15. Palliative Care Quiz for Nursing- Ross, M. M., McDonald, B., & Mc Guinness, J. (1996). The palliative care quiz for nursing (PCQN): the development<strong>of</strong> an instrument to measure nurses’ knowledge <strong>of</strong> palliative care. Journal <strong>of</strong> Advanced Nursing, 23(1): 126-137.16. Palliative Sedation <strong>Resource</strong>s- Kirk, T. W., & Mahon, M. M. (2010). National Hospice and Palliative Care Organization (NHPCO) positionstatement and commentary on the use <strong>of</strong> palliative sedation in the imminently dying terminally ill patients.Journal <strong>of</strong> <strong>Pain</strong> and Symptom Management, 39(5), 914-923. DOI:10.1016/j.jpainsymman.2010.01.009.- Hospice and Palliative Nurses Association Position Statement on Palliative Sedation at End <strong>of</strong> Life.Website: http://www.hpna.org/PicView.aspx?ID=707- Position Statement on Palliative Sedation - American Academy <strong>of</strong> Hospice and Palliative Medicine.Website: http://www.aahpm.org/positions/sedation.html.- Palliative Sedation Policy for the symptom control and palliative care service policy - The University <strong>of</strong> Texas, MDAnderson Cancer <strong>Center</strong>Website: http://www2.mdanderson.org/app/ir/SACSHTML/DocumentAppendix/Appendix%20G/CLN0571.pdf- Terminal Sedation: Cautions, Concerns, IndicationsA PowerPoint presentation regarding the considerations for initiating palliative sedation. Created by Dr. M. N.Sheehan <strong>of</strong> Loyola University Chicago and Sponsored by Supportive Care Coalition, Catholic Health Association <strong>of</strong>the United States, and The George Washington Institute for Spirituality and Health (GWISH)Website: http://www.supportivecarecoalition.org/NR/rdonlyres/E381707E-B67A-4D32-83FF-E24D25A40264 /0/FribreakoutA1Sheehan.ppt17. Quality Care at the End <strong>of</strong> Life Survey - City <strong>of</strong> Hope, Duarte, CA- This survey was designed based on the National Consensus Project for Quality Palliative Care guidelines and used atthe City <strong>of</strong> Hope as a tool for assessing quality care. Users are invited to adapt and use it in their own institutions toassess the quality <strong>of</strong> care provided and to measure the institution’s performance in comparison with national guidelines.Website: http://prc.coh.org/pdf/Quality%20Care%20at%20the%20End%20<strong>of</strong>%20Life%20Survey.pdf.18. TIPS Sheets - Hospice and Palliative Nurses Association (HPNA)- TIPS for Communicating with Seriously Ill Patients (also Spanish Version)- TIPS for Nearing Death Awareness- TIPS for Recognizing Behaviors Indicating Patient has <strong>Pain</strong>- TIPS for Recognizing <strong>Pain</strong> in Patients with an Inability to Communicate Verbally (also Spanish Version)- TIPS for Respecting the Patient and Family Cultural Beliefs- TIPS for Talking with Dying Patients (also Spanish Version)Website: http://www.hpna.org/DisplayPage.aspx?Title=TIPS19. Tool-Kit for Nursing Excellence at End-<strong>of</strong>-Life Transition (TNEEL)- TNEEL is a package <strong>of</strong> electronic tools for palliative care education. Principal investigator, Diana Wilkie, PhD,RN, AOCN, FAAN. Website: http://www.tneel.uic.edu/tneel.asp.20. Your Guide to Creating an Outpatient Palliative Care Program- This online toolkit gives you a step-by-step guide on how you can create an innovative outpatient palliative careprogram. Website: http://growthhouse.org/palliative/.Guidelines/Clinical Pathways1. A National Framework and Preferred Practices for Palliative and Hospice Care Quality- This National Quality Forum report endorses a framework for palliative and hospice care that is intended to be the firststep in developing a comprehensive quality measurement and reporting system for palliative care and hospice servicesand preferred practices designed to improve palliative and hospice care.Website: http://www.nationalconsensusproject.org/Downloads.asp.2. Clinical Practice Guidelines for Quality Palliative Care- The National Consensus Project (NCP) Clinical Practice Guidelines for Quality Palliative Care represent consensusachieved among nationally recognized experts on voluntary, evidence-based guidelines to ensure quality andconsistency <strong>of</strong> care. Website: http://www.nationalconsensusproject.org/Guideline.pdf.3. Consensus Statement: Palliative and Supportive Care in Advanced Heart Failure- The statement is the result <strong>of</strong> a consensus conference in which experts and leaders in the field worked to define theimportant knowledge gaps with regards to palliative care and advanced heart failure. The statement outlines futureresearch objectives that can guide this field <strong>of</strong> study.Website: http://www.onlinejcf.com/article/S1071-9164(03)00715-2/abstract.24
4. End-Stage Renal Disease Workgroup Report - Recommendations to the Field- Clinicians and researchers working with end-stage renal disease (ESRD) can now access an important palliative careresource online. The report presents the methods, findings, recommendations and products <strong>of</strong> the ESRD Workgroupsponsored by the Promoting Excellence in End-<strong>of</strong>-Life Care Project.Website: http://www.mywhatever.com/cifwriter/content/41/downloads/esrd_full_report.pdf.5. Guidelines for the Assessment <strong>of</strong> Bereavement Risk in Family Members <strong>of</strong> People Receiving Palliative Care- These Centre for Palliative Care guidelines aim to assist providers <strong>of</strong> services to families <strong>of</strong> dying people to identifyfamily members at risk <strong>of</strong> complicated bereavement outcomes based on best available evidence.Website: http://prc.coh.org/BereavGuidelines.pdf.6. Promoting Excellence in End-<strong>of</strong>-Life Care- Advanced Practice Nurses (APNs) convened to hold a conversation on the state <strong>of</strong> palliative care advanced practicenursing in the United States, to identify gaps in and barriers to that practice and to develop strategies for the future.The report on this important gathering <strong>of</strong> APNs working in the field <strong>of</strong> palliative care is available on the PromotingExcellence in End-<strong>of</strong>-Life Care website at http://www.promotingexcellence.org/- A special series <strong>of</strong> articles describing the experiences and exciting results <strong>of</strong> 22 innovative projects funded byPromoting Excellence in End-<strong>of</strong>-Life Care have been published in The Journal <strong>of</strong> Palliative Medicine. The articles,edited by Ira Byock, Promoting Excellence Director, are included in the Innovations section <strong>of</strong> the journal. Begins in2003, Volume 6, Number 2. Website: Website: http://www.promotingexcellence.org/jpm/index.html.7. Psychosocial Care: Hospice Palliative Care Program Symptom Guidelines- This guideline is adapted for interpr<strong>of</strong>essional primary care providers working in various setting and providesrecommendations for assessing and addressing psychosocial issues <strong>of</strong> adult patients who are facing a progressive lifelimiting illness.Website: http://www.fraserhealth.ca/media/psychosocial%20care.pdfOther Organizational LinksAmerican Academy <strong>of</strong> Hospice and Palliative MedicineAmerican Hospice FoundationAmerican Journal <strong>of</strong> NursingAmerican Society for <strong>Pain</strong> Management NursesAmericans for Better Care <strong>of</strong> the Dying (ABCD)Association <strong>of</strong> Death Education and Counseling (ADEC)Before I Die: Medical Care and Personal ChoicesBereavement Online Support GroupCalifornia Coalition for Compassionate CareCare Guide: Source for SeniorsCare Search: Palliative Care Knowledge Network<strong>Center</strong> for Applied Ethics<strong>Center</strong> for Healthcare Decisions<strong>Center</strong> for Hospice and Palliative Care<strong>Center</strong> to Advance Palliative Care (CAPC)Compassion and ChoicesCuretoday.comDying WellEDELEdata.org (A resource for data on death & dying)EPEC ProjectEnd-<strong>of</strong>-Life: Exploring Death in AmericaEnd-<strong>of</strong>-Life Nursing Education Consortium (ELNEC)http://www.aahpm.orghttp://www.americanhospice.org/http://www.AJNonline.comhttp://www.aspmn.orghttp://www.abcd-caring.org/http://www.adec.orghttp://www.thirteen.org/bid/http://www.mdjunction.com/bereavementhttp://finalchoices.orghttp://www.thecareguide.com/http://www.caresearch.com.au/caresearch/Default.aspxhttp://caepp.edc.org/http://www.chcd.org/index.htmlhttp://www.centerforhospice.org/http://www.capc.org/https://www.compassionandchoices.org/sslpage.aspxhttp://www.curetoday.comhttp://www.dyingwell.orghttp://www.edeledata.org/search/home.htmlhttp://www.epec.net/http://www.npr.org/programs/death/http://www.aacn.nche.edu/elnec/25
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Sickle Cell Disease Association of
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6. Fibromyalgia: The Complete Guide
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M.A.G.N.U.M. Awareness GroupMigrain
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Education Materials/Curriculum1. Ad
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- Pain Resource Nurse Role: Descrip
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- Coping Financially with the Loss
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25. Patient Medication Information
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5. Suffering- Ferrell, B. R. (1996)
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Other Organizations LinksCenter to
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Emerging Solutions in Pain Legal an
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17. Memorial Symptom Assessment Sca
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32. Toolkit of Instruments to Measu
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28. Pain Medicine - official journa
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American Headache Society - http://
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End-of-Life ~ AARP - http://www.aar
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National Children’s Cancer Societ
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United Hospital Fund - http://www.u