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15. Palliative Care Quiz for Nursing- Ross, M. M., McDonald, B., & Mc Guinness, J. (1996). The palliative care quiz for nursing (PCQN): the developmentof an instrument to measure nurses’ knowledge of palliative care. Journal of Advanced Nursing, 23(1): 126-137.16. Palliative Sedation Resources- Kirk, T. W., & Mahon, M. M. (2010). National Hospice and Palliative Care Organization (NHPCO) positionstatement and commentary on the use of palliative sedation in the imminently dying terminally ill patients.Journal of Pain and Symptom Management, 39(5), 914-923. DOI:10.1016/j.jpainsymman.2010.01.009.- Hospice and Palliative Nurses Association Position Statement on Palliative Sedation at End of Life.Website: http://www.hpna.org/PicView.aspx?ID=707- Position Statement on Palliative Sedation - American Academy of Hospice and Palliative Medicine.Website: http://www.aahpm.org/positions/sedation.html.- Palliative Sedation Policy for the symptom control and palliative care service policy - The University of Texas, MDAnderson Cancer CenterWebsite: http://www2.mdanderson.org/app/ir/SACSHTML/DocumentAppendix/Appendix%20G/CLN0571.pdf- Terminal Sedation: Cautions, Concerns, IndicationsA PowerPoint presentation regarding the considerations for initiating palliative sedation. Created by Dr. M. N.Sheehan of Loyola University Chicago and Sponsored by Supportive Care Coalition, Catholic Health Association ofthe United States, and The George Washington Institute for Spirituality and Health (GWISH)Website: http://www.supportivecarecoalition.org/NR/rdonlyres/E381707E-B67A-4D32-83FF-E24D25A40264 /0/FribreakoutA1Sheehan.ppt17. Quality Care at the End of Life Survey - City of Hope, Duarte, CA- This survey was designed based on the National Consensus Project for Quality Palliative Care guidelines and used atthe City of Hope as a tool for assessing quality care. Users are invited to adapt and use it in their own institutions toassess the quality of care provided and to measure the institution’s performance in comparison with national guidelines.Website: http://prc.coh.org/pdf/Quality%20Care%20at%20the%20End%20of%20Life%20Survey.pdf.18. TIPS Sheets - Hospice and Palliative Nurses Association (HPNA)- TIPS for Communicating with Seriously Ill Patients (also Spanish Version)- TIPS for Nearing Death Awareness- TIPS for Recognizing Behaviors Indicating Patient has Pain- TIPS for Recognizing Pain in Patients with an Inability to Communicate Verbally (also Spanish Version)- TIPS for Respecting the Patient and Family Cultural Beliefs- TIPS for Talking with Dying Patients (also Spanish Version)Website: http://www.hpna.org/DisplayPage.aspx?Title=TIPS19. Tool-Kit for Nursing Excellence at End-of-Life Transition (TNEEL)- TNEEL is a package of electronic tools for palliative care education. Principal investigator, Diana Wilkie, PhD,RN, AOCN, FAAN. Website: http://www.tneel.uic.edu/tneel.asp.20. Your Guide to Creating an Outpatient Palliative Care Program- This online toolkit gives you a step-by-step guide on how you can create an innovative outpatient palliative careprogram. Website: http://growthhouse.org/palliative/.Guidelines/Clinical Pathways1. A National Framework and Preferred Practices for Palliative and Hospice Care Quality- This National Quality Forum report endorses a framework for palliative and hospice care that is intended to be the firststep in developing a comprehensive quality measurement and reporting system for palliative care and hospice servicesand preferred practices designed to improve palliative and hospice care.Website: http://www.nationalconsensusproject.org/Downloads.asp.2. Clinical Practice Guidelines for Quality Palliative Care- The National Consensus Project (NCP) Clinical Practice Guidelines for Quality Palliative Care represent consensusachieved among nationally recognized experts on voluntary, evidence-based guidelines to ensure quality andconsistency of care. Website: http://www.nationalconsensusproject.org/Guideline.pdf.3. Consensus Statement: Palliative and Supportive Care in Advanced Heart Failure- The statement is the result of a consensus conference in which experts and leaders in the field worked to define theimportant knowledge gaps with regards to palliative care and advanced heart failure. The statement outlines futureresearch objectives that can guide this field of study.Website: http://www.onlinejcf.com/article/S1071-9164(03)00715-2/abstract.24
4. End-Stage Renal Disease Workgroup Report - Recommendations to the Field- Clinicians and researchers working with end-stage renal disease (ESRD) can now access an important palliative careresource online. The report presents the methods, findings, recommendations and products of the ESRD Workgroupsponsored by the Promoting Excellence in End-of-Life Care Project.Website: http://www.mywhatever.com/cifwriter/content/41/downloads/esrd_full_report.pdf.5. Guidelines for the Assessment of Bereavement Risk in Family Members of People Receiving Palliative Care- These Centre for Palliative Care guidelines aim to assist providers of services to families of dying people to identifyfamily members at risk of complicated bereavement outcomes based on best available evidence.Website: http://prc.coh.org/BereavGuidelines.pdf.6. Promoting Excellence in End-of-Life Care- Advanced Practice Nurses (APNs) convened to hold a conversation on the state of palliative care advanced practicenursing in the United States, to identify gaps in and barriers to that practice and to develop strategies for the future.The report on this important gathering of APNs working in the field of palliative care is available on the PromotingExcellence in End-of-Life Care website at http://www.promotingexcellence.org/- A special series of articles describing the experiences and exciting results of 22 innovative projects funded byPromoting Excellence in End-of-Life Care have been published in The Journal of Palliative Medicine. The articles,edited by Ira Byock, Promoting Excellence Director, are included in the Innovations section of the journal. Begins in2003, Volume 6, Number 2. Website: Website: http://www.promotingexcellence.org/jpm/index.html.7. Psychosocial Care: Hospice Palliative Care Program Symptom Guidelines- This guideline is adapted for interprofessional primary care providers working in various setting and providesrecommendations for assessing and addressing psychosocial issues of adult patients who are facing a progressive lifelimiting illness.Website: http://www.fraserhealth.ca/media/psychosocial%20care.pdfOther Organizational LinksAmerican Academy of Hospice and Palliative MedicineAmerican Hospice FoundationAmerican Journal of NursingAmerican Society for Pain Management NursesAmericans for Better Care of the Dying (ABCD)Association of Death Education and Counseling (ADEC)Before I Die: Medical Care and Personal ChoicesBereavement Online Support GroupCalifornia Coalition for Compassionate CareCare Guide: Source for SeniorsCare Search: Palliative Care Knowledge NetworkCenter for Applied EthicsCenter for Healthcare DecisionsCenter for Hospice and Palliative CareCenter to Advance Palliative Care (CAPC)Compassion and ChoicesCuretoday.comDying WellEDELEdata.org (A resource for data on death & dying)EPEC ProjectEnd-of-Life: Exploring Death in AmericaEnd-of-Life Nursing Education Consortium (ELNEC)http://www.aahpm.orghttp://www.americanhospice.org/http://www.AJNonline.comhttp://www.aspmn.orghttp://www.abcd-caring.org/http://www.adec.orghttp://www.thirteen.org/bid/http://www.mdjunction.com/bereavementhttp://finalchoices.orghttp://www.thecareguide.com/http://www.caresearch.com.au/caresearch/Default.aspxhttp://caepp.edc.org/http://www.chcd.org/index.htmlhttp://www.centerforhospice.org/http://www.capc.org/https://www.compassionandchoices.org/sslpage.aspxhttp://www.curetoday.comhttp://www.dyingwell.orghttp://www.edeledata.org/search/home.htmlhttp://www.epec.net/http://www.npr.org/programs/death/http://www.aacn.nche.edu/elnec/25
Page 1 and 2: August, 2012 edition(updated monthl
Page 3 and 4: CITY OF HOPE PAIN & PALLIATIVE CARE
Page 5 and 6: 24. Krouse, R. S., Grant, M., Rawl,
Page 7 and 8: 58. Bhatia, S., Robison, L. L., Fra
Page 9 and 10: 30. Handbook of Cancer Survivorship
Page 11 and 12: Journey ForwardLeukemia & Lymphoma
Page 13 and 14: 15. Ando, M., Morita, T., Okamoto,
Page 15 and 16: 6. GWish SOERCE: Educational and cl
Page 17 and 18: 15. Grant, M., Elk, R., Ferrell, B.
Page 19 and 20: 50. Ferrell, B. R., Virani, R., Gra
Page 21 and 22: 16. Harper, J., Hinds, P. S., Baker
Page 23: their end-of-life wishes. CE credit
Page 27 and 28: 5. American Society of Pain Managem
Page 29 and 30: 9. Augustine, M. M., & Pawlik, T. M
Page 31 and 32: 2. Fast Facts and Concepts - End of
Page 33 and 34: 10. Sullivan, M., & Ferrell, B. (20
Page 35 and 36: - Subcutaneous Opioid Infusions, #0
Page 37 and 38: 16. Reflex Sympathetic Dystrophy/Co
Page 39 and 40: 8. Park, H. (2010). Effect of music
Page 41 and 42: 44. Barnes, P. M., Powell-Griner, E
Page 43 and 44: V. Special PopulationsA. Family Car
Page 45 and 46: 19. The Caregiver’s Path to Compa
Page 47 and 48: 52. Salmon, J. R., Kwak, J., Acquav
Page 49 and 50: Cancer Hope NetworkCancer: You can
Page 51 and 52: 4. Memorial Sloan-Kettering Cancer
Page 53 and 54: 3. Kelly, K., Thrane, S., Virani, R
Page 55 and 56: 3. Pain Care Fast Facts: 5-Minute C
Page 57 and 58: 2. Patel, S. K., Mullins, W., Turk,
Page 59 and 60: 29. Fraser, J., Harris, N., Berring
Page 61 and 62: 64. Schiff, D., Klin, C., Meltzer,
Page 63 and 64: 98. Nursing Care of Children & Adol
Page 65 and 66: 3. Neonatal Pain, Agitation, & Seda
Page 67 and 68: - The Use of Pediatric Sedation and
Page 69 and 70: 24. DeSanto-Madeya, S., Nilsson, M.
Page 71 and 72: 2. Fast Facts and Concepts - End of
Page 73 and 74: 13. Zempsky, W. T., Loiselle, K. A.
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Sickle Cell Disease Association of
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- Bartlett, J. G., Cheever, L. W.,
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6. Fibromyalgia: The Complete Guide
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M.A.G.N.U.M. Awareness GroupMigrain
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Education Materials/Curriculum1. Ad
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- Pain Resource Nurse Role: Descrip
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16. Ferrell, B. R., & Rivera, L. M.
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- Coping Financially with the Loss
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25. Patient Medication Information
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5. Suffering- Ferrell, B. R. (1996)
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Other Organizations LinksCenter to
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Emerging Solutions in Pain Legal an
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17. Memorial Symptom Assessment Sca
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32. Toolkit of Instruments to Measu
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28. Pain Medicine - official journa
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American Headache Society - http://
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End-of-Life ~ AARP - http://www.aar
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National Children’s Cancer Societ
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United Hospital Fund - http://www.u
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