- Psychosocial <strong>Pain</strong> Assessment <strong>Form</strong>s in Spanish (for adults and children/adolescents):Spanish – Adults: http://prc.coh.org/pdf/<strong>Form</strong>a%20%20Adultos%20PS.pdf.Spanish – Children/Adolescents: http://prc.coh.org/pdf/<strong>Form</strong>ulario%20Ninos.pdf.28. Quality <strong>of</strong> Life Instruments - City <strong>of</strong> Hope, Duarte, CA- Bone Marrow Transplant – is an 84-item tool specific for use in BMT.- Breast Cancer Patient Version – is a 46-item tool specific for use in Breast Cancer- Quality <strong>of</strong> Life Patient Version – is a 41-item instrument that measures QOL <strong>of</strong> a patient with cancer. Also includesSpanish version <strong>of</strong> instrument.- Quality <strong>of</strong> Life Family Version – is a 37-item instrument that measures QOL <strong>of</strong> a family member caring for a patientwith cancer. Also includes Spanish version <strong>of</strong> instrument.- Quality <strong>of</strong> Life Ostomy Version – is a 43-item tool specific for use in Patients with an Ostomy- Staff Survey on Ostomy Care - a 32-item tool specific for staff- Ovarian Cancer Patient Version – is a 45-item tool specific for use in Ovarian Cancer. Includes Spanish version.- Patient/Cancer Survivor Version – is a 41-item ordinal scale that measures quality <strong>of</strong> life through physical,psychological, social, and spiritual domains. This tool has been used extensively in pain and cancer survivorshipresearch. Also includes Spanish version <strong>of</strong> the instrument.- Quality Care at the End <strong>of</strong> Life Survey – This survey was designed based on the National Consensus Project forQuality Palliative Care Guidelines and was developed and used at the City <strong>of</strong> Hope as a tool for assessing qualitycare. Users are invited to adapt and use it in their own institutions to assess the quality <strong>of</strong>care provided and to measure the institution’s performance in comparison with national guidelines.- Thyroid Version - is a 34-item tool specific for use in Thyroid Cancer.Website: http://prc.coh.org/res_inst.asp. (# 28)29. RN Needs Assessment: <strong>Pain</strong> Management - University <strong>of</strong> Wisconsin Hospitals & Clinics, Madison, WI- This two-page survey assists in planning continuing education programs in pain management for nurses.Website: http://prc.coh.org/html/rn_needs.htm.30. Rehabilitation Pr<strong>of</strong>essionals’ Knowledge and Attitudes Survey Regarding <strong>Pain</strong> – Boston School <strong>of</strong> Occupational Therapy,Boston, MA- This instrument was developed as an inter-disciplinary tool to assess knowledge and attitudes regarding pain inrehabilitation pr<strong>of</strong>essionals. This tool was developed using the OT/PT IASP <strong>Pain</strong> Curriculum in conjunction with 6clinical experts.Website: http://prc.coh.org/html/rehab_pr<strong>of</strong>essionals.htm.31. Survivorship Needs Assessment ToolsSurvivorship Care Summary/Plan:- American Society <strong>of</strong> Clinical Oncology (ASCO)Website: http://pda.asco.org/patient/Survivorship/ASCO+Cancer+Treatment+Summaries Generic template- Journey Forward Care Plan Builder Website: www.journeyforward.org- Livestrong Care Plan-Furnished by Penn Medicines Oncolink Website: http://www.oncolink.com/oncolife/- NCI Community Cancer <strong>Center</strong>s Program (NCCC) Breast Cancer Survivorship Care Plan 08/08Website: http://ncccp.cancer.gov/NCCCP-ASCO-Breast-Cancer-Survivorship-Care-Plan.pdfSurvivorship Needs Assessments:- Cancer Survivors Survey <strong>of</strong> Needs - Mayo Clinic Cancer <strong>Center</strong>Website: http://prc.coh.org/Survivorship/P-Mayo%20PCCC.pdf- Transition Plan for Cancer Survivors: Survey <strong>of</strong> Needs - Pearlman Cancer <strong>Center</strong>, Adapted from Mayo Clinic Cancer<strong>Center</strong>Website: http://www.sgmc.org/Pearlman-mayo- Survivor Needs Assessment (English) - St. Luke’s Hospital and Health NetworkWebsite: http://prc.coh.org/Survivorship/St%20Luke%20Eng.pdf- Survivor Needs Assessment (Spanish) - St. Luke’s Hospital and Health NetworkWebsite: http://prc.coh.org/Survivorship/StLuke%20Span.pdf- Survivor Assessment Tool (Patient) - University <strong>of</strong> Tennessee Medical <strong>Center</strong> Cancer InstituteWebsite: http://prc.coh.org/Survivorship/SAT-PT.pdf- Survivor Assessment Tool (Physician) - University <strong>of</strong> Tennessee Medical <strong>Center</strong> Cancer InstituteWebsite: http://prc.coh.org/Survivorship/SAT-MD.pdf.100
32. Toolkit <strong>of</strong> Instruments to Measure End <strong>of</strong> Life Care (TIME)- This is an extensive website, funded by the Robert Wood Johnson Foundation, and developed and maintained byJoan Teno, MD, MS at Brown University. It includes an Executive Summary reporting the status and need <strong>of</strong>Instruments in end <strong>of</strong> life care along with listings, links, and access to various instruments measuring various aspects<strong>of</strong> EOL care. Slide presentations, new instruments and old draft instruments are also available on the website.Instrument sections are divided as follows: Quality <strong>of</strong> Life, <strong>Pain</strong> and Other Symptoms, Emotional and CognitiveSymptoms, Functional Status, Survival Time and Aggressive Care, Advance Care Planning, Continuity <strong>of</strong> Care,Spirituality, Grief and Bereavement, Caregiver Well-being, and Patient <strong>Center</strong>ed Reports and Rankings (e.g.satisfaction) with Quality <strong>of</strong> Care. Website: http://www.chcr.brown.edu/pcoc/toolkit.htm.33. WHO (Five) Well-Being <strong>Index</strong> – Psychiatric Research Unit, WHO Collaborating Centre for Mental Health, FrederiksborgGeneral Hospital, Denmark (In 28 languages )Website: http://www.who-5.org/.X. Other <strong>Resource</strong>sAudio <strong>Resource</strong>s1. Touch Star ProductionsWebsite: http://www.touchstarpro.comVideo Listing1. Palliative Care Video <strong>Resource</strong> ListWebsite: http://prc.coh.org/Video%20List%202012.asp.Journals/Newsletters1. American Chronic <strong>Pain</strong> Association Chronicle – a patient-oriented quarterly newsletter. It includes letters, essays, articles, andbook reviews written by people with chronic pain or their families. Periodically, healthcare pr<strong>of</strong>essionals have inclusions.Website: http://www.theacpa.org/60/Chronicle.aspx.2. American Journal <strong>of</strong> Hospice & Palliative Medicine – a peer reviewed research journal published bi-monthly. The focus is onhospice and palliative care news and research. Website: http://ajh.sagepub.com/.3. Bridges: Connecting Cancer Survivors – Memorial Sloan-Kettering’s newsletter for survivors written by survivors.Website: http://www.mskcc.org/mskcc/html/86252.cfm?Email_PageName=December+2008+Lately@mskcc.org&Email_OID=newsletter-toc-439714.4. Cancer <strong>Pain</strong> Release – a quarterly publication <strong>of</strong> the World Health Organization Collaborating <strong>Center</strong> for Policy andCommunications in Cancer Care. Website: http://whocancerpain.bcg.wisc.edu/.5. CancerWise - an online newsletter published monthly by The University <strong>of</strong> Texas M. D. Anderson Cancer <strong>Center</strong>. Each issueincludes a cancer survivor's story, related Q&A with M.D. Anderson experts, the latest reports on cancer treatment and researchand tips for cancer survivorship and prevention. Website: http://www.cancerwise.org/.6. ChiPPS Pediatric & Palliative Care Newsletter – a quarterly newsletter from the Children’s Project on Palliative/HospiceServices (ChiPPS) and the National Hospice and Palliative Care OrganizationWebsite: http://www.nhpco.org/i4a/pages/index.cfm?pageid=3409.7. ELNEC Connections – The End-<strong>of</strong>-Life Nursing Education Consortium is a quarterly newsletter to showcase efforts in end<strong>of</strong>-lifenursing education and practice. Website: http://www.aacn.nche.edu/elnec/connections.htm.8. European Journal <strong>of</strong> Palliative Care – <strong>of</strong>ficial journal <strong>of</strong> the European Association for Palliative Care. Published six times ayear by Hayward Medical Communications. Website: http://www.ejpc.eu.com/ejpchome.asp?FR=1.9. Foundation for Health in Aging – a newsletter from the American Geriatrics Society.Website: http://www.healthinaging.org/public_education/newsletter.php.10. Health Progress: Journal <strong>of</strong> the Catholic Health Association <strong>of</strong> the United States – Official journal <strong>of</strong> the Catholic HealthAssociation <strong>of</strong> the United states, published six times a year on topics <strong>of</strong> importance to Catholic health care.Website: http://www.chausa.org/home/.101
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Journey ForwardLeukemia & Lymphoma
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their end-of-life wishes. CE credit
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