.orgGrief Recovery Online for ALL Bereaved (GROWW)Growth House, Improving Care for the DyingHarvard Medical School <strong>Center</strong> for Palliative CareHospice and Palliative Nurses AssociationHospice Foundation <strong>of</strong> AmericaHospice Home PageHospice For Patients and FamiliesInter-Institutional Collaborating Network on End <strong>of</strong> Life CareNational Hospice and Palliative Care OrganizationNational Palliative Care Research <strong>Center</strong>National Prison Hospice AssociationOn Our Own Terms: Moyers on DyingPalliative Care NetworkPallipedia: Online Palliative Care DictionaryPathways, Education & Consultation in End <strong>of</strong> Life CarePromoting Excellence in End-<strong>of</strong>-Life CareReclaiming the End-<strong>of</strong>-LifeStop <strong>Pain</strong>Suncoast HospiceSupportive Care CoalitionTIME: Toolkit <strong>of</strong> Instruments to Measure End-<strong>of</strong>-Life Carehttp://www.mcw.edu/EPERC/FastFactsandConceptshttp://www.eapcnet.org/http://www.getpalliativecare.orghttp://www.griefnet.org/http://www.groww.org/http://www.growthhouse.org/http://www.hms.harvard.edu/cdi/pallcare/http://www.hpna.org/http://www.hospicefoundation.org/http://www.scu.edu/Hospice/http://www.hospicenet.org/http://growthhouse.org/iicn.htmlhttp://www.nhpco.org/http://www.npcrc.org/http://www.npha.org/http://www.pbs.org/wnet/onourownterms/http://palliativecarenetwork.com/http://pallipedia.org/http://www.pathwayseol.com/http://www.promotingexcellence.org/http://www.ReclaimTheEnd.orghttp://www.stoppain.org/http://www.thehospice.orghttp://www.supportivecarecoalition.org/http://www.chcr.brown.edu/pcoc/toolkit.htmPosition Statements/Standards1. A position statement from American Nursing Leaders- Advanced Practice Nurses Role In Palliative Care Position StatementWebsite: http://www.dyingwell.org/downloads/apnpos.pdf.2. American Academy <strong>of</strong> Hospice and Palliative Medicine- Access to Palliative Care and Hospice- Clinical Practice Guidelines for Quality Palliative Care- Palliative SedationWebsite: http://www.aahpm.org/positions/default/index.html.3. American Nurses Association (ANA) Position Statements- Assisted Suicide- Foregoing Nutrition and Hydration- Nursing and the Patient Self-Determination Acts- Nursing Care and Do-Not-Resuscitate Decisions- Privacy and ConfidentialityWebsite: http://www.nursingworld.org/EthicsHumanRights.4. American <strong>Pain</strong> Society Position Statement- Treatment <strong>of</strong> <strong>Pain</strong> at the End <strong>of</strong> LifeWebsite: http://www.ampainsoc.org/advocacy/treatment.htm.26
5. American Society <strong>of</strong> <strong>Pain</strong> Management Nurses (ASPMN) Position Statements- Assisted Suicide- <strong>Pain</strong> Management at the End-<strong>of</strong>-LifeWebsite: http://www.aspmn.org/Organization/position_papers.htm.6. Hospice and Palliative Nurses Association (HPNA) Position Statements- Artificial Nutrition and Hydration in End-<strong>of</strong>-Life Care- Complementary Therapies in Palliative Care Nursing Practice- Evidence-Based Practice- Legalization <strong>of</strong> Assisted Suicide- <strong>Pain</strong> Management- Palliative Sedation at End-<strong>of</strong>-Life- Providing Opioids at the End-<strong>of</strong>-Life- Spiritual Care- Value <strong>of</strong> Nursing Assistant in End-<strong>of</strong>-Life Care- Value <strong>of</strong> Nursing Certification- Value <strong>of</strong> Pr<strong>of</strong>essional Nurse in End-<strong>of</strong>-Life CareWebsite: http://www.hpna.org/DisplayPage.aspx?Title1=Position%20Statements.7. NHPCO Task Force Statement on Ethics <strong>of</strong> Hospice Participation in Research- This task force statement discusses the important <strong>of</strong> hospices’ potential contributions to research and describes waysin which characteristics <strong>of</strong> hospice patients, and hospices’ structure, create ethical challenges that may limit thesecontributions. It concludes by proposing ways in which hospices and national pr<strong>of</strong>essional organizations can begin toovercome some <strong>of</strong> these challenges.Website: http://www.liebertonline.com/doi/pdfplus/10.1089/109662101753381566.8. Oncology Nursing Society (ONS) and Association <strong>of</strong> Oncology Social Work (AOSW) Joint Position Statements- Palliative and End-<strong>of</strong>-Life CareWebsite: http://www.ons.org/Publications/Positions/EndOfLife.9. Oncology Nursing Society (ONS) and Geriatric Oncology Consortium Joint Position Statement- Cancer Care in the Older AdultWebsite: http://www.ons.org/Publications/Positions/Geriatric/.10. Oncology Nursing Society (ONS) Position Statements - 28 Position Statements- Cancer <strong>Pain</strong> Management- Quality Cancer Care- The Nurse's Responsibility to the Patient Requesting Assisted SuicideWebsite: http://www.ons.org/publications/positions/.III. Palliative Care/End-<strong>of</strong>-Life/BereavementA. Palliative SurgerySection Description: This section includes City <strong>of</strong> Hope publications and other resources and publications related topalliative surgery.City <strong>of</strong> Hope Publications1. Juarez, G., Ferrell, B. R., Uman, G., Podnos, Y., & Wagman, L. D. (2008). Distress and quality <strong>of</strong> life concerns <strong>of</strong> familycaregivers <strong>of</strong> patients undergoing palliative surgery. Cancer Nursing 31(1), 2-10. DOI: 10.1097/01.NCC.0000305682.13766.c2.2. Smith, D. D., & McCahill, L. E. (2008). Predicting life expectancy and symptom relief following surgery for advancedmalignancy. Annals <strong>of</strong> Surgical Oncology, 15(12), 3335-3341. DOI: 10.1245/s10434-008-0162-1.3. Podnos, Y. D., & Wagman, L. D. (2007). The surgeon and palliative care. Annals <strong>of</strong> Surgical Oncology, 14(4), 1257-1263.DOI: 10.1245/s10434-006-9222-6.4. Wagman, L. D. (2007). Progress in palliative surgery—is it a subspecialty? Journal <strong>of</strong> Surgical Oncology, 96(6), 449-450.DOI: 10.1002/jso.20825.5. Podnos, T. D., Juarez, G., Pameijer, C., Uman, G. C., Ferrell, B. R., & Wagman, L. D. (2007). Surgical palliation <strong>of</strong> advancedgastrointestinal tumors. Journal <strong>of</strong> Palliative Medicine. 10(4), 871-876. DOI: 10.1089/jpm.2006.0174.27
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M.A.G.N.U.M. Awareness GroupMigrain
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Education Materials/Curriculum1. Ad
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Emerging Solutions in Pain Legal an
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United Hospital Fund - http://www.u