Islamic Medicine History and Current Practice - International Society ...

Islamic Medicine History and Current Practice - International Society ... Islamic Medicine History and Current Practice - International Society ...

11.07.2015 Views

Truth-Telling Information and Communication withCancer Patients in TurkeyNuket ORNEK BUKEN, MD, PhD.** Department of Deontology and Medical Ethics, Hacettepe University, Faculty of Medicine, Ankara, Turkey.e-mail: nuketbuken@hotmail.comSummaryWithin the scope of medical ethics, the subject of “telling the patient the truth” has undergone some important changes in ourcountry in the last years. It cannot be denied that the information brought to light in the field of medical ethics has participated in thechange that has been experienced in health care services in general and in physician attitudes towards cancer in particular. This changeis in the form of patients taking an active role in the diagnosis and treatment for their illnesses and changing from physician-centeredto patient-centered physician-patient relationships. In medical conditions such as cancer, illnesses in their terminal phases, and fatalillnesses, physicians experience a dilemma of whether or not to tell the truth. The inclination among physicians for telling the patientthe medical truth can be characteristic of the country’s health care policies and traditional physician attitudes, in the same way thatdifferences can be seen in every country’s own ethical, social and cultural structure. In addition to this the method of informingpatients about their cancer diagnosis will also change with the patient’s characteristics and the coping strategies that they use. Thecase study that will be presented in this article will discuss telling the cancer patient the truth with related ethical, social, and culturalelements, and some conclusions will be reached by evaluating the ethical-legal process and practical situations.Key Words; Medical Ethics, Truth Telling, Physician-Patient Relationships, Physician Attitudes Towards Cancer, Ethical-LegalProcess.IntroductionTelling the patient the truth ensures that the correctinformation is given and the correct choice forthe patient is made. Explaining the truth to the patientis more of a very complicated process than simplygiving information. In this process the physician’sattitude is important; a physician who has developedcommunication skills and knows approaches forinforming can give desired messages that give theamount of information that the patient wants andwhen the patient is ready. The subject of truth tellingmay vary from country to country and culture to culture.The reason is reflected in different ethnic roots,religious beliefs, cultural differences and legal regulations(1, 2, 3)Case StudyA 52-year-old male patient came to the emergencyservices with a complaint of involuntary movementsthat had begun with his left foot and spread to his leg.A presumed diagnosis of epilepsy was made in theneurologic evaluation and he was admitted to thehospital for further tests. The patient’s EEG resultswere consistent with temporal lobe epilepsy and atotal brain MRI revealed an edematous mass localizedin the right temporo-parietal area. After consultationwith the neurosurgical staff a decision wasmade that the mass was operable. After necessarypreparations the patient underwent surgery, the masswas removed and sent for pathologic evaluation. Theresult was a adenocarcinoma metastasis with the lungas the probable primary site (4).The patient was a young, lively architect. His onebad habit was to smoke nearly a pack of cigarettes aday and to drink a small amount of alcohol socially.He had played basketball until he was 30 years oldand regularly played tennis. His wife who loved himvery much hid the diagnosis of cancer from him. Theguidance of the neurosurgeon, who explained that ametastatic cancer’s prognosis is very bad, had animportant part in this decision. The patient was told byhis wife and physician that he had a blood clot thathad been treated with surgery. Because no pathologywas seen on chest films and at the patient’s family’sJISHIM 2003, 231

Nuket ORNEK BUKENinsistence no further investigation was felt necessaryand the patient was discharged. After surgery thepatient’s speedy recovery improved his morale. Therewas no hypertension, diabetes or secondary illnessthat could have caused the blood clot. The event wasforgotten by everyone and no one was unhappy (4).Seven months passed. Symptoms of coughing andbloody sputum appeared in the patient. A pulmonarymedicine specialist was seen. This time a mass wasseen on the chest films that were taken. A biopsyobtained from the mass with bronchoscopy revealedthe adenocarcinoma of his brain metastasis’s primarysite and the patient was sent to an oncologist. Beforethe patient was seen by the oncologist he was warnedby the patient’s wife and the neurosurgeon not to tellthe patient that the mass removed from his surgerywas cancer. Whatever needed to be done to keep thisinformation from the patient was to be done. Theoncologist scathingly explained to the patient’s wifeall of the wrongs that were done in the dramatic sideof this scene of excessive pressure. He told her thatthe patient still had a chance at recovery becausethere was no recurrence in the brain and there wereno other metastases found outside the lungs. Ofcourse he added that if the mass had been found inthe lungs 7 months previously and treatment hadbeen begun his treatment chance would have beenhigher than it was then (4).The patient’s wife did not like the warnings or recommendationfrom the oncologist. She was only concernedabout how she was going to explain to herhusband what she had kept hidden seven months previously.She tried to place all the responsibility on theneurosurgeon who did the surgery. However the surgeonhad a relationship with the oncologist and toldhim the patient’s wife had insisted that he keep thediagnosis secret. As a result the sides could not cometo an agreement. The patient, who had an operablelung tumor with no other distant metastasis and norecurrence of brain tumor seen on the last MRI, wasnever seen by the oncologist and disappeared. Thereason is probably because the patient’s wife foundanother oncologist who was willing to keep the secretand condition from the patient. In fact in this entireevent the patient has been out of sight. What is seenis his wife who has the authority to make decisionson his behalf, the physician and the patient’s records.TRUTH-TELLING INFORMATION AND COMMUNICATIONWITH CANCER PATIENTS IN TURKEYEvaluation of the CaseIt is necessary to emphasize four important pointsin this case. The first of these is that the patient wasnot told the truth and the probable results of this. Inour case study, without determining how the patientwould confront and react to a diagnosis of cancer bya professional, the truth was hidden from the patientby an amateur making a completely emotional decision.Here keeping the diagnosis secret from thepatient was a situation that would hold someoneresponsible for the results and which needs to begiven legal sanctions. This attitude that is said to beonly for the benefit of the patient can never be consideredright. The process that kept the patient whohad possible treatment from receiving that treatmentmust absolutely be given legal sanctions.In the physician-patient relationships in our countrythe one who is primarily responsible for makingdecisions about the patient’s treatment is not thepatient but the patient’s next of kin. In particularwhen the diagnosis is cancer this situation is veryclear. The family members who see that they have theauthority to make decisions in the patient’s place givetheir motives as the patient’s morale, that is wouldnegatively effect them psychologically, or that theircondition would worsen if they were told their prognosis.Essentially the physician’s negative attitudesalso play a role in this understanding becoming takinghold. Sometimes the diagnosis is known byeveryone except the patient but the patient is not ableto receive this information without requesting it.An important second point is the condoning ofthis situation by the neurosurgeon from the beginningwhere his decision to operate was made not by thesufficient and autonomous patient but without hisknowledge by someone else. The patient’s right torespect for his autonomy was abused and the physician’sresponsibility to get informed consent was notpracticed. On the other hand the patient had the rightto know the whole truth about himself. Interventionsduring medical care and decisions that are appropriateto ethical concepts and values require that thephysician has great care and sensitivity. In fact theoriginal problem, beyond what type of method andthe kind of approach the physician should implementwhen faced with ethical problems, the medical pro-32 JISHIM 2003, 2

Nuket ORNEK BUKENinsistence no further investigation was felt necessary<strong>and</strong> the patient was discharged. After surgery thepatient’s speedy recovery improved his morale. Therewas no hypertension, diabetes or secondary illnessthat could have caused the blood clot. The event wasforgotten by everyone <strong>and</strong> no one was unhappy (4).Seven months passed. Symptoms of coughing <strong>and</strong>bloody sputum appeared in the patient. A pulmonarymedicine specialist was seen. This time a mass wasseen on the chest films that were taken. A biopsyobtained from the mass with bronchoscopy revealedthe adenocarcinoma of his brain metastasis’s primarysite <strong>and</strong> the patient was sent to an oncologist. Beforethe patient was seen by the oncologist he was warnedby the patient’s wife <strong>and</strong> the neurosurgeon not to tellthe patient that the mass removed from his surgerywas cancer. Whatever needed to be done to keep thisinformation from the patient was to be done. Theoncologist scathingly explained to the patient’s wifeall of the wrongs that were done in the dramatic sideof this scene of excessive pressure. He told her thatthe patient still had a chance at recovery becausethere was no recurrence in the brain <strong>and</strong> there wereno other metastases found outside the lungs. Ofcourse he added that if the mass had been found inthe lungs 7 months previously <strong>and</strong> treatment hadbeen begun his treatment chance would have beenhigher than it was then (4).The patient’s wife did not like the warnings or recommendationfrom the oncologist. She was only concernedabout how she was going to explain to herhusb<strong>and</strong> what she had kept hidden seven months previously.She tried to place all the responsibility on theneurosurgeon who did the surgery. However the surgeonhad a relationship with the oncologist <strong>and</strong> toldhim the patient’s wife had insisted that he keep thediagnosis secret. As a result the sides could not cometo an agreement. The patient, who had an operablelung tumor with no other distant metastasis <strong>and</strong> norecurrence of brain tumor seen on the last MRI, wasnever seen by the oncologist <strong>and</strong> disappeared. Thereason is probably because the patient’s wife foundanother oncologist who was willing to keep the secret<strong>and</strong> condition from the patient. In fact in this entireevent the patient has been out of sight. What is seenis his wife who has the authority to make decisionson his behalf, the physician <strong>and</strong> the patient’s records.TRUTH-TELLING INFORMATION AND COMMUNICATIONWITH CANCER PATIENTS IN TURKEYEvaluation of the CaseIt is necessary to emphasize four important pointsin this case. The first of these is that the patient wasnot told the truth <strong>and</strong> the probable results of this. Inour case study, without determining how the patientwould confront <strong>and</strong> react to a diagnosis of cancer bya professional, the truth was hidden from the patientby an amateur making a completely emotional decision.Here keeping the diagnosis secret from thepatient was a situation that would hold someoneresponsible for the results <strong>and</strong> which needs to begiven legal sanctions. This attitude that is said to beonly for the benefit of the patient can never be consideredright. The process that kept the patient whohad possible treatment from receiving that treatmentmust absolutely be given legal sanctions.In the physician-patient relationships in our countrythe one who is primarily responsible for makingdecisions about the patient’s treatment is not thepatient but the patient’s next of kin. In particularwhen the diagnosis is cancer this situation is veryclear. The family members who see that they have theauthority to make decisions in the patient’s place givetheir motives as the patient’s morale, that is wouldnegatively effect them psychologically, or that theircondition would worsen if they were told their prognosis.Essentially the physician’s negative attitudesalso play a role in this underst<strong>and</strong>ing becoming takinghold. Sometimes the diagnosis is known byeveryone except the patient but the patient is not ableto receive this information without requesting it.An important second point is the condoning ofthis situation by the neurosurgeon from the beginningwhere his decision to operate was made not by thesufficient <strong>and</strong> autonomous patient but without hisknowledge by someone else. The patient’s right torespect for his autonomy was abused <strong>and</strong> the physician’sresponsibility to get informed consent was notpracticed. On the other h<strong>and</strong> the patient had the rightto know the whole truth about himself. Interventionsduring medical care <strong>and</strong> decisions that are appropriateto ethical concepts <strong>and</strong> values require that thephysician has great care <strong>and</strong> sensitivity. In fact theoriginal problem, beyond what type of method <strong>and</strong>the kind of approach the physician should implementwhen faced with ethical problems, the medical pro-32 JISHIM 2003, 2

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