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Index/Order Form of Materials Please note - Pain Resource Center ...

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4. End-Stage Renal Disease Workgroup Report - Recommendations to the Field- Clinicians and researchers working with end-stage renal disease (ESRD) can now access an important palliative careresource online. The report presents the methods, findings, recommendations and products <strong>of</strong> the ESRD Workgroupsponsored by the Promoting Excellence in End-<strong>of</strong>-Life Care Project.Website: http://www.mywhatever.com/cifwriter/content/41/downloads/esrd_full_report.pdf.5. Guidelines for the Assessment <strong>of</strong> Bereavement Risk in Family Members <strong>of</strong> People Receiving Palliative Care- These Centre for Palliative Care guidelines aim to assist providers <strong>of</strong> services to families <strong>of</strong> dying people to identifyfamily members at risk <strong>of</strong> complicated bereavement outcomes based on best available evidence.Website: http://prc.coh.org/BereavGuidelines.pdf.6. Promoting Excellence in End-<strong>of</strong>-Life Care- Advanced Practice Nurses (APNs) convened to hold a conversation on the state <strong>of</strong> palliative care advanced practicenursing in the United States, to identify gaps in and barriers to that practice and to develop strategies for the future.The report on this important gathering <strong>of</strong> APNs working in the field <strong>of</strong> palliative care is available on the PromotingExcellence in End-<strong>of</strong>-Life Care website at http://www.promotingexcellence.org/- A special series <strong>of</strong> articles describing the experiences and exciting results <strong>of</strong> 22 innovative projects funded byPromoting Excellence in End-<strong>of</strong>-Life Care have been published in The Journal <strong>of</strong> Palliative Medicine. The articles,edited by Ira Byock, Promoting Excellence Director, are included in the Innovations section <strong>of</strong> the journal. Begins in2003, Volume 6, Number 2. Website: Website: http://www.promotingexcellence.org/jpm/index.html.7. Psychosocial Care: Hospice Palliative Care Program Symptom Guidelines- This guideline is adapted for interpr<strong>of</strong>essional primary care providers working in various setting and providesrecommendations for assessing and addressing psychosocial issues <strong>of</strong> adult patients who are facing a progressive lifelimiting illness.Website: http://www.fraserhealth.ca/media/psychosocial%20care.pdfOther Organizational LinksAmerican Academy <strong>of</strong> Hospice and Palliative MedicineAmerican Hospice FoundationAmerican Journal <strong>of</strong> NursingAmerican Society for <strong>Pain</strong> Management NursesAmericans for Better Care <strong>of</strong> the Dying (ABCD)Association <strong>of</strong> Death Education and Counseling (ADEC)Before I Die: Medical Care and Personal ChoicesBereavement Online Support GroupCalifornia Coalition for Compassionate CareCare Guide: Source for SeniorsCare Search: Palliative Care Knowledge Network<strong>Center</strong> for Applied Ethics<strong>Center</strong> for Healthcare Decisions<strong>Center</strong> for Hospice and Palliative Care<strong>Center</strong> to Advance Palliative Care (CAPC)Compassion and ChoicesCuretoday.comDying WellEDELEdata.org (A resource for data on death & dying)EPEC ProjectEnd-<strong>of</strong>-Life: Exploring Death in AmericaEnd-<strong>of</strong>-Life Nursing Education Consortium (ELNEC)http://www.aahpm.orghttp://www.americanhospice.org/http://www.AJNonline.comhttp://www.aspmn.orghttp://www.abcd-caring.org/http://www.adec.orghttp://www.thirteen.org/bid/http://www.mdjunction.com/bereavementhttp://finalchoices.orghttp://www.thecareguide.com/http://www.caresearch.com.au/caresearch/Default.aspxhttp://caepp.edc.org/http://www.chcd.org/index.htmlhttp://www.centerforhospice.org/http://www.capc.org/https://www.compassionandchoices.org/sslpage.aspxhttp://www.curetoday.comhttp://www.dyingwell.orghttp://www.edeledata.org/search/home.htmlhttp://www.epec.net/http://www.npr.org/programs/death/http://www.aacn.nche.edu/elnec/25

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