33. Hills, J., Paice, J. A., Cameron, J. R., & Shott, S., (2005). Spirituality and distress in palliative care consultation. Journal <strong>of</strong>Palliative Medicine (1096-6218), 8 (4), 782. Pilot study measuring facets <strong>of</strong> spirituality with several scales including RCOPE,FACIT-Sp, FICA, and POMS-SF. DOI: 10.1089/jpm.2005.8.782.34. Baggini, J., & Pym, M. (2005). End-<strong>of</strong>-life: The humanist view. The Lancet, 366(9492), 1235-1237.DOI: 10.1016/S0140-6736(05)67486-7.35. Markwell, H. (2005). End-<strong>of</strong>-life: A Catholic view. The Lancet, 366(9491), 1132-1135. DOI: 10.1016/S0140-6736(05)67425-9.36. Engelhardt, H. T., & Iltis, A. S., (2005). End-<strong>of</strong>-life: The traditional Christian view. The Lancet, 366(9490), 1045-1049.DOI: 10.1016/S0140-6736(05)67383-7.37. Keown, D. (2005). End-<strong>of</strong>-life: The Buddhist view. The Lancet, 366(9489), 952-955. DOI: 10.1016/S0140-6736(05)67323-0.38. Dorff, E. N. (2005). End-<strong>of</strong>-life: Jewish perspectives. The Lancet, 366(9488), 862-865. DOI: 10.1016/S0140-6736(05)67219-4.39. Sachedina, A. (2005). End-<strong>of</strong>-life: The Islamic view. The Lancet, 366(9487), 774-779. DOI: 10.1016/S0140-6736(05)67183-8.40. Firth, S. (2005). End-<strong>of</strong>-life: A Hindu view. The Lancet, 366(9486), 682-685. DOI: 10.1016/S0140-6736(05)67141-3.41. Puchalski, C., & Romer, A. L., (2000). Taking a spiritual history allows clinicians to understand patients more fully. Journal<strong>of</strong> Palliative Medicine (1096-6218), 3 (1), 129. FICA tool.Educational <strong>Materials</strong>/Curriculum1. Completing a Life: A <strong>Resource</strong> for Taking Charge, Finding Comfort, Reaching Closure- An interactive CD inviting patients and families to learn about the practical, emotional, spiritual, and medical issuesfaced by those dealing with advanced illness. The CD is available through the Instructional Media <strong>Center</strong> at MichiganState University. For ordering information call (517) 353-9229 or http://www.completingalife.msu.edu/.2. Core Curriculum for Holistic Nursing - American Holistic Nurses Association- Nurses are increasingly aware <strong>of</strong> the need to blend technology, mind, and spirit in creating optimal circumstances forhealing. Barbara Dossey, a pioneer and leader in the field, has created a core curriculum that will provide a blueprintfor what it means to be a holistic nurse. <strong>Order</strong> online at http://www.jbpub.com/catalog/0834208709/.3. FACIT Questionnaires- Functional Assessment <strong>of</strong> Chronic Illness Therapy, (FACIT), manages questionnaires that measure health-relatedquality <strong>of</strong> life for people with chronic illnesses. The first questionnaire, The Functional Assessment <strong>of</strong> Cancer Therapy-General (FACT-G), was developed and validated over 10 years ago, and has been used in hundreds <strong>of</strong> studiesworldwide. Since then over 40 questionnaires have been developed and selected questionnaires translated into over 45different languages. There are three questionnaires relating to spirituality: the FACIT-Sp (Functional Assessment <strong>of</strong>Chronic Illness Therapy - Spiritual Well-Being), FACIT-Sp-12 (12-item Spiritual Well-Being Scale), FACIT-Sp-Ex(Spiritual Well-Being, Expanded version). Website: http://www.facit.org/FACITOrg/Questionnaires.4. Fast Facts and Concepts – End <strong>of</strong> Life/Palliative Education <strong>Resource</strong> <strong>Center</strong> (EPERC), Milwaukee, WIFor a complete listing <strong>of</strong> Fast Facts and Concepts see http://www.mcw.edu/EPERC/FastFactsandConcepts- Taking a Spiritual History- Music Therapy- Physicians and Prayer Requests- <strong>Pain</strong>, Suffering and Spiritual Assessment5. Interfaith Care for the Ill – Mobile Application- This app is for healthcare pr<strong>of</strong>essionals looking for the right words <strong>of</strong> spiritual comfort in difficult circumstancesrelating to death or illness. It <strong>of</strong>fers overviews <strong>of</strong> central beliefs, traditional prayers, and descriptions <strong>of</strong> commonpractices relating to illness and end-<strong>of</strong>-life care for Buddhism, Christianity, Hinduism, Islam, and Judaism.Available at iTunes http://itunes.apple.com/us/app/interfaith-care-for-the-ill/id421099962?mt=8.14
6. GWish SOERCE: Educational and clinical resources in spirituality, religion, and health.- An amazing array <strong>of</strong> resources on spirituality, religion, and health. Supported by a grant from The John TempletonFoundation, GWish created SORECE to build the online infrastructure to support medical educators and other healthpr<strong>of</strong>essionals in their quest to teach about spirituality and health by providing educational materials and resources.SOERCE covers an array <strong>of</strong> topics including spiritual assessment, end <strong>of</strong> life care, palliative care, spiritual distressmanagement and interventions, articles on major faith traditions, educational modules, presentations, and videos.Website: http://www.gwumc.edu/gwish/soerce/.7. Marie Curie Cancer Care - London: Marie Curie Cancer Care- Spiritual & religious care competencies assessment tools for specialists in palliative care.Website: http://www.mariecurie.org.uk/Documents/HEALTHCARE-PROFESSIONALS/spritual-religious-carecompetencies.pdf.8. Passport to Comfort: Reducing Barriers to <strong>Pain</strong> & Fatigue Management – City <strong>of</strong> Hope, Duarte, CA- This model addresses patient, pr<strong>of</strong>essional and system barriers to the relief <strong>of</strong> pain and fatigue and is based onestablished guidelines developed by the National Comprehensive Cancer Network (NCCN). An NCI supportedprogram. Most available in English and Spanish. Website: http://prc.coh.org/Pt-familyEd.asp #27.- Patient Spiritual Care Card- Spirituality Card9. Spiritual Care at the End <strong>of</strong> Life- Growth House provides several spiritual care training modules and assessment tools for palliative and end <strong>of</strong> life careincluding a spiritual training module for healthcare workers and chaplains that is specific to palliative and end <strong>of</strong> lifecare. There is an educational training module, pre-tests and post-tests, as well as the spiritualityquestionnaires/exercises for clergy and for health care pr<strong>of</strong>essionals. Website: http://www.growthhouse.org/spirit/.10. Toolkit <strong>of</strong> Instruments to Measure End <strong>of</strong> Life Care (TIME)- This is an extensive website, funded by the Robert Wood Johnson Foundation, and developed and maintained by JoanTeno, MD, MS at Brown University. It includes an Executive Summary reporting the status and need <strong>of</strong> Instruments inend <strong>of</strong> life care along with listings, links, and access to various instruments measuring various aspects <strong>of</strong> EOL care.Slide presentations, new instruments and old draft instruments are also available on the website. Instrument sections aredivided as follows: Quality <strong>of</strong> Life, <strong>Pain</strong> and Other Symptoms, Emotional and Cognitive Symptoms, Functional Status,Survival Time and Aggressive Care, Advance Care Planning, Continuity <strong>of</strong> Care, Spirituality, Grief and Bereavement,Caregiver Well-being, and Patient <strong>Center</strong>ed Reports and Rankings (e.g. satisfaction) with Quality <strong>of</strong> Care. Website:http://www.chcr.brown.edu/pcoc/toolkit.htm.Other Organizational LinksAmerican Holistic Nurses AssociationAssociation <strong>of</strong> Pr<strong>of</strong>essional ChaplainsCanadian Society for Spirituality & Social WorkJohn C. Oakley <strong>Pain</strong> & Spirituality <strong>Center</strong>National <strong>Center</strong> for Complementary & Alternative MedicineSpiritual Care Collaborativehttp://www.ahna.org/http://www.pr<strong>of</strong>essionalchaplains.org/index.aspx?id=127http://w3.stu.ca/stu/sites/spirituality/index.htmlhttp://www.painfoundation.org/learn/living/spirituality/http://nccam.nih.govhttp://www.spiritualcarecollaborative.org/default.aspPosition Statements/Standards1. American Holistic Medical Association (AHMA)Website: http://www.holisticmedicine.org/associations/6785/files/ahma-ethics-2009.pdf.2. American Holistic Nurses Association (AHNA) Position StatementsWebsite: http://www.ahna.org/<strong>Resource</strong>s/Publications/PositionStatements/tabid/1926/Default.aspx#P1.3. Hospice and Palliative Nurses Association (HPNA) Position StatementsSpiritual Care Website: http://www.hpna.org/DisplayPage.aspx?Title1=Position%20Statements.4. The Joint CommissionWebsite: http://www.jointcommission.org/.15
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- Page 5 and 6: 24. Krouse, R. S., Grant, M., Rawl,
- Page 7 and 8: 58. Bhatia, S., Robison, L. L., Fra
- Page 9 and 10: 30. Handbook of Cancer Survivorship
- Page 11 and 12: Journey ForwardLeukemia & Lymphoma
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- Page 17 and 18: 15. Grant, M., Elk, R., Ferrell, B.
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- The Use of Pediatric Sedation and
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24. DeSanto-Madeya, S., Nilsson, M.
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13. Zempsky, W. T., Loiselle, K. A.
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Sickle Cell Disease Association of
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6. Fibromyalgia: The Complete Guide
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M.A.G.N.U.M. Awareness GroupMigrain
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Education Materials/Curriculum1. Ad
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- Pain Resource Nurse Role: Descrip
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16. Ferrell, B. R., & Rivera, L. M.
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- Coping Financially with the Loss
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25. Patient Medication Information
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5. Suffering- Ferrell, B. R. (1996)
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Other Organizations LinksCenter to
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Emerging Solutions in Pain Legal an
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17. Memorial Symptom Assessment Sca
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32. Toolkit of Instruments to Measu
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28. Pain Medicine - official journa
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American Headache Society - http://
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End-of-Life ~ AARP - http://www.aar
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National Children’s Cancer Societ
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United Hospital Fund - http://www.u