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Inside‘Miracle Boy’survivesorthopedicdecapitationthe magazine of <strong>Cook</strong> Children’s | Fall/Winter 2009 | www.cookchildrens.org/givingcapital fundraising effort islaunched in support of themedical center expansionwww.cookchildrens.org | Fall/Winter 2009 1


our promiseKnowing that every child’s life is sacred, it is thepromise of <strong>Cook</strong> Children’s to improve the health ofevery child in our region through the prevention andtreatment of illness, dise<strong>as</strong>e and injury.Our ValuesSafety, Caring, Integrity, Collaboration,Innovation, GivingEvery Child: 2020Every Child: 2020 is the “map” we follow to improvethe health of every child in our region.Map Points:• Enhance the child and family-centeredenvironment of care.• Expand access to health services.• Provide the highest quality of care and safetybuilt upon evidence from clinical and healthservices research.• Foster the continued growth and developmentof great physicians, great leaders and great staff.• Capitalize upon our unique health care delivery system to better integrateprocesses, services and companies.• Enhance community-wide collaborations, coordinate health resources andinformation, to meet the region’s growing children’s health needs.COOK CHILDREN’SHEALTH FOUNDATIONboard of trusteesGary G. Walsh, ChairmanJames R. Dunaway Jr., Vice ChairmanRichard F. Garvey, Secretary/Tre<strong>as</strong>urerKeely AppletonRobin W. ArenaG. Thom<strong>as</strong> BoswellJohn P. BoswellLinda Morris ElseyDavid G. FischerRafael G. GarzaJoy Ann HavranNancy Kay HowardJeffrey B. KingM<strong>as</strong>on D. KingNick KypreosGeorge F. LebusG. Malcolm LoudenDan E. LowranceTracy P. McGeheeSkylar P. MerrifieldArdon E. MooreBrian NewbyMichael R. PavellJoseph C. PenshornJ. Russell ReidEdwin S. “Win” RyanVickie V. StevensNenetta C. TatumJames WebbUlla K. WilskaCOOK CHILDREN’SHEALTH CARE SYSTEMboard of trusteesGary G. Walsh, ChairmanHoward M. Kelfer, M.D.,Vice ChairmanR. Jeffrey Alexander,Secretary/Tre<strong>as</strong>urerKimberly D. Aaron, M.D.G. Thom<strong>as</strong> BoswellJohn P. BoswellMichael J. Deitchman, M.D.James R. Dunaway Jr.Richard F. GarveyRafael G. GarzaJames F. Herd Sr., M.D.Nancy Kay HowardJeffrey B. KingW. David LacyG. Malcolm LoudenJames P. Miller, M.D.Joseph C. PenshornJ<strong>as</strong>on V. Terk, M.D.Paul S. Thornton, M.D.M. Suzanne Whitworth, M.D.Kevin D. Wylie, M.D.COOK CHILDREN’SPHYSICIAN NETWORKboard of directorsHoward M. Kelfer, M.D., ChairmanKimberly D. Aaron, M.D.,Vice Chair/Specialty CareMichael Deitchman, M.D.,Vice Chair/Primary CareKevin D. Wylie, D.O., SecretaryClive G. Daniels, M.D., Tre<strong>as</strong>urerNancy N. Dambro, M.D.Maria del Pilar Levy, M.D.Frank McGehee, M.D.James P. Miller, M.D.Tom Rogers Jr., M.D.Deborah A. Schutte, M.D.Vanita D. Shori, M.D.James C. Wheeler, M.D.COOK CHILDREN’SMEDICAL CENTERboard of trusteesW. David Lacy, ChairmanPeter L. Philpott, Vice ChairmanR. Jeffrey Alexander,Secretary/Tre<strong>as</strong>urerCorliss BaldwinJames F. Herd Sr., M.D.Marsha HilcherChristopher M. HuckabeePatti A. McConnellRoger P. NoberG. Dougl<strong>as</strong> Tatum, M.D.Andrew S. WayneCOOK CHILDREN’SHEALTH PLANboard of trusteesJames F. Herd Sr., M.D., ChairmanDonald K. Murphey, M.D.Vice ChairmanJohn P. BoswellGeorge F. LeBusMaria del Pilar Levy, M.D.G. Malcolm LoudenMichael R. PavellKenneth M. Heym, M.D.Brian NewbyBryan Ryals, M.D.G. Dougl<strong>as</strong> Tatum, M.D.Todd Wolf, M.D.COOK CHILDREN’SHOME HEALTHboard of trusteesJoseph C. Penshorn, ChairmanAngel W. Hernandez-Mulero, M.D.,Vice ChairmanRobin W. ArenaMatthew Dzurik, M.D.Richard P. Howrey, M.D.Tracy P. McGeheePeter L. PhilpottVickie V. StevensCOOK CHILDREN’SNorthe<strong>as</strong>t Hospitalboard of trusteesNancy C. CycholStanley E. DavisRichard P. GoodeAndrew S. WayneCOOK CHILDREN’SPediatric Surgery Centerboard of trusteesNancy C. CycholStanley E. DavisRichard P. GoodeRick W. MerrillMEDICAL STAFF OFFICERSLarry E. E<strong>as</strong>terling, M.D.,PresidentGretchen Eames, M.D.,Vice President– QualityDonald K. Murphey, M.D.,Vice President– Credentialingsupport organizationsLisa Wilson, President–Friends ofCamp SanguinityJeanie Luskey,President–Jewel Charity, Inc.Beth Stevener,President–Woman’s Board


Fall/Winter 2009Children’s Promiseis a <strong>publication</strong> of:<strong>Cook</strong> Children’s801 Seventh AvenueFort Worth, TX 76104-2796682-885-4000www.cookchildrens.orgcontentsSystem President and CEORick W. MerrillSenior Vice President,<strong>Cook</strong> Children’sHealth FoundationRobert K. FeatherVice President DevelopmentGary Cole, Ed.D., CFREEditorKyndall Cunninghamfeaturefeature04 The McLean Family Story 10 ‘Miracle Boy’Special thanksto contributorsTammy BushJeff CalawayRhonda HoleAndrea PottsLeo Wesson<strong>Cook</strong> Children’s is a privatelyendowed, non-profit medicalcenter with a medical anddental staff serving children frominfancy to age 21.Fully accredited by The JointCommission. A member of theNational Association ofChildren’s Hospitals and RelatedInstitutions (NACHRI), Children’sHospital Association of Tex<strong>as</strong>,Child Health Corporation ofAmerica and the Children’sMiracle Network.© Copyright 2009 <strong>Cook</strong> Children’s.Contents may not be reproducedwithout permission.If you wish to be removedfrom the mailing list forChildren’s Promise, ple<strong>as</strong>e callthe <strong>Cook</strong> Children’s HealthFoundation at 682-885-4105.in <strong>this</strong> issue02 A Message toour Donors03 Home HealthUpdate08 Peter PanBirthday Clubdonor update24 <strong>Cook</strong> Children’s Health Foundation Launches Capital Campaign09 Children’sMiracleNetwork10 ‘Miracle Boy’13 Ben HoganFoundation16 Save a SmileChanges Name20 Donor Story:Giving From the Hart21 Grapevine Hematology andOncology Center Opening22 DonorDinner24 CapitalCampaignLaunchwww.cookchildrens.org | Fall/Winter 2009 1


f r o m t h e d e s k o f r i c k w . m e r r i l l , p r e s i d e n t a n d c e oa message to our donorsThe hot summer days are gone and the promise of fall is in the air. This is a great time to reflect on anotherpromise… the promise that <strong>Cook</strong> Children’s h<strong>as</strong> made to improve the health of every child in our region.There are several ways we are working to fulfill our promise. We recently completed the Community-wideChildren’s Health Assessment and Planning Survey (CCHAPS) – a comprehensive <strong>as</strong>sessment of the health ofchildren in our region. We are now studying the results and will conduct our first pediatric health summit inJanuary where we will share our findings and calls to action.We have also determined that the time h<strong>as</strong> come to open a fifth neighborhood clinic so that we can offer accessto medical care to low income children, right in their own neighborhood. This is an exciting endeavor becausewe will work closely with Microsoft to make <strong>this</strong> an “innovation” clinic. This unique clinic will not only includea space for traditional care, like well child visits and immunizations, it will also include space for more complexcare. The children needing <strong>this</strong> care often require longer visits and a larger space to accommodate wheelchairsor other medical equipment. A third space will include an area dedicated to group encounters, education ande-Care. This neighborhood clinic will also include modular walls so that the work flow can be changed to improveefficiency.Every day, I see examples of our promise in action through thehard work of the <strong>Cook</strong> Children’s employees and donors. Yourgenerosity allows us to better serve the children in our communityby offering them access to quality, innovative health care.Collaboration is very important to us here at <strong>Cook</strong> Children’s, andwe are thankful you are a part of the team!Sincerely,Rick W. MerrillPresident and CEO,<strong>Cook</strong> Children’s Health Care System<strong>Cook</strong> Children’s is committed toimproving the health of every childin our community and your supportprovides the means for that to happen.Rick Merrill presents the first young philanthropistaward to Alexa Sankary at the 2009 Donor Dinner.2 Children’s Promise | the magazine of <strong>Cook</strong> Children’s


system spotlightAn extreme <strong>Cook</strong> Children’sHome Health makeoverRoughly one year ago, at the corner of 8th Avenue andAllen Street in Fort Worth, an abandoned, dilapidated grocerystore became a cocoon of construction. What emerged in thespring of 2009 w<strong>as</strong> a state-of-the-art health care facility andwork environment filled with <strong>Cook</strong> Children’s Home Healthemployees.The floor and external walls are the only remnants of theformer structure, making <strong>this</strong> transformation the most extremeof makeovers and not just from a physical standpoint. “Thisnew facility doubled the amount of space we had at the oldlocation,” said <strong>Cook</strong> Children’s Home Health President MikeSimmons. “Ultimately, <strong>this</strong> change gives us the opportunity toserve more kids and offer more services, such <strong>as</strong> orthotics.”The orthotics and prosthetics program, which formallyopened April 1, 2009, fills a void within <strong>Cook</strong> Children’s byallowing staff to fit their patients with support devices thataid weakened joints and limbs. Custom fabrications andmodifications are completed on site, in our own fabricationlab, to incre<strong>as</strong>e quality and decre<strong>as</strong>e wait time. Additionally,these patients benefit from improvements in care. For instance,caregivers have access to complete medical files and a goodoverview of the patient’s condition before they even see achild. Coupled with simplified scheduling within the<strong>Cook</strong> Children’s system, the program will not only elevate thecomprehensiveness of care, it will also be more convenient forfamilies and patients.Another exciting element is the upgraded on-sitepharmacy that significantly improves medication servicesfor <strong>Cook</strong> Children’s Home Health patients. Triple the size ofthe old setup, the new pharmacy h<strong>as</strong> two separate mix rooms(one for chemotherapy and one for drugs such <strong>as</strong> antibioticsand total parenteral nutrition), which helps eliminate crosscontamination of medications.The new facility also bo<strong>as</strong>ts a generator three times the sizeof the previous location, improved security and badge accessto ensure the safety of patients and employees, an enlargedinfusion suite with an observation room for nurses and ecofriendlyenhancements that allow the building to use energymore efficiently. These ‘green’ changes include zoned airconditioning, motion sensors in rooms that shut off lights whennot occupied and roofing that reflects, instead of absorbs, heat.“We are very proud of <strong>this</strong> new building and in the end, it’sa more ple<strong>as</strong>ant and enjoyable environment for patients andemployees,” said Simmons.www.cookchildrens.org | Fall/Winter 2009 3


featureif you build it, they will comeEach year, the <strong>Cook</strong> Children’s Neonatal Intensive Care Unit (NICU) admits about 700babies who stay an average of 17 days. Staffed by committed care providers that includeneonatologists, neonatal nurse practitioners, nurses, Child Life specialists and support staff, ittakes many people to care for these fragile lives.<strong>Cook</strong> Children’s provides excellent neonatal care, but isfinding that there are more and more children in need of services.An expanding population in Tarrant and surrounding counties,an incre<strong>as</strong>e in successful fertility treatments leading to multiplebirths and better prenatal care leading to successful yet shortenedpregnancies, all attribute to <strong>this</strong> incre<strong>as</strong>ed need and <strong>Cook</strong> Children’swants to be ready.One StoryWhen Tina and Randy McLean decided they wanted to add achild to their family, they knew it might be difficult because of someunderlying health problems. Tina already had two daughters, butreally wanted to have another child. She consulted a fertility doctorand fortunately, within a few months, she w<strong>as</strong> pregnant. Tina’s doctor<strong>as</strong>sured her and her husband, Randy, that there w<strong>as</strong> a slight chanceshe could have twins. The physician said that in reality the chance ofthat happening w<strong>as</strong> miniscule, maybe 15 to 20 percent. At a followupappointment the excited parents, <strong>as</strong> well <strong>as</strong> the doctor, wereshocked when the first sonogram showed four hearts beating.The McLeans felt blessed, but knew they had some things towork out. Logistically, <strong>as</strong> well <strong>as</strong> physically, the challenge presentedby multiple births w<strong>as</strong> overwhelming. Now labeled a high-riskpregnancy, Tina made the trek from their home in Hico, Tex<strong>as</strong>, toher Fort Worth specialist, Bannie Tabor, M.D., every two weeks.At 22 weeks, she w<strong>as</strong> hospitalized and w<strong>as</strong>n’t allowed to returnhome. Even though they were trying to give the babies enough timeto develop, Tina and Randy knew their quads would arrive early. Afew hours before the children were born at 26 weeks, the McLeanslearned that the neonatal intensive care unit (NICU) at the hospitalwhere she w<strong>as</strong> delivering could only accommodate two of thebabies. Wanting to keep her babies together, Tina w<strong>as</strong> relieved when<strong>Cook</strong> Children’s agreed to care for all of them. When Heath (2 lbs.,7 oz.), Ricky (2 lbs., 6.8 oz.), Tyler (1 lbs., 15 oz.) and Leah (1 lbs., 12oz.) were born they were transported to <strong>Cook</strong> Children’s NICU.4 Children’s Promise | the magazine of <strong>Cook</strong> Children’s


“I always felt the staff respected myopinion. They listened and involved usin all <strong>as</strong>pects of care. “– Tina McLeanPremature babies often stay in the neonatal unit for months.Currently the NICU at <strong>Cook</strong> Children’s consists of 52 beds in threeunits. The A and B units are utilized for infants requiring acutecare. They later progress to what is called the Newborn ProgressiveCare Unit that focuses more on feeding, growing and transitioningto home. Staff in the unit h<strong>as</strong> special training in developmentallysupportive care, which involves maintaining a quiet environmentwith indirect lighting, bundling the babies for a feeling of securityand grouping tests and procedures to give the babies long periodsof rest. Depending on how sick the infant is, the nurse can providecare for up to three infants. The McLean quadruplets, each of whomhad different care needs, were often in different sections of the unit.Tina would have to re-w<strong>as</strong>h and re-gown to prevent infection, eachtime she changed are<strong>as</strong>. “It would have been nice to have them alltogether or all in a room, but with two on ventilators and two on thebubble, it just couldn’t happen,” said Tina.The McLeans were extremely happy with the care they receivedduring the months they were in the NICU at <strong>Cook</strong> Children’s.“I always felt the staff respected my opinion. They listened andinvolved us in all <strong>as</strong>pects of care,” said Tina. As their babies grew,the nursing staff kept them updated and became a part of theirextended family. Always answering their questions and being therefor support if they were having a bad day, Tina felt the doctors andstaff really cared for her children. “At times, it w<strong>as</strong> difficult to keepup with it all. I always felt supported and w<strong>as</strong>, and am thankful, forbeing at <strong>Cook</strong> Children’s,” Tina said. She kept a journal and eachday wrote down everything about her babies. “If I w<strong>as</strong> worriedabout something, they immediately looked into it. I always felt theylistened to me,” Tina said.<strong>Cook</strong> Children’s provided care partners who came and helpedthe McLeans with feedings. “The space w<strong>as</strong> tight and crowded,and the unit w<strong>as</strong> always full. Even so, I never felt like I w<strong>as</strong> in theway. They wanted us there,” said Tina. Because of <strong>Cook</strong> Children’scommitment to family-centered care, the new big sisters, Jenna, age7, and Ashley, age 13, were taught how to hold the babies and wereencouraged to be involved, often coming up to the NICU and fixingthe babies’ beds.Two and a half months later, the quadruplets went home. Tin<strong>as</strong>aid the day w<strong>as</strong> both happy and sad. With the help of church,friends and family, the McLeans have been doing well. Nowalmost 1 year old, Heath (18.1 lbs.), Ricky (20.6 lbs.), Tyler (16.4lbs.) and Leah (16.5 lbs.) are doing great. Like typical babies, theyare teething, growing, crawling and pulling up, times four. “Thisadventure really started out scary for us, but it h<strong>as</strong> ended up great.We are a part of the <strong>Cook</strong> Children’s family and they are a part ofours,” said Tina.Taking the best practices from hospitals across the nation andincorporating them to fit the needs of <strong>Cook</strong> Children’s patients,families and physicians, the new Neonatal Intensive Care Unit willallow <strong>Cook</strong> Children’s to do what it does best—treat the children inour community. It’s our Promise.www.cookchildrens.org | Fall/Winter 2009 5


<strong>Cook</strong> Children’s NICUexpansion planWhat we offer now.• The NICU uses specially equipped incubatorsknown <strong>as</strong> Giraffe beds that control temperature andprovide a sound barrier from the NICU’s normalactivities.• The <strong>Cook</strong> Children’s unit is the only hospital inTarrant County that provides extra corporealmembrane oxygenation (ECMO) treatment forpatients who need to let their heart/lungs recoverfrom an anomaly or dise<strong>as</strong>e. ECMO oxygenates theblood by byp<strong>as</strong>sing the heart and lungs.• All of the infants come to <strong>Cook</strong> Children’s from otherhospitals. <strong>Cook</strong> Children’s Teddy Bear Transportservices includes separate neonatal and pediatrictransport teams who use an air ambulance, groundambulance or helicopter <strong>as</strong> appropriate to respondto the needs of newborns and critically ill or injuredchildren. <strong>Cook</strong> Children’s transports about 1900children each year, primarily from a 110 countyservice area.• <strong>Cook</strong> Children’s h<strong>as</strong> five rooms to allow parentsto stay with infants before going home. This helpsparents bond with their child <strong>as</strong> well <strong>as</strong> helps themlearn about any complicated needs their child h<strong>as</strong>and any special equipment they will be using athome.• The NICU h<strong>as</strong> a team of physical therapists,occupational therapists and Child Life specialistswho focus on the developmental needs of theinfants. They educate siblings on what is happeningto their brother or sister. Child Life also makessure the baby feels safe and secure, providing gelpillows to keep the infants’ heads properly shapedand giving infant m<strong>as</strong>sages to e<strong>as</strong>e stress causedby a traumatic birth.What will change.• The <strong>Cook</strong> Children’s NICU will have 106 singlefamilyrooms in five units ranging from 18-22 bedsand will keep an adjacent 17 bed “open concept”unit for overflow. Each unit will have twin and tripletrooms. In addition, there will be two NICU rooms toaccommodate quadruplets.• Each room will have a parent bed, a TV with headsetsfor parents, a Kangaroo chair for skin to skincare and a refrigerator for the mother’s own milk.• Families will have a large family waiting area and alounge/kitchen. There will also be a laundry roomon each floor and family showers.• There will be an atrium shared with staff, coffee barand a two-story lounge centrally located, offering aview from one floor to the other.• Child Life specialists will have an incubator to teachchildren how to interact with NICU siblings.• Social workers, a chaplain, Child Life specialistsand physical therapists/occupational therapists willoffice in the unit. There are three staff locker roomsand most supplies will be kept in patient rooms.Computers will be available in each patient room <strong>as</strong>well <strong>as</strong> one in the hallway. There will also be cubiclespace with computers for roaming ancillary staff.• Cut outs for parking large frequently usedequipment (X-ray, sono machines, etc.) will helpeliminate any crowding in hallways. Vocera alarmnotification, SONICU sound monitoring in eachroom and automatic light adjustment and monitoringare also being explored.6 Children’s Promise | the magazine of <strong>Cook</strong> Children’s


checkpresentationsBowling for EducationKappa Delta Pi’s annual Bowling for Education tournamentw<strong>as</strong> fun and successful, and <strong>Cook</strong> Children’s would like tothank everyone who donated their time and money to theevent. The hard work and enthusi<strong>as</strong>m of all the bowlingteams and the Kappa Delta Pi members who participatedmade <strong>this</strong> event successful. The tournament had a wonderfulturnout and <strong>this</strong> year raised $2,300 for the cl<strong>as</strong>sroom at <strong>Cook</strong>Children’s.Photo: Kappa Delta Pi members with <strong>Cook</strong> Children’s FortWorth Independent School District teachers, Jan Sordini, SusiRowe and Barbara Grant.<strong>Cook</strong>ies and C<strong>as</strong>tles<strong>Cook</strong>ies and C<strong>as</strong>tles is run by the Fort Worth Alumnae Chapterof Delta Delta Delta. The first gift to <strong>Cook</strong> Children’s from <strong>this</strong>alumnae group w<strong>as</strong> in 1985. Originally, the Tri-Delt<strong>as</strong> startedby selling poinsetti<strong>as</strong> and in 2001, <strong>Cook</strong>ies and C<strong>as</strong>tles aGingerbread Extravaganza w<strong>as</strong> started to find a different wayto raise money and give back to the community. This year’s<strong>Cook</strong>ies and C<strong>as</strong>tles event will take place in early December.There is a patient decorating day, a ladies luncheon atUniversity Christian Church and a family decorating event.The money donated supports the <strong>Cook</strong> Children’s Hematologyand Oncology program.Photo: Amy Brown, <strong>Cook</strong>ies and C<strong>as</strong>tles chair; Paul Bowman,M.D., <strong>Cook</strong> Children’s Hematology and Oncology physician;Jennifer Johnson, <strong>Cook</strong> Children’s Health Foundation <strong>as</strong>sistantvice president; Eli Bauerle, <strong>Cook</strong> Children’s special eventscoordinator; Sandra Tuomey, <strong>Cook</strong> Children’s director ofCommunity Programs.HuckabeeThe Huckabee ACE Group presented the Psychologydepartment at <strong>Cook</strong> Children’s a check for $10,000 –all raised by the employees of Huckabee. ACE standsfor Achieving Company Excellence and is an internalgroup of seven people that are elected by their peersevery two years. “<strong>Cook</strong> Children’s and Huckabee havesimilar p<strong>as</strong>sions,” said Daren Kirbo, ACE member. “Weboth love children. It is truly rewarding to know that weare able to help so many children with <strong>this</strong> donation,and it is a proud moment to know that each one of ouremployees personally contributed to the cause.”Huckabee is an architecture, engineering andmanagement firm known primarily for its designs inthe education marketplace. Since forming in 1967,Huckabee h<strong>as</strong> believed in sharing its success withothers by giving back. “I think that it is a duty of ourfirm to give,” says CEO Chris Huckabee.Photo: The Huckabee ACE team and CEO ChrisHuckabee present a check to William Craig,<strong>Cook</strong> Children’s vice president of Clinical Support;Lena Zettler, <strong>Cook</strong> Children’s administrative directorof Psychology and Nancy Cychol, <strong>Cook</strong> Children’sMedical Center president.www.cookchildrens.org | Fall/Winter 2009 7


Remember when you couldn’t wait to be older? One rite of p<strong>as</strong>sage w<strong>as</strong> your birthday party each year.You could pick a party theme, decide who to invite, how to decorate and the kind of cake to serve.Some children, like Justine and John Bollman, have addedan extra twist to planning their big days. They decided to jointhe <strong>Cook</strong> Children’s Peter Pan Birthday Club. This decisionmeant a small alteration in their birthday celebrations, but h<strong>as</strong>made a huge impact on the lives of patients at <strong>Cook</strong> Children’s.“We saw a pamphlet on the Peter Pan Birthday Club in ourpediatrician’s office. I read it and talked to the kids about it andthey were actually very okay with it,” said Julie Bollman, Justineand John’s mother.Peter Pan Birthday Club members send a request in their partyinvitations <strong>as</strong>king friends to forego bringing a present and insteadgive any amount to <strong>Cook</strong> Children’s. Club members gather thedonations at their party and later bring them to the medicalcenter. They are given a tour and often see firsthand how theirgifts are put to use. Club members are listed on the Peter PanBirthday wall at the medical center and participate in an annualspecial celebration at <strong>Cook</strong> Children’s for all of the Peter PanBirthday Club members to thank them for their philanthropy.<strong>Cook</strong> Children’s is thrilled to offer <strong>this</strong> option to families inthe community who are choosing to make philanthropic givinga priority. “We have participated in the Peter Pan Birthday Clubfor two years,” said Julie Bollman. “The kids were excited to beable to help other kids who are sick and it w<strong>as</strong> really e<strong>as</strong>y to do.They loved the tour of the medical center and it really made animpact on them. We were blown away by the special celebrationto honor them.”“I liked going on the tour,” Justine said. “I saw a playroom forsick children where they had toys and that made me glad.”“The Peter Pan Birthday Club w<strong>as</strong> designed to foster andencourage philanthropy in children. Creating a sense of givinghelps a child see that they can make a difference – whethersmall or large,” said Sandra Tuomey, <strong>Cook</strong> Children’s director ofCommunity Programs.If you would like more information about the Peter Pan Birthday Club, ple<strong>as</strong>e contact Eli Bauerle at 682-885-4103 oreli.bauerle@cookchildrens.org. There are no age limitations for participation.8 Children’s Promise | the magazine of <strong>Cook</strong> Children’s


Walmart makes adifference in thecommunityWalmart and Sam’s Club have supported Children’sMiracle Network since 1987. During the p<strong>as</strong>t 22 years,Children’s Miracle Network and Walmart have workedtirelessly together to help children by raising money forchildren’s hospitals.Glen Johnson, manager of store #807 in North Richland Hills, Tex<strong>as</strong>,decided to give his employees a hair-raising experience – literally. Byreaching their store’s goal, <strong>as</strong>sociates won the privilege to shave their boss’head. Thank you to Walmart and Sam’s Club for your continued support of<strong>Cook</strong> Children’s Medical Center and Children’s Miracle Network.Walking to Cure CancerEvery 30 minutes, a family learns their child h<strong>as</strong> cancer. Cure KidsCancer is an organization dedicated to helping children receive thebest cancer treatment while staying close to their homes and families.To help with fundraising efforts, Six Flags parks across the country host“A Walk in the Park.”Six Flags Friends, the philanthropic arm of Six Flags, hosted thesecond annual “A Walk in The Park” event at Six Flags Over Tex<strong>as</strong> inArlington on June 20. Approximately 150 participants joined thousandsof Six Flags guests from across the country who walked throughout thesummer for the same purpose—to find cures for childhood cancers.Six Flags Over Tex<strong>as</strong>Daystar presented a $5,000 check to Six Flags fortheir “A Walk in the Park” event benefitting Children’sMiracle Network. Six Flags Friends and Cure KidsCancer have partnered to raise awareness and fundingfor childhood cancers.National Stats:2008 – raised $250,0002009 – raised $271,514Local Stats:2009 – raised $32,139.95(will be split between <strong>Cook</strong> Children’s & Children’s Medical Center Dall<strong>as</strong>)2009 Aflac Holiday DuckEvery year Aflac produces, and with the help of participating Macy’s storesand macys.com, sells a unique, plush holiday duck for a worthy cause—theresearch and treatment of pediatric cancer and blood disorders.All of the proceeds are donated to fight pediatric cancer at the hospitalclosest to where the Aflac holiday duck is sold. Since 2001, Aflac h<strong>as</strong> raisedmore than $2.2 million for pediatric cancer hospitals across the nation.The Aflac holiday duck, which cries its familiar “Aflaaac” when squeezedand h<strong>as</strong> a star on its head that lights up, is priced at $10 for the six inch duckand $15 for the 10 inch version. They are on sale now at participating Macy’sstores, macys.com and www.AflacHolidayDuck.com.Ple<strong>as</strong>e visit www.AflacHolidayDuck.com to find a participating Macy’s store.www.cookchildrens.org | Fall/Winter 2009 9


‘Miracle boy’Jordan Taylor celebrates his one-year anniversary after a nearlyfatal wreck and miracle surgery at <strong>Cook</strong> Children’s.10 Children’s Promise | the magazine of <strong>Cook</strong> Children’s


One little boy. Two nearly fatal car accidents. Three events that could have cost him his life.Jordan Taylor not only survived, he overcame seemingly insurmountable odds to walk again.No wonder even the ladies at the supermarket call him the “miracle boy.”In June 2007, Jordan w<strong>as</strong> involved in a serious car cr<strong>as</strong>h thattook the life of his grandmother.Then in August 2008, Jordan and his mother, Stacey Perez,were driving to their home in Hillsboro, Tex<strong>as</strong>, when they werehit by a truck just down the road from their house. Even thoughJordon w<strong>as</strong> wearing his seatbelt, the collision separated Jordan’sskull from his vertebrae – an “orthopedic decapitation.”Because his injuries were internal, the rescue workerscouldn’t see the extent of the damage. The first event that couldhave cost him his life w<strong>as</strong> being removed from the mangledcar, the second w<strong>as</strong> being transported and the third w<strong>as</strong> thecomplicated surgery that awaited him. Jordan w<strong>as</strong> rushed by aCare Flight air crew to <strong>Cook</strong> Children’s.“The cervical spine X-rays taken upon arrival did not revealany injury,” said W. Britt Nelson, M.D., medical director of thePediatric Intensive Care Unit (PICU) at <strong>Cook</strong> Children’s. “TheMRI of the neck the next morning revealed the dislocationthat could have e<strong>as</strong>ily resulted in paralysis had the care notbeen so cautious. I credit the discipline of the initial careproviders for saving Jordan’s spinal cord, starting with theemergency medical technicians in the field, and continuingon to the Emergency Department staff and our PICU team at<strong>Cook</strong> Children’s.”Following the test results, <strong>Cook</strong> Children’s neurosurgeonRichard Roberts, M.D., performed the surgery that saved thelittle boy. Dr. Roberts is an experienced surgeon, but had onlyseen injuries like Jordan’s on cadavers during medical school.At the time of his surgery, Jordan w<strong>as</strong> given a 1 percent chanceof survival.screaming his name. Someone helped me out of the car andto the ground. I w<strong>as</strong> screaming for them to go look at Jordan. Iw<strong>as</strong> begging them to try to wake him up. I w<strong>as</strong> screaming, ‘Ishe OK?’”Perez w<strong>as</strong> injured from the cr<strong>as</strong>h <strong>as</strong> well. Skin w<strong>as</strong> rippedfrom her right arm and she could barely stand. She w<strong>as</strong> rushedto an adult hospital. She struggled to walk and w<strong>as</strong> weak fromthe collision. Perez said the injuries prevented her from spending<strong>as</strong> much time <strong>as</strong> she would have liked at her son’s hospitalbed. Her father stayed with Jordan while she recovered.With Perez already struggling with her own injuries andwondering if her son would survive, the family decided not totell her how critical Jordan’s condition w<strong>as</strong>.It w<strong>as</strong>n’t until Jordan had moved to the Transitional Care Unitat <strong>Cook</strong> Children’s that Perez truly understood that the oddswere not in her son’s favor.“I’m glad I didn’t know he only had a 1 percent chance,”Perez said. “I knew it w<strong>as</strong> bad, but my faith in God would notlet me worry. Everyone prayed and prayed for Jordan.”Jordan will continue to be treated at <strong>Cook</strong> Children’s, andwill be monitored by Dr. Roberts until he is 18 years old.Currently, he is seen by <strong>Cook</strong> Children’s physician NancyDambro, M.D., on a regular b<strong>as</strong>is.The energy of the collision lifted Jordan’s head up off hisneck and moved it forward. All the connective tissue that keptJordan’s head connected to his neck w<strong>as</strong> destroyed. Dr. Robertsre-connected Jordan’s head with a metal plate, screws andtitanium rods.Jordan surprised everyone with his quick recovery. Hewalked out of <strong>Cook</strong> Children’s after three months with onlya tracheotomy, scars and a stiff neck from the surgery <strong>as</strong> areminder of the collision.“He’s beyond all expectations. He’s a rock star. He’s doinggreat,” Dr. Roberts said of Jordan.“I don’t remember too much. I remember screaming forhim,” Perez, his mother, said. “He wouldn’t wake up. I keptwww.cookchildrens.org | Fall/Winter 2009 11


““The way I look at it, <strong>Cook</strong> Children’s h<strong>as</strong> a lot of angels working there. It’s likeGod h<strong>as</strong> certain angels and put them in that hospital to help all the little kidsthere who have no control over what is going to happen to them.Dr. Dambro said Jordan is having a completely normallife, except for three things: 1) A slightly stiff neck; 2) Hesnores heavily and will soon participate in a sleep study at<strong>Cook</strong> Children’s; and 3) At some point, the scar on his neckwill have to be cosmetically revised.“This is a child who could have died, or not been ableto walk or move or possibly even breathe on his own,” Dr.Dambro said. “But essentially he only h<strong>as</strong> stiffness in his neckand snoring. It’s pretty remarkable really.”Perez said she fl<strong>as</strong>hes back to the wreck “all the time.” Shesaid the year since the injury h<strong>as</strong> been a blur, “almost like youhit f<strong>as</strong>t forward over and over.” But along with the horrible fearof the collision, Perez also focuses on the incredible progressher son h<strong>as</strong> made.Jordan kept up with his grades while being home schooledmost of l<strong>as</strong>t year, and <strong>this</strong> year, will stay on his normal track fora child his age.Jordan’s mom admires her son’s tenacity. She said he rarelycomplains, bringing up the wreck only on rare occ<strong>as</strong>ions. Andthen only for something really special. Like snacks. “He’ll useit to his advantage,” Perez said with a laugh. “Sometimes he’llsay, ‘But mom I had an orthopedic decapitation. I should beable to have an extra cookie.’”Despite all he’s been through, Jordan is a little boy first andforemost. Perez said she prefers him to live in a bubble now forhis safety, but realizes her son wants to play like the other childrenhis age. They find compromises, such <strong>as</strong> no dirt bike, but he canride his bicycle <strong>as</strong> long <strong>as</strong> his helmet is securely f<strong>as</strong>tened.Because of their amazing story, Jordan h<strong>as</strong> received mediaattention locally, nationally and even internationally. For Jordan,the attention can be difficult. He is still self conscious aboutthe scars that remain after the wreck, including one from histracheotomy being removed.Jordan finds the notoriety gained since recovering fromsurgery a little overwhelming. He and his mom appearedlocally on CBS 11, <strong>as</strong> well <strong>as</strong> on the nationally televised “CBSEarly Show.”“The day we left the hospital we went to the store,” Perezsaid. “All these ladies had watched Jordan on the noon news.There w<strong>as</strong> <strong>this</strong> huge crowd of older ladies. They were saying,‘You’re the miracle boy.’ ‘The miracle boy.’ Jordan said, ‘We’vegot to go. Now.’ He w<strong>as</strong> overwhelmed.”But because of their positive message about <strong>Cook</strong> Children’sand how their faith in God helped them after what could havebeen even more dev<strong>as</strong>tation, Perez and Jordan want to makesure they get their message out.“The way I look at it, <strong>Cook</strong> Children’s h<strong>as</strong> a lot of angelsworking there,” Perez said. “It’s like God h<strong>as</strong> certain angelsand put them in that hospital to help all the little kids therewho have no control over what is going to happen to them.The doctors and <strong>Cook</strong> Children’s are an absolute blessing. Theentire family believes Jordan would not have lived had he goneto another hospital. If Dr. Roberts had not been there, I don’tbelieve Jordan would be alive today.”12 Children’s Promise | the magazine of <strong>Cook</strong> Children’s


Ben Hogan FoundationFor the second consecutive year, the Ben Hogan Foundationsponsored all camping fees for 80 campers at Camp Broncho.Camp Broncho is a week-long camp for children ages 7-12diagnosed with persistent <strong>as</strong>thma. The camp took place atCamp John Marc, which is about 70 miles south of the Dall<strong>as</strong>-Fort Worth area. Camp Broncho 2009 w<strong>as</strong> a unique collaborativeeffort of pediatric health care providers, <strong>Cook</strong> Children’s MedicalCenter and Children’s Medical Center Dall<strong>as</strong>. Funds come fromThe <strong>Cook</strong> Children’s Woman’s Board, community agencies andpharmaceutical companies committed to providing <strong>this</strong> lifechangingexperience to children in our community.eventwrap-upI am writing <strong>this</strong> letter to tell you howcamp changes many kids lives. While weare at camp, we learn how to control our<strong>as</strong>thma, interact with other kids, have agood time and many other skills which wecan apply to daily life. The kids at CampBroncho need <strong>this</strong> camp because they maynot be able to attend any other overnightcamp because of their <strong>as</strong>thma. I can’tsay thank you enough for making CampBroncho possible for us.Photo: Lindy Miller, Ben Hogan Foundation corporate developmentand patron relations; Jennifer Stephen, <strong>Cook</strong> Children’s educationcoordinator and grateful parent, Mike McMahan, Ben HoganFoundation vice president and secretary; Karen Schultz, M.D., CampBroncho medical director; Olivia Stephen, Camp Broncho patient;Tim Plocica, CFRE, <strong>Cook</strong> Children’s director of Development; RobertStennett, Ben Hogan Foundation executive director and Gary Cole,Ed.D., CFRE, <strong>Cook</strong> Children’s Health Foundation vice president.-Olivia Stephen,excerpts from letter to Ben Hogan Foundationwww.cookchildrens.org | Fall/Winter 2009 13


TCU SoccerThe Tex<strong>as</strong> Christian University (TCU) women’s soccer program presented <strong>Cook</strong> Children’s a check for $7,000 in front ofFrog Fountain on the campus of TCU. The soccer program raised the money by hosting two Kicks For Kids soccer clinicsearlier <strong>this</strong> spring. The clinics, which had approximately 150 participants from local youth teams around the Metroplex,were organized, marketed and planned completely by the women’s soccer program. “We are so happy that we couldhelp the hospital and put on <strong>this</strong> event,” said junior forward Lizzy Karoly. “We know that <strong>this</strong> money will go toward a goodcause and are really thrilled with the amount that w<strong>as</strong> raised.”Photo: Gary Cole, Ed. D., CFRE, <strong>Cook</strong> Children’sHealth Foundation vice president accepts a check fromrepresentatives of the TCU Women’s Soccer team.The TCU women’s soccer program took a break fromprese<strong>as</strong>on preparations to visit <strong>Cook</strong> Children’s. The teamtoured the facilities, seeing first-hand how their contributionshelp children. They toured the new South Rehab Clinic andthe medical center.Cancer ResearchFoundationOn July 23, The Cancer ResearchFoundation of North Tex<strong>as</strong> presenteda $15,000 check to <strong>Cook</strong> Children’s tobe used for neurobl<strong>as</strong>toma research incollaboration with University of NorthTex<strong>as</strong> Health Science Center. A 501(c)(3) non-profit organization, CancerResearch Foundation of North Tex<strong>as</strong>generates funds through individualgiving and planned fundraising activitieslike its annual Silver Spurs Gala and abowling event, Strike Against Cancer.Photo: <strong>Cook</strong> Children’s Medical Director of Clinical Research Jim Marshall, M.D.; University of North Tex<strong>as</strong> Health Science CenterProfessor of Molecular Biology and Immunology Andr<strong>as</strong> Lacko, Ph.D.; <strong>Cook</strong> Children’s Pediatric Hematologist and OncologistMeaghan Granger, M.D.; and members from The Cancer Research Foundation of North Tex<strong>as</strong> board of directors.14 Children’s Promise | the magazine of <strong>Cook</strong> Children’s


Cards for KidsThe <strong>Cook</strong> Children’s Woman’s Board began <strong>as</strong> a volunteer organization in 1918 witha mission to help support the needs of the medical center. For the p<strong>as</strong>t 45 years,the Woman’s Board h<strong>as</strong> provided the community with child-designed holiday cardsthrough their Cards for Kids project. Funds raised through Cards for Kids have helpedfund critical medical equipment, an ambulance, a playscape, a playground, a prayergarden and a rehabilitation climbing wall, <strong>as</strong> well <strong>as</strong> other needs that have enhancedthe medical center’s child-friendly environment.“What a wonderful way to celebrate the holiday se<strong>as</strong>on by purch<strong>as</strong>ing and sendingCards for Kids. One hundred percent of the proceeds benefit sick children at<strong>Cook</strong> Children’s,” said Beth Stevener, president of the Woman’s Board. “The fundsgenerated from both Cards for Kids and the Enchanted C<strong>as</strong>tle Gift Shop have totaledmore than $1 million.”“We would like to add additional special occ<strong>as</strong>ion cards to our repertoire and are always looking for new, youngartists to create the artwork,” said Angie Donahue, Cards for Kids chairwoman. “We would love for children in thecommunity who are interested in submitting artwork, for the holidays or any other occ<strong>as</strong>ion, to send it to us forconsideration of the 2010 catalog,” said Pam Johndroe, Cards for Kids chairwoman.The artwork should be submitted on an 8 ½” x 11” paper using markers, crayons, paint or pencil and sent to:Cards for KidsPO Box 470551Fort Worth, TX 76147Submission deadline is March 31, 2010.To purch<strong>as</strong>e cards or receive a catalog, contact Angie Donahue or Pam Johndroe at 682-885-5437or visit www.cookchildrens.org.Hochberger Auditorium Chair PlaquesSearching for the perfect holiday gift? Looking for a thoughtful and long-l<strong>as</strong>ting way to honor someone close to you?Engraved plaques, which are placed on the backs of chairs in the<strong>Cook</strong> Children’s Hochberger Auditorium, are still available. You can personalize your message and pay tribute to someonespecial. With your $350 gift benefiting <strong>Cook</strong> Children’s, we will engrave an individual plate with your specifications andattach it to a chair in the auditorium.If you are interested in participating, ple<strong>as</strong>e contact Leah Nicoletti at 682-885-7867.Members of the Educationdepartment and Edwin G. SchwarzHealth Sciences Library honoredDeborah Rubinson, <strong>as</strong>sistantvice president of education andresearch, on National Boss Daywith the purch<strong>as</strong>e of a chairplaque inscribed with her name inHochberger Auditorium.www.cookchildrens.org | Fall/Winter 2009 15


Fred Monaghan, district manager of Kohl’s; Tracy Lockett, coordinator of the Kohl’s A Team volunteers; Dr. Tonya Fuqua, manager of the Save a Smileprogram; Shea Willfod, manager of the Children’s Oral Health Coalition and Rick Merrill, CEO of <strong>Cook</strong> Children’s Health Care System.Save a Smile Program Receives Gift andAnnounces Name ChangeOn August 27, <strong>Cook</strong> Children’s Save a Smile program, a nationally recognized Community HealthOutreach initiative, launched its seventh year of providing free dental care to underserved childrenduring the fourth annual Save a Smile Celebration.Primarily funded by Kohl’s Department Store through its Kohl’sCares for Kids ® program, over 80 volunteers from Kohl’s A-Team,along with members of the community, participated in stuffingmore than 7,000 dental kits that will be distributed to the childrenduring their dental screenings.Gary Cole, Ed.D., CFRE, vice president of <strong>Cook</strong> Children’sHealth Foundation, spoke about the partnership between<strong>Cook</strong> Children’s and Kohl’s for the p<strong>as</strong>t eight years. Throughtheir unique merchandise program, Kohl’s h<strong>as</strong> been a majorunderwriter of the Save a Smile program and the Kohl’s ATeam provides volunteers for many different programs at <strong>Cook</strong>Children’s. Kohl’s commitment to helping improve the livesof children aligns with <strong>Cook</strong> Children’s promise. Kohl’s h<strong>as</strong>generously given more than $1,311,426 to the program overthe p<strong>as</strong>t eight years, and at the celebration $222,016 more w<strong>as</strong>contributed to benefit the Save a Smile program. Because of<strong>this</strong> generous support, <strong>Cook</strong> Children’s renamed the programKohl’s Champions for Kids, encomp<strong>as</strong>sing Save a Smile and theChildren’s Oral Health Coalition.The celebration also recognized the impact that schoolnurses have in helping the Kohl’s Champions for Kids Savea Smile program succeed. Because students often visit theirschool nurse when they have dental pain, the nurse can identifychildren in need and notify the program staff. Kohl’s Championsfor Kids Save a Smile partners with school nurses in threeTarrant County school districts.Since the Save a Smile program began in 2003,more than 86 dentists have volunteered withSave a Smile, conducting more than 30,660dental screenings and providing nearly $3.6million in free dental care.Special guest speaker, Rosie Moncrief, community volunteer,business owner and wife of Fort Worth Mayor Mike Moncriefhad high praise for the program and told the story of a child whoh<strong>as</strong> benefitted from Kohl’s Champions for Kids Save a Smile.The program would not exist without the help and support of itsremarkable volunteer dentists, the wonderful school nurses andcommunity supporters like Kohl’s, the A-team, Fort Worth DistrictDental Society and Communities In Schools. Just another way<strong>Cook</strong> Children’s gives kids something to smile about.16 Children’s Promise | the magazine of <strong>Cook</strong> Children’s


KOHL’SCH A M P I O N Sfor KIDSArlette’s StoryIn fairy tales, there are adventures, heroes andhappy endings. Arlette didn’t exactly have thekind of life described in a book.She w<strong>as</strong> raised by a loving mom, who w<strong>as</strong> single and worked fulltime. Arlette helped her mom by helping to care for her three youngersiblings. Add in school and homework and you get a busy little girlwho didn’t have much time to think about herself.KOHL’SCH A M P I O N SOn a day that started like any other day, Arlette went to school,even though she didn’t feel well. Her mouth w<strong>as</strong> hurting <strong>as</strong> it hadmany times in the p<strong>as</strong>t. She hadn’t told her mom because she didn’twant to burden her. But <strong>as</strong> luck would have it, Arlette’s cl<strong>as</strong>s attendeda dental screening by a Save a Smile volunteer dentist.for KIDSWhat they found during Arlette’s screening caused them concern.Arlette had many cavities. Ten teeth, some of which were permanent,were in dire need of restoration. If the cavities weren’t filled soon,the damage could affect her dental health forever. But Arlette’s storysuddenly began to change for the better.After her screening, Arlette w<strong>as</strong> sent to see Hoang Le, D.D.S.,a dentist who volunteers his time and talents for the Save a Smileprogram. Dr. Le began addressing Arlette’s dental problems andmade her pain go away.Arlette enjoyed her visits to Dr. Le, because he made her feel likea very special patient, and according to her, like a princess. Manyof her worries, <strong>as</strong> well <strong>as</strong> her mom’s, have disappeared. The Save aSmile c<strong>as</strong>e workers even helped her get to appointments so her momwouldn’t have to miss work.Arlette w<strong>as</strong> so grateful for Dr. Le’s help, she wrote him a noteand insisted on personally delivering it to him, complete with a hug.Without Save a Smile, Arlette may not have had access to the dentalcare she needed to give her story a happy ending.Now, Arlette is very protective of her new teeth. She avidly brushesthem and makes sure to eat healthy foods to keep them strong. ForArlette, her adventure began with a dental screening at school, andher hero turned out to be a very special dentist.www.cookchildrens.org | Fall/Winter 2009 17


checkpresentationsAlbertson’sAlbertson’s LLC company’s Dall<strong>as</strong>-Fort Worth division donated $70,000 through Jewel Charity to benefit <strong>Cook</strong> Children’s NeighborhoodClinics. “Over the 70 years that Albertson’s stores have operated, one of our most committed causes <strong>as</strong> a company h<strong>as</strong> always beenthe health and well-being of children,” said William Emmons, Albertson’s LLC Dall<strong>as</strong>-Fort Worth division president. “We know that overthe l<strong>as</strong>t year, more and more people have begun turning to local clinics for their children’s health care, and we’re proud that we canmake <strong>this</strong> donation benefitting <strong>Cook</strong> Children’s Neighborhood Clinics so that <strong>Cook</strong> Children’s can further its promise to improve thehealth of every child in our region through the prevention and treatment of illness, dise<strong>as</strong>e and injury.”“The goal is to have healthier kids who will become healthier adults,” said Maria del Pilar Levy, M.D., medical director of the <strong>Cook</strong>Children’s Neighborhood Clinics. “When families bring in a brand new patient with a fever and sore throat, we are not only going toaddress the child’s illness, we are going to provide that family with a medical home where we can address the issues a family may have.We can take a more proactive approach and give the family anticipatory guidance. This generous donation from Albertson’s helps make<strong>this</strong> goal possible.”Photo: Jeanie Luskey, Jewel Charity president; Maria del Pilar Levy, M.D., medical director for the <strong>Cook</strong> Children’s NeighborhoodClinics; John Porter, Albertson’s finance manager; Michele Reynolds, Jewel Charity Angels co-chair; Dee Holms, Jewel Charity Angelsco-chair; William Emmons, Albertson’s LLC Dall<strong>as</strong>-Fort Worth division president and Gary Cole, Ed.D., CFRE, <strong>Cook</strong> Children’s HealthFoundation vice president.J.E.S. Edwards FoundationMrs. Jareen E. Schmidt of the J.E.S. Edwards Foundation, donated$10,000 to <strong>Cook</strong> Children’s for pediatric medical research. Through theJ.E.S. Foundation and personal funds, Schmidt h<strong>as</strong> contributed $25,000<strong>this</strong> year that h<strong>as</strong> directly helped <strong>Cook</strong> Children’s research efforts andthe <strong>Cook</strong> Children’s Primary Care Physician Investigator Network(PCPIN). Located in Fort Worth’s Child Study Center in <strong>as</strong>sociation with<strong>Cook</strong> Children’s primary care downtown office, PCPIN is the only endeavorof its kind in Dall<strong>as</strong>-Fort Worth and leads a new era of child-specific medicalresearch in Tarrant County.Photo: <strong>Cook</strong> Children’s Manager, Grants and Contracts SudeepaBhattacharya, MPA; Jareen E. Schmidt; Maria del Pilar Levy, M.D., medicaldirector of Neighborhood Clinics; Ginny Ciriot, CPNP; Jim Marshall, M.D. andAnn Natterer, M.D.18 Children’s Promise | the magazine of <strong>Cook</strong> Children’s


CareityCareity Foundation gave $200,000 from its Branded event, a westernstyledproduction, to benefit <strong>Cook</strong> Children’s Palliative Care program.Careity Foundation exists to provide personal, holistic, on-site careand counseling for economically challenged cancer patients inTarrant, Parker and Johnson counties. Far more than a fundraisingorganization, Careity Foundation distinguishes itself by its hands-onapproach to overseeing programs that are personal to its founders,Beverly Branch and Lyn Walsh. Since 2006 Careity Foundation h<strong>as</strong>given $600,000 to <strong>Cook</strong> Children’s.Pediatric palliative care is primarily directed at providing reliefto children with life-threatening illnesses through symptom andpain management. The goal is not to cure, but to provide comfort and maintain the highest possible quality of life for <strong>as</strong> long <strong>as</strong> liferemains. Well-rounded palliative care programs also address mental health and spiritual needs. The focus is not on end of life, but oncomp<strong>as</strong>sionate specialized care for the living. Palliative care provides support for the whole person and those who are sharing theperson’s journey in love.Photo: Careity founders Lyn Walsh and Beverly Branch; Nancy Cychol, <strong>Cook</strong> Children’s Medical Center president; Todd Pearson, M.D.,<strong>Cook</strong> Children’s director of Palliative Care and Nan Kingsley, Branded event co-chair.Sigma Phi EpsilonThe Sigma Phi Epsilon fraternity at TCU h<strong>as</strong> donated to <strong>Cook</strong> Children’sfor the p<strong>as</strong>t 11 years. Money is raised through its annual 1901 event whichincludes skits, a powderpuff flag football game and penny jar collections.SigEp w<strong>as</strong> founded in 1901 on the ideals of virtue, diligence and brotherlylove. Since then, using the three cardinal principles, the fraternity h<strong>as</strong> strivedto produce balanced men who better their communities through service.SigEp aptly named the 1901 festivities in the spirit of its founders.Funds will go toward the purch<strong>as</strong>e of an incubator.Photo: Thom<strong>as</strong> Cochran, Sigma Phi Epsilon vice president of finance; WhitneyLangdon, <strong>Cook</strong> Children’s Health Foundation and Ian Cannon, Sigma PhiEpsilon president.Region 9 Arabian Horse AssociationThe Region 9 Arabian Horse Association (AHA) donatedfunds raised from program sales and other activities to<strong>Cook</strong> Children’s Medical Center. This is the seventeenthyear they have given to <strong>Cook</strong> Children’s and theirphilanthropic support now totals more than $88,000.Photo: Kristen Fischer, Region 9 AHA newsletter editor;Eli Bauerle, <strong>Cook</strong> Children’s special events coordinatorand Pat Barton, Region AHA director.Mikinze FitzpatrickMikinze Fitzpatrick put together a cookbook and donatedthe proceeds to <strong>Cook</strong> Children’s Neonatal Intensive CareUnit (NICU). Once a NICU baby herself, Mikinze wanted tobenefit other NICU children.Photo: Barbara Greer, <strong>Cook</strong> Children’s NICU director;Nancy Cychol, <strong>Cook</strong> Children’s Medical Center president;Mikinze Fitzpatrick; Rich Goode, <strong>Cook</strong> Children’s HealthCare System chief financial officer and NICU staff.www.cookchildrens.org | Fall/Winter 2009 19


2009 Honoree: Bank of AmericaRick Merrill; Mike Pavell, Bank of AmericaPresident; and Gary Walsh2009 Honoree: Alexa Sankary(second from left) and friends2009 Honoree: The Morris FoundationLinda Morriss Elsey; David Elsey; and Joe Monteleonewith Rick Merrill and Gary Walsh2009 HonoreesFrom a major corporation to the actions of one young girl, every gift is significant at<strong>Cook</strong> Children’s.Bank of America for giving $1 million in support of <strong>Cook</strong> Children’s Neighborhood Clinics,specifically for building the Cooper Street clinic in Arlington and McCart Avenue clinic in Fort Worth.The Morris Foundation for continuing support of <strong>Cook</strong> Children’s initiatives like the Save aSmile program and more than 20 years of support of the primary health care needs of children in ourcommunity who use the neighborhood clinics.Alexa Sankary for organizing a neurobl<strong>as</strong>toma walk in honor of her friend Michael who p<strong>as</strong>sedaway. Alexa, 11, raised more than $56,000 for neurobl<strong>as</strong>toma research in just two years and became<strong>Cook</strong> Children’s first Young Philanthropist Award honoree.You can watch the videos about the 2009 honorees on the <strong>Cook</strong> Children’s HealthFoundation Web site at www.cookchildrens.org/giving.www.cookchildrens.org | Fall/Winter 2009 23


fulfilling our promise<strong>Cook</strong> Children’s publicly announced a $50 million capitalfundraising effort in support of the medical center expansion at theannual Donor Dinner Sept. 29.“Several months ago, we broke ground on a $250 million expansion project that will add 40percent to our current campus footprint,” Rick Merrill, president and CEO of <strong>Cook</strong> Children’sHealth Care System said. “It will also incre<strong>as</strong>e much needed space in our Neonatal IntensiveCare Unit, Pediatric Intensive Care Unit, med/surgery units and strengthen our family amenities,while adding a five story medical office building that will finally pull our specialties practicesunder one roof.” The campaign is the largest undertaken in the history of <strong>Cook</strong> Children’s.Following the kickoff announcement, Mr. Merrill informed the crowd that $34.5 million h<strong>as</strong> beensecured toward the campaign goal to date. He explained that <strong>Cook</strong> Children’s had received thetwo largest gifts since the initial gift from Matilda Nail <strong>Cook</strong>.The campaign c<strong>as</strong>e statement can be found on the new <strong>Cook</strong> Children’s Health Foundation Webpage at www.cookchildrens.org/giving.24 Children’s Promise | the magazine of <strong>Cook</strong> Children’s


campaign chairsMark JohnsonCampaign Co-chairMark L. Johnson earned an A.B. degree inEconomics from Duke University and is vicepresident/portfolio manager/analyst at LutherKing Capital Management in Fort Worth.Mr. Johnson is a chartered financial analyst and a charter member of theInvestment Counsel Association of America. He serves on the board of Tex<strong>as</strong> ChristianUniversity and Hillsdale College in Michigan.Mr. Johnson is a member of the All Church Home Foundation Board, a director andtre<strong>as</strong>urer of the Amon G. Carter Foundation and a trustee of the Amon G. CarterMuseum. He and his wife Christina have three children and live in Fort Worth.Jean RoachCampaign Co-chairJean Roach holds a B.B.A. from Tex<strong>as</strong> Christian University and is an active communityvolunteer. She is a board member for the Fort Worth Symphony Orchestra, Van CliburnInternational Piano Competition, Southwestern Medical Center Foundation and the DeltaDelta Delta National Foundation Advisory board.Mrs. Roach is a committee member for Performing Arts Fort Worth, KinderFrogs and the HarrisHospital Development Council. She is a member of Jewel Charity, The Assembly and a FortWorth Junior League sustainer. Mrs. Roach formerly served on both the <strong>Cook</strong> Children’s Boardof Trustees and the <strong>Cook</strong> Children’s Woman’s Board.Mrs. Roach is a recipient of The Association of Fundraising Professionals OutstandingPhilanthropic Volunteer Fundraiser Award, the Exchange Club Golden Deeds Award and aLegacy Award Honoree.She h<strong>as</strong> two daughters and resides in Fort Worth with her husband John.New Web Site Recently Launched<strong>Cook</strong> Children’s Health Foundation launched a new Web site thatallows for e<strong>as</strong>ier navigation and promotes more interaction betweenviewers and the foundation. “We wanted to create a place where oursupporters can become familiar with us and establish a dialogue,”said <strong>Cook</strong> Children’s Health Foundation Communications ManagerKyndall Cunningham. “It is important that people know who we areand feel comfortable exchanging ide<strong>as</strong> and opinions with us.” Thenew site h<strong>as</strong> more videos, a place for patients, families and friendsto relay their experiences at <strong>Cook</strong> Children’s, an e<strong>as</strong>y-to-read onlineversion of Children’s Promise magazine and staff profiles to get toknow us better.Check it out at www.cookchildrens.org/giving.www.cookchildrens.org | Fall/Winter 2009 25

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