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- Psychosocial Pain Assessment Forms in Spanish (for adults and children/adolescents):Spanish – Adults: http://prc.coh.org/pdf/Forma%20%20Adultos%20PS.pdf.Spanish – Children/Adolescents: http://prc.coh.org/pdf/Formulario%20Ninos.pdf.28. Quality of Life Instruments - City of Hope, Duarte, CA- Bone Marrow Transplant – is an 84-item tool specific for use in BMT.- Breast Cancer Patient Version – is a 46-item tool specific for use in Breast Cancer- Quality of Life Patient Version – is a 41-item instrument that measures QOL of a patient with cancer. Also includesSpanish version of instrument.- Quality of Life Family Version – is a 37-item instrument that measures QOL of a family member caring for a patientwith cancer. Also includes Spanish version of instrument.- Quality of Life Ostomy Version – is a 43-item tool specific for use in Patients with an Ostomy- Staff Survey on Ostomy Care - a 32-item tool specific for staff- Ovarian Cancer Patient Version – is a 45-item tool specific for use in Ovarian Cancer. Includes Spanish version.- Patient/Cancer Survivor Version – is a 41-item ordinal scale that measures quality of life through physical,psychological, social, and spiritual domains. This tool has been used extensively in pain and cancer survivorshipresearch. Also includes Spanish version of the instrument.- Quality Care at the End of Life Survey – This survey was designed based on the National Consensus Project forQuality Palliative Care Guidelines and was developed and used at the City of Hope as a tool for assessing qualitycare. Users are invited to adapt and use it in their own institutions to assess the quality ofcare provided and to measure the institution’s performance in comparison with national guidelines.- Thyroid Version - is a 34-item tool specific for use in Thyroid Cancer.Website: http://prc.coh.org/res_inst.asp. (# 28)29. RN Needs Assessment: Pain Management - University of Wisconsin Hospitals & Clinics, Madison, WI- This two-page survey assists in planning continuing education programs in pain management for nurses.Website: http://prc.coh.org/html/rn_needs.htm.30. Rehabilitation Professionals’ Knowledge and Attitudes Survey Regarding Pain – Boston School of Occupational Therapy,Boston, MA- This instrument was developed as an inter-disciplinary tool to assess knowledge and attitudes regarding pain inrehabilitation professionals. This tool was developed using the OT/PT IASP Pain Curriculum in conjunction with 6clinical experts.Website: http://prc.coh.org/html/rehab_professionals.htm.31. Survivorship Needs Assessment ToolsSurvivorship Care Summary/Plan:- American Society of Clinical Oncology (ASCO)Website: http://pda.asco.org/patient/Survivorship/ASCO+Cancer+Treatment+Summaries Generic template- Journey Forward Care Plan Builder Website: www.journeyforward.org- Livestrong Care Plan-Furnished by Penn Medicines Oncolink Website: http://www.oncolink.com/oncolife/- NCI Community Cancer Centers Program (NCCC) Breast Cancer Survivorship Care Plan 08/08Website: http://ncccp.cancer.gov/NCCCP-ASCO-Breast-Cancer-Survivorship-Care-Plan.pdfSurvivorship Needs Assessments:- Cancer Survivors Survey of Needs - Mayo Clinic Cancer CenterWebsite: http://prc.coh.org/Survivorship/P-Mayo%20PCCC.pdf- Transition Plan for Cancer Survivors: Survey of Needs - Pearlman Cancer Center, Adapted from Mayo Clinic CancerCenterWebsite: http://www.sgmc.org/Pearlman-mayo- Survivor Needs Assessment (English) - St. Luke’s Hospital and Health NetworkWebsite: http://prc.coh.org/Survivorship/St%20Luke%20Eng.pdf- Survivor Needs Assessment (Spanish) - St. Luke’s Hospital and Health NetworkWebsite: http://prc.coh.org/Survivorship/StLuke%20Span.pdf- Survivor Assessment Tool (Patient) - University of Tennessee Medical Center Cancer InstituteWebsite: http://prc.coh.org/Survivorship/SAT-PT.pdf- Survivor Assessment Tool (Physician) - University of Tennessee Medical Center Cancer InstituteWebsite: http://prc.coh.org/Survivorship/SAT-MD.pdf.100
32. Toolkit of Instruments to Measure End of Life Care (TIME)- This is an extensive website, funded by the Robert Wood Johnson Foundation, and developed and maintained byJoan Teno, MD, MS at Brown University. It includes an Executive Summary reporting the status and need ofInstruments in end of life care along with listings, links, and access to various instruments measuring various aspectsof EOL care. Slide presentations, new instruments and old draft instruments are also available on the website.Instrument sections are divided as follows: Quality of Life, Pain and Other Symptoms, Emotional and CognitiveSymptoms, Functional Status, Survival Time and Aggressive Care, Advance Care Planning, Continuity of Care,Spirituality, Grief and Bereavement, Caregiver Well-being, and Patient Centered Reports and Rankings (e.g.satisfaction) with Quality of Care. Website: http://www.chcr.brown.edu/pcoc/toolkit.htm.33. WHO (Five) Well-Being Index – Psychiatric Research Unit, WHO Collaborating Centre for Mental Health, FrederiksborgGeneral Hospital, Denmark (In 28 languages )Website: http://www.who-5.org/.X. Other ResourcesAudio Resources1. Touch Star ProductionsWebsite: http://www.touchstarpro.comVideo Listing1. Palliative Care Video Resource ListWebsite: http://prc.coh.org/Video%20List%202012.asp.Journals/Newsletters1. American Chronic Pain Association Chronicle – a patient-oriented quarterly newsletter. It includes letters, essays, articles, andbook reviews written by people with chronic pain or their families. Periodically, healthcare professionals have inclusions.Website: http://www.theacpa.org/60/Chronicle.aspx.2. American Journal of Hospice & Palliative Medicine – a peer reviewed research journal published bi-monthly. The focus is onhospice and palliative care news and research. Website: http://ajh.sagepub.com/.3. Bridges: Connecting Cancer Survivors – Memorial Sloan-Kettering’s newsletter for survivors written by survivors.Website: http://www.mskcc.org/mskcc/html/86252.cfm?Email_PageName=December+2008+Lately@mskcc.org&Email_OID=newsletter-toc-439714.4. Cancer Pain Release – a quarterly publication of the World Health Organization Collaborating Center for Policy andCommunications in Cancer Care. Website: http://whocancerpain.bcg.wisc.edu/.5. CancerWise - an online newsletter published monthly by The University of Texas M. D. Anderson Cancer Center. Each issueincludes a cancer survivor's story, related Q&A with M.D. Anderson experts, the latest reports on cancer treatment and researchand tips for cancer survivorship and prevention. Website: http://www.cancerwise.org/.6. ChiPPS Pediatric & Palliative Care Newsletter – a quarterly newsletter from the Children’s Project on Palliative/HospiceServices (ChiPPS) and the National Hospice and Palliative Care OrganizationWebsite: http://www.nhpco.org/i4a/pages/index.cfm?pageid=3409.7. ELNEC Connections – The End-of-Life Nursing Education Consortium is a quarterly newsletter to showcase efforts in endof-lifenursing education and practice. Website: http://www.aacn.nche.edu/elnec/connections.htm.8. European Journal of Palliative Care – official journal of the European Association for Palliative Care. Published six times ayear by Hayward Medical Communications. Website: http://www.ejpc.eu.com/ejpchome.asp?FR=1.9. Foundation for Health in Aging – a newsletter from the American Geriatrics Society.Website: http://www.healthinaging.org/public_education/newsletter.php.10. Health Progress: Journal of the Catholic Health Association of the United States – Official journal of the Catholic HealthAssociation of the United states, published six times a year on topics of importance to Catholic health care.Website: http://www.chausa.org/home/.101
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August, 2012 edition(updated monthl
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CITY OF HOPE PAIN & PALLIATIVE CARE
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24. Krouse, R. S., Grant, M., Rawl,
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58. Bhatia, S., Robison, L. L., Fra
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30. Handbook of Cancer Survivorship
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Journey ForwardLeukemia & Lymphoma
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15. Ando, M., Morita, T., Okamoto,
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6. GWish SOERCE: Educational and cl
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15. Grant, M., Elk, R., Ferrell, B.
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50. Ferrell, B. R., Virani, R., Gra
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16. Harper, J., Hinds, P. S., Baker
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their end-of-life wishes. CE credit
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4. End-Stage Renal Disease Workgrou
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5. American Society of Pain Managem
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9. Augustine, M. M., & Pawlik, T. M
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2. Fast Facts and Concepts - End of
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10. Sullivan, M., & Ferrell, B. (20
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- Subcutaneous Opioid Infusions, #0
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16. Reflex Sympathetic Dystrophy/Co
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8. Park, H. (2010). Effect of music
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44. Barnes, P. M., Powell-Griner, E
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V. Special PopulationsA. Family Car
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19. The Caregiver’s Path to Compa
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52. Salmon, J. R., Kwak, J., Acquav
Page 49 and 50: Cancer Hope NetworkCancer: You can
Page 51 and 52: 4. Memorial Sloan-Kettering Cancer
Page 53 and 54: 3. Kelly, K., Thrane, S., Virani, R
Page 55 and 56: 3. Pain Care Fast Facts: 5-Minute C
Page 57 and 58: 2. Patel, S. K., Mullins, W., Turk,
Page 59 and 60: 29. Fraser, J., Harris, N., Berring
Page 61 and 62: 64. Schiff, D., Klin, C., Meltzer,
Page 63 and 64: 98. Nursing Care of Children & Adol
Page 65 and 66: 3. Neonatal Pain, Agitation, & Seda
Page 67 and 68: - The Use of Pediatric Sedation and
Page 69 and 70: 24. DeSanto-Madeya, S., Nilsson, M.
Page 71 and 72: 2. Fast Facts and Concepts - End of
Page 73 and 74: 13. Zempsky, W. T., Loiselle, K. A.
Page 75 and 76: Sickle Cell Disease Association of
Page 77 and 78: - Bartlett, J. G., Cheever, L. W.,
Page 79 and 80: 6. Fibromyalgia: The Complete Guide
Page 81 and 82: M.A.G.N.U.M. Awareness GroupMigrain
Page 83 and 84: Education Materials/Curriculum1. Ad
Page 85 and 86: - Pain Resource Nurse Role: Descrip
Page 87 and 88: 16. Ferrell, B. R., & Rivera, L. M.
Page 89 and 90: - Coping Financially with the Loss
Page 91 and 92: 25. Patient Medication Information
Page 93 and 94: 5. Suffering- Ferrell, B. R. (1996)
Page 95 and 96: Other Organizations LinksCenter to
Page 97 and 98: Emerging Solutions in Pain Legal an
Page 99: 17. Memorial Symptom Assessment Sca
Page 103 and 104: 28. Pain Medicine - official journa
Page 105 and 106: American Headache Society - http://
Page 107 and 108: End-of-Life ~ AARP - http://www.aar
Page 109 and 110: National Children’s Cancer Societ
Page 111 and 112: United Hospital Fund - http://www.u
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