Rehabilitation Gazette (Vol. 29, No. 1 & 2, 30th ... - Polio Place

kd6pmd6nt Living30th Anniversary EditionREHABILITATION GAZEITEVol. 29, Nos. 1 and 2Edited byGini LaurieJoan L. HeadleyWm. Michael MudrovicGazette International Networking InstituteSaint Louis, Missouri

With GratitudeSpecial thanks to the forty contributors who have so generouslyshared their experiences to provide us with this retrospective andintrospective account of their rehabilitation into independent living.Copyright Oi'lR9 by Gazette International Networking InstituteiSSN 0361-4166tiazette lnten,ational Neworking institute45112 Maryland AvesueSainl Lnuir. Mirvlwi 63108USA.All right5 reserved. No par1 of this pllblicafion may be reproduced wiUiout the prinr permission ofGazette International Networking Institute.Printed in UleUllitedState olhericaDeigned by Sheryl Prater

From the EditorTo celebrate its 30th anniversary, the Rehabililalion Gazelle presents thisextraordinarv collection of life exoeriences written bv individuals with adisability ~ dst of the 40 writers have been disabled more than 35 years, andmany of them are ventilator users. They include polio survivors and% individuals with other disabilities.- Their experiences were written as guidelines for professionals and' :;w;-*R;., ,: ,:? &,*" *

Polio.Ventilator user.Lawrence C. Becker ......... 8College Profesor. P1~;l~soplrer E!hicirrPolio. Ynfilator user.Charlotte Becker ............ 12Llhroria". Lolorenrei uiife.Bud Blitzer ................. 14Rr,;red b"r;"essmonPolio. Yntilalor user.Doris Brennan .............. 17Aduocore. Founder of independenr buingren,e,. Writ",.Spinal cord injury...............Ida Brinkmaa 22wile, molher, grandmolher blunleermlio Ventilator urer.............Richard Daggett 24duoc cote blonmerRlio Ynfilafor user.SoleyDietz ................. 27wife. lh1uoteerPolio. !knti1ator user.Gloria Finkel ............... 31Wife, mother. ~rondmofher BookkeeperPolio. %"tilatar user.Jack Geuskow .............. 34Uniuerslv profmar Reqisteredpsychuloglrl. Aduocole Hosbnndandlolherm1io. &"tilafar user.Iva Sue Grover ............. 37uni"ers;vpmf~or Wilemlio !knlilalor user.Robert E. Hitz .............. 40fn3"r"nrc agent. Music feach~r and;mumen, rrpo;,,non.Ma"e-lrumpll arthritis................Sheny Hurst 42blunteer elementory ,1111,er.Polio. Ventilator urer.Casslwin .................. 46Edllor The Disahiliw Rag.AduoralePolio.Judd Jacobson .............. 49Businesmrao. Ownerofnauel ogcncrHusband.Spinal cord injury C5.Dick Jaskela ................ 51Teacher. motoqrnpherRlio. Ventilator user.June lsaacson Kailes ........ 54~irector of independen, hing centerAdoacob w;ieCerebral palsyRehabilitation into Independent Living

Todd Keepfer ............... 57Teacher Hlrsband ondforhermiio. Yntilalor user.Audrey J. King .............. 60Psycharqirr AdooralePolio. Yotilalor user.John Leihold ............... 63Alforney Aduocolem1io.Bente Madsen .............. 66Aduocole.Muscular dysrrophyLynn Martinka .............. 69Retired b"5i"eu oCco""I0"t.hli0.Karen McKihhen ............ 71Eng1;sh proressarmtio Yliialor user.Susan O'Hara ......,:,r,,,rr,6,

Susan ArmbrechtPhone saleswoman. Usesvoice-operated computer.Polio. kntilator user."There are some basicfactors which have helpedme to achieve my presentindependence. Theseare: adaptability andassertiveness; balance andbounce; coping andchallenge. Besides, ofcourse, continual supportand guidance fromwonderful friends andfamily "It is not easy trying to figure out how '"bounce" back alter a particularly diffi-I, a quadriplegic with respiratory polio. cult phase ol my lile, such as the death ofcame to be living by myseil in my own n.y tlluthcr, wai no1 a1wn)s iwllt ur $,as".aoartment. and what factors and lorces~~~ 1,811 1

week. some being around lor my worklint*, vthcrs coiely lor my play time. I alwllilve runsclou~lv dsvelourd a back-UDsystem for tho& wonde;ful occasion;that we all know about. Adaptability hasplayed a strong part in my not goingtotally crazy some days. A great deal ofmv time is bv necessiw sDent in organizingand keeiing track bf my pramaticwclrld l.#kr, do 1 need 113 do bnndr) 'Whali- lor dinner lomnnow' Whc.'s qoing10 wash mv llmr Thursdav' So I valuehighly my"plav time? I ah continuallyvery wise person once &id, "It's not easyhaving a gwd time." But I certainly Q.Life would be boring, if not useless, if Ididn't do so.It was a gradual progression from livingwith my immediate family, to living withmy grandmother and brothers, to just mygrandmother. to kine on mv own. Durine "ihese stages I graduaiy hadio learn,often by necessity, how to hire andmanage attendants. It is a fine art hyingto get someone to do what you want andhave it be a pleasant experience for both.There is nothing wrong with a little psi-I:vrty nlut~valed man!pulal~on.I Am 1,rewully cm lhr lr~arrl awl havehpcome nrlivrlv ir~uolvr

Lawrence C.BeckerCollege professor.Philosopher. Ethicist.Polio. Ventilator user."My family always assumedthat if I lived I would have afull and productive life; thatI would go to college; that Iwould find a way not onlyto go to college but to havea career that I wanted. "in one incarnation or another. Gini'smagazine has been an important part ofmy liie since the early 1950s, when theToorney j Gozene was my favorite amongthe newsletters circulating h m hospitalto hos~ital. In those davs. the magazinewas a iong way hrn its current &ry butI read it eagerly. When it comes acrossmy reading board now, it goes on top ofevervthine else.6 e ~rioritv 1 give to the Gazette wouldnlrpri.rty-stx yeasI I~avr louehl hard aealnrt Iwlne ~rle!lr~-man, philosophe;,'teach&. husband andso forth - as hard as I have foughtagainst the limitations imposed by mybodv And mv insistence on excluding themo&obvio& fact about my liie from?very ~p!tl>ln #lfirrti,tion nime has %,meuf the i.llvc$ 101 tle~~~~nl.I~oti~OII ti,? #"sideand on Ihvuuls~Jr So mc~ch us. inrl.that aseverely disabled friend onceaccused me ri tryny tu pass" Tl~arremnrk slili slinqs - ntrl unly becauselhr < (large of sell-deception ic hard tolake. hut nlw IICL~R~SPtl suddenlv illumi.notrs lur me !It* ;al,it!rd~ly of my w.llkingaround arms alu~ngl.~>l(. I,reiilh.rtr: likenlroq arttnq like 19i2 wasa ivq g.~.clyenr.li,r the record. 1452 W ~ a C "cry badyear lor an*. except that I suw~ved it Ilka ldrn~~ar k8r~l 01 610rV,and can be toldvery briefly In August of 1952 1 walkedinto the hosdtai in Hastines, Nebrash.wlth uhal l;nled nut to hra qrvrre rmeol l!igl>-q)~#~iti [polio l y arm- l.o~lcVWII Ill? mid 70iand micl 'X~ls. 113 1'184 1 hcu;t~l " Irl !we itwheelchair intermittentlv, far excursions.Rehrhilitstinn into lndelpndmt tiuino

thee-wheeler for trim around thecampus, and a (foot--powered) EMCompanion chair for use in the classroomand for travel. A wheelchair is safer lhanwalking alone, is less tiring, and restoressome of the mobility and independence IImd from roughly 1'15- lo 1'174 OlhmrlseI am in gmd 1.raltl~. ,and all, wurkltlqharder lhan ever (I an, .+ ~,role~wr dlHallins College, where I have taughtph:loulphy Z#rlre 1.81,5).l'l.*n. nrr llbree 11t11,4< al U!e hear1in that other world, but nowhere nearas happy,There is no secret to lhis sort ofsuccess-without-arms stow. Evew readerof the Garene knows that ihe ingkedientsare f!rst. second. :mikt pollo Itad changcrl war(thrw was tu! much d scrmmlnatlun Ills w:ay III wl!~rl~ I wc,!>.

took a day at a time, with an occasionalnod to what is now called shategic planning.From this vantage point the things1 did lrom 1961 until 1967 look prettyunsafe. But that's what middle-aced menare suumsed to think abaut therrvouth-IUI e$ioits.Charlotte Burner and I were married in1967. Life with her feels a lot riskier thanlife as a graduate student, but that is anillusion. It is objectively safer; subjectivelymore gripping. h unconventionallife, in a conventional setting, adjusted forthe lackof m s . What isn't an illusion isCharlotte's unfailing companionship, witand ~nlcllr~t (Tiant is true 1,ut swr>dssrupld. hecause .I trer tu ~rtnl .tp a loveaffair 11, the ioms reaulred fur an irrelf."ant public event such as a testimonial ora political campaign or an article.) Thefact that I am so compromised physicallyhas compromised her life, tw. But shehas her reasons, and is rightly angrywhen I do her the injustice of imagininIhdc i ia~n the U~IIIIC of Iwr every i,nwngdwo,!!v~t! Tu make II 111111 an ~t~.lllrr~a..rile II)~IIAYCS to make trlmmlnc mv ix.unlseem comparable to mowing tke l&n:baring, intermittently apprwive, but ultimatelyroutine.The rest was (and is) work. That andwhat the psychdlogis&call adjustment.The letter inviting me to write this reminiscencesuggested that I try to articulatesomething about the adjustment part also-something. I assume, beyond theobvious. I'm reluctant to hv this. sincemost of the readers of this)ournal havealready worked these things out far themselveslong ago. But the truth is that myahiiih. to cope has been shaued decisivelyby several discrete even& -scsrral dlrcrute ulteranres, nrttlally -that i havc never hrinre trwg! !e.ot~ rr~y (IWII lie. walked lolo my Neuer use THE focl One of the firstIICIII 01 vision in the rnlnor ul the iron trips I made in a wheelchair was a farcedlung, made eye contact briefly, said g d excursion down the hall lrom my idlingmorning, twk out his pocket watch, and iron lung (I was due backwithin thewithout warning went to the loot of the hour) to see another juvenile male wholung and turned it off. It was as if he had had had polio. The nurses didn't howpu&ed my head under water.that he and I had been seventh-wadeuWithin a day or so, as I now believe. I enemies. They rolled me into his room.independently rediscovered most of the and he mac!&ily a.lowed mr It, unlttruths, and ail of the errors, of an ancient while hc d8rlaled (lo a lpatlrtkl Crrylady)and famous bwk 01 stoic philosophy a .elter In his e~rllrlald. 11 Ihroan wtrhcalled theEnchiridion. It was written by the words "I&ess - now that I've hadEpictetus, a Greek who had been a polio ..."Roman slave, and propounds the idea I wanted to throw up. Until then I hadthat human beings can control the quality of course been considering the possibilityof their lives bv cantrollinr! their01 writing several such letters. like a eoodemotional nodit~te~~e~.ta~.liics~uu~~~t~slo lhttle upp&lunisl. H.11 ll~nl wme rlro;;revvlacs otllr ll,lllgr nrr wllillrl y~tlr the iho~~;hl,n~,ti al. $11 )Is vnr~atons.ro,ltnd alncl #,tl>vrs arr 1101. Fptctchts said. prnln~~r~lrly (1111 01 i!ly nmd.Rehabilitation into Independent Living

Don'rpanonizepeople wirh no feer.This is complicated. It begins with avisitfrom a woman paraplegic who had justgotten lag 10rarr.s and earned nuw lullrave herrrll tu her lcet In the f111sll 181her triumph -

Charlotte BeckerLibrarian. Lawrence's wife."You certainly have a rightto a fife ofyour own. "hr aburher. I havc lranled ii lewthinqi. Slncc the~e thnnys are d!ll~ct~ll 181summarire. 1 will enumerate wmc dthem.I have learned that successful pushrelatounrh~prarc ltke SIICT~~WILIrnanlaqcs ylru wold at mcrglnq your nlleLMks ih!~ 1s mosl ca-lly done *hen therule hmk are in aqreemenl from thevery hqinninq, which ip why people lendlo marry jwople Irolu \i~ot..xr bdrkero.utd

helps to have my name tag read CHAR-BECKER, not MRS. LAWRENCEBECKER. That's the easy part.But what does a civilian sav . to ohiloso- .phers (or engineers or edttors or adexecs)? Whtle I am conversant withpl81l"wphy. I can't prctend robe a phllosuphrr.Once ]us1 a few years alter IAVand i qnt marriea. l lound mysell lalklnqat one of these meetings to an aged.venerable philosopher about our muNalinterests. At subsequent meetings, weresumed our conversation about theVirginla mountains, renovating oldhokes, his nnlalrur str ng quirtct . Itturned out thn! I Itad made ir ends with aman1 in 20th ceottm i,h~lownhvOnce I dlscovere6 &at even ihe meatest philosophers are three-dimensionalktngs. 1 lell li!:riy romlortab.e at W 9m??r.r#gs ,Ls a 111~raria11 I

ma*et Maybe if I could only llanfi on L,r more lhml hidt ware all lhr male ixnuaalhttlr wll~le lt,nger. I mlghr be able to sion Mol,vdr#n~~ wnarllmes sprlngr fra~!.alter the I,.~st#w%s 111 ,illnut, 11 more orofil. the mop1 unexprcted source.;able and, at the same time, hiendlikr to i\s~de from long priion III~IF, I canmy new limitations.Imagtne notht~nr: tctal rim urqanize mdAfter much mental huffing and puffing, wain the molnl brttrr than chrontca new business was born in March 1956.We would try to dwim and sell unusualkondr ut cr!.ln): surfvccr like l,~m~~~uus.tnlrrured, wwd, etc rhrouqh nrchltccluraland lntcrlar desien .;t,rc~l~cn. I one##wondered if part ol th; inipiration mighthave come hom lying on my back farweeks staring at the faceless hospitalceiling above me.The new business immediatelv beeangeneratine, its own motivators. &t &erewal .;ttrv$;al. llten growth I neededgrowth lor many reawns One *as tlmt(18v attrndant r nlv eol me un at llotne anddillvered me to &;office. lihen had todepend on the oll.~reoplcto take careuf my peralnal as wrll as my butmessneed- 0~ rlf tllr must baslc was hhelugoing to the bathroom. Being prudish'bynature, I felt this required the services ofa man. One day, when the company wasstill small, the need arose, but all of our Bud with hi8 wife. Dnria, and theirthree men were out. Luckily, my insur- dog, Barnher.ance agent dropped in just in time toavert ; m~rlla~,: lrot I subsequentlydec.dr#t to try to makc the roml>.my Ingcnouull u, lhdt thts would 1101 III~IIIIWagain7 When we finally sold the cbApanyin 1984. we had 85 employees. of whom30th Anniversary Edition-Rehabilitation Gazeme, .\bl.29.Nos.l and 2

always generous with its help, even to thepoint of assigning people who twk apersonal interest in me and often, ontheir own lime, made special devices formy use.Starting in 1954 with a simplewali-mounted hand set which required nohands, to a hee-oprated push-buttonswitch panel through which I could gainaccess to all phone lines, and finally aswaker ohone. , . the" - keot . me current asthe company grew and new equipmentappeared. Those same two men watchedover me for more than 20 years, and iowe them a lot. Other devices that madean impartant difference in my life were afoot-actuated b~det that eliminated thetuerd lor lnilel paper.= lwr-acrl~alniti~~tnlto~~ tl~ac.ll~!.e re1 up by IlItt peuplvsu I wucd dirl;llc lktlers and lake lelrphone"notes," and more recently a newb~ertrnnic automatjr-dial ldq,h~ne andthe a~~.~lr-I~~,qer mude cornpu1t.r I(,!>usme t., urck 0111 lh~s oa~er. \I henever Icouid ldentllv a repetiiiam problem, Ifound it generally baid to launch anaqqre~~~ve search lor a ru,tlt~ol!My 11r4 mitrrlaqe mded in rl vorw 25yenrchfler 11 slarled.O~r lnablllty IUndiu\I our r?l.rl~ooship lo the changrs~~\ILI!III(( Iron> 1nl.o was a major lactor.nlll IHI 111~ count 121 tills changp 1 dtcrov.,,reti tllal DCOI,~I! III wl~e~lri~n~rs cancourt, taa: and in all modesty, my resultswere spectacular,as anyone who knowsmy wife Daiia will attest. We've beenmarried now for 18 years, and she hasbroueht ameasure of oeaee and content.menito my restlw life that is wellbeyond anything I could have hoped for1 learned the benefits of neworkinghom Gini Laurie. i don't know how shefound me, but some time in 1958 an issueol her Toomey j Garene anived mysteriouslyin the mail. I began to read abouthow other people were coping with problemsjust like my own, and i felt lessisolated. Over the years IL-e exchangedideas with he readers, and eventuallymet many of them personally at herG.I.N.I. conlerences. We now count samemong our mop1 chertched frlcndr. 1rn!lnot ov~rili~le my deep ri,prrctt#!tc,uro GIII lor 1116. henelils I vr rcc vtvcrl irwnher lifelong commitment to helping thedaabled.Wr.lcnp this papr recalled to me someol ull.>l I en? Ik?li~)g 311-odd year* nqo acI slr81~eIe~l lo ewe wixh ti>+ IWW lnnrdeusof dis:dbilitv. l cohd not then pichlremysell even lasllnq rhls lone let oonecr~lo~in$ s qmd qual~ly 1)1 ltl~Mylllollel~tr " werr istore about adiuslmenlacceptance, and survival. Slowly, and withthe help of family, friends, and evenstrangers. I overcame enough a1 thebarriers of disability to replace my feelingsol deep self-doubt with a measure ofself-confidence. At 63.1 am feeling morerobust and energetic than 1 did two yearsago, when my health appeared to bedeclining. My days are filled helping oneof my old associates start his own busines?in hh~hI have an intcrcrl. lrylnq to$peed the dcvclcrpmrr>t ul a workable andallonlahle nose mnck. dame a little rraveiing,sharing the simple p1;asures of lifewith Dalia,and still engaged in the struggleto live as independent a lilestyie asour limitations allow I still think iilelaved a dirtv trick on me when I was6h"sen lor tl;c gall of pllu AIIII ye1 isomelimes wonder what I wuulrl hi,vrmised !.;)

~~~~ ~~ ~-Doris BrennanAdvocate. Founder ofindependent living - center.Writer.Spinal cord injury. C4-5."Rehabilitation was thefocus of our lives . . . Tryingto do and outdo each other,we also came to rely on oneanother for what we latercame to know as peersupport. "Lying on a Stryker Frame, weightsanached to wires in mv head, unable tonnovv. those words, splkrn lo my muthcrawl !me hy it hc?pectarlt~g c,fl into therullsrt' n~rcfl. healed. whue Aller all.& aniv emenence &h disabilitv cameh6m tk movies. and 34 years agb,movies all had happy endings! In "Heidi,"Shiriey Temple did what no doctors coulddo and hebed her friend walk. and Can,Grant saw beborah Kerr miraculously .emerge ham her wheelchair for a grandreunion in 'h Affair to Remember."Could i m c t less!?The exphences of the next few yeanin and out of the rehabilitation hospitaland the friends i chanced to meet duringthese and the ensuing years gave me theanswer to that question. it was yes andno. "Walking off into the sunset" - thatwas not to be. But a life of fuifillment,satisfaction and quality- that happened.Encouraced bv mv familv. soulred onby two great acfupitiona~ih&a~ists whobecame close friends, and buoyed by a:.b1.29.Nos. 1 and 217

couple of fellow quads who "had idbeenthere." my iimt encounter with the "rehabilitationprocess" showed me that thereco

my work. Accompl,shmcnt~ added to myvalidation as pemn nnd hrcame thcbutldine hlurkr of mv cvl.r-1n81,r.?vinq. b,.~,...,~....lioing oome for the flrrt time caucedmixell r,~#oltnns. 1 way reillly lor my ncnstel,\ wila.l. 1 booed would I,? school. butI w& also a little learhl of leaving theralc and stlplr,rttve envtnlnrljnll ol therronb husl>.~al During my rwo-i8,ld-a-half."cars ~n th* l ~~s~~~~al. I had yuttr homeonkekends, gone'out with fr'&nds torestaurant! and ~nalls and t~ s< c filmsand attend cuncrrli, u, hu.nl( "ollt !n theworld" w,th mv new se.1 ~rcsente

seeing this arvanization as a graur, workihgfo; =hang; I kcme oneof t11.eIoundlnq m~rnkrs'IhrnogI~ membership~n the N3( I,\. I became tnore~~aware~ ~ofnational juucs and concerns relnlng lc,dl~illlllly Uf COUrS*, 7?00nl~)1] (;uI~'I!.!.bhnh I had heell CVCCIYI~~9 1 " ~ 11s ~ Ilcslnttme-raphrcl tuurs. kept me .~l,rciart of~rbple.t%%t~r% sltd how ~od~vidua~s wllll~l~sabll~t~r~ wrrc rnanaqihq lo ivs liveruf quallry and ndcpender~re. More andmore I snw pus~bi.ltie$ Less and lesua% I wlltnu tuacceol llmled o~l~on5 forcammuni~living fo; my many friendsand acquaintances who were locked intoinstitlltion~.As my involvement with NSClA grew, sadid my activism. Because we were theonly dlsab*lly group atoutul, our phonenumbers h~cante the uneo tu call lor~nlurmal:oo almlt ~i~sal,~llhr-relatedconcerns. We were called to assistfamilies ol people who had recently expe.rienced spinal card injury and to provideper guidance to the disabled person. Wewere asked about the full scow of life'scircumstancw and situalions'of peoplewllh t.tl the dm,to qrrnter numhrrs $11 a

~~ ~Durina my time at LEAP. we have madeinroads ;n &ploymenl opportuttltlrs lorpople whu havr rnrvrr helore wo&rd nswell a< D~ODIC who Ibave I,een out 01 thewor!do;ce ior many years because of11te1r ili*id,~l~lies U&g iu~d,v~dualized andgrolq, prrr loleracrltn#, we 11elp IlnllrOYes~.I-~~stret~~. iawi~l W~III tlrv~lc)~)i~>~ careerioals,and prepare jah-seeker;lo;the jobsearch and maintaining the jab onceemployment has begun. Our work withemployen centers on marketing the abilities01 our [rromam varticioants andinforming ;m$oyers aboui tax incentivesavailable to them ii they hire employeeswith disabilities. During the past year orso.we have became the local resource oncurrent and proposed chanzes in theUork Incvnt~vrs, il~>tl have heen conductinqworkhtrps I

Ida BrinkmanWife, mother, grandmother.Volunteer.Polio. Ventilator user.'7 learned long ago to laughat myself "Labor Dav of '53 marked the onset of mvpolio. ~eidlesr to say, it is not one 01 mj.most cherished holidays - although thepeople that I've met since then haveadded a vew soecial bonus to mv life.I was diadndsed with three W&s oflxlllu and conlpletrly paralyzedrxcept lor the I>,)( l#e 011 my ell lnnt. Iww lmrhrd >mmrd>alelv and o ~ .I, t anIron lung Twmev ~avlllbn w& my homelor huo years and the patients, doctors.I$!I~SPS. therdpisl%. voI11111~ers. cIC,lwcarne an ih>l~qral put ul my famiir Weshared th* oa.n!nl moments a% "4. nsthe happy dnes. The volunteers helpedmat? ntlr iwcc bcnrahle l~v wlrplvcnqenterl181tlmcnt and nldlly lllll~b "31 bybelnu uo~d I I F I ~ ~ P ~ I S rra #we now thatthe &&,IS, traehs, blwd tests, and oherbadly needed procedures, as well as hot22I * ,IIda md her da~tgl~trr (IefI) Bolllli~ii Bluebird ITOUP in llle 19605,packs and therapy, were not alwaysgraciously received.And when I lwkback to the many lone hours a1 work. thepsychology and wisdom that was pouredinto our care, l appreciate the tenderloving care we received. l send out manybelated, loving thoughts and thank tothose who really cared and were involvedwith us.The wards were not entirely filled withRehabilitation into Independent Living

despair as there was a great deal of frivolihslwh as: rnotnretraos olaced in thebottom of iron lungs awaiting an unsuspectingnurse; full bedpans hcked off ofbeds (of course, I never twk part inthis!); unmentionables being hung on amale oatientk bed (his wife was anutrekly jealous woman); notes placedan a patient's body under a nightgownwhen said patient was due for a completeohvsical. And - since I learned lone aeoio iaueh at myself - I remember saili@downtne hail ou a gurney in my btrlhrl;!ysuit 'Ibe hall w;ls loaded wilh VIFI~OIE MVsherl h;td eortr!l shrr .n the iron lunvand with I& breathin$ability being n;.thry s~t~>~lyi>urr!rd ir 01) tiown !he hall11, a batntttl) I d:dn't speak 10 nnymw lora week. bol when thev o.nned The llle~~, . .1l8enl ;mcl lbrokc our $1; Ihughler.I remvmh*r !he whccal~a8r draq ramthat caurt.d itlatty a yrud rnllrse to turngray. And the tl#t~e rl (new black vldQlurned oll my roc klnq hed md wnrunahle ro turn it bard on She proccrdedto lum while, anrt I tt~n~rd lrtark!Thrn there was the orlrae who wouldwave1 between four patients and feedthem wh1.r *.ah pacenl was oa! a rockingbed Fach lhrd wil. rockmy on a #lallrr~ntnclr The reindl wn it vcrv , unrwtcltr#,n- .ized nurse!I have had to change horn a chestpieceto a PW. machine. I was very angry atfirst. but it has Drove" to be mv salvation.I ieft the hospital for home &et homein August of '55 after telling a very naiveaide that I was to be towed behind a carin my iron lung. She, however, got evenwith me by putting a "loaded" bedpan inthe van I was going home In. The group inmy van that day looked at one anotherverv susoiciouslv all the wav home!1'kcAe a bdrn again ~Gistian in1960, ancl thr gn,d lkrd hns seen melhrouqh many a dlfltcult lrlal H* b.?s-edlur will, a good hubhy whu has bccnla~thlul anrl tireless I! hmn't been an eayroad lor h.m ilu*ruvr. he ha. carracd hlsres~n~.b~l.liec admtrnhly Our rhiidren.Da\..d Upan, and tiunn~v. rmaltaqrd Inen,* III, ntllte nnmnllv under llleEircum'stAces. They iithstwd umpteenhousekeepers and nurses and readilyaccepted their electric mamma. Lovingdiscipline was a must.They ail learned tocwk and clean along with nursingchores. W vied to give them a balance ofgwd times combined with their requireddllti?~. ---~-Mv len lee evenhlallv regained samemo;ement &d hubby jahh rigged up aspecla1 shw lor my left imt.enabllny melo play shulllebuorrl will, the kid$ Slniewe hnd an ~ron iunn and n rcrklne hed inour living rwm, &had linoieum~lwrs-just perfect for hopscotch and rollerskating.I remember a grade sehwl teacherwlnc, ram? It, mGl me, planninq lo reprintilndme lor nor atlrndln~ t'TA meellngsShe had no idea I was allrnbic,rt Thr amlad" almost fainted! I checked the mirroras vxm as -he nad qulw - she !nuithavc ll,uughl lhnse notes I wnltr wllh npencli .n mv mwth were lrom jtllrrynerve? or alcr,hul~.;m Unl w at all'Th;mkr i c thc ~ qwd I ord, our childrenNrned out lllle allcr all nave, our uldcst.presented us with two bcattl~lun grandsons.He is empluv~fl by the government30th Anniversary Edition -Rehabilitation Gazette

and res~der in Virglllta Dean works lormy huhhy IN, a twl and dle shop Ourdauentrr Runnle and her nul,hv own a

3nthAnnivenarv Edition.Rehabilitation Gazettewith leg braces and had my own wheelchair,which I propelled with my right leg.MY leas continued to show im~rovement.and iilegan to U$P the wheelchaw lessand less .Alter tug> bpinal fusions in thrfall "I ICJSZ 1 01,a.c #!a" ~,,c,~*%L"cscoliasis. I was disciarqed framkaneho.home teach;. I graduated with an honorscertll~cate lrom the California ScholasticFederation and took several college levelscience courses.Althaueh I was fairiv hmctional. l hadlinlitcd IP 01 my up&, enrem~t:es andcu~n,,~~nl to wear leg braces. My blqqestprublrm was r~blr~cled ~)tlln,oll.try IUIICtlontvm un my be$( dnys I had n vitalcapacity ol lew than 25" cjl i>onnrsl Tl8i.imade lull-t~memploym~nl

known abut the late etlerts 01 p,liowhen thc awr.ratlott wa.9 incowrated in1.175 We \t;,rled wllh a curv group ofnl,oul ~1x1) rnembrrr, musly rrsptroturdependent 'attrnnl' 01 Riasnltu 1.0sAm~qm Ihvtn): III Ir,c,$ngelw County hrmc,r(. WIIU s~rvlv#>r, are ex~er.~nc~ncproblems, our goals have expanded toinclude rcsearch and relerrnl ancl ourmemhershtp has gqrnull 10 lnrlude peuplcarrocs the I'ntled Sl;8lrs and several inCanada and Europe.I int>l~c.rd inLrea-e in fatigue 10 llwearly 19Rlls and kqan osl,~): ao vlcvlricwhecl~na!r to redtnt. the stram urn mvlees. The wheelchair allowed me toc k t e bam my home to Ranchoseveral times a week.Late in June of 1984 1 felt I was comingdown with a cold. With me a cold usuallyhas three stwes: three or lour days ofrongeslluo atid d~rcomlurt, lhrw ur lotlrdays 01 gradual impruvcmenl. anda~arlher week lo net back to n

Soley DietzWife. Volunteer.Polio. Ventilator user.'%tience and determinationbecame the key words. "Ihc year i9 1954, and with youthfulexul,eru!~re we are delm#811~rd to hitchtu a luck star and, tuurther. lwale theconqukr. Ow dreams were big, and whata comfortingthought it was, knowingthat we had a whole, long lifetime aheadto make them all came true. Each andevery day neld great prornlse as ourvaried jndiv~dueil inlerecls - goll, howl-~ng,churrh iart:v~t,ewhtle we st~llkept .ttvolvl-d with our q,;nratr wurkrl~;~llc!~g~~s .\h~ll and i~~nl.llntonq ltle itrlr,+t ctrlalnly was n all ways.To mark uur second heddtng anniversaT,a apccclal 8r.p bas planned. a drive totlr eastern shore 01 hfaryland lo rprnd awee* w.th iamilg anrl mill! Iilr svrroc.picture-que Iwin~ty lll;8r o~tl) IhcChesapeake Bay area can offer. It wascustomary. on occasion, to enjoy a gwdgame of "Scrabble," and it wasn't until afew weeks later that we were to learn thesignficance of my Sam's draw -'"N.Y. DOOM - without yet having theopportunity to arrange his letter tiles!~ ~Upon returning to our home inFredonia. New Yak, I was leeling quitepoorly and was soon to be diagnosed ashaving the old-fashioned "grippe." Withinless than twenty four hours, though, itproved to be a totally diflerent story asthe bulbar wlio virus attacked mv entirebeing, and ky Sam prayerfully l&ked onas the doctor, in a seemingly hitiletllitllllcr, attempted lo a%%lrl lllc $11wlnolnq mv harllc tuI.ve From there. tncserer nf evenr$ were rrltlcal uncs that iwas to lei~rn ialrnt~three weeks later.when I ;iwokc I 111>

erahly, qnpping jusl shorl ol tmlrry, togel nle admitted illlo thelr ihlllrr rlrcleI! was a 'lurn~lt~ miol' our vo.~otulives, and one in which our vishn w&later to be sharpened into areas that mayhave otherwise lain dotmant.It was the beginning of a three-year up.hill strugde, durinE which time we bothwotlld become adcpt at ca.ling on our~nner strenqlh lo provide an nltilurle ll~alwuulo hrlnv hsr6 a se~se nf ourcx,w nlnclmeaning t&ur ~ersanal wo;ld. A laboriousinvolvement where patience and 1drlmn~nal~

It had become like a warm coemn. andeverything on the outside was bothloreig and tenllying to me, leaving littleor no desire to venture out. Many tearswere shed while being weaned from myseemindv safe haven. but thanks to thestrict and sometimescruel-like re*menfaloonul bolh nurses and aldcs. l amtoday lrre Irom the cumhenume ''tank'and able to lee. pecure, ~ nmade d moremobile through the usd of first the Huxleyshell, then the smaller looking Monaghanshell, the Emerson rocking bed, and alsothe intermittent oositive oressure hose(used by mouthjihich ilows my bodyfreedom to be bathed,et cetera.This accomplishment then providedme with the oppartunity to pursue otherchallenges such as daily physical therapysessions, where pain was the dominantiilrlor whde thr~hptsra :~!lrrnpled lortrrlrll n~v mnlloniers ilnlln, nlollq withuwasa,!~;l. @lrney-ridei lu the ux,!lunqwarm almusphrrc ol loe Hubbard lank lormore hciplul excn ire aesskons.'lhe nlort mllm'na,!ls imtd tiilf~r~lt acttmk 1~1.1.e w n thereolrer wlleu I madea hl#l a!tem(,l to b,d larrwell lo nlytrach, pruvrllllg gre.21 cnnrternatloll alaiIcq~uns

many to single out at this time, but theimportant thing we recall is that whenone "door" was closed to us, God alwaysmade certain another was opened. Westarted out thinkinq that older womenwould ne more relk;ble ma colupelrntiano there were a leh lhal we sldl roluyIriends). Huwever in lilr earlvas C~DFC'600, we were tdbe enli~hkned whmke"welcomcd" a nineleetk-ysor-old tntn #>torclrclc ol 1mi.y. Frc,lll t11~,n on. we'vvcontinued to be I8.t'sicd wclh a varlehr ol~~2 -~youth, each of whom is huly an "adopteddaughter" in our hearts. Being fullyinvoked with each along the way, we'vereceived an added bonus in watching ourcircle erow to include son-in-laws andgrandkyds galore.. . all of which roundsout our lives and keeps us ever thinkingyoung!Since that fateful happening in lateSeptember of '56. not anlv did mv lifeshrlechenne, but also bur peripectivhin lwk-mg al~vad lo that 'drennl' lI>nl sm sl~llthrrr watllng to hz lougl81 Yo. wllat;aooearcd lo he ant rraltrlu, wm mcrelv theadcent& that was to tak; us to ninedifferent hmne locations. Each move wasunique in itself, providing apporhlnitieslor me to continue to discover and testmany hidden hlentsIt was a caring, ygrutlg lulheran pactorlhal uac loau;ikvtl wy cnleresl in w.li~,quhen, upn i!ter!uns me, ne asked il Iwould contribute a "column" for a newslrltrrne was in*lisal~llg lor our localSewirke): Rnnsylvisr~tit. church O~ll~rnnlnrtunlllcs lo ah;#rr rmv fn~ln took offse wlr, .,re free fromd~sab~l!l~e~ and cu tla,~~,, lhke myself, whu!n~ll .cam tn slawwe n s~lle 01 anunpredicted "incapacitation.* Indeed.w.lh~8 cavh of us {here ic s ula>l? y e ~ niong:lls lo lr free lrorn ihlllnnlllcs"t:nw.lthv should he iunu.l~crd often andwisely sb that our earthly journeys can bekept in perspective, keeping hope everpresent in our hearts, lor.. . "but by thegrace of Gad, there go I."$6Rehabilitation into Independent Living

Gloria FinkelWife, mother, grandmother.Bookkeeper.Polio. Ventilator user.'Tnside I was still the same,but I was ireated verydifferently by others.However, I have found thatpeople tend to accept you asyou accept yourself "Today, I am 51i yem old, a wile, mother,and grandmother ;and have hnd FIN, lor:I4 "err* I have IIP~~B asked tu rrflrct urn11sse years ir~l.lurtmps, slabre thrWIS~I)III that has ~nvblrd mc to reach thelxlltll in Ill? uherc I am luday Aher muchsnl. scarchinq. I have reached the emhrr.rs-lng conclus~an that much ol mv l,leha been qoverned thy .~c:k(11 ir8lrlligt,nrfear or. more surrl!,~.lly, '?ll~~nl, lhwk 'After graduali~ll: Inl~u htgl? .ivl~t~~I. Iworked irq nu FKG lrrl>tucns~ lor unc30th Anniversary Edition -Rehabilitation Gazetteyear, enrolled in college, attended oneday. and at age 18 left to get married.I swear I didn't have to!My husband-to-be, Shel, was wotldnghis way through his lint year of dentalsehwl and when he had a few days off farsprltlg twak ur mad? lhlr matuie deristclnOlhvrs lolowed Allh

Adam." WII. I did. I watched him methodicallyand systematically pull out andspread out on the flwr even, sack that111s l~ttle arms could reach f&n is Iklrgedlsplny maw Menttbh~Ie, the a;s.esgjr. at~lolner r#lit#~mrrs urn! walrlllt,u mr 111lascinated dtsbelief as I iust st& therewith an inane smile on my face.People always say to the disabled."How brave you are! I could never dothat!" Yes. they could. We didn't bravelychwse our disability. We had no choiceand lrankly. I dunt lhkc it.M) rondiIl

Lenergy returned. At present. I am lookingfor an alternative to the rockinc bed hutnow. thank to Glnr and G IN I ,-I canmake an informed choice. That howlsdReis very rumlorli~l~,\Ism very cumlnrli~tq is k~>uw~nl( thatI am nrol alone olll tlwrc. lhat there arevalid reasons for (and solutions to1 manyof my proh.vms, thal lhrre are lroless~unalr,wnv care and dre willil~g ID sllarelneir exc~rzence atal kr~~~wlnl~c~HOW~Y~. i I& learned that &e ultimaterc,lx,nsih~l~l) for rnv huallh Its wlth me.In the %l,lrcl ul rhar ny. I'd lhke to sharemy wcll-,rran~ng, wurrlru molherh raseadvlrr ,asshc UJIC~C~me lake my first>lcl,s at Inme the day I returned ImmWdrm Sprin~s 'He car~ful. 1)011'1 for?I 10always wall rlo\e 10 !he well I rt,.lllyhone Il,ls iutotl!rrlv uclv~re lhrlos mn!wncauk there: I could never figure'it outmyself.%30U1AnniversaryEdition.Rehabiiifafion Gazelte.Vol. 29,Nas. I and 2 33

Jack GenskowUniversity professor. Registeredpsychologist. Advocate. Husbandand father.Polio. kntilator user."It's never the problem, butrather the way you reactto it that makes all thedifference. "Where was I in 1958, and how did I gethere lrom there?1958 was a year of beginnings for me. Iiinisl,et.-llillI ~rlur~ll~s (~clclrd 10 20~uunrhr oarlrr l. vud t~t.unx Itlv uutslde"as a person with a disab;lih, My collegecla&al Yale sraduated ;and I siarlrd hackto schml. 1 left my lhrolher's farm. ullrrei lhvednltsr irisv~~je CIIP 11

.-I:Jaer,willt this family, (Iefltu riyht) [.it. Ken, aocl Karencelebrated our 27th anniversary this year. hwd volunteer, a registered nurse inShe has been, among other things. hospitals and apublic health agency, andmother, chauffeur, homemaker and my intimate friend and partner. Ourhandyperson, schwl and Planned Parent- daughter. Karen, recently received her30thAnniversary Edition-Rehabilitation Ga2ette-%lbl. 29, Nos. 1 and 2MA. degree; she was elected to Phi BetaKappa, and was a National Merit Scholar.Our son. Ken. was in the tap 10 of hishigh schwl class, and will graduate inDecember in engineering from theUniversity of lliinois; heS applied to thePeace Carps. My family's been an incrediblyenrichingnnd enablingpart of my life.Professionally, l have a Ph.D. in CounselingkhabiiitationPsychalo$y,and ama registered psychologist. This year I waspromoted to full Profemr at SangamonState University where I am in my tenthyear as tenured faculty. I am on the Boardof Directors or Advisorv Councils ofcomml~ltlly slate. ~lstloltal, allll illlemntiot~;$l~~rg;~r~t,a~~~~~~s,~rocl~~dtn# cha~r~nntlar Arlvlsury Cuuncll ul thr IllnosDepartmcnl of Kehab.iitat.c>n 5ervtce.9 -the aqmcy whah or;qinaliv turlled medown for services. I dlw \%orked inrIUOK\ lor 12 yearc w a ps).cla.lr,#~st andorocr;m dlrerlur I've held eleclcd ofl~resin &te and national professional organizations,andin 1986 was awarded a WoddRehabilitation Fund Fellowship to studyin Denmark. I'm 52, my health is gwd.and I enjoy the process of my life.And how did I get here? The keyelements to me are these. First, a strongand dependable social support system,including especially my family andfriends. My family and friends have literallybeen there when I needed them fromearly support in the hospital to present35

,.day mainstream living. The support hasbeen as extensive as living with mybrother's family or my Dad after thehospital, to as simple as a neighborproviding a quick home repair, or acalleawe giving me a lift to wolk. Lil, ofcourse, and the kids, have been my mostconstant support. But many popie, eachsignificant at some point in my life, but allproviding on-going support, have literallymade my accomplishments and my lifepossible.Second. the kind of persan 1 was andthe experiences I had prior to polioaffected the way I reacted to it. I'd hada secure childhood, successhl adolescence,good academic preparation.o~oortunities ..for self-initiated and selfdlrecledacl~vtly, and a ge~terally poslltveEPII-~~~~P I dltl no1 lee. clr~wrrt*lcd asanrrvm r.... lwrrure of~ntv ~hvst

Iva Sue GroverUniversity professor. Wife.Polio. Ventilator user."That's the only therapy Iever used - living. "If I were to describe the last thirty yearsin a phrase. 1 guess it would be. "Neversay never? Every time I say that, I do it.Unconventionailv. perham. but I do itTI>:r!y yrim ago I wh$ 17 and n juvuorrchlrolllg lo Illgll .;rll

~.,To do that I learned to eat and gave upthe leg brace after surgery to fuse theankle of my drop foot. Next it was "togoto work." imnically that meant going tograduate school,so I added an elementthat l~ad #lever occurred amonq lhc, psihll~l~esbclore. I alu, qave up the nerd toe ~ sick l and whatever !ha1 hrouchl me. Itwas in the middle of graduate school thatI had my last pneumonia and I haverarely had even a cold since."We may have beenvictimized by a disease, butwe are not victims. Thechoice is ours. "When I went to work, my goals weresimilar to any other young person's. Anaparbnent, a car, a stereo, travel, friends,and fun. Then one day the almost impossibiedream that had been set asidematerialized. l met someone who wasinterested in sharing my iife,and I gotmarried. The goal then became "to helpbuild a successful business which wouldbecome my husbandb career, while maintainingmy career as a librarian." We hadten advenhlrous years together belore wedivorced in 1984.l attained all of that simply by pursuinga new goal as each one was reached.Achlally, I usually started on a new goalbefore my current one was totallycomplete. But isn't that how life is? Myhusband often said. 'You'll never be satislied."And he was right. There is alwayssomething mare to learn,some new chalienge,something more to experience. Mybeliefs about many things have changedover the years.One of the ways I have changed is thatI could never abide ~hvsifai thera~v.Recently I've beguniaking yoga, a& forme it is the best kind ol therapy. I honormy body and I also challenge it. Butrather than it being a regimen imoosedby a therapist, it i& mehatian betweenmy first bmersault in thir&;ears (with alitrle IwII, Irom my lcacherj 11 wasruch annov:!tg rxl,rrlmcc I sat n lhc mtddlc 01the! Iicur and rr.ed with ioe I war alraidto do it, but 1 did, and I fkli full of wonder!So here I am '33 YCAR Idler. ~ l t lIrinnl-l~nq, sltl. rehid,il~!al~ng ~usl as !l~c rriull uldatlv Iwiru - Tlaal's tllr onlv rhcmw I rvrr2 , ~used - living. Living means change.Everything we do has the potential to bea contribution or a detriment. E.F. Schu-macher had e paint when he moiled thatless is often better. We don't have to besuperhumans to be worthwhile, a lessonI am still working on. We may have beenvictimized by a disease, but we are notvictims. The choice is ours.4s30th Anniversary Edition .Rehabilitation Gazette

Robert E. HitzInsurance agent. Music teacherand instrument repairman.Marie-Strumpell arthritis.'The application of effort,spirit, and determinationcan make independentliving possible for manypeople who might havebeen written off in the past. "When the Rehobifitorion Cmene wasfounded in 1958, the word '"rehabilita-IIOII" WAF slll murc ui a hope than areol~ry Fanb~ly and lr~r!~

F " e q~. . I..-5 . ,:-?>. -I -1I.==.Treputation in mial workand rehabilitation,was lighting to improve theAssociation for Crippled and Disabled,which later became the Cleveland RehabilitationCenter.My doctor sent me to that group foradvice. The interview only convinced methat my problem was personal and wouldhave to be solved by me. The rehabilitationpeople could offer no road map to auseful life. They couldn't even point to astarting place.Obviously, the place to start is whereyou are, but it was a lonely leeling tohave people who claimed to know aboutrehab rotts up dry I had never knownaoyorle wltll my problrm but had reel,whal 'bed-last" mean- to an alhritlrTerror of the bed was my first spur tokeep active and to work to limit the' .b~.>~cuncesswnr demanded by my bodyIlseIolnc=- wac the second acprt c,f myrehabtl.laltan Useiulnecs maintauspersonal pride and is essential to earninga living. My chief assets were the logicalthought processes developed whileobtaining an engineering degree and awide acquaintance with people whocould supply information on almostany subject:My physical goal was to prevent distortionof the body and atrophy 01 anymuscle that could be exercised.I had some help with the planning of anexercise program and even muscles andjoints that seemed less important werere~wlarly flexed or merelv tiehtened andreiixedio maintain tone:Part Two of my program was to find away to be an useful citizen andem aliving. - Library research taught " me thatmost achievements only require excellrncema ikw sL11.s awl tallilyl,>g 1n1181~81lnSlrUmenLs wrr? s1,lt wlfh I"?, w Itauqhl II~OPIP tu iplq rinr~net and six.privrtely 1 V#II.I~I sllli understandmecllalllcal ~IPVICL.FSO I learned to repairihslrunccnm in mv home Bob enterpriseswere succ&ful to a degree butwere limited in scope, so i explored thefield of insurance and evenhlaliy build upa successful insurance agency which I amstill operating.TheRehnbililalion Gmerre found me in1958 and revealed a whole new view a1disability and rehabilitation to me. i wasno longer alone. I read about otherpeople who were forced to rebuild theirlives on a new pattern. Their way of soiving~'rc>l,lr~ns cave mc ncw ideas. I~lrvri~~p~rl concerns for their problemsalld IIICII soIu110n I could ask oueslions.Someone often had the answersI lclt a sense of ro~~nnnr~my wtth 1hwrwhose $lone- I rnal am1 trlwl Irt Ih(.I~tnu US. Hecausethe message of the ~ &e& is beingbeard, there is hope where none existedbefore.Who lolows what this '%ice of Hope"and confidence can accomplish now?

~ ~ ~~ ~~Sherry HurstVolunteer elementary teacher.Polio. Entilator user.'7 try not to think of thethings I am unable to do.I prefer to focus on allI can do."In 1958.1 was snx ycam old I I>ad I,ull,arpr~ll at the ayc 01 tllrer vvlrl Iu ,\pr$l 1956, ~horlly alter mytransler from an ADllelle l~c,.;l,~l.tl toCc,nralrs Warm Sprln4~. I spr,nl illr, kttvrDart al the next 1-0 years at i;on?alcsbeing stretched, fittbd lor equipment, andtnuqhl flow 11, h~~a.!.~,~~ will. al. 111~ UPWrol.tr.$l,l#~~tbs i#.;rlx,l ~1958, my family began a long and fruitful system also provided transportation, andparblership with the people at TI.RR. some ol nly i~.lpll~~.rr I!W~CIICS UI theMy parents redined early on that my Ulird alnd fon~r~h krodrs at Casls are themind was going to be my mast valuablewet in lile, so in September 1958.1rlalrs tu and lrum 9~hcol on !he hu*.This program lacked academic chalsliart~,dfirst qradc. However. l W.LS t~~~al,lr Ienqe hr i n i . 1huwr.ver.an~l in lourth10 attend school Sn 88, imlrrnwtt aystc.rn graclr I w;c. 81 owed to qu around 10 thewas scl un hv the i>hor.v cr~mwanv and I "rt,cular'' wlne lor mv ulc,al studies. 'Thisbegan m$academk career in'a dne rwm wo;ked so we1 that ihe next year in fifthgrade I would have heen .tllo;vrcl to vrlntrlstreamlor even more sul,ierla bul wcmoved lh~stcme wr wrrr rrarsl~ned toferred ti Austin. 1 used the intercomsystem in comhillslio~t u~rll vwtr by aTexas City not !mown at that time for itsadvanced experimentation in educationalhnnslnu~~d t+.+chrr tw~c.~ a wrrk during pruyranlr fur the nandlcnppd. Mysec~~tt~l hvadt. WYII*!~ I was ready a, -art pnrrnL- were llccd ulll ;, IIII~IIII~I~ - no!lord yradr. we IknrneJ ol a pilot pr

made regarding academies. Well, I startedschool and did wonderfuliv We didn'tinform the doctors until a&r my rewlarrllvckup which aa* ollr (11 the hesl I oadrvr~ had. I rnlnr lnc>tt>r exhntlslrd the llrilcuu~le of week.\Iw.~m cl,~s.\.rwm educationhas the best thing thatever hal,l,rl~nl B, ma The intellt.>~mlrli~~1~1la1.u~~ ul ht.nltlny r,rrnLKt.!lr,n wtrhIh~rlv olncr kids. lor rnc corllo no1 bematGhed. Alsa, &e saciailzation was vervtrnporlant. I learned I could ye! alongwurld slrurlured lor the allle-lrodled. Notunlv cot~ld I eel alot>c. lh.1 I coul~l lbesu~cesshl. ~ k thictime m an, I attendedpublic schwls with little, if any, specialcorls~deraton in 'lexac Ctty, Carlsoad. k wrrtro, and Luhhnrr. 'lPx.~.. hly rrmaln-Ine srllc~ll venrr wcrr ltllr

Sherryworkingritl~ oltr of her students.live-in attendant. Even though she is hvoyean older than I, Celia and I did a lot ofgrowing up together. As the end of myjunior year approached, we startedmaking plans far the huo of us to attendcollege together. Celia had always wantedto go to college but had never beenencouraged. You see handicaps come inall farms. Some, like mine, are veryobvious. Others like the financial andculrtlrnl otlrs Celln had cxpenenced, aremnr? sul,tIe Nk bandrd tuqether. helpillyeiah

ary education with psychology andEnglish as my teaching areas. After twoyears of substihlte work. l again rehunedas a master's candidate in Enelish. Whilea graduate student, l taught fFeshmanEnglish classes as a TA. (teaching assistant).Later. I got a position teachingEnglish classes at the Lubbock campus ofSouth Plains College in Levelland, Texas.I finished 33 hours towards my master'srlrror's -. >. --.At ll,~s time, I am uncnnployrd.hnre\,er, my days are qutre full as av#,lontrrr in llw i.t~bl>uck lnclrpcndentSrhrx,. niar~ct Cel a, now Ct1:a Gllck.askrd me three-and.a.half ycnrs a$" locurnu hel~her in her lourlh-wade rwmby using ky skills to work one-an-one indeveloping reading and language skillswith her predominantly Spanish-spakingstudents. What started as a couple alhours once or twice a week has grown tothirty hours a weekasvolunteer chairperson.I am now rhaiqwrwn of the~nlllnlccr I,rogrnlll at 011r eIelllrlll;!rys(.I~(xII ant1 voltlnr~er manuerr \vork~n~!with the chaimersons of $&en other "rlrrnrnWp syhwls. This past $prong Iwas "om nated hy thp Lubnnck SchoolUslricl as volunteer of 111- "ear in theparentl'eommunily valunte& category Iwas one of twelve semi-finalists out of(IVCI a ihuusil#rl nal.os$al mlrlcs. I wasthe only Texan to be recdqntzedCunqrecsman Larry Combcsl presentedme with a Congressional certificate ofexcellence far my efforb. Being avolunleeris very rewarding, and because I canset my own hours. this position suib myneeds very well.'7 live one day at a time. "As I have lxrn wr~llng thus PICCL.. I have~ Ise~r(.h~ngI lor whal deep words ofixls~~rat~un I l!vc hv and could Dam on too&ers. The only &ing I ean say, however.tr that I live our day it a I.ITI~ I try not toIhlnk of lltr ll>l!nqs I am ilnnl,lr I#> do Ioreier. nltlber, tu lucus on all I c.ln do Youknow in horse racing they handicap thebest horses. Maybe if we who are physicallychallenged kept that thought inmind, we would change the perceptionsof physical disabilities in the minds ofthose whose lives we touch. I don't thinkof myself as handicapped and neither dothose who are around me.Celia ClickAfter twenty years of friendship, SherryHurst has imoacted mv life forever. Atfirst sight, I saw Shew as a severely1hdndroppr.d mdlvldual who had a "cryswrrt pr rwnnllty hlr a tme, 1 helped herwtth all nrr oeriunal nerds,and sheshowed me her appreciatian by showingme fiat she has the same feelings,emotions, and thinking processes aseveryone else. Sherry and I have devel-ODed a wondertullv close relationshim We&at each other equally,as friendsrl~ould However Snerry Is\ ~n-l~lredto slrlve lor grr;#trr g,.tlc III lny 11fe Sin?ha$ alu, lxtci~t IV tlte s*.11s UI oiltnence.have helped Sherfadopi an even morepositive attitude towards life by includingher in my lile and by accepting her as sheis, unconditiondlv We are both enrichedby our friendship!4%30th Anniversary Edition.Rehabilitation Gmne .kt. 29. b. l and 2 45

Editor, 79te Disabilily Rag.Advocate.Polio."The world needs to knowwhat the disability situationreally is and the role societyhas in keeping us'confined. "'The first piece I ever had published waspublished in the Rehabilitolion Gozenedisabled women. The article was aboutmy rcalizal.nn lhar no maller how hardI wc,rrrrl in my cho~nheld (then:I wasIeacI,,,,~~. ",.I ~i$ WCII.~the soc~ni awl cro$wntlr slutl~q ofdtrah.ecl I>~IV 1s vrry purWhen I wrote that article (in 1977).I realized if I did not get involved tochange wclety's percepttons of disabledpeople, then I would become a victim ofthe trite but true slogan. "If you're not apart ol the solution, you're a part of theproblem."I wrote "The Radicalization" huo yearsalter I had became involved with thedisability rights movement. But my"involvement" with the Gazette beganmuch~earlier~I Ihad pull" whcn I was very young.durn? thc pull" cpldcmic 01 the early19'1Ur. Bcln,! dlwblcd in lhoss day- wasvery dillereol lhan .I ir mdsy;il wn*nnnrl, I I I O idlalillg ~ ~ lhim #I 6s torlayI spenr a Ira1 (11 llmr kt~q 'rehabbedat Warm Sprlnqs. Georyla - the .nplace" for peopc whu had had po.1o.111lh09~ days !hi< puhl~cnl~nn was c;~lIc.~l7"onm lrmc~lr and il wo 1,rovloea as.a ~CWIIR.~ 10 II>OSC WILO wvre IU~tisnb~~ly I read 11 w,n#t., but I was not~wvuvtu w~th a~rablrd puupc then or ihe

were new, and we didn't have one here.But there were peopie (family counselors.social workers, etc.) who helped mebecame "independent," who did not actlike this was an impossible situation.My parents were not among thosepeople, but since thev had the means.thry s8dpporled nar fj;>anrla!.y ilnr llrctcoullc' ul years. (Rrlnq depel,cirnt unUIPIII W&S anollac'r lniuenrr in inv llle >Soon I was teachine colleqe. hut fcouldn't earn enough money to be tinanciallyindependent. I became involvedwith a disability rights organization to tryto change thines. I wanted to becomeinvolve8 with

~.they are burdens, they are of little or novalue (except to be inspirations).But disabled people was me! Illthoueht disabled ~eople had no value.then? had no val& 1 no matter howmuch I overcame!When I was at Warm Sorines I liedwith&ople like me. ~ook I l&!ot theywere disabled, but I never forgot theywere like me and 1 liked being withpeople like me.When I came home I wasnever with people like me and I felt Ididn't fit in. (Usually the environment wasinacceuible-so I literally did not fit in!)When I gave that speech. I realized Ihad some reswnsibiiitv to "overcome"the stigma myself. I had to put my intellect;u;d my en,uttonr toqether. I had tullntl tllst cnmaradrrw Llr ~~yrelf nmonqrnv oroolr And once 1 hd. 1 knew I would~~~2 r ~be alone no longer.Today? Today I live in my parentshome - not with my parents (my mom isin anursing home;my father retired tothe lake). There is samething abaut livingin this house that is spiritual to me.Therewere w, many trtnl, h~re and w, Inpal" here WIII.!! I Itved lhere. I was abnckmm oerson I wrllt to school. 1 hadsomewhat bl a social life, but. lor the~uo\t,.~rt, when I w a nomr ~ I w%$ ~n bed.I dlcl #tot sl,~od tlmc n the lhvillg rmln.thr cI~~u,le rmm. the klrchm I rltdrl't tellmy frienzs abaut this. 1 tried to act.'normal:'This was a place that confined me. Icouldn't grow to maturity here. 1 couldnot be my own person here, disabled arnot. I couldn't live my own lile here. So Ifought to leave.I have come back "home" as a successfulDerson livine inde~endentlv. kine inchirge al my o h resources &d making'3ociety had taught me thatdisabled ~eoole were to belooked dbwn' upon. "a home for myself. I have my own'"Iamilv:" a man I have lived with for 13yews.a i~vr-u! altc~~dml. my rats.After ilvlnq on my uwu IN, aparunentslor !en y~ars. I am tlnppy to la lac,me. Butit is ala'l turned it intr, a p ace wllerethere IS Ihapl,ine\

Judd JacobsonBusinessman. Owner of travelagency. Husband.Spinal Cord Injury. C5."One must use one's owngood judgment in order topick and choose among themany options that areavailable now "I heard about Rehnbilitotion Gozenewhen it was first called- TwmeyjGozeffe That was in the late 1950s. It wasmv first -sure to a SuDwrt erauoahside of kv own famil; Bnd w&. -, ,., \ ,., ,I wac a C5 ,lclal~t,n Ie(.ltr~~cl#~tl fur sp~nalc##rd i!qtw':r war drvcluprd. I tr~~cl 111

~~ ~~ ~take advantage 01 it bv agreeing to ashorl husp~l~l~raton in ~ocheitrr tolenrtl how 10 ISC it ant1 eval#!alv 11s rlfer.Ilvrrl*ss I have nu1 alwavi ia.cvl,lrdevery new fad because same wereobvl&sly very experimental and couldcause permanent damage. Once the leadingrehab physician at the Mayo Clinicpleaded with me to sever my spinal cordat my pelvic level in order to eliminatespasticity in my legs and hips. Today thistechniaue has been abandoned. One mustuse on& awn gwd iudement in order topick and chw& ambnfthe many optionsthat are now available.I live in a large home which was builtfor me with a large bathrwm thatincludes a drive-:" shower and wheel-hic hoist oRa holley that lifts me and ~transports me either to the wheelchairor toilet. There are no steps or even athreshold at any of the entrance dwrwaysinto my home. I also have a largewhirlpool spa in the lower level of myhome with a hydraulic hoist to iifl mefrom the wheelchair into the spa. Theentire home has a maenificentview "of thegolf course.None of this would have been possibleif I hadn't been forhnate in marryingBubara Williams of Chester. Eneland.twenty yean ago. 1 met her on &ipuBeach on the island of Kauai in Hawaii. 1was esrurtlng a radio travel tour at thellttlr itnd slal! w~rkvtl lclr WA ant1 ihedin Hawall ill? ;agreed la. marry me andopen hrr gnvn lr.~vt.. ~gettc~ in ljwatonnaMinnemrn. wll.

Dick JaskelaTeacher. Photographer.Polio. Ventilator user."From that moment 1 neveragain approached a personof authority without a clearplan of what I wanted todo and how I was goingto do it. "Gini has asked me, and I would neverdeny Gini anything in my power to grant.to write about my evolution during thepast thirtyyears. The mundane facts ofmy 24-year-old lile in 1958 were that Ihad lived in a nine-by-ten-foot convertedsewing room for seven years, that I wasattached to a resoiratar 24 hours a dav.was confined to 6ed at least 18 hoursa day, had the use of my hands andforearms and little else. I was beingsupported by my mother, a nurse's aide.and mv erandmother. a chanvoman. Ohyes. tl.Ploci~l WVI~~IP JP(C~CICS contribulecllnr tnt1tul1cet1l sum ul $24amnnthfnr my l,r

nrdical clearance 1 went to Metro Ho91,ilo1in Clt,vel;l~~cl lc,r m evaluation andvartually evervow tl8ere Ired to dlsuademe lrom my dwam I ~onvin~cd lhcm tonot dmm me lo ratlure belore I nnd thechance lo rutct!nl clr fail on my own andthe" wntc a hal-llenrled slatc.mml lhalele&lv echoed their reservations yet did,at diny me my ot,lnrtuniIyAt lh~s po~nl I l,n(dn to InLe crontn~l altnv fnle reallrrd 11 I wrrc lo make mvway throueh the maze of life. l wouldha& to .?A lo steer my own coursetnrm that I~OIII~II~ I new aqa.napproarh~d u prrvw of ruthoroty withoutil clear plan of who1 I wi~ntrtl la, (lo andIlow I was gomq lo du it I d~sruvrrcd tlvsr'autltorll~r\" were qrcatly rrllrvra wllrllI hau a pruqnw all thouyht i,ul. w thrvwould not lhave the reynnc~h~llty ofnlaklnq romplcalnl dnslonr.I! w8.s #my ymd furturw 111 ,I I had anathlellc ruu\llt. Lee Kanra. lrll yt'nrs lilyjunlur, who I~ad just qr.tdualed lrom ll~gl!pchool and uas about TO ;alleno KentState. He offered to transport me la andITOL~L cla, carry me, my wl~e~lcl~~ir, andrrsl,lralor ~UI' AMI dowl, luu fltgllli ofslalrs every tliw lhr n cou~le bI vean Iam foreve;indebted to him lor his generocltyand runt.nc~~!bg fr~r~>d\i~lp. Alter oneterm, l wasan A's!tttL.n!. oad madeseveral friends, and wls dal~#>e " A uonderhl,talented woman.My lile had changed immeasurably forthe better, and I was already a successas I had ournose and direction. l did notdwell on'& vague goal of employmentin the distant future; l quite happily tookeach day as it came and only planned oneschool term at a time. if the process hadled to nothing tangible, my new life as anonentity, it would have made the effortworthwhile."Do not listen to thenaysayers; follow yourdream. "Allrr my lint year at Kent State. HVKcuncludr.~l that I wirr

on committees. and writine articleshw;arnr regular events in my ruttlbne Myma1 ltie ton,lsted of mak~ng fnrndsh~ps,dat.n

wr,rlll ol thins$ I could s?!lll away lor, and rtrunqly impreued upon her that herJune Isaacsonpirrrs bI education that 1 cm~ld ~C~UIIP allllllde toward nor wt)!lltl be the most10114 I,rlure mv ppen I1 I nl~ly had n ~t~qx,rtantKailesthing ol ill. ' Whrn you 11ntcoml,ulrr buck then I woultl llave bern ci311.e humc~fmm ~ the Imcl,rr~tal ~ = ~ 2nd ~ - th8n.c ~ ~lighiyears ahead!seemed so tenuousDirector of independent living... the nurse used toAt the end of second grade I was trans- say to me that my attitudes and thoughtscenter. Advocate. Wife. lerred from a "special school" to a would be the most important things forCerebral palsy. regular public schwl. In other words 1 you to grow with. Her words were: 'I1 Iwas mainstreamed (but the word hadn't Dlanted wtataes. l would wt wtatoes.been popularized yet). This transfer was but if I danted flowers, we"wduld eetcysertjuene, is a suru,uolih~t~at'~l by d WIS'. second srildr Ivorher flowt-1s.' \Ye got Ilowr,rs:and not hy my ~mnnts ul~. were apprr. .>Iw o11vn l~~~ll~~rtd my lathvr's restrocskillwhen one //IJ~S with henclve ~IBOIII SLIC~ a mow I (II~I nut IIY* imcl slrune over-nrotrrtovt Iranlnvs.significant disabilif)!receive a!,). counseling prrpnral8on far I see my learnrne how to drive as a m$ors~~rl~ a itlnvc, thus all [my tears. ~pprehen- turningpoint inky seeking indepen- 'because one is constantly .;lur>s. hurlr, and i,lIlrr rea, t~t~ns were dence. l secretly feared that I could notconh-onted with 'you can'/ nwsr vrrhal.te rrhwl I had the day I turned sixteen 1 commenced aIIO cr,lllact ulth other, u111> hod dlsah~li- campalsn to try 10 #L.I my dr.ver's license.tlrr I Ibelevc 11 wmllve bccn he1~~1~~1 I h15 wna ll;lrlv clvnlt (1 by my lnlher 1 wasto have had friendships with other k;ds Imnt~v \I !!liar potnl. mv mother ilalwith disabilities, just to share some of the umw!ll.r#4 lor wh.ch I shall l,r rlrrnallvIn 1958 my role model was a young adult unique experiences that no one else. l(mltl~#l Sne scnsed the ~IT~~IICV "1 myin my neighborhood who had CP. He including lamily could really identify with ovvd and Ferret.). look lllr lor drlvnqcombed the neighbohwd going house to or understand. In 1966 1 wrote a telling .r%wns. mmetlllles !119111q a p~rt~t>rl of thehouse selling pencils. In 1958 1 was nine line,'At this time in my life. I am mare grocery molwy 11, htod the^^ Ic%wns. Iand I knew beans (shit!). The diflerence certain about my limitations than my uhtni~~rd n .icrr>$e w ih n lhre~mo~~tl~sbetween now and then is that I didn't abilities."It was only after I got to college andhow I knew shit and now 1 know. IMy mother was always the more liberal beyond that I felt the camaraderie andthought I knew more than my peers and permissive parent, thus I would have special support that comes with sharingbecause I learned to type at the age of1~ glvc crrdll tollrr Ibr my early ntovrs feelings and experiences with other folkseight as a means olcampensating for my tuuard .ndrl,rr>rlvr~vrwlh d~sah.lcrie* I ll811>k hr me 11 proh;d,lymotor loss which greatly slowed my abll- Uuole II(IIII rn~ther. "We tmk esrh Jov would llilvc tlcrll l>vll,lul 11 lhpre hnd Ibert~iQ to write. This opened up a whole new as i came? She rememben that it was ' more

~ ~~~~disability as I was growing up. It wouldhave probablv forced me to learn to dealwllh !my lecliqs awl people\ q~~estic>~trfor me, a period of real self-exploring andidentity building. The decision to leavehome was mine. Parental reactionfollowed its usual pattern with my mothera1 carller ogr It would h.tvr (prollnl,lyalw helped ~u bc so~~~ewlat otl,>rrtuscranl rat lpruplv who starwtllclorr polnq away ~oct>l.c-ge. I onlysllpcrln.~a.lg accrlrt?a in" ~~~s~lb~l~yInmost \Illla1 on- I nrlt~oly rlencd 11se\lrlenLe alla I,ecam(. lru~lrated nlltlanlluy~d hllr~l nn"une drew ,111r,~11~.1110il I llaa rotlvtll#:ed myself Illill I! WAS 1101I~UIICCR~I~ ilntl. Ihcreforr II was tl~il~rI~.lnq wllrll sonlrnnr rel~rrrd tu ir Inc rmclllvry and ll~glt ~IWI, acrlnq as 11my ,I ,,,y*t.ll d,VI "1s ,,,lcrp",mnal ,elat:#,,,.si~tps Supprcrclng lhc realit" $11 tmydlsabll~ry only led to prilalerlt nlnrl exatgrrated Ieelill(s (11 li#~lure and ~nler~oriryBy llnl ~p~rllllltlll): myself to loin in actlvl-I#?\ wllll 01ll~r people wllh d#~dhil.lhs, lrr~nlurcrd a iorl 01 scll-:mposed marginalIPIK, nr,r Iuly belonqinq lo eilhrr gr~111).people with or wirhnul il~sisl~tl~l~r~~'hrough conttnuctp ou~ldingana eventual diltlnl! "I wmt studenlrwith disabilities. I ievelaoed a clearer~~tal*rrhnd.ny of them and. Il~ro~~gI~Ihtm. a bcrter undersle~nl~ng 01 ~nvsell. Ilearned lhar mv del$lnl ;~o~rl concealmentwere not answ;rs to really coping withdisability. Only through a realistic recog.nition and evaluation of my disability, andintegrating it into who I was could I trulyaccept myself and ascertain my identityLeaving New York for California wasanother major milestone. Leaving New

~ ~ ~~~~ ~~Yurk meant leav~nb! many close lriendshlps,male and femalc It meant leavingpeo!,lr who could be reiled on lor manyIml,l,y ruc.al acliv~lles and support when~wridnal dtllicut~cs arose. My parenlr'renctwnc agaln lolloued ihc usualpallrm.kith my mother saynd. Uo youruun thlnq.' and my lathcr ~ssunng earthquakeItre. smug, muu s~dc ana treewaywarnlngr in h.s uwn luvlllq wdyl'l#mqc I ue leorned or ,a) I,n$a~d words01 wt\uom. A%

Todd KeepferTeacher. Husband and father.Polio. Ventilator user."Dr. Anderson left mewith prophetic advice,'Todd, your most importantconsideration is yourbreathing, and it willalways be. ' "This fall will he my 25th polio "anniversary"five years short of theRehobilltotion Gaefteb 1958 debut.Nineteen fifty-eight was a very goodyear for me. I was a junior at Penn Statemajoring in zwlogy and entomology andthriving on the excellent hunting and fishingin the Nittany Valley The fall andwinter of 1960-1961 were periods of escalatinghighlights in my life. I bagged abear durinx Pennsylvania's short seasonand voleclcri n rnke lbui* a week later.My I ialrC. Pat an0 I were engdqedtI irtlc d d I realize whal R lniti~l~~l andsupportive wife i had chosen!) l visited alocal agricultural research station and lefthours later with jnh in hand I vadt~atvdlrom l+nn Slate and kgnn work.1% and I ~urrhared n mtali inohilehome and were married on February 17th.'lhus hegat, lwnrly two years ul cuimut.ins lo work fur b#jlll d us. f)ur.ny thls11111e 0111 flmt sun Scott. was horn.While un our first varalion 111 I'lfi2.we stayed with a college irivnd who waswork~nq w a i,dm ranqt,r un thc BlueKidw I'arkwa) I became enthuped almutr;,rl$rr wom.appl.4 and w~llt~n thrernonths acccptcd a p$iloou ;ss parkranqer in the (ireikl Smoky MvunralnsN.mttal I'ark 11, Tr~nnt r\cc181 heplrmbvr 1963. I came down withIIIV 'flu 'or wmelhanq. Pa,ns in my hackwuncn4, a hrral clinic dtdqnn*r

"oubide." This gave Pat and me somehope even though the future seemedvery uncertain.After a few lenmhvu ,setbacks we beeanto plank uu gotng 'trlnl*"- home was toIht. ~mr*nts III Kvw Jersey Her parrrlta51111 Itad twa, rll~l

fine. Dr. Andem" had ~assed away andpressures an: padding and &ping le&until my blwd gasses were more normal.We iwked fanvard to spending the holidayswith family and friends. althoughmy condition had begun to deteriorateagain. The day after Christmas I "zonkedout" and was rushed to the University ofPennsylvania Hospital in Philadelphiawhere an iron lung was available. After astint in intensive care in the iron lung. Iwas "weanec to carefully monitoredchest shell use and released.By the next spring. however. I was on adownward slide again and after consultingseveral speciaiists, whose solutionsnmgrlil,ll~ttg pllrec>~~ nervebl~r~ltdaturs to L~IIIIIII~ DIwd thtnners andheart s1 mulane I lurnea 1,. Cnrllonll!shop, my rccpiralory equipmr~lt 'pn~ 'Ibr advice HIS ac1va.r was. ' fidll qt111mrs\tug artnlw nnrl gel hark III the #runlhme 'I bcltcved Illm. uut a ductur'rpr&cription. the lungbs delivered, andI promptly slept lor three and ane-halfdays.At last mv troubles were over. rhht?Wrong agai'n. Alter about three ye&, my"bad gasses" symptoms returned. Thisl~me ur hnrtllt,i,!r.y found a younqpulnlondrv E~L~'.JIISI wht) was inlerested,il gwrl ilrlenrr. open m,llded, and i! prob-lem solver. The solution, which seems tohave matntalned my health since Ihet,.was lu ncrrasc the lunq pressure i.#,nmd.crably dsc pupitive presure fr?qucntly h,expand the chc-1 wall ;am1 use supplementaloxygen al nlghlOver lltc yr;lrs 11 hm not heen the lack01 .dlletlslvv phvilrnl lhenq,y, Ill? absence"My primary inspirationthrough the years has beenthe love and support of mywife. Without her the storywould be quite different. "of muscle strength, nor the lack of exercise that has hampered me, but as Dr.Andemn wisely cautioned, it has been!my brc,ath~n~ l~;ntlat~uns.How haw I made II lhls lads. ol#land unexpectea. have hclprd su bHcnClas

Audrey J. KingPsychologist. Advocate.Polio. Ventilator user.'7 was encouraged to beindependent and selfsufficientbefore I wasdisabled and this attitudedid not change after."Aqust 1958.1962. Onowo: It had been s hyears since I'd attended a regular schooland six years, almost to the day, since Ibecame ill with mlia as a nine-vear-oldin Eneland. NO^ on a summer day myrmolln>r pu-hea me in my whee.chatr toa ncwty cotnpletrd nc~ul>l,urhcx?d hiqhschwl to ara 11 I could attend Alltc~~chthe s~ecial elementary school for cridlpled children had lor several yearsemphatically refused to accept mebecause I was "tw disabled," this princioalwelcomed me with own arms. A;amp was built at the school entrance.ulatam t lases rolalsd down. ~rllmlsrcrutanrs 111et LILY r

transpnrtalmn. I placed an ad and m nl~t~tl

~~ ~~ ~~~~~ ~,ingly obviouc I lvll asleep at work.ultnetlme5 even in lhc moddle ui as-rssnlrnlc.lhl*!rad ut seeknng 11t.Ip 1vurnpla~,wd rv thr hbllr 11t~;~ltl~ drlmrttncntnlwut slat aor and our uln,lrdepdrttnent moved to cuperlor ulf8crswllh vlnduwsrrsa re~ult!Final." wl~ru I begntt ill lbnll .?sleep inthe m~ddlr 01 rclephunc cut,verralic~n~and wlt.~. (alld to my p.are 01 wvrk BeloreThe solution was, of course, a return to ~tlou~nq ~n. l ~mprovcd the acresr~hility bythe cuirass. 1 was utterly depressed lor llavin~ llle Colllnalur lower rouoler\ andseveral months. No howledqeable ~hysi- Iizht ;witches, install an automatic dwr decades to ha& been an kter&ing,cal or emotional support e&ted. ?he ahener, imci JIIS v\er ihr tmr~arw~> .1111i rhallc~~g~cg. and exrll 0,: cxl,er.rxtcccuirass did not lit, givingme pressure he81 My rrluthrr, now 71. WJI, at11 abie 10 'llwn. arc people lro81 181y I!IV-54 hospisores,and attempts to make new ones drve me and to lilt mv. but~~~~~~~~she w ~s tal davr who wo!ll bol enough lo ire*,ny tias enr.,umqry twers~ne 10 stay with her and i~a.rrw~n$lyR ~ L I:,J c imll ~ I'IX my bruther and rtq,lwrr her dependency nee

John LeiboldAttorney. Advocate.Polio."Perhaps it was not onlyfear, but also pride andambition the same factorsthat would have motivatedme had I notdisabled. "Memories ondMus;np ofJohn W Leibold,September, 1988: For years. I thought myprincipal motivation for becoming anextraordinarily active disabled personwas fear. Fear of having no one to carefor me, fear of being unprovided for byothers, fear of nursing homes, fear ofbeing left to rot. But as I think of it in amore philosophical mwd, perhaps it wasnot only fear, but also pride and ambition-the same factors that would havemotivated me had I not been disabledI had polio at ;age 16,almost 1:. withone year nl bi$I~ wl>zul lu complete.I comnteted it wlllle a1 Chiloren's Ho~~,.lrlin ~oiumbus and at Georgia Warm 'Snrines Foundation. Thereafter. I wassdurdt~onally dormanl lor a tmle hhileitltrn>pcing lo arhlrvr maxnrnum rccuper.iallon 01 hrallh,slrcnnrh . " . and muscleactivityTwo years after my high schwl gmduation,l commenced college education,taking one quarter by correspondenceand then finishingmy bachelor's deereeand my law degree in resident attenhaneeat Ohio Northern Universily. l then servedsome three and ane-half years as an Ohioassistant attarnev general. and nine warsas staff attorney inihe Ohio ~e~arhient01 ll~n I [hen left slate &wa.e onclel~l*n.#l lllr prvale practice of law !,I lhly01 1369 and have nrnrtt< nl a,lo s,#rrthat tlme. Far six&act, while m stateservice and in private practse. l alsoserved as asolicitar for a village nearthis city.My office building Is attached to myresidence by a safe, warm, and secureenclosed p&ageway I have two elevatorsin my home and one in my officebuilding. I have a garage attached to myresidence where I house huo wheelchairvans. I carry travel lifts In both vans anduse a hydraulic lifl in my bathmom. Ihave remodeled mv home a number oflarger, and more accessible.When I contracted polio, I lived athome with my parents and one brother.I had huo older brothers and an oldersister who were married and awav fromhome. I had a very prevalent, Dervasivefear that nly lr!n~i~il,rutners Bnd cisler)wtruld #lever ram! mre ul me, and u> 1 1r11.I ahsolt~lrlv tmot.raltvr I

in my law oflice. Beeyun Leibold is partownerand operator of a Chinese restaurantin a shopping center fairly close tomv residence. I visit the restaurant lormeals at .east onw it week and an add~dhfne~~t s lhat I sre tny children wllv~~vverI v~c~t the rrrraurnnlt. l have my chlldren10, vt~tation B ~rtc>~ltb or "lore eachsummer every weekend, some 01 theI~olidays. md whelrvcr rlw I wan, losr* tllem. My lurmcr wife. Rrry~t,. andI c~",wrsle iu1.v lur thr care and hnef11of our two io&y children. Whenever shehas transportation problems or babysibter problems. I exert my maximum effortto give assistance.I employ a housekeeper who alsoprovides some of my care and a driveraidewho provides a large amount of mycare, as well as other driver-aides whoare back-up care persons.The achievements in my life of which Iam ,nust proud arc:(], mi wo ch~ldrenand (2) the fact ll8al I wrote and loblltedlhrnuqh llle ilhln Leq.slillurr !Is lintslaluls requlr nc accesi~b.r. ~,ubltc Ituildihlcsill lhe sti~le 01 Ohm Ihe latter rflorlw&$ ~utiI~al?d ;at Ill? \dqgesl~m 01 thc'0111~ F.nrtt.r Sml Clc. *I\ 'hi? arcess~b~l.itv law ~rovided the folndation lo8Easter Seal, having sewed ntne years onthe Board of Trustees of our very largeimd aelw Columbus Eastcr Seal .%cl?tyI l~ave llpen very acl:ve I" rrrvlng &Iruqtee for a nutt~her ol d~sabil~ty related.toott-l,rc,tlt rorlx,ri~tinns in Columbur and(:e~tlr:~l tlhio I l>.we lweo moderdteiya(.ll"* I,, I*,, aW,clltlllll,"I am extremely grateful forhaving had such loving andgiving parents. They blessedme with the gift of a strongconstitution. "I am extreme]" matefui for havinehad such loving8Gd giving parentsr~yparents lek the family farm and built ahome in the Village of Ada. Ohio, so Icould live at home during my college andlaw schwl vears. in those difficult days ofstingy vacaiianal rehabilitation progr-m,it would have been impossible for me toattend college and law schwl without thesuowrt. lave. and care of mv mother andfat&r,ln addition to these $Its, theyblessed me with the gift of a strongconstihltion.I believe I am correct in my recollectionthat my entire monetary assistanceham vocational rehabilitation during mycnlieqe and law srhml career rulalled1121111 My ialher died while 1 was irb lawschmi, and 11;s brother, bred Le~cx,loprovtded vlme ltnancial awslanrc a,vuahlr t t r to

ship with a young and vigorous attorneywho is chock full ol ideas lor related andunrelated enterprises I am thrllecl nl theprospect ul nrw l~rlds 10 conqurr andnew lrnal battics Ibr.quences ill sleerngltly I ~~~I-~~lllr~llcd~leclrlc wl#~~lcha~r.Rut I glun'l drtecl any P ~C'U~B~ ur sub~tan-In1 wrakcn~nr: or otter (81 111,. ramltlralmnsol po~t-~nl~o aylrlromc.i Iwl tlal ltlv larr>lly I Ic. has s~lbr*tllholll Irom my att8tudec a$soriac~l wlth#ltsnb~ IR. as drscr~bed in this atntub~ograplyand aiw from llle dn~\av>ds ul myproiess.~lon I h;we ;I rlrory deslrc inrepdin 4 UIII~I~III~ lnv11a CXSI~I~C~.IIII)IISII 1 d01!'1 want I! I I ~P cost oi IOEI~tllc c uFmr,u wllh my d?l~ql~ll~~. tl~ldrcn.Thetr 9qucaIs and lnt~ql~trr .,re suchdellqhli In me \\lln> 1 \,I\II lhclr mnlherlresl.ttlmrll .trttl iny b~t~r-y(.ar-old dauqllwrl,e,,r* tht. I.,

Bente MadsenAdvocate.Muscular dystrophy."Life as a disabled personseems for me just as goodand full of experiences andchallenges as for everybod3but it is much more difficultto reach the sameindependence and qualityof life. "I was turu in Denmark in !he summer 011919 as my parents' lorst rll:ld. l wiwabout hal1.a-year when my iparrr,lsd~scovered thal somethlne was wrongwtlh me ia~lddimt11 three yeanola wnenllte duclors age*frlrd 1 did not likeIc, I>+' lu~cthcr with dts.ll, *FIih~~iuss~ble to wake up in the morning. IIhsd a hradache, I rnuld llol eitl heviatseI fell sick I rnt~ld no1 roncentratr (IIIanythingil could not remember anything.I fell asleep while I was talking, myperiods stopped, my hair fell off, and I gotincontinent. I was tired to the bone but 1could not sleeo because of niehmares ofthe dead.hr all these aylnptoms I got a lulolm~e#ltr~nc fur thr blwdt,rrwtlre which was hteh hrrau~coi thebreathing rrroblern, me"didic1ne to make iteasler lo&cnlhe. lor the I.eart, ~ P ~ I C L ~ Plor m" sirk~>e\, imcl (>ll~rr dl~ltl~ 01 mrtl.-c~ne mat 1 U ,~II~O~ remvtni,+.r nnv , lor~cvr -During that year I was treated with arespirator and a nasal tube lour timesRehabililation into Independent Living

Bente with hvo of her anendants, Klaus and Peter, on their trip aemsa the Unlted Stales.ill~llll Iuu~I'L.~ dayseach I wasat thc lomy and a permanent recplralor as ahurplta. most of in;,! "car. I he svmploms powhilily lor survi\alcome snner and smwr after tlle reqntra- One dav I woke tlv nl another hosnilnltar treatments and much worse. At i&t I with a lr&heostom$ and after somewas uncnttarous N.~llcalv luhl OIL* or my werks 11eIt thd i>~yl>~zl~ In.i(i~~t to worklarnly al ally llrnc $vng anrl I agsm It was a wondl.rftal vxl,r,rlvnct. Id~d not ow ;lnytl>l~q alx,ttt B III~T~CU$- lmd been Ired lrom my wvtk oecauie oftoo much illness and days off. Then I gotthe disablement Dension from the countv.I got no eounsel&g about ventilator use*and I did not know any ventilator usersso I had to find out everything myself. Iwas so ~ ~ D Dto Y get enoueh air and I feltthat I couid manage evejihing.When I later asked the doctors whythey did not tell me about a kacheostomyand a permanent respirator, theyanswered that it had been difficult to finda u,lul!on lor me Some ol 11.v dt*.lorrlhouqill thal it was ~ttllx,%\ll,lr 10 .lve aIll? 01 o#~i>l~lv wllh so118i#l B~~ODIIY. , nlrl as oprmaent &pirator user. Other onesthought it was possible and wanted togive me the chance.I was afraid to breathe by myselfbecause it had been so terrible an emerienceno1 In lhc iahle lo Ibreatlir and I iovedmy re.;l,iralr,r atld the lre.~r>y 01 gettnngilir nwttgl~ w#thuut thlnklnq abou! everyI,n.ath. to slecp hithout nlqhtm;srer 01 llledead, and lo lkpl ho* my lll~cly Ixga18 It8w ~ >

system and here I began to be active inthe Danish As~ciation of MuscularEystraphy and the National Organimtionof Disabled and i began to give lessonsabout iife in a nursing home. In thisperiod i found out that it was difficult tobe disabled and you had to fight far yourown rights in life even in the Danishwelfare system.In 1980 the Danish government decidedthat independent living should be possiblefar everybody Then I wanted to zoout oi the nursdnq Ihumr atrl iv? IN) m yown dparlmcnt as I d 11 bvlun. (IOC* Ihov? Ilved tndenendenliv with suowrtfrom mvown helwrs 2ihours a bev. hecountybays the salary of my helpen, butI hire them myself and i have the possibilityto fire them ii it does not workout. Inmv situation it is necessary to have fivehilvers working 24 hours a dayaround me 24 hours a day. Ther&re it isvery important for me tobave helperswith almost the same age, intellechralinterests, and appetite of life as me.I have the full reswnsibilitv of mv lifeand the function of ihe helpers is td dotakinfiaFe of my equipment.)i am active in the organizations and68gve l~hlres to l~vrt~.alhisabilitv but nathine vau;annot 20becauseof your trachiostomp It is mostimportant far me to know everythingabout the mspiratory equipment as wellas the helvers abiiiw to solve vroblemse.g. using he ventilating bag ii the respiratorbreaks down or to use it when andwhere it is impossible to use the respirator(swimming pwldseabath, some kinds01 transportation, public entertainments,etc.)From my point of view, disability meansto be dependent on public authoritiesand other people 24 hours a day to live aseveryurlt. rlsr It is necrsary to havr thecourage and cneryy to light fur yourrluht~ as well as it ic nccewarv to beo

Lynn MartinkaRetired business accountant.Polio."Education is one of the keyingredients in overcomingany and all obstacles."Back in the fiflies, those disabled wereconsidered seeond-class citizens with noreal potential or pumse to serve in soclely.ihroufih the illslglll "I several SIRC~.~~~areq~vers and clurr la!n~l!cs of !I>c,~rd~si~l,lrd. the vast number 01 us created avoice to be heard and reckoned with. ican still hear the whispered adviceultercd lo my parntr?, ic, lpul ##,a in aplace wnere I call la carrtl lor along with#IIIIP~S cullcrine the 1"s ul wtnle: ur alluse of their baiies.Today, some thirty plus years later. Ilook back down the long bumpy road Itraveled with love, determination, andhard work. I became educated, selCsupportlog, and tndcpendtnl .Zlter relor,11111(!1~1 the Soulhwr.st. leaving fnnltlyawl lr~*~td1eitrlt.l vel oroud and mcuuraging.I established; liiestyle lessdemanding physically, yet a challenge ofmy talents and abilities.Recentlv the onset of post-poliomdrame'~lonq with damagecaused by aheniqn tumor ;cmoved lnnn !he au#ltr&yoemc. 18.1- led me back tu bc~nq semi.dn,e,~dr~~l and no lnneer ahlc In matntaineT(;~lovment. This broiuht me to mothermaiur;dlurtment in myz~frslyle i (nulonqer had l.nancial freedom or camlnsIXW*~ I,eing dependeol on orlal Sccu.rlty anrl Dt~ill>lltl~ ICl>von lrom myrmployrr. ,\ l~r!>~l~tl blldqel III*.~~I housin$and mcdlcal rxynsrs havr 11, IRclose y mon~tured. Mcnlally, I lharl Ilntla tlew ipllr[m\e 10 my llle alter king~rltllloyhl lt, in,, exr~l.nq heid al bu,~nes*acc~~r>l.ttrl lor a11 01 ~t~y &dull.#Is.lhlsIwk tlrne lo corls~tlrr #lay SIr~"4111 andenerq level$ nut uoly inlw Ilut in Uleluturr as the normal prwrs* $11 i1441.qlook 0,s ml. I lound the answer $11 vns.I wanted mv tfmr 11, he soent doing lorothers while &joying and ;rowing i&new ilelds lor my;ell. Slwr ~vilaq inAr.mllis wh~rr thr horse IS klllg. I havealwavs lmtl Ill? tleslre It1 rlue anrl I#, Ire.hee bf all disabilities. The power andstrength of the horse takeiover and i canrun, climb hills, or walk peacefullythrough the sun with the wind in my hair.Mrking with the group for TherapeuticRiding has brought new joy and a specialrelalionsh~p of animal and humancontact. Thl,, along with my close awwistionin thc hl!u F~.lln 5uoporl (irou~,.tills my days and keeps me-active boihmentaly &d physicallyEducation is one of the key ingredientsin overcomine am and all obstacles. Justbecause the &$is impaired in someway does "01 m,a,, the m.nd 1s alarOl,la~~l.tng the lncls. lh*8, tnktnlq lhatknuwl

0811 in ulvlery I found it to be a trial andtrsl elforl to see wir.tl or how to bestss%isl each dnd evPw lnd!v~dual ~rablem.This laid the qroundkrk and 1o;ndationfor today's many specialized groups wholearned from our mistakes and errors tobetter serve us now Yet, I still find a greatneed to educate and train those interestedin searching for better and newmenns lo rear0 our lnoepenucnt goals\'e ltavc comr ;o lo~~q ha) !I, estahirh-IOC uurselvrs us i,nrduvtive andmust not resl on our laurr s 11 is throughnur rontinuine( effnrL~ tcr supprrt eachotllrr III u>lv:ttu i,rol,lems and seekinehelp that we w:ishare the benefits oiabetter life lor ail.L~arning to funclion again alter lorinsiaty or ill1 body lnwea :s a team eliorlM.1 n>at~tta~ll~t~(! corttrol and heine incham -ecreates"a positive feelintihatkeep, the splrlt aiw Close fa!n,ly andIrlendr arc needeo fur etl~

Karen McKibbenin use!" And then I concluded by urgingthem, "To follow lolawledge like a sinkingSoviets shocked the world with thelaunching of Sputnik, the AmericanEnglish professor.starJ3eyond the umost bound of human people set out to meet the challenge byth0"Zht."studying more math and working to fulfillPolio. kntilator user.heen a b ~t murc qt#!xvt~c than II~II~I.fur n II!~II UII the min wlthln tm years.h~l~mism ilnderlying IIuI questmay wt'l have been 4 Ikxacy

Huxley positive pressure ventilators, andnow Lilecareb latest volume ventilator.The original, standard wheelchair wasreplaced in 1959 with the first of threeincreasingly efficientversions of motorizedwheelchairs. And there was aseeminelv UnendmR succession of adavtivedevices, same more whimsical th&useful, that were tried and occasionallyadopted. it seems that in the 1950s andearly 1960s Rancho had institutionalizedthe idea of progress to a greater extentthan even Tennyson and his fellowWctorians.Although iw dogmatically decreed.the Idea of oroeress . " also seemed topermeale LIIY lilr!#llyi 111~. 11111 just is anoltlr$ik. redpnsf B, lhr l,rnl,l?~rl oi lxlliobut n p~neral lamlly anttldt. Mylalhrr. a physlrlst uhose appruach lo atbypmblem ic rnerl~aniral, hewn to makcdcv~ces of v;8rlcwr kinds l y mother, ahome *rotamust w11ow al,l,roi,rll lo anyprohlem is urgannzaltunal brgao loan;lng< house and lamllv affv~rs III orderlo tncude all the plraphcrnaltd andadded dutie. that lnllo hrouqnt into thehc,ureh#~lrnunlryi advancedcdan;o$or~al proqnm jrhwl work hadal-ays hm attract~ve hut alter pollo, ilbecame a Driman, source of self-fulfillmentand hope idr the future. Lookingback. I'm imprwed that so many people,even complete strangers cooperated inthe belief that, with help, someday I couldfind not onlvself-fulfillment but also away to contribute to societyThus, when I was graduated from highschwl in 1962 and auoted Tennv.wnZ~~3~~~lines about not wanting to "rust unburnisherand yearning "To followknoulrclge lhke a s~nkl~lg \tar." I was not1ns11~err. I did mal s!~ du lu this verydnv fear disurr awl "earn tu strive lo theuthost of my capabbities. However, atthe graduation ceremony I undoubtedlydid not realize how much of this optimisticenthusiasm was imparted to me byall those who had so enthusiasticallvcontributed to my welfare. Indeed, & theyears following graduation, l began todoubt seriously whether I was capable ofdoing anwhine without a whole communityLolding r& up.Because Los Alamos is a small, isolatedcommuniw, the only college classes mysupport system could provide were a fewnight courses attended ~rimarilv bvteachers needing re-certification &edits.For the Lirst time since third grade I beganto attend class in person.And, if thatwere not intimidatine enoueh. l foundmyself competing fa&-to-lace not withmy own age group but with experiencedadults - ail seemingly quite comfortableRehabilitation into Independent Living

in classrmms and confident, or at least For me. the choice became clear. 1complacent, in their abilities. It tmk a could stay in the relative comfort andcoupled years 01 these cold, nightsecurity of my family and my hometown,classes lor me to realize that maybe, just accepting the limitations to the dream ofmavbe, l could indeed handle more ehal- an inde~endent life which that choicelenges at colleges in nearby communities. would mean; or I could take the risks ofRelying once again an my parents. leaving home, moving to another state,especially my mother's unrese~ved stamina,for the 35-mile commute, one way, tothe college of Santa Fe and the 100-milecammutt one way. to the Un~wrsily 111RPW M~x:co, I al lwt hegan lo ex{rrle,ncetlte iu>xlelv and exhilaritl~on 01 allacademiclife, a life where inteliechlalsdll-rr11ara.r wa, lc>strrl ;st iltr ilt,wrr.;~ry ul Callorlr porm, ln the hxrhor and 'tn theIll;lr cr~ur~ts not cuc~r. h ~ stru$~lr~ lsphere 01 common duties." It tm .s anoble lile althoueh I do not think I couldhave undentood"that way when I wmtethe high schwl speech or certainly whenI decided to move to California.Probablv. too. I still believe. althouehwith less rewor; in questing and app&ciatethat it is the struggling and thestriving that give value to one's existence,not the goals or small achievements onemight accomplish on the way Consequently,the lines I did not quote in thevaledictory speech, because I could notquote them when I was eighteen and juststarting out on my quest, now seem moremeaningful than the ones I did quote:I am a part of all 1 have met;Yet all experience is an archwherethroughClem that untraveled worldwhose margin fadesForever and forever when I move.4z30UI Anniversary Edition .Rehabilitation Gazette-%I. 29. Nos. 1 and 2

SuHaraFormer teacher. Directorof disabled students'residence program."The electric wheelchairchanged my whole socialrelationshio~ ~to whomever Iwas with. instead of doingsomething for me, they weredoing something with me. "In 1958 my mother was vouncer than I am#now. I hadn't heard oi rhntaci lemcc orIrllrruwavcc rrr velcro, and I'd never rep#!a curb ram" I dldlt.1 know I wc,tlld Imchhistory in iigh school for thirteen years,direct a disabled students' program at auniversity, or spend some time in France.Maybeeven mare important. l had noidea that I would someday discover a wayto live on my own.I was a mphomnrr in college then and,as I rccal . qtlilr a*ttletl lutu a rcm,nablcpallcrn of 1.~1115 wllll Ihc C.IICCLI 01 PI:"I'd had polio three years earlier and itwas in 1958 that i decided to giveuphying to walk, even in therapy sessions.The decision sounds momentous but itcame about gradually and eventuallyseemed obvious. In physical therapy I hadbeen using long leg braces, with a corsetlor stability, one oithe two crutches tiedto my right hand because of poor grip, ahelmet in case I lei1 on my head, andalw.xvs rwu tneraplrL5 llo

the personal computer of the hture couldrlu iur wr~tten acsimmenrs.It was lhat sane year lhal I tm* mylhrrt ".all* tlteilt -alone. ;\ sood friend ata ~innesota college invited me to visit.My usually suppoFtive parents resistedthis one but I really wanted to do it. Itwas a bold adventure in those days butit was so successhll that 1 did it marethan once.It twksix years to finish my bachelor'sdegree as a part-time student. I majoredin historv and swnt a oart of the lastyear student te&hing at Nazareth Aeademsa Catholic girls'schwl two blocksfrom home in LaGrange Park, Illinois.To my great surprise, when I gingerlyapproached the principal about a fulltimeteaching position In 1962,she actedlike it was the most natural of ideas andhired me swn thereafter. She suerested"Uthat I also start a master's degree in counselingbecause she loresaw a need lormore counselors on the stall. To me thiswas more than asuggestion. It was anunexpected invitation to carry my ownweight on the staff as a hli participant,without regard to mydisability. icould not have wished for a greatercompliment.I Spent ten wonderful years teachingand counseling at Nazareth, finishing mytmarlrri ?l we 1, - ti.;ttklllll 01 trdvc. hat1 s~cllll.ci H# rc.lll01r Wyslilrrs and *,me lrfmdb ancl I u.rnt 1~It3.y. Rance. and lrrlmd in 1967 1:lhl.and ag.iin in 1',7l hlore tr pr lo Frvnrr inthe 1.1dli r~i!nlted LII the lun oi st,:lng myarlirh~ (ILL nccris III France oublmhrd innewspaoer travel sections in'the Unitedstates &d CanadaThe 1960s had been rich and hll.Mypersonal care had always been assured.thanks to mv familv but its permanentrelentlessnek demanded cdnstant vi$idno.lo a 'ontmt~ra iactempl lo haiitncethe work load, porl.ckll.xrly lhor !my irlolh~r.we tr r.d I~ve.ln he a,rs - - wr frc,lnNoway, huo who had graduated from ahorn? ior rh~ldrsn b.ti~out parents, oneirurr# a r ~stdr~~l~l s~ntml 10, ad"!rrtnrd

electric wheelchair, four part-time attendants,and a conversatio" with JohnHessler, the lounder and director of theDisabled Students' Program at BerkeleyThe electric wheelchair chanced mvwhoie ~ cial relationship to whomever Iwas with. Instead of doing something forme (pushing my wheelchair). they weredoing samething with me (going to amovie or whatever). I felt incredibly andunexpectedly free. That feeling was intensifiedby a second factor - the localcustom of employing several part-timeattendants, rather than one. l no longerneeded to get xu bnl rarlv III onler 10ailow a andle attendant lmr 11) slc*,i> andu~l hark in time to eel me uo in the&ornine. Now I couyd hire alate attendantf~,~evcn~n~s nud .I mnrnitlgnltendanl for any early huur I wil~lted.alnl i# #llller~ot %el 01 atttwJanlr on theweekends WIPII one w.15 absent. 1 couldcall un aneul tlteoti~v~ to s!lbstitule.Mu1l1p.e anendants ~orrezved any freedcmand !odrpendencv to a cr~ln;ll wayhlv ronvermlion wllh Jonn IIcsler thal~uiyba~ in 1970 was the moment that Idecided to move to California for gwd.John assured me that this new way to liveindependently was not a fly-by-night idea,that there were ~ eo~le fiercely dedicatedto the concept ;habe om liv& would beon thc llnc 11 the idea 1a1lt-d I wa*~mprecsed that peop.e u~th more *weredkab illas than mtne were i.ving suchSusan with sisters, (let, to ngsuLiz, in France.an0independent lives. I was convinced.The rest of the stmy is simple. lreturned to lliinois to teach one moreyear and applied for teaching positions inCaifcrrn~a durlnq that tlme. i was thrilledwhen Igol *ord lhnl Holy N:IIII*S HI#,Srhooi $81 Oaklitnd Illred ine I IIIOY~~ loBerkeley in July 1972. found an apartlr>enthirctl i~lrrn~lanta and a couu andrentcd a van It, get tu wu*. I llrsl thoughtI cgruldn'l live comn~etelv alone so 1 founda vounq woman to'shar~mv aDartment.-Afte;three years, when my iwmmatemoved an. l knew I could live alone anddid. tbr meals. I asked my morning attendantto prepare simple dishes that I couldbake or steam on a table to^ oven andhllnler rer on low table$ rhal I'd dcslpedfur my kltchcn. Since then nlrals llavcbecome even eawr with nlv t,ltrn,wnvroven1 alu, changed jobs tlvar ymr I becamethe ~ wrd~ttal~)~ 01 Phys~c~ll~ Oirabledil!~

Yukiko OkaFormer teacher.International advocate.blio."To help other disabledpersons would be the bestway to repay the kindnessand care that have beenshown to me."Thirty years ago. I was a lifth-gradestudent of the ~rimarv school. Disabledchildren have brrn tusclally asked In go toa il,ec.nl schwl Forl!~t,ah.ly, I wiL,allowc

I was the first employed by the newlyestablished Japan Council for InternationalYear of Disabled Persons (MJP) asa public relations oflicer to explain thetheme of M)P through the TV. radio, andnewspaper. Everyday was full of interestihgrv*tbl and exrllng pro)ecLr. Iur$alw 11 severnl JC~~YIIIPSwh.~I,~~n.t~alnetwo& o? the self-help gro;ps ofdisabled pemns was expanded throughthe conduct 01 the leadership trainingseminars in Thailand, Australia, Banglbdesh. and Japan.When the DPI Regional Office got inlormationthat the UN Economic and SocialCommission lor Asia and the Pacific(ESCAP) was interested in appointing adisabled person to a newly establisheddisability, and Asid- turned to be posl-'tive and made me accepted by ESCAP in1986. The experience at the DPI RegionalOflice was of great help to make ESCAPRehabilitation into Independent Living

a regional focal mint in the field 01disabilityFor the last hvo years I have beenimplementing an assistance programmeto develop national disability preventionand ichd(;.lll.ll.~ll Ipr0qraml4leh. t11 wh.~h Iprumal y tnq,l~a*~ic andes~ol~~rl~i~~~!strcnethrn~nc oredn~zatlurw nl dlsabled~h&oGtries visited were Bangladesh.Bhutan. Indonesia, India. Republicof Korea, Lao PDR. Nepal, and Pakistan,amone which disabled Dersons in Bhutanand ~ z ~ started a l to fah their own selfhelpgroups.My contract with FSCAP will expire atthe end of May. 1989. It is my sinceredesire that expertise gained in =CAP willbe hrther utilized to empower disabledpersons especially in Asia.4sIngolf OstenvitzConsulting psychologist.Advocate.Polio.Terrible also was the isolation io asingle bedroom. Friends and relativeswere only allowed to come to thewind~a. I 1e.t lefr alnnc and badly allfctedby the virus II IC dldn't becumr hetler.Ill? wo~~ltl~~'1 have made cmqc an\, more.I wished death to come. My respihonbecame worse, each breath was an effortand, moreover, pain was in all muscles."Gini and her friends have Lying on my back staring at the whiteshown me and my friends ceiling, the warm summer days wereendless. l hated my bed and my inabilitya way we will continue toto move and envied the pople outside.follow I am obliged to them To be alive and to move, how wonderhlmust that be.in friendship and gratitude."Shortly before New Year's Day 1960 1was placed in a rehabilitation hospital. ItI was born an October the8th 1910 inlbtsdsm wh,rh l~ec in the C,rrmao Llemuwasregarded as the best institution forpolio survivon. Rehabilitation includedcrotlr Imuy Hrn I nnrwvnt Ir.cn#~sv 11 wn, a wav In get outlnr iqer ol 15.ul or* I tsorclalv r#81ovv

make love with her and to take up ourSemal life again. She was very attractivelo me. I lovrerlomt.d. Sl~lltodav I lhi~,knl her wttll rralltudr and Ihaves loving leeling for 6er who had alot of love and car& me in hard ttntrs.lngoif with his son, Tllmann.The lntcni ve phystotherdpy lrratxnenldidn'l hrioe mt.ril chance I ir~nled runes5 in bed. which had always annoyedme and wasvery unpleasant. Concerninghandle a /heheelchair an: went out for intimacy you are totally at the mercy oflittle excursions in the hospital area. My the frequendy changing personnel.left arm was quite intact, the right upper Georges Simenon once wrote that hearm remained mainly paralyzed, as didthe rest of the bod". With the remaininsfunctions I learnedto dress. Geltinq fromthe wherlrl~atr lrltu hed and the otherwav arclllllcl hll I wb~n'l p~sslhle U*llll?rcould only let himself be washed by avery familiar person. I can understandthis feeling very well. One is deprived ofone's physical integrityWith many tricks and with a lot ofd.d I m;sllaec lo usr the loilet *I~III)II~ practice I tried to manage my activities ofhelp. I hadio be lilted onto a suecia1chir and placed w.th the clv~i; nl,uue lhetolet In the beqlnnill$ tl81s prucrourc%;~tlsIled me 1 dlrln't (taw to do my bu~i-Ir1d.,daily living and I succeeded in dressingmyself and getting into a car. But it wasyears until I was able to pull my wheelchairintoa car.A crucial expedence in the clinic wasthe acauaintance with a voune man whoalso hid wlio hut not &gravely as I. Hisa n c wrrr ilur dff?l.tt~J Hi atle~.~ch.d asrhmi III urdo I" make the 'Al,llt#r." theol~nl~i#rat~un tnnt s reoulred 11, ;tlIc.nd aAiversitv. His aim was'ta shldv. Howoften had I been dreaming of &at, evenbefore I had polio. I often talked to him inorder to leam haw one could attend aschwl in a wheelchair and aftenvards eoto university. I got to lmow all the deta&how to altcnd lo n ho;%rml lor

to be mobile and for the activities of daily lint time it became evident to me how tion during which the lefl kneecao wasliving belong in a nursing home." And datngennus rehah~lilalion institutions are removed, the knee could be benornr), f;urlte, sprln)(-stlrnmer. abled and nondisabled people, not only rehming and was looking foward to1963 Only my krwwledqe 01 Ihc Fngllsh in my ease.the time of my studies.lanymaqo was Icn lpoor. With qreat efiurt I Looking back I don't have much regard In hospital I decided to register lorcould rt,a

We aften had our doubts about osvcholowand I was tovine with the ideaofstudy~nq rhem~ri~llut I dldn'l glare torlta~tqe. my nlhlecl irrat~w I tlu~ttgl~! IIackcrl the rruu red n,~,l,tltrv lo ~ork IIIa laboratory %day I how &at with accrtsln amount ut p'ru,u;ll i&%*isl;ttrrI cuuld havr stu~i~wl c 11+11$191ry. Al 11111tome rhcre wm nu wav 1~ eat ut.rw!la.assistance. Either yoimaze ii on yourown or it was not possible. That was thephilosophy.In 1970 1 graduated in psychology I hadoccupied myself intensively with behaviortherapy and nondirective counseling. Igot a job where I could work in this lield.I had to leave Miinster and moved toMainz where I worked In a therapy centerfor disabled children. Barbara stayed inMiinster in order to continue her studies.For the lirst time I lived completely on myown. I had a new car and so I was able topull the wheelchair inside.In 1971 Barbara and I married. WekendsI drove to Miinster (which takesabout six hours) where we had an apartment.It was a strenuous time wlth a lotal work. The center where I worked wasonly partly arccss~l,le I alect

Vera OverholtElementary school teacher.Polio. Ventilator user."Because of the watershedof polio in my life . . . I toocan sympathize with alltypes of disabilities, be theyemotional, spiritual, orphysical. People need toknow that someone cares. "I have fond memories of Cleveland in1958.1 believe this is due largely to GiniScontribution to the children and adultswho had contracted polio and were in thet'leveI:~nd Uel~opolil~n Ho~~~ilal at Illist!ne 5111. wt8u..l ni*,avs I,r.lle r st1,81lvsmile and some story about her cats.Nothing was ever tw much trouble or abother lor Ginil Needless to say, we lovedher. We still do.We children would lwk fonvard withanticipation to her visits. She alwaysI,rouqh! fun and rxcllrrncnt wllll hrrT1a.r~. was an aura 01 mvstlqur ano orlqloal~lyabout her. She qavc her lile lo u ~.I think we would have given our lives6". h. ,-. ...,I was vlmust four yvarb c,l#l when Irontracled polnu in 1952 1 spent oneand a hall years in Aultman Hospital inCanlon. Ohio 1 was allowed lo returnhome lor .I uhile, hut the d ~lors rrlrnwltme Ic, Clrvcl;m

eathing invention. (I learned it in Cleveland.)l now use a chest res~irator atnighi. I had decided way b&k when I wasin the eighth grade that I must get off theiron lung. If I did not. there would be nolone distance waveline for me. and I !mewI wanted to go to ~ur&e someday Butftr*!. I had to team lo use my rh&treaplr.n!c>r. It tmk ~eelcc and week* 01trial aml rrror I'd hcum thr naht withthe respirator, but hzfway thriugh itI'd have to go back into the iron lung.Eventually I became acclimated andaccustomed to the chest respirator, andit has became a dear hiend indeed.After I w;ls weorled of1 the #run lunz. 1cuuldqu abroad. In 1975 he planned dereat trio to Eurooe. 'Hvine \Vlleels"wrote u; a lovely'and p;acgcai itinerarywhich my two sisters, Lena. JoAnn, and I.could follow easily. They were absolutelyfabulous with their directions. We sailedan the Queen Elizabeth ll and new back.A terrilic four-week vacation.A little now about life todoy. I havebeen teaching 18 years in elementaryeducation. l have been luclty. I Iiong to aMennonite church which hired me when Iwas 22 years old. The school is small. Ihave an average of 18 shldents each year.The families are good, old families. Whave no drug problems, etc. The parenbusually uphold the teachers and the principlesof the school. We have a highacademic standard of which we arer'"I ,'.P"t- - .,d'1Vera, on Ikft, wit11 her motherand fire sisters~roud. This excellence is achieved, bvind large, by having small classes wiereeach pupil receives individual attention.I do not have the severe difficulties tobattle as the teacher in the oublic schoolsystem. We have a lovely school, set backin a woods, so we have a natural settingfor OUT nahlre walks. l use my golf earl to:tgo on these hikes. It has become a yearlyevent. We pack our notebwks andpencils onto my golf cart. Everyone getsin line and off we march to the wwdsand up over the hill behind the school.W sit in various places. Same childrenprefer to sit by themselves to write, forthat is what we are going to do - writeRehabilitation into Independent Living

Mona Randolphplevy They wrtte what they see andfamily and church hiends comforted andhear ihe poem- mu51 rhyme and theyencouraged me. Dad was a devoted, funmusth..v? correct mner But th~r ic nu1loving provider. Mom was and is aterrilyine to the children. These third Volunteer.dvtmhn. Irrwn, cunl~~~~~uusiy lay~ngtl~n,~;gl~i.ltl~ grader* have done it many Polio. 'kntilator User.dclwll her ItL. lor lam~ly avlri lriend$. Myt~~nrs brlorr llln,uqiroul the year in theo!dv brulhcr was and still is a great lriendrlmnum Tncy love .I. l do, luuf Alteron ;vhom I can dewnd for un&c\tandine.evcryune lhw wr:llen and read fthelrprilctrcal he.p, and qmd numnr."Without Cod, His words,plrmr) ;lltal lo the ria.%?, and rney haveUurlng the npxt 11, yeas liv~oq with mypmal io$llert~on, we p ay a gamc ol ball. His committed people, and parent< i worked pnrt-rlllle nl l!#,nlr (tnvl-I am lhr illnplrr My ph~loropi~y of drhml the resources I was given, I tallull lbuslllcss. PallltlllS Commlsons.1s when ut. work, wr work hilrd, anrielr., and srudwd vurac!ousiy. Thanks towhen we play, we play hard." would be neither alive, nor lam~ly rhaufleur services, we alw sharedWhen I sit back and wonder how i well, nor living happily " ct~llt~rrtl, (.tv.(.. itntl wriitl drlivll~csmanaged and coped all these years with-Mv must actlvc iilr. l~uwcvrr, w,m ~nout the full use of my limbs and lungs, imy ;magination, where visions of beingalmost panic, thinking of all the things My planning, in 1956, wa.. lor a December "independeny ran like magnilied backthatmlght have happened had i not met wedd:nq, not an enlorced vacation in an ground movies.the right person at the right time, or even iron IIIII~ In my numbed bew~lderme~,l, l In the early '60s an excellent rehabbeen at the right place at the right time. I*l#evni excellent i~o%l,t!al rnrr cut Ka~~sar uublication. the Taomev i Gazere, iinbo-But I don't think it was merechance ('lly 811d l~artl work ill ihr lal,crd W.mu duced me to other redpolio survivorseither. God has been gwd to me, a realfriend. Because ol the watershed of polioFprltlgs. Leuryna. wuuld l*l ntlr 'Iullqt~rr"palio.wi>u were ruc~tcdtny at rcal task 1 h!rbulh humbled me and brouqht new hopein my life, I have become astrongerYet, recovery was limited and tortoise- Unt~i then i ,.Idled nnlv to lormerperson. Because of the manv kindnesses speed slow. Seven monUls dter being friends, ref us in^ to ack;lowledge much;>I pwpie everywhere, children and vrn ken!. whet, I was weilneti lrom tite in ~ O X ~ ~110~ ~ rltsal>lt~lI ~ ~ ~ lrui)ic ~ Ladttlti al~kv. I tm ciln syntl~iltlt#~e wllh all IIIII~. I II~v(.IcII IU ti~orgla. Sjx ita8ltlln Al'pruprlatlrlq my own rraln, wasbw.~ .,-.. 111 .~

Disdaining what I mistakenly labeledself-pity, for years I deprived myself of thehealth-promoting procws of grieving. Butdark mmds accompanied my vainattempts to appear "O.K." Frequently,subterranean pits of despair wouldbubble up noxious clouds to obscuremy vision.After a seasan of mourning a brokenmmance, at Christmas time, 1968.1developed severe bronchitis. Depressed,fearful, and lonely, I began a newly serioussearch for God. Realihl as describedhy Jesus was w appeai~ndti,at i i,t,garl ludcswe thc ffinqshlp and c rnmsel ol ,hasGreat tnther i.lvioor Staa>dby Gud. A I~le-~hrratr~l~tq rlldktnl: eplude, duringwll~ch i was n,nvlnie

~~~ ~~ ~~~appreciated thc pear* and harmony ofour homehr pn.l>l?tn p0p.e havebeen amd lor nrowlll ui character~e&use of &is continual change. Ilearned to adjust to people moving in andout. Disorientation and insecurity couldbe expected, accepted, and ignored inthe knowledge that "life is dynamic,not static."Income was from Social Securitypayments as my dadB disabled child(newly available in 1972), plus somebenefits and dividends Mom let me use.plus gifts and sewices from generousfamilv and friends. and contributionslrom'able housemates. Even though parttimehelpsometimes cost 50% of myincome (the entire SSD amount), amazingly,my needs were always met, l wasalways able to tithe, and often had somethineleft for a "kind act to others."MY fourteen years' housing historyincludes moving four times, buying twohouses, selling one, renting a town house.and helping friends buy a home where Ilived with them. Of all these rwf-averthe-headsolutions. l prefer the security.freedom to alter my environment, and thegwd feeling of investment that are benefits01 owninR a home.Tltrr? Ianvi Ihe?~, some disapp,intin$henltl. ],rol,letnr After LO years of happilytlotl~e IYIIIL~~UI #IC\ '~rl.0~ s~l~n~ar~rtv '(ironlung), in 1f76.1 had to rehlrn to itfor sleeping. Bouts with infection havebeen tempararily inconvenient, discouraging." ". and debilitatine.But improvementsTn strength andcmrdination have allowed me to shelvesome equipment so impartant at first, andan electric wheelchair has opened anewera of mobility Since 1980 1 have participatedin two weddings (besides my own).explored many new places, and gleefully"danced."An impartant person appeared in 1979.Mark Randolph had attended some of ourdinners for ever-stanring bachelors andevenhlally was added to the draft list of"lifters." He was an unusuallv wlite.intelligent guy (a computer aiplicailonengineer), with a bizarre sense of humor(like mine), and was a lonely newcomer.so I offered friendship (strictly platonic,I declared.)Althuuqln we were very dtllerent inaptltuder anal il!teresL- (beudcs thr yulfhetween mv sevrrr dlrahll!~ and hasrobust strheth). we com~lekented oneanother, feltdccepted and appreciatedwhen we were together, grew more andmore comfortable with each other,so webegan "dating." Finally we admitted toourselves that we were IN LOVE. Oh, no!\that lo do nhuut ltlAlter lo~ryears lugelher. l knew hewcnlld .;nn,rituilrry IIIII; Ant1 1.e djd. On my 30111 brtlldayAt~*~ct Lti. I!lXt~,heslartled me *tthThe Ug Que,t.or> M. wyrr ntlnrried theday after Chrismas. December 26.1986.in a small familv ceremony . at my . broth-er's home.Though I can't say our marriage hasbeen constant bliss - I have had toendure some old but now new frustrationsover not being able to serve myhusband with my own hands; Mark hashad to come to terms with sharing histime, energy, and income with a needyperson (we last my SSD income andMedicare when we married) - I cansay we are successfully adapting.Life now is full, rewarding, and meaningful.New areas of service are openingall the time. (Having found it hard to haveto receive so much sewice, which I couldnever repay. I greatly enjoy sewingothers.) l feel more complete and joyfulthan I ever have (even 0.P). and we'reboth still happy to be together after allthese years.While it may seem overwhelming tochwse your own lifestyle and to implementyour choices, it is definitely worththe effort!So, remembering haw I got from thereto here. 1 have no secret formula todivulge, no delusions about beinga selfmadespecialist who pulled myself up bymy own hand-splint straps. Without God,His words. His committed ueaule. and theresources I was given. I w&ld'be neitheralive, nor well, nor living happily inKansas City..iFg30th Anniversary Edition .Rehabilitation Gazette.

Susan RayWriter of educational andpromotional materials.Advocate.Polio. Ventilator user."My doctors once admittedthat they had some earlydoubts about a respiratoruser traveling. But we andother self-directed guineapigs had settled thatquestion for them. "History Since I was only four years old,my memorlrs ol lhe ac"tr stGe of pllluare tllm lrlilnq my ruusln tu cvcn up myarks hlure I went tu thc hoso~tal ... mvaunt trying to comb tangles o;t of my 'hair after two or three weeks in the ironlung.. . my parents crowded in with mein an Army plane with a special tankflvine from Lubbock. Texas. to a newpoliohospital in Houston.. . my terrorwlle~t Ill? pcuple at that new hospitallwk my i~'tl oween lunnel aw-y.hav~nq a blwd tmnsl~sion heriulse Iwouldn't eat the hospital fwd, and thenMother being allowed to bring me ahome-cooked meal each day.. . talkingwith but seldom seeine the other childrenin tanks in my ward. .:the ~vikoiaipr:esl who laugh! lo slnq : teniy.Htrnn/ Spider ' Fugen~a. the nursehadr who hrowhr us m~ikshaker~ ~ ~~~at~ ~bedtime.. .&fifthbirthdav Dartv.the huge Am$ transport PIG t&t flewme in my Emerson tank back home toLubbock.I was unaware of my parents' fern -fears that I would not live or, if I did, whatkind of lile there wouid be for me and ourfamily I took for granted the fact that mymother. babv brother. . and erandoarents " .moved to ~6ustan - not knowing howlong I would he there - while my latherhad to stay in Lubbock pastoring a growingchurch. And I had no concept of thefrightful epidemic raging in the country.i took polio in February 1952. Our localhospital barely knew what to do for me;but they did. thanktully, get me transferredin iust a month to the brand newinnovati& southwestern Paliomyelitis 'Crrltur. The probcm was tl>;~l hi rumrnerthis new hulldlnq and rarug staff wtrrbemz ovenuheltt~d will, lr~or twrlvcnewpatients a day! My mother volunteeredto help in my ward, doing simplethings we chtldrcn needed.111 July. my doclor 1o.d my parmls sheInad rearhcd a relurlml der~ston - i hadto eo home. It was aedainst their ~oliev torelease anyone whocould not breath;unassisted. But someone had to go.Mother had had hours of ward emerience.and I'm certain mv father showedhis usual '"can do" attitide. So wewent home.For me it was a gwd decision. Owchurch. with the heio of othen. built aparumayt, with a hii lllnk nx~#;bar meand my tank. Undciy, a8ldlng wrld~ny tuhm mcrha#,~rni sktlls, bull1 mc a ch.ldsuedrltrlr 10 sll in while u~lnp, the chestsne.1(vttlrars). U th puppets n8,d otherdivers~unr, Mother t.tuqht me 10 t~lerrllethv rurklnq hed (1 Itagl almost blar*rriuut on on? III the l~usptlal.,And whenUlddv hull a small rockmn chair.I ~oveh it!Soon time came to rehim to Houstonfor a checltup. But how to go? "Why don'tyou build a little tank to fit into ourstation wagon?" said Mother, hail joking,half desperate. So Daddy got the help of asheet-metal shop and a mechanic Mendto build an "iron lung"! Alter a final allnightwork session, they made me try itin a black, unpainted state. Then theyhurriedly pait,trci 11 yrllow to apwa&me,s~ld wr ll~lk 011 or# the60U.m:le trip.Al c ) l W ~ ~ the I tank suddenlvstopped, causine vanic. But it was a shortI'nvltc. for ad& iound the $wilcll uw-~l#.!~lnlly mmea olf Wlwn we anlvrd inIl~~uston. the dwtcrr~ ~pnmo#~ncerl meRehabilitation into Independent Living

looking fine and my parents lmldng terrible.When a reporter asked Daddy whatmediri,. ;nivtre he ll.,

first taught children (in English!). Happily,I've belonged to three churches that letme do whatever I felt I could do withoutmaim a bie deal of it. Mv favorite examplesi e the-times I would mind from 5 to15 ch~ldrcn. somrllltles ran~lnq frlrm 5 tr,15 ymrs UI OX(.. #lur!#$q one-I~-Iw~-hurchurch burcncs- #,lerlmes HY tne end iwas tired, hoarse, and Addie-headed!But nu one lrl.rtrd over !me. they j1191cheerfull). Iuarlnl vnr. 1111(1 111" c.11' hlyellorts were JoDrec ate. h(,w r~nt thal tw:n~e was'Although I've not cad any defizte muscleloss. I Kave had a cauplbof scares hornthe specter of post-polio syndrome.I cannot estimate the dollar value ofthe help March of Dimes gave me from1952 until 1986. But now that Medicwe,n.y lilli!ers illsurance, and my llarenls areI,nyulg lor rented equtpmel,l, l i ~lu IIII)~~sculelv aware ol Ule hull uosl 01 imvlla~ncmedical. l wander howkuch of tha

Susan enlbroidering while using oralpositive pressure.With my lather retiring, we have movedto be near my brother and his family Wehave a good home-health aide and canafford to pay her. My parents haveworked at saving lor my future care.i m more fortunate than many people.bath disabled and nondisabled, in havinga g d larntly imnl 11,I.s ul [rends, ltnanc alnecurly, a llrolllll~llvr and salslylnq llle Ilee1 v~~vtw of !t>r uncerra~nltec that man"other disabled eeople feel: yet these do'nu1 dumtnale my lhlc Mhatev?r thefut~re. I *now lhal 1ml.v ir,?lld\.:llalIhr Lard w4.l see me Ibro~#gl~4gThomas W. RogersPolio. Ventilator user.Insurance and mutual fundssalesman.'A multiple assistant(attendant) approach keepsyou busy scheduling, but thebenefits of working withseveral different people arestimulating. "A* I ~lellul on the iaqt.35 years it allrLemr lo be an evolatir,n "1 adapl~ng lorhanrcr.tmt. Icl imr clarh, lhrl I l~nvebeenhxkemeiy IorNnate tb have hadslrong parw~li, boln 11nd11cti8lly n~< ln8lla. rho

the paper stating elearly what we neededand have ~enerally been pleased with theresults My favorltr n!r,nllllg nurseanswered an ad in 1154 and beenwith me ever smce st,? \l.nrled out workinr!six days a week and today it is more"lien 1hve"ith part-tlrlwra l~.l~ng in onher dayc 011. .Zs thr years wv!nl

necl at Ill? lh,rdl rommunlty rolll~grwlnu druoocd bv once a week to rlwrkMy ~ntercst r~vnlways in llnanclalalfalrs and I started selling mullla1 fundsand incurancu fur Waddell and Rrrd. Inc.of Kansas City They are still in the businesstoany ai 09 A L \\'~.l!ams lrtr -1,ullt sr.ltn$ trrm lnrurance anrl m!ll~ldlfutnd\ TIICY bu!I> ire slrlctlv ~onlnllsslollemplover;: and you are paih only forwhcit i.8~ produ;:e - INII they will helpyvu lprrt'are lur your lest lor 1icellr.n~. Inadrt~l~~~~~thev wall lhrl~ wtrll s;tlca iniilerialand the &t 01 sell;ng. Both companiesprl~rm ia rrid service thew cllcntr suyou can be protni 01 your product(:onrurrcntly whir I wns with \'Addellatal Heed I was rcud~!~l: law under theauslucv% 01 n local lawyer arrl wl~ohnppws 10 I* my larorilc person. He drlhls kst to make nap n I.~wyer, but I lound!he world 01 flniltlr? iu.1 ttm BII~BCIIYB. Comes Bridge. chess backenmmon,In 19661 wanted to branch out, with hearts, poker, and almost anfither cardthe help of an uncle and a friend who or board games provide a great deal ofwere both in the security business. I fun. Early in my polio years I took bridgeopened my own firm and became a lessons and found the eame - lascinatinamember of the National Association of and an area where I can participate asSecurities Dealers. Today I work about 60 well ar any ablt-l~~~ls~l lxruln \\'$th aldhutlrs n ~ eek ~0th unc lull-lme arid onrI,nrt-!lrrlt%nrct;ay My full.tlmr gal hic.Iht,ett w~lh rmr LL "ears and IUC~IIY Iiv(.snext dwr. My p&t-time gal is 85years ofage and has been with me over 15 years.We are not the fastest nor the most profitablebut we lind what work we do veryinteresting and it does m&e me selfsupporting.ol n card ra~kI play c~rclr .XI tpncl ievrnttmes a month and wutlld tllilv iumrc if mvbusiness didn't usurn my timi. It is amarvelous way to meet -people and spendan enjoyable evening. Through the game.I have met hundreds of interestine -. woole .who have become my hiends.Heolth. 1 have been blessed with excellentcare and tremendous support. l was19years of age at the time when polio hit.6'3" and 190 paunds. Up to about fiveyears ago I felt I could do most anything.Lately I need a portable respirator duringthe slow times of the dav. Three nightsout in a row reauires a 6reak. ~he'boctorhas prcscrlbed hurc pills and Iliainctrurled me to he more careft11 111 wllatI rat My sl~ro year, ltave dlcappeared andI wetyll as much as 1 #II~ helore p,lw butit isn't placea very well alnl 11 m.&esbrcath.nq and handlnng murr d~llirult.Unlortut.nlely I have a htalllly nl~trlil?.Mv son1 ,I, .ile was to make LI u!ll~l 50~av;ni obtained that mark. l asked theLord,kr a ten-year mension and thecalendar tells me that is half gone. I amdrafting another ten-year extension whichI ha~e will be a~~roved in live shortye&. l want ta'&avel around the country.!I ;I inob~le ho~n* adapted tc, m) pculjarcards Tu do that I will 11;lvr I#> iurln:lwme of mv builncs acllvlh That ilteans1 will haveio retire from the daily brokeragebusiness but, hopefully, I can retainsome of the activity A rut is hard tochange.Tmuel. In addition to Michigan I dospend a month in Florida in April in theSarasota area. At present I travel straightthrough in a Dodge van with a Braun lift30th Anniversary Edition .Rehabilitatbn Gazette, ,%I. 29. b. l and 2

~ -with the aid a1 mv nurse and two drivers.It l~ker ahout 24 hours. My nurse slayswltn me in tlorida'lhere aqam I have aIwal naI who helm in the mominns and adrive;who have been with me far"severalyears. Each oriqinally ancwered a news.paper ad Florid.! h.ri herome the center01 mucll 01 mv l>tlsl~~e%$ actiwtv 'I) it ISlarqely s i,.~siitr\< trip wuh vaEa~lntl over.lone* 1 1 drcvers ~ fly l,i

to do many things. Evenhlally I was tell- with what i want to get out of life.ing everybody. "If I have to sit in aRanaldk Rule One: ''Every barrier has thewheelchair, l might just as well sit in potential of beginning a detour to some-Taiwan as in California." In other words. thing gwd."I decided 10 pock ttp the 1,ieces 01 my IIIC . - -- -.where I Itad 6.11 (111 wheu lmlio PUUC~Krllrct~rm 01, uhal i~aotlnled . . 1 ollrr. .thv !c,llbu.$ng u#talv

ody of priests and religious, my medicalurpenses were all taken care of, and icould purchase whatever swiai equipmen1i i t i ttr~tleci ~n order io sludy ;nbwork w#tlb the Ira$[ nmounl of rectr:ctnnn.1 alw rere~v*cl .L-sl-lance from thcNa1101>ill FOU~L~BIIOII 10 help in my reha.I,, ili~li(~n ial lhe \\'arm Sprinqs hundal~onwltl at, nml,le rril~oeech.l, froln lhrgovmll!lel~l whet1 11 cans tlllle lor me tos181cly rrl~ah~lttaltorl vut~ntellr~g. Ftoally.nny IU~I as a rrhiab,l~tal~un consul~ant inTawan prou~dc< a salary sulltrienl lor myordinary iivinq and lravellnq rxlwtlsrstrnononnl ond pryrltolog,c-ol ~ pp.rlFrom in" latnly, nlv ksull s8lpt'rtorsandcull~~a~cs.and all the medical andparamrdtrai perwnnel. l alwa)s rece:vrclenro!lraeeuwnt lhev . arceaed . mv , mut- .rations &d paved the way for me to dothe things I wanted. Even my mother whoIS always urq.ny mc to sluw down. lakebetter rare 01 111yse1i. and presewe n>veneresh " ili~. il(.l.e~)led, . . ilih~1I II wllllmountains of resewations at times, evenmy wl rirr rchemcrI Ildue no idea what cause my itferultld have t&en had I not enlten m1.o I" .strongly suspect it would have been a lotduller and I would not have done half asmany things or gone half as many placesas I have since getting polio. in fact, everysingle thing in my life that I now enjoy,my job, my travels, even the priestly workin the parish where I live, is being donea- a ConYequence of my poll" It ha, requested the doetor's assurance thatopened dwrr and provided O~)IXIIIIII~II~F there would be no special medicalI nevrr wou d have had nn alrdtllawabie-bcdied run of the mill JesuitHo~aldk Kulp IBree 'Even bad thingsthat happen can !!cake gwxi thlnqlilt~~en... .i vou keru muvtne." ""Though polio changed mylife in a million ways, I amnot so sure it changed me."WrR At the time I got polio I wasalreadv halfway through seminan, studieson thiway to becoming a priest..Forhrnately,most of the things a priest doescan be performed sitting down. Thus Iwas s~ared the necwitv of havine tochanke my oeeupationai goals. ~t"thelime I wd% #lrda,lwd. Cilurch Inw Curbadethe (1rdtrlitt101801 p~rsons with d~sab.liwu, I !wrderi a s~eclal dsoensarion lromRome. As relatAd to me, ;he only questionRome raised when the matter came upwas. 'Will he be able to do priestlywork? Since the answer was yes, thedispensation was granted. It was alsoquite unusual lor a disabled perm.parl8cularly me in a whee.cha~r to beawqned to a loreign in8scinn .md l,rul,iablvnnd I no1 nlresdv 1,eru TIIW;~hifore polio, i would never have beensent back. The mission superiors onlycomplications or problems for me inTaiwan. Ronald's Rule Four: "The measureof value is the contents of the package,not the wrappings."Componlans As l laak back now overthe first years after my rehun to Taiwanand especially the fo&years I studiedtheology in the Philippines, l feel veryembarrassed at all the trouble and inconveniencesi must have caused because Ialways insisted on going everywhere anddo~n: rvrryth~ng thsl my lelll;w Jc.su~lswere ciolnq. Arl!vally I nub vrry gralrlultu Cud lor hlwdirw in? at the timc lo theoecasianal grumbim~ and resenmentIhal ollters sometme- expreard 11nau.wni wy l)r(.sc.nce (rrr I i~nvr r~ttcc brrnl

~ptently and well an unending series ofopporhlnities and friends to help meparticipate in all the activities that haveenriched my life and enabled me to doso many things far others. Ronald's RuleFive: 'You have as many hands and feetas you have friends." But beware ofRonald's Rule Six: "Frazzled hands frachirefriendships. Don't overstretch yourstrength or that of your friends. Even Godrested on the seventh day,"Openness, flexibilim optimism. oduentunqonlcners Rulurc pal o ever hit. l wasblerscrl wlth n itmperanlrlll Illat wasmen lu adventure, not .~lra##l of chance& unwlllinn to trythings difficult or &wor tinnc. \lurphG law Illdl sap. .I1aoytln~r~l: tit08 go wr(8t.q. 81 prtjbably will,"ha.; nln.rv5 fnr tne brrn I

Phyllis RubenfeldAssorlate professor.PolioN ham mkaculous iarn.packwI30 yeam'I ramrcl a rturtoratr n 1184 awl ,Iir\e,n~ndr me tu thm* back tc, the late 'SOPWI~CU I came oll ul home inslrt~rtic,u, alterrecr.v!ng only 1' : hours uf inrrruct~o~~Irvr wrc.k fur Ive h~qh schwl subl6,vrxand w ~h throwu intu ~(~lle~e I WL'.not only expected to compete with"Y parents ha"e 'lwaysbeen the moving forcepeople whose school had never beenfor me. "when I was hospitalized, but was alsointerrupted, as mine was for two yearsemected to socialize when I had beenre..&ttveb iwlaled during lh~s time.iJ~,dergr~~dt~~2~~ SCIUM>I w;ns dtll.~t~lt atheal lhrr 1I1e ttrsl huu vears hlusl nta,wl-. . .pr&ers w, when this process has beenslyn~flcanrly interrupted, raichlnq upollen IS dilllr!~lt 111 ~ ~ul)~i~~l~leThe desirem he part nl tIw wcta. rmult~slreant alwcreiflled tenrlun, slnce soc.alla!nl( 1slearned behavior Given tht9 adven~ty.wnal made 11 pm:hle 10 qu ahcad? Whatmade it mcs.hie to dream 01 attendinna graduate school of sacial work and "hPromi8w ik snclnl worker to hr.p tllosenrnghlmra wlao .lved in the aaltlr ghettoas I lid .LL Rrowt~sv~lle. Rrm>dw?MV mrents were mv'sboneest suowrters,in their minds th& wasnothir;dlcuuldn't dr, My colleqe qraduatlun saswltr an honor' Inr them vnLe they bothwere from lhland and nelther cornoletedmore than third grade. With their supportI gadsated from Brooklyn College.Ilndrr&~aduate acl~ool wn? not wlthoulmucl. d~llnt~ry regarding arc*%% One~nc~denl reu,;iws I>IOS! vlvld. Since 1 amunable to raise my arms, 1 was tald thatI could not lskr rrn~strv and ti~at. people ruc 112s rnysclf sh~uld lnot be~n collece " A D~O~~SSOI 01 mine ove~iwardmy rathGr cryptic response to the Deanwho told me this and oflered an alternbtive (today known as reasonableaccommodation).There was a snag in entering New YorkUniversity Graduate School of SocialWork I was tald by a counselor from theNew York Oflice of Mcational Rehabilitationthat I was unoualified to attendsocial work schwl because 1 was unableIn jl>mp'T~ I~IC day I do not kwxv wb.,tjtllllplr.g has todo will, wlal workFrrlln4 that 1 had nntltlng 10 Iwe. 1 threat.ened to Ill? a li~wstn~l I iltr

at Hunter College in the Department ofAcademic Skills.What allowed me to move &om anunderprepared student from homeinstruction to an associate professor?My parents have always been the movingforce for me. When i feared failure inschool my parents would discuss my feelingswith me, usually concluding with alecture on the importance of not feelingsorry for myself and focusing on thepositive rather than the negative, andencouraged me not to complain but tostudv I can,? to lr.clcve them.My pol.lir;ll ~dt,oloyy and activlliesranle lrolll my lathcr. He war very interrstcdin lx,ltt8rs and dlcrusqed runenlcvenls rlln me. When 1 i)arltcipnted inpeare ~lrmonctral.ons, h>r rx.8u>l,lr. idldn'l le.1 rn) molhrr hersu\r sht: wilialmorl I mlqhl I,P 1)116h?d 1 dtc1 1t.l myIdtlter. lhot.ql~. 11e rtudr nr! prunlsc thatI w~uld hod (>!tu, 3 Inend and not tnrlrtbcine tgx, iorlenmdcnt and he wlsnedus l ~ek.~~hen I ckne home and told mymother. ahv was upsel. hul happy lhal Idldn'l libll My parents trealed in* wllllrcsnwl and a deeD ahidmu I;itlI~ tl~;r! 1cocld do what 1 ;anted t;and theyencouraged me.My attitude towards t~avei also comeshom my parents philosophy 01 lile. Thereare many buildings that I may not be ableto investigate thoroughly or even get intobecause of architectural barriers butrather than raying. "Why go? and hnad-~nq because m). lnabllity to do whatothers do remmdr me ol mv dlsabllilv. Igo ahead anyway and enjoy what I c& do.Looking back 30 yews isn't easybecause there were many difficult times.But there have also been great times andmany substantial accomplishments. Ihave learned that one must take chancesand not be afraid, and perhaps becausea1 my philosophy, family and friendsconllnlle to be nllpp~rtive. When I lookat my pi!rt.nts. who were immiqraltrs, andthtnk how lrrr~hr!ne 11 nltlst have been 10,them to come and Znd their way in theUnited States and how well they handledit, I how that I am a prod~lct a1 theirstrength, determination, and refusal to belicked. With this backgroulld to build on. lhope the "at 30 years will be more fruitfulin terms of family, friends, and career.$ez.\bl. 29.Nos. 1 and 2

Dottie Santa PaulActivist. Employee of actuarialfirm.Amyotonia congenita."I pray my life will glorifythe Lord. "In 1958. which was when the Gazelle wasborn. I was ten yem old and living in(iloucesler, Mairarhuselts. i was ~n UIPl~ltll qmde and artvr~#lr

lxople in the (iaellr and lo (iini to learn grandfilthvr were ll~vrr.~, I rnlrrrd wtlhmore. Everyc~s was n 11*11>f11. al~lB I~upt.ln!l nll.l?lde !hat I wu~~lrl Ihwe lotscnrourdgq 111t., nvld 1 ihr~v~tl 011 of ptlopIv (.~!lla~I i~lltl 111.31 lllln. 11 wmqell.!nq ktt~jw 181.w puplc.pn.tly ;acrri\~l,lv. ~ rai~)l~* I'd gt.1 out rnorc.I,, l!ll:6 I &?8

attendan1 Ute", and the aprrlmellt I hadsecured with my In~t peluty x a about ~to be lopt 101 ark

Walter Sawyer, Jr.Income tax preparerPolio. Ventilator user.'Sometimes we worryso much about the futurewe miss some of theopportunities to enrich ourlives today "Congratulations to the Cazene lor survivingibr thirty years and performing avaluable service for ail your readers. Mypast thirty or forty years do not seemexceotionallv worth writing about butalte;receiviig your reques i can hardlyrefuse.Biogrophicol information: Name: WaiterSawyer. Jr.; Bom: 1932; Education: Started1 ith year of school. Later twk H&RBlock Tax Preparation CorrespondenceCourse; Respiratory Polio: October. 1947:Hospitalization: Four months in localhospital;Two years in iron lung center.Baltimore: Physical condition upon leavingcenter: Total paralysis from shouldersdown; could breathe unassisted all dayusing neck muscles, rested and slept iniron lung every night. Had some move-ment in arms and hands but couldn't doanything except hlm page3 of bwks andmagazines. Could not breathe whilesitting up, so days were spent lying nearlyflat in bed, reading, listening to radio, andwatching TV that the community boughtfor me.I r e W hame in Ianuary1950.1 wasdi.cl>arl(ed lrum the center &$d sentIsonne to love with and he cared lor by mylamlly My lamily at lllsl tlnlr cunsistecl ulhbthcr, Father, ilnci a yalunxer brotl~*rand sister 'Tllree uldcr slrtrrs were I.wngawny Innn laomc wllh lam1 es 01 llle~row#$ Mv brother ielt home 111 1!156.and~nv last swt~r ielt in m~d-s~xttw MV homew& a large, isolated farm house aidnearest Gig~arwas one-half mile away.Visitan were nearly non-existent exceptwhen one of my sisters came.The Changes Begin. In early 1957 theNational Foundation oflered me a chanceto go to a Respiratory Rehab Center inBuffalo. At first I rejected the ideacompletely. Then a very dear respiratoryfriend in Florida urged me to go as shehad just recently been to one 01 them andthey helped her a lot. And she assured methe centen now were nothine like thehated Baltimore center. ~lso"it was quiteobvious to me that my physical conditionwas rapidly worsening and I could onlybreathe three or four hours until havingto go back into the iron lung. So in July1957, knowing absolutely for certain therewas no way they could help me ande-ting the worst I reluctantly headed10, Buffalo.I was a teeny-tim, bit wronR about whatcould and eo4d nit be doneit such acenter staffed by skilled. knowledgeable.and caring people using up-to-date respiratorieouioment. Within iwr months Iwas weaned from the iron lung and was~l'.~ng chrst s11r.i rv*ptratur, rucdlnq bed.IPPU by nnouttt and lramcd to 'grltp" or' lrox brea1i.r' wh~le ubservinc nllolller~atient doinz it. For many years I neverBrtuai y urvu guipmq ve;ytnta.h, bursitar my neck mucctes srr weaker thant1tt.v were. i am lclrrcd 1,. relv un vulolnem&e and moreAfter several weeks of physical therapyand some rather painful stretching, mystilf joints would bend enough to permitme to sit, so I was fitted with a supportingcorset and by using lPPB was able to situp again after ten years of lying nearlyflat. When I became able tosit erectenough to use my anns, my chair waslilted with ball-hearing tip feeden, andwith their help I was able to feed myself.write, and hunt and peck on an eiectriemewriter. After beine there one war. Idice again returned

could type, perhaps if I had a mimeographmachine I could get work m&ngcopies ol forms, letters. proqrams, etc. Attit;;^ ~tlnr vnonry war w&s;th~n jus~iran.? fur III* Sawyen, but somehowLhIO w.ls f011111i to I,UV the machmr and afew sup~lies. hhlnaielv it did work outokay: i&d the stenciis, and mothercranked the machine to make the copies.We continued doing this up until justrecentlv but have now discontinued thisas near& every business, church, andorqanzit~on has it's own copy mach#ne.'I'ni, hurtnet? never made a lot ai moneybut whiit it dld maltc. eswclallv :n the'6Os, was very helpful in'payini house-~~ -hold expenses.The end of 1959 we moved hom thelm because of mv father's faiiine health.We moved to a viliqe of some th&edozen houses and siiil live there but notin same house. My father died in 1967,and In early '70s the Sayer financesturned a lot better.and In 1972 motherand I desimed and had built asmallhouse iltai ww rwled to our need? anddestres !loIh?r 81#

Three years ago the Sawyer Snaneeshad improved to the paint where wecould spend some money without thedanger of having to go hungry so webought a new Dodge van with a customizedsix-inch raised rwf which permittedme to sit erect in my wheelchair. We donot use the van an awful lot. but it sure isnice to have when we do goout and ouronly n.grer is m>l l>uyl!~g ;i ten yearsrarl~cr ,Sumutc##~t.i we worn, so muchabout mc Iumre we mas ihc chance toenjoy some of the opportunities to enrichour lives today) Not having a lift in thevan; we use a folding ramp of piywwdwhich works line.The latest change in mv lile hao~eneda lew years ago den something :liedthe late effecE of polio came along. 1used to think it didn't really exist, butnow I am a believer.#G30th Annivemary Edition-Rehabilitation GazetteClair SchnitzTutor.Polio. kntilator user.'To me, 'independent living'does nor mean livingalone. "How did I do it? I am not sure. I howthere was some doing on my part, especiallyin the later years, but mast of thatInct~/~h~r~f~~ryEar lourney here frwnlhrrc ha3 been accomplished not usmuch hv dome as bv Iett n~ l~leb lure egood aid praiucti; and Geative, flowthrough me. But then letting is a form ofdoing. I suppose.At the beginning I spent a great deal oftime- about twelve years after the onsetol my disability - just existing. Perhaps itwas a nrresqdry tinw nl gnev.;tq or ncal.lnqor sinll,.y .I limr 111 mntllrlllq(l wac.almost twrlve wl,e#a I had a,ll

and Bmker Loafer, a kind of cow indwrlawn chair lhat was qreat lor cablortablecorner-s~ll~n~q, hul an lmped~mrnt 11)mohil.1~ and ro~nvenient da~lvknctiohing.I lwk back on the Mer Loafer as asymbol of my life at that time. Home fromthe hospital. l spent my days lying back.stationary, reading, enjoying only thatpart of life that came to me. Rehabilitationdid not include even the slightestpsychological preparation; never oncedid anyone mention the necessity of hel~ingmi prepare for a creative, prbductivilife in spite of a severe physical disabilityThe attihlde was rather one of sheltering.protecting, caring for me, making mehappy. (Of all the obstacles in my journey'spath, that attihlde has been and isstill the most difficult to overcome). Myhieh sehwl education was seen as a oastiie.ewdfor me because it kept my'mindoccupied, not because it couldprepare me to meet some diflicult chdlengesas a disabled adult, and even whenI started at the universitv in rnv latetwenties, some saw my ;ducadonaleflorts as a hobby.My paralysis happened long beforedisabled vaunesten were mainstreamedin public.sch&l systems, so I completed@atngil IW~IVC in the home-I~o>!r~! progrnru ~I,~vIc~; ;,''private'tracher w l cam,. ~ twlcr n week lor anhour and a hall, I learned to be an inde-pendent, self-motivated shldent, skillsthat later proved valuable in my universityshldiesand my tutoring work withindividual shldents. However, that modeof education isolated me even further andheld back my social and psychologicaldevelopment.Clair nnd hpr mother (at left)After high schwl I continued vegetatinqlor ;~~h~tl~?r $ 1 Ib~q ~ yr;~. ,, lpertmtllli~ cnrrtcl l , an vntl woe!$ ., TUX.% Hma-b~~tutlun Cunlm#ss.on (TK C cuunsclor.a member 01 mv church. rrached out tome and qentiy pushed me inlo th.nkingahout whal I inlended todo with icy ileAt that time TKC t>rowded me WIIII nheadset and telephone that I could dialWLIO a muuthstlrk and urged me to seek at~lrphunr sales , IC;!~~X)SIIIUII. IIUW~YC~.8" the lastfew yc.ars I h?\c wurkt,d in lan$uage arlsand remed~al readlne ulth vounzerpeople at the eleme&ry &d s&ondan,icve~p. I work out 01 my parents !tome.and my

shldents, and I love the feeling of self lalncs to Houston's TIXX, where I wentworth that teaching gives me. It is a Itark inlo the iron lurid .\dusting to theprofession that keeps me in constant lank llron lunv I was nut trul ~l~111~1111 101touch with other wo~le. easing the me &long asrbelieved my stay in it toU)III?~L~~S ovcruhelk~n~ lso~dion inher- I,* tempa;ary. but whvn dc~~l thewr the weate~1 hnpplnes.~n\%h,llN 01 mv cont.~~~~~c,e tc, ow it forIn the midst 01 all 01 th s ~rowth and sleeping.? balk&, crying, &d swearingsurces5, ho*rvrr.

men,, ~nurln lea that I would have accesslu it A9 ill, sldc, thvrr arc a lew technzauvblh~tlmve orov~tl h?l1,ft11 !#, mrinlecurlng and ;sing ~ood &lltive~PVI~C.S .16 iloneqt ~ WO~P~L~S- elf my OWpnysoc.;~l al,,ltcies and nr, Js, a crrrannIIIY~~II~IVCII~M llle ah.lltv to a~olv evervdayitems to those neebs: and Ldnstaniassimilation of infomatian on new productsfar not only the disabled, but for thegeneral consumer as well.As for services for the disabled. todav Ihave bee morning attendant care sevendays a week, a benefit undreamed of inthe early years when my mather had soleresponsibility for my personal care, anobligation that she undertook alone fortwenty years with very little respite. Withthe help of the eflicien1,dependablewomen who get me up in the morningand of aides from a ~rivatelv mid nursingagency who put meio bed &'night, I amai,lr1;) ker,p a req8litr ltvinx and work.nqsrla~lule. Fur~h~n~>t,rr. I enjoy the u-e ola local wheelchar rrvnswrt wslem thatWes me to medical ap~inhr;ents, shopp~ng,orvisiting. !hank tnthls service Iam able 10 get DUI 01 the nowe: at lraslonce n wren I meel a (,.end lor lunch.take in a movie, or just lwk around fhemall. Attendant care and transportationare primary keys to the independence Inow have.Finally, no account of my journey fromthat helplw, hopeless beginning of lifewith a severe disability to my cunentslate nl stid,ilily dnd productmty wouldh? ron>olrtv wt!lant~l a dsrucslon of mvultimat; suppart system, my family. l .slmpl" wo"ld nut bc herc &rv ,I i;ol brthe i~letlmr ol love and drvot18,n ##vet>me hv mv oarents.'l'hpv haw ~rovatimland day-to-day care to those even morebasic needs - a sense of security and afeeling of self-worth. My mother twk eareof me unaided for twenty years, butrather than leaving me totally dependenton her, she taught me the importance ofgwd physical eare and led me to expectthat kind of care, necessary requirementsin taking responsibility for my own eareand far training personal attendam.Because of my parents' loving, unqualifiedaeceDtance of me and mv disabilitv. Ihave a fi& foundation of sel~acceptar;&that allows me to be open, out-reaching.cooperative, and, when necessary, even alittle assertive - all valuable in successfullvdealing with other ~eo~le.&r me those words -- dcallnq withother I)POPIP"- s~~cinclly dcl~ne theIenu ' ~m

Floy SchoenfelderOffice manager. Accountant.Wife and mother.Polio. kntilator user."That is the secret ofsuccessful rehabilitation.They made me feelneeded.""Please. God," I prayed, "if it has tohappen to one ol us, let it be me becauseI can take it better mysell than to see myhusband or our little boy crippled andoaralvred."' ~ hhad been married anlv five vean,and I)~u~,is was 1101 yet thr& yes& oldn,I,,, w&s rl,~,~e",jc a,lc~ ~~,,,,,~~.,,gpruplt in the U,l~lnl S~nlr?. nnrl ul. uvprthe w~rld Llkc other rnulhrrs. I hadharr.rd about mv child. At thal Inme wewere I vine in a trailer parked on Bud3parents prclprly on the oulskirl-. 01K.w~d . l'ilv. .. 211.1111 Unkorn Hoth nl ins wvreworking to save enough money to goback to Los Angeles.God must have heard me becausewithin two days I had a classic case ofbulbar-soinal wliamvelitis. I was totallvparalyre'd andflat oimy back in a hug&whc&~nq ,run lung in the husp.tal corr..dor. lhry could not get my Emerwn tanklllrouen the dm, a1 anv roon,."If ;he lives, she wiljbe iust a vege-Irl,lr I h*innl rhe dcrl#,r soy lu rnyI~~~

happened to us, not just to Floy, and sheis not going to get away so easily!" Hehad brought his parents to West LosAngeies so his mother could care forDennis while he worked. Our son wasalready m the second grade. "We needyou to help raise Dennis." Bud said. Thatis the secret a1 my successful rehabiiitation.They made me feel needed Myhusband has done the greater share ofmy personal care ever since. We have hadmany ho~~s~ke~pers and caretakers, butthrauqh med~ca. l>roltlem.; lauglller andlean. Bud hm alwavr been liner* for me.~ypositian in m; family seems quitesecure now and I doubt if they couldmanage without me! Who would make ailthe purchase orden and invoices for ouraircraft repair company? Who would typeail the checks lor the bills and employees?Haw would my helper. Doris, planshopping lists and meals without myinput and who else could answer thehones day and night and keep up withme accountmg ano currcsp,,~dettce'Anbone who lakcc over my dcl~vlllrcerldt~tlvwall haw a *trucsle ""i remgmber our first post.poliovacation.It was summer of 1958. Bud wantedto take Dennis (who was horn in LosAngeles) back to South Dakota again andintroduce him to the pleasures of huntingand fishing. We had a big white stationwagon and a small dog. With my hreathingequipment and wheelchair, could we110vavel? He saw no oroblems..My brother, alwivr exlrcmdy protrc-IIVV of me, was shocked Surcly, younrrn'l golny along1 VI~LI can't SII III lhr carall thoit. l>uurr" 4, what rlsr ir new?''I scolfed, and what would I be doing athome"" I really .n< a litlle apprrhcnr~vebut llud pro!,.ded the hrsvadoFloy taking a day-Hme msl with oralpositive pre-ure.We had a marvelous trip and I sawYellowstone lor the first time. In RapidCity it was gratifying to show that firstdoctor that even a "vegetable" can havehn. He showed absolute amazement atmy progrw.My husband flies small planes. andwanted to share this ioy with me. HeIeanst.ri to leap up u" rhc w~ng with me inIIIY arm5 arid rirup wc II~II) the navgatorbsral Wt! c.a> lc!avs rtw ni< where our wn.rixrr>ed tho1 hlb lhv!!#g nl~d carlllg familywns veal lu cum,. IIUI~>V IU \V* Iliadpurchased a home tn Nurlhr1dy6. arunurb al Los AnqelrsWhen Uennls hunled lor a job, I helpedwilh resLme wrltin~ He look pilot traln.ing wlule *~ol>l.wr

industries. Later he and his dad rebuilta WWll lighter plane for fun and profit.I was idways avai.ilblv for ubseitng.mak~ng IISLF, crit~r~,lt~q, and l,ancl.n W,,t,emergency needs. Hr .du,

~~~ ~ ~ ~ ~Diane Rice SmithPoet. Drives car with footcontrolledsteering.hlio.'Zooking back on where Iwas in life 30 years ago, itseems it was a giant leap toget where I am today Butthat's not true. Getting hereh.om there took a milliontiny steps. "It is drli~nitely "in" to be an old polio III1988. Ware lholf Kesewch is bcln)! donrall "vpr the w~rld (III how we've CODC~.what our motivations lor rehab wek.what we've learned. The mail and phonekeep us busy with interviews. We'recelebrities .. . well, almost.Futting thoughts together has beengood for me. It has brought a widerperspective to my rehabilitation and towhat I have learned in the past thirty plusyears 01 disabilityPolio at age ten changed my lifecompletely. Physically I would never bethe same, nor would my view of theworld. But that's not all bad. With disabilitvcame a forced Dassaee into zeasmany normal people take years longer toreach. For instance, patience has to bedeveloped early on, or lruslration is intolerable.Waiting to be led. bathed, dressed.brushed, comkd, turned, lilted, driven,srr;itrllecl ;at llrsl seems endleis. 11111~~auc.n'.v CU"W\ wmehow, hnd wattng foranyrtl~nl( kconlei 18,sl a part ol lllcdoubt. mv cr>l>;ng ;,hilily wa~cnhanred by my ntlrrll rrlt;rhil.lation. Islrtll live months at \Van" S~,r~r~ps, (ieorciaTI!? W~rm Snrinni . ". ohllur~~l,llv ofgisabilihr was "not to concent% anwhat have Itlrl hut on what you haveleft. Yo matler how 1,hy?.rally lmlted youmay he, th~r

~~ ~~ ~~~ ~~~~~-~friends, I adjusted ti another way ofliving. Though I continued to have a liveinhelper. I was on my own in new ways Ihadn't known before. I was making alldecisions, planning my life, and copingwith loss. I took part-time jobs- phoneoriented - read, studied, and began tode~relop further my interest in wlitics.In 1979. then Conmessman Paul Simonoffered me astaff position on a SpecialEtltwiat!~n S~~Ir~,~;tntll~~~ I was 1;) be~I.V

~ ~ ~~ ~~~~~~~~~ -~~~~~~~~ ~IP I!! l~lr ''1) I>? pa11 01 the community,the ch~rch, Lie world. to rxprrss myIem~n~nlty and sm>a.th/, to relatr 11, menas a woman. to rrlille to everyone ir- awnul~ person 'Ilornlthree stories up in our hmkynnl flr lrrrWhen someone nskrd trw mum huw shecould let me do that sh/answered. '"1 justdon't lmk? This, of course, was after Dadl~adetermmed that I was reawnablysale Shc taught hersell lomy 'you cam"nut 'Vuu ran'1,'rhe laucitl me to sav"cando' not "1 can't. %sides giving methe freedom to be me, they lovingly, butRehabilitation into Independent Living

firmly, disciplined and expected my best.Anything else would have caused a fargreater handicap!That was the end of mv first rehabilitationperiod. Who were 6e imwrtantl,layrr6 Uy teachers, uho were wi.Itt~g lou

for him and my husband until Mickey wasraised.~The~~~~~~~~doctors had given me 10years; l ligured fifteen or"hventy. As forme. l'd do artsylcraltsy things, writeletters, read, watch n! do puzzles - a lotof hm things I'd never had time to doafter I grew up.Disaster, none of my clothes fit! Oh,well. l would not be going out anyway Igave away my dresses, accessories, andhigh heels as well as my sewing gear.Sewing and desisning dothes, mostly formyself, had brrt; a l~lelonq paw un'Thank Gud fur my nenm - she iust hungonlo the stull, and we181 lmkltlr for asewing machine. What she fo&d was aconcerned salesman and a Singer kathenueizht.1 wore it out over Ute next 25years! Of course. Mom returned mynotions and labrfcs. and we learned howto make clothins that works. i now havean Elna Stella.Getting out tmk more nerve. We wereaware that i would be heated like a freakbvina folks come to the house was OK.l'ncy chobr to see me Culnl#ll! Ihonle frnma tea one day, mom said shr'rl ac#vlanother woman upma a rcsDlrator whdedressed to the nine~.~~o, sa; I, if she cando it, so can I! Soon after a fellow churchmember offered to take me to theChrismas Tea at our church. Witha reassurance practlce beforehand, wejourneyed forth m ha station wagonnoproblems. Alter that. I made the mostimportant decision, other than decidingto live. of mv wst-wlio life. I decided Iwouldgo &her;, anytime, with anyonewho wanted to take me! What adventures1 have had! They have been limitedorimarilv bv time. monev. and reswnsibi~ities,K &e everyoneb; but noibecause I was nu1 klll~ctg tu tryAt horn

as Michigan. I've traveled bv ear. truck.boat, hok hailer, aerial trk, &in, rikrferry, Piper Cub, and jet airliner. I've satby fishing sh-eams and "hiked" mountaintrails - wild ones. We've camoed in thewilderness and hobnobbed with thewuallhy at mafor holrls (arr*w~l,~.tlyrunfercnccr,. Whul f.tu we have hadlhlr~ nq lo a ([uq' 200.0011, in thelate 'hlls has been nw.1 frrrlnq Our newchurch gave mc mv flrrl potir'r wheelchair\V!lh that.lhe abol~ry I,ds slrongnou ugh ihal his hr~alhmq wxr i#c,cafferled. Ol~r oareulc urrr iohl* la1 takshim home sodn after onset with inshuctionsfor physical therapy.The treatment then was rest. "hatpacks," and splints. The "instruments ofmedical tom" were hightening, butbravely I endured them because the hopewas held out to me that I would overcomella. d~srarc I rememher ht,wUltllnl,llal,l I lrlt a few week, i.iI?r whenI rotlld raw mmv head Iron, 1 11r.d~Shortly &er &t I was able to at uo in achair ior short periods of time. My amwere unaffected. Even though my legsand back were paralped. i could comfortm~self with the knowledee that I waslucky enough not to ha& to live in aniron lung, like some of the kiends 1 hadmade in the hospital. After a couple ofmonths I was transferred to a residentialchildren's rehabilitation facility calledRainbow Hospital. It was quite a distancefrom home, so it put more of astrain onmy parents.At the time. l had no idea how difficultthe ul>

ace, long leg braces, and two canes.One of the hospital experiences thatstand$ our ,n my memory wm IPam~nqhow ic, fall lhru get up by vnysell Iron1then#~>~ I have ellen oawn mi,tnv tunesover the years but never gotten siriouslyinjured. The practice must have formed aprotective pattern in my brain that basserved my body well. My medical teamwas terrific. If it was not for myorthopedic physician, Dr. Myron Pardee,the nurses and physical therapsts, 1would never have reached the level 01functioning I have been able to maintainfor so long. I had a "crush" on Dr. Pardee.He was so kind and reassuring. I waslucky la have a competent and caringdoctor throughout the eight years of myrehabilitation. Dr. Pardee retired a fewyews ago I hope lhat It* knows what ad~lkret~re he made III urw lhttla plirl's life.I)urt,lu the liill and wlntcr of 1:rYZ mvlife settl;d into a camlortable routine bfertlnq, rweptug. i~hysiral therapy, andsrl~wl held III the ln,sl,ital 1 waq able touu humc lor a lew da\s a! Christma- tlme.hat a homecommgihat was! I was averwhelmedwith presents. There was onepart~rulnr pre$ent I recelvcd from anunlulow~~ benel.alor that I st.ll treasureOne of tile ll1~1.l nur9e9 uced to read usRwgedv ~nn"and Andy stories. I loakedloGar(i to 11 rnrh lln,; she wb~on dutyW had o Chr~cttnas tree in~nounded w.thprrsmts in the ward TIIF prerml werecollected from a volunteer mou~ whowalntvd to make sure we carh gbt *,methmqlor Christmas. There was one boxthal stwd out. It was t11- hlggest ol all 01them 1 had my eye an 11. Mir- I surpr.sedwhen it was handed tu me lttst llefore Ilelt for home. Whcn I upend 11 on Clsislmasmornlnq it was a Kaqqeuy Anu dollHer lace IP now stained. her red haw I*f.aded iler or~ginrl rlothes are qulle wonl.1,111 altvr thirty-ilx years. \be sllll has herlheart pa~~lrd on hrr rlr.il thal says 'Ilove yuu " She was a comlort to me.Llv the svrlng 01 1953 the hc,iitnl haddo& its jib well, and I was ready to gohome. It was just before Easter. %r thefirst time since the day I got patio I wasscared. I was leaving the shelter of thehospital life and going back to the realworld. I could feel secure in that worldbecause it had changed very little.However. I had changed a lot. Though myfamily did everything they could to helpme adjust to my new physical limits butstill live a full life, 1 struggled for a longtime with astrong feeling of not beinggoad enough. I felt different anddamaged. Though my physical rehabllitation was impeccably goad. little attentionwas paid to my feelings. I lolow now, afteryears a1 psychotherapy, that I suppressedmy grief and anger. I remember beingcont~nually compl~mente~l aboul tnyhr~vr smile and rhecrlu. dtrposltlunO,>ly my d.nrie5 knew how depreaed andashamed I felt. I was different. I had heardthat some nelghburs wrre lrarft~l &l,outl~nv~~~g thew ci!tllay w~th m?.PP#>o,e xlarrd ;kt nne i eventuallv beaan lofar& myself to overcome my shyme&.While I was trying to learn to walkwithout my braces, my brother was leamins to stand upusing my wheelchairvedals for suvDort. His right mn was;ompletely paralyzed an; his muscleswvre IIIIII; ntrol~i~ied He d~d not knowanby d~llcre~tt. anri bv~~~l: n typical boy, hetwk a lor of risk Lvrn tltut~l~ we hadphystcal llm~ts. our plrenls &ntrd 8,s tohavea iaonal rh~ldhood We suam in lhvsumtnrr s~,ruvided for in the 1a.l 01 1953I rtllered tho ll>.rci ~rade in our parisharhms Some years later I lram?rl !Itatmv wrentr had lo do vrmc lancveG&incing of the sehwl principal to letnw ~n TllGy had not had a disahied chddIII cl~~;.ei l>ef

pushed tnyself too hard. BecsuPe I wa3the onnly d~sabled child in rrhml forman" V ~ R . mv . sell-con~riotlrtsssincrgked.By age 11 I had strengthened my lefilee enou~h to walk without aa brace. Mvonly a knee brace for miright leg. [hidnot need to wear my corset anymore. Myfamily was hoping1 could continue likethat lor the rest of mv life. Mv grandmother.a devout ~aiholic, GKpr~yinglor complete recovery. I tried to believe amiracle could happen, but that summer Iwas olavin~ . , - on a ark menv-eo-roundwllet~ sovnrunr C~IIII. aluny'and spun 11very 1%1 I wm not holdmq on tiqhlv~uuyh and cot thrown off. I l.nn

Again I wa* lhe only d~rabltd rhdcnt andlrll 111~ 1,reswre to keep up I \uffere#l alot from br~lls 01 branch!l~i. but I wuuldnit slow down. Besides schwl I wastaking sw~nmtnq lcrsvlls kwilar lewns.Hunyarjoc Irkons. voln~r>trvrinq far the~~~~Red Crou~ ~~~at tine Wteralts 1los1,ital. andparticipating in every school play andchoir performance. I did the same thingwhen I went a thousand miles off torolleee. NOW I would not attemot to walk&Zd do& stone stem withdut a railine.nimerous times a day.-The campus was -small and fairly accessible, but there wereno elevators or ramps. It was 1961. Atleast i did not have to battle snow stormsIn Florida.it was a big risk to go away so far tocollege, but my parents continuallyencouraeed mv Indeoendence. I wasgrowing7n competence and experience inbklrlg care 01 lnycell I rcce~v~rl minelhnanclal help lrt,!u \hrat~onal Rehabllllalionhut mv oarrnts i~ilod lor almo~tevefythine:li requirid quite a bit of sacri-Ice th;ir paris~ncc it was a ijrlvate(:~tlnc,ltc rollege. I qraduated wtll adr~nrr tun 9>.1.11 work and was listed wilhW-O'S Who m American Colleges andUniversities. I hew from the start that Iwanted to have a career in helpingpeople. My family and the church influencedme to choose something thatwould return the help I had been given.My vocational rehabilitational counselorIriwl to wrsuade me to follow in his loot.sle(,y. However, my wcial work ~,rofe%wr,Sr Elnine had the greater tnfluerlvr. lIli,vr itever regretted the derslunI wrnl cm lc, gntduale srhml in Tcwv~8th a mental hraltl> sl~wnd md in 1967starred my cnrrer ~orklr>g lor& menwlhealth cl~ntc III Dallas I II,IVP heen inIlallas rvrr slllce In tllr illvalltinle mybrother lwk a .!ttle lun#vr to It~d his"niche" in the worklny wurlysrll ;LS arl1sal8lrd iwrwn 1 am now 45 years ulrl Inthe lml l8ulr yeas l have experlenctdqreater lat~que, rnwe musrle wedners.p,tin in my arms. !ncrviu?d rurvalurc uflny splns. and labared brmlhinq. I qot~tlvcllved in the local plsl-p,lll, supportgru111) ilml ww encouragetl IO ~nak* wmenecrssaw IIIPsI\IP chmgc~. I fmtlvd IIImy slopdy old iteel bra&$ for maresupportive plastic ones. I can now weartennis shoes lor the first time in my life. 1baught an elecbic three-wheeled vehiclefor long distances and cut way back onmy sch~lule lo allow cmorr lion* lor re-it.'Ihe musl d~ff!c~~ll cllant~c I have hiid 10make 1s vetttnv ~lred 10 uo#w a rewiralurwho have helwd me make mddreakcome true. ~ irt of that early &couragementcame from a little magazine called.the Toomey j Gazette, published from alady's house in Chagrin Falls, Ohio. Eventhauqh I lived nearbx I did not get tomrciCln8 laur~e il~~i.1 lOh5 when Iatlmded the pultu cun1errla.r. (:ongram.lattons. C~n!.fur over thlrw vrarqolfaithluiservice. This mo&~ ;D little drlappreciates you more than she ;emever say.#SRehabilitation inn Independent Living

Ray YoudathNewspaper circulation manager.Husband, father, and grandparent.Polio. Ventilator user."Without her (my wife)there is no me. "lnq, mndil~c;at~~n, and ban1 wa~rk Thcywere lllr ruht camhinnl~c,ta lor mc ITrying to describe my life, motivation, improved Gough to use the bathrwm,and the sffrets to my "success" could get in and out of bed, dress and undress,lead me to paint a picture of great wIhout help and, best of all,drive. Iaccom~lishment.A beautiful, devoted d~dn't have the strength to pull my chairwife, &ree big, healthy children, their into the car.spwse* nnd I;~hulo~~s~~,~andch~ldrpn, a At this time I learned a couple ofmmlnrl;ll~ct lh#l!rn.,a pnd InIhs thq ?en1 LII?home. This was 14 months after onset ofwlio. Pmeno~i~: sit in a chair with overheadieedbrs. I wm tunable to use th~bathrmm dres-. or get in and oul ol lmimysell, and, nithlrally, not drive Utvr fuuryears. lurk ~x,pped ILS h-ad tul,A Iriencl rrnr a therapist tu evaluateme. Hc uns taught at tllr Vnllurnta KehabrPnl*r in Sanla Mollira Thrlr treatmentw.ls unorrhudox 'Thvv hlleved in hardexercise, even to "en, weak muscles. Iwent In CHt: lor 18honl1,s 01 rln!trh.llnporlant lesrnn it8 ile. I w& still *ell.cbnsclous ahol.1 glllllg utlt in public. Imet a girl will> rmnduated imm \'a~tnr Iwouldget in m); car, she wouid put mywheelchair in, wheei amund the car.jump in (strong am), and put herchair in. I'd start the car and awav we ,wouid go.One aftemwn, in the lobby of C.R.C., atail, sharp-lwking cadet she knew fmmAnnapolis, dressed in white, walked in tosee her. He professed his lave for her andvowed to jump off the Santa Monica pieril she would not marry him. She told himto jump!I was impressed. 1 learned a big lesson:a wheelchair is a handicap only if youlet it.Naturally. there are many real obstaclesin the life of a severely handicappedpecan. Although I tout my optimism, attihlde,and fast boat, the main ineredient inmy "success" story is a zal n&ed Marilyn- nny WIIC She made it easy hr meIn live wtth my handical, We wrnr many~,lacw anu dld manv tl>~nvr 'I'hls mavsound unusual, but i wouid be sumrrsedwhcn I wollld srr our releclion in;, rlurcwndow W8llt Mar~lyn. 1 never tlt~~~~gl~t~imvseli is Iht,lne I" a chaw 511~ alwavsmid= me feel chat she was iuckv toiaveme. Her attitude never changedShe notonly did ail the wifely things there are todo with three children and a house, butalso all the thines an able-bodied manwould do arm& the house and vard. Iwoc~ld have lo hr a Retnbranal ;.li,wurdc lo pnllll o word plclure showing allIhar mv wli* means 11, me. W'ill~ot#l 1a.rthere no me. There is one handicavIha gauc me problem-. tnc, lht1lc. edka-I~olt' I ww lucky to a 1~~1' ot theCl*vrlnnd Plaln Uealrr 0r~r vuu peryour wheei in Ihe door. vou have aihance to prove yourseif, but just gettingin is tough. I started as a phone person.Ten years later I became circulation officemanwer. Thins would have been mucheasieFwith a college degree, plus opportunitieswould have increased with other

departments. Salary is important, butmore so is medical insurance and buildingfor Social Security A college degreeby itself isn't enough today.About 10 years ago, burning the candleat both ends. a lung infection and an autoaccident twk its tzl. Since most of mymuscles were borderline. I started losingsome functions, the wont of which wasbreathing. l wound uo having to use arocking &d. Now, traveling &came aproblem. l began to realize how fortunateI was for 27 years of mechanical-freebreathing. Through trial and error. Ifound I could use an exsuffulation belt.laylnp. on my sde wltll ilr 0,eddertucked under my abdumrn. wltll mycorset o!,1 cim eel thruuuh lhr n81rhtI am a Cant& thinkecand sde maytake rxceptlon t~; my next rhouqhta.llc lnmd is maw ilnporlant that wetltltlk The marc we tlnnk we are houndto eet worse. the worse we will get. Nahlralh,you can'l bc rtupld aral IRGIIVubvoour thtnqs. ll I had l~slenrd lo theexperlc all the time i would nrvrr hawgotlen as la, as l have'l ne tunes I haveltslcned, rguinpt my beller udqment,have cost me d~arly I alw he!teve tightnerqInas a Ijtgger elfert imsc-lmllothan la rerwotxd Ala,, tllr ll~lr!litusystem is designed to slow down whiledve1,mg. I Ibive wl~en brealhlng orcontrul,t.d tnrcovn#cally at a nlqh rate all~ugi~r. lhr next day the body will demand. .., ,1- iRay and hi8 farnil?; (left to right) mother.in.law, wife hli~ilyn. David's wife. Dare'sdaughter, aon David, son John, John's wife, Debie's son, daughter Dehie. DebieShushand.the same amount of oxygen. The more itgets. the more it will demand. Today'stechnology should allow a monitor tojudge the body and slow the sped anddepth of breathing at night. So much formy soapbox.Although breathing is getting to bemore of a smggle, i have little tocomplain about. I am now sitting at mydesk, with my goad friend "Tiger" (aManchester terrier) curled up asleep inmy lap. I lwk outside at our pond andwatch the rain dance an the surface. Ithink to myself, is this the day a scientistwill lind the thing that will get deadnerves to work again? I'll be sure towatch the evening news to check. As Isaid, I'm not short on optimism.4:122 Rehabilitation into lndepndent Living

REHABILITATIONGAZETTE1962-1987br ai .cmg ar st~pplics la?, bard squcrare aval alnlv at lhr loilnui~~r: prl

DepressionCoping.bI. 19,1976Dialysis.bI. 16. 1973Diets: SCI & MSSoecial FeaNl.e.%l. 22.1979~isibled People's International.bl. 23,1980:b1.28.No.1.1987Disabled &termsSpecial Feahlre,bi.16,1973DrivingEllsworth Envoy. b1.26.1985Fwt Controls,bl. 22.1979;b1.27.Na. 1,1986Pushbulton,b1.22,1979Quad Drivers,&]. 8.1965Quad, Equipment, b1. 11,1968Education. b1. 8.1965Correspandence Courses.bI. 5.1962Higher Education of Quads.bl. 5. 1962Quads at Coileg&brk,bl. 10.1967Telephone. by. %I. 5. 1962bcational Rehabilitation and.Photo@aphy. Quad,bl. 18.1975Rrtable Iron Lung.bl. 21,1978:%I. 27,No. 1.1986brtable Roclting Bed Plans.bl. 251987hihbitton Driving,bl. 22.1979Ramps.bl.8. 1965;bl. 12,1969hi. 15.1972Reading Aids, %I. 5,1962Remote Controlled Typewriter. bl. 9,1966Remote ConUols,%l. 11,1968:bi. 19.1976:bi. 17,1974;bl.16.1973;bl. 10,1967:bl. 15,1972Respiration.Vol.21.1978ROHO Cusbion,Vol. 19,1976Self-operating Electric Hoist.b1.20.1977Shoes.bl. 23. 1980Step-Vans.b1.19.1976:~1.18.1975SuspenrionArmr,bI. 21.1978Tailgates. Hydraulic, bl. 13.1970Talking Eyes.Vol. 15.1972Typing Aids.bi. 12.1969Urinary bl. 28. No. 1.1987Van Converrion.bl.28. Na. 1.1987Vans & Lifts.bI. 16. 1973;bl. 17. 1974VA-TestedVan Lifts.bi. 24.1981Mntilators.bl. 25, 1982Wheelchair Accessories. bl. 12.1969Wheelchair Lifts.bl. 20,1977Wheelchair Loader.bl. 19.1976Wheelchair Pilots. %I. 15.1972Wheelchairs.%!. 8.1965;bl. 9,1966;b1.11.1968Rehabilitation into Independent Living

Wheelchairs & ACE-ties.b1. 15.1972Wheelchain. New.bl. 17.197%b1. 16. 1973Wheelchair. Chin-Controlled.Vol. 10. 1967Wheelchair. Curb-Climbing.b1. 10. 1967Wheelchair. Leg-Operated,b1.28. No. 2,1987Uhrd Board. b1. 18,1975FamiliesQuads and Their Familles,\bl. 6,1963Fishing. One-Armed.bl. 13,1970Friends Around lhe World, Regularfeature in all volumesFrog Brealhing.bI. 10.1967:Vol. 25,1982Quads Vol. 19.1976HHam Radia.bl. 15,1972Hearing-Impaired Adults0ral.bl. 22, 1979Higher Education of QuadsSpecial Feature.b1.5,1962Hobbies,bl. 9. 1966;bl. 17.1974Home Care,%!. 28. No. 2.1987Homebased Businesses. b1.11. 1968Homemaking, Quad.bl. 11. 1968Hausing.b1.8,1965: bl. 9. 1966Independent Living. b1.19.1976Housing &Home Services,bl. 15,1972IIndependent Living, Vol. 22,1979Attitudes & LifesMes. Vol. 24. 1981Centers, bl. 24.1$81Europe, Vol. 23.1980Hausine.bl. 19. 1976institutionaliziaonSoecial Feature.bl.26.1985Special Feature. %I. 25. 1982Iron LungPortable.Vol.21, 1978IRS ReglationsAttendents.Vol.18. 1975KidneyDialyais,bl. 16,1973LegislationRehabilitation Act of 1973,bl. 17.... 1974 .Rights,bl. 21, 1978"504 Demonstrations" of 1977. bl. 28,No. 1.19R7Long Tenn Care.Vo1. 28, No. 2,1987MManiage.bl.28, No. 2.1987Marriage & Adoption, b1.6. 1963MexicoTravel & Living. bl. 12, 1969Moulh Intermittent Positive Pressure, %I.24.1981Moulhstick Typing. b1. 13, 1970MultipleSclerosis.bl. 18. 1975MuscularDystrophy,bl. 27.No. 1.1986:b1.28. No. 2,1987Myasthenia Gravis.bI. 25.198230th Anniversary Edition .Rehabilitation Gazette.bl. 29. Nos. 1 and 2 125

NNavajo NationRehabilitation in,Vol. 20,1977NutritionPolio Survivors.bl.28. No. 1.1987Nutrition:SCI & MSSpecial Feature, bl. 22.1979ParentingAdoption,bi.24,1981;Vol.23,1980Adoption &Marriage. Vo1. 6.1963SCI Mother. Vo1.26.1985SCI Pregnancy & Delivery.bI. 26.i985:bI 27. No. 2.1986PhotographyQuad.Voi. 12. 1969PolioAging Prablems.Voi. 23.1980Polio Support GroupsGuidelines. bi. 26.1985Polio Survivors. Voi. 26,1985: MI. 28.No. 2.1987Nutrition. Vo1. 28. No. 1, 1987Polio Survivors 25 Years LaterCanada & U.S., Voi. 25,1982Polio & Independent Living Conf., I,h1.23. 1980;Voi.24. 198L;II.bi.25.1982: Nbi. 28, No. 1,1987hsitive Pressure&ntilationQQuad ktists & PianistsSpecial kaNre,bl. 15,1972Quad Homemakin8,Voi. 11.1968~uids in their CommunitiesSpecial Feature.Vol.12.1969RReading Aids. %I. 5.1962RecreationArtists & Pian1sts.bl. 15.1972CameraMount.bI.28.No. 1.1987Camping.Vo1. 6,1963Ches by Maii.Voi. 13,1970Citizens Band Radio.bI. 10.1967Gardening.Wheelchair,Vol. 28.Nn 7 19x7Ham Radio. Vol. 15.1972Hobbies. Vo1. 9,1966: b1.17. 1974One-Armed Fishing, (bl. 13,1970Paintine. Mouth & Faot Artists.\hl.c1066Photography. Quad.%!. 12,1969:bl. 18,1975Tennis & Skiing, b1.19.1976Rehabilitationin the NavajoNation,bl. 20,1977Music. through,bl. 11,1968Wwdrow Wilson Center, b1.15, 1972Rehabilitation Act of i973.bl. 17,1974Religion, hi. 21, 1978Yoga, Zen & Sulism. bl. 16.1973Religion & Disabilihi. %I. 26. 1985Religion & Rehab'ilitation.Vol. 23,1980Respiratory Rehabilitation, Voi. 23, 1980Rehabilitation into Independent Living

- ~~"504 Demonstrations'' of 1977.b1.28, No. 1,1987Legislation.bl.21. 1978Rehabilitation Act of 1973.%I. 17, 1974bcational Rehabilitation, Vo1.20, 1977SSelf-Aspirator. b1. 5. 1962Sexand the Disabled,VoI. 10.1967Sex& Disability.bi. 16.1973Sign System IndianAmerind.bl.21, 1978Saeiai SecurityDisabiliw Benefits.bl. 27. No. 1,1986SSi. \hi. 18.1975Spinal Cord injury,bl. 28, No. 2.1987Centers. bl. 21.1978English Research on SCI Aging.Vol. 28. No. 2. 1987%is & Skiing. bl. 19.1976SyrlngomyeliaSpecial Feature. b1.28. No. 1,1987Ten hari in thc iiarette ll

RespiratoryRehabilitation.Vbl.23.1980Tracheostomy Speaking Valve,&I. 27. No. 1, 1986 Wheelchair & Ventilator Travel in Mexicoliavel Special kature.&l. 17,1974kntilator User. USA. Vo1. 28,Women with DisabilitiesNo. 2,1987 Employment Experiences. Vbl. 20,1977Ventilator Users. Wmings for.Intermittent Self-Catheterization. VoI.Vol.27.No. 1.1986 27. No. 2, 1986Ventilator and Wheelchair. Special kahlre, Vol. 27.b. 2.1986Vol 17.1974Wwdrow Wilson Rehabilitation Center.Ventilator. Europe, Vol. 23.1980: %I. 15.1972Vo128No. 1.1987Underventilation: A Warning,Vol. 28, No.2.1987X-Y-zVeteransDisabled.Vbl. 16,1973 Yoga. Zen & Sulism. Val. 16.1973Vocational RehabilitationRights.Vol.20.1977kational Rehabilitation & EducationSpecial kahlre,\bl. 9, 1966Vocations lor Quads.\bl. 19,1976Vocations & Avocations for QuadsSpecial Feature.Vo1. 19. 1976WRehabilitation into Independent Living

haependent l i specialists,tehabilitationmi,k=watorgr therapits,ikntllatoT users, anddividuids with the late effects of polioand other Wities.Tbisuniqueodiectlmdlifeapedwesd40~cowm35yearsdrehabititalioniotDbdependeot~--atotaldl~yeanrd~Theh. g d & i wiU Mp others to follow in their lootsteps and to live life iulty and pr0ductne))rI