Minutes Bristol Testicular Cancer Service AGM â 9th July 2010 ...

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Continue with current practice, but tighten upguideline wording.Dr Susanna Alexander Female Germ Cell Cancers JPB: Chemotherapy regimens are agreed for thisgroup of patients, however small numbers make itvery difficult to carry out clinical trialsSA: feels we need a better referral pathway andguidelines. Specific chemotherapy regimens onChemo Care for female germ cell patientsJPB: Also mentioned the role of Tumour Markers infemale germ cell cancers, especially very high AFPand questioned the role of chemotherapy first aslike male germ cell cancers.Julia Hardwick for Mr TimWhittlestoneRPLND data and plans for the serviceJPB: Thanked Julia and expressed that TW isproviding a very good service. Concern aboutsustainability of continuing to work as a singlesurgeon. Would be happy to help develop a jointclinic.SB: Questioned what a centralised urology servicewould mean for the UHB service, as this was verygood for patients at the moment due to thelogistics of seeing patients post-op.TL: stated that consultation regarding thecentralising of services had just begun and this wasan opportunity for the team to express theirconcerns.JPB: Asked JH if a business plan had beenproduced/presented regarding a second surgeonfor the service and JH said she would ask TW on hisreturn.Dr Julian Kabala Seminoma and PET scanning AB: Asked if it was possible to PET scan all of theSeminoma stage 11A & 11B which were 1cm andabove.JK: concerned that this was to change treatmentpractice and should we think about a study.AB: stated that even a pilot study numbers wouldbe low and that this was for staging purposes, notto reduce the need for treatment. Also AB statedSA: to investigatethe referralpathway andguidelines with thegynaecology teamby end ofDecember 2010.JH: To check withTW the status ofBusiness planAB: To word thischange in currentClinical Guidelines
that this will help with RT fields.All agreed that this would be recommended as anoption in the Clinical GuidelinesDr Susanna Alexander Retrospective Audit SA: Limited data and analysis presented due to lackof time. Noted time from Orchidectomy to stagingCT needs to improve in referring centres.SB asked MM if there were any audits patientswould like the team to look at. MM: said that heand many of the guys in the user group foundthere were delays from seeing the GP to seeing theurologist/US scan.TL & SB: indicated the guidelines for TesticularCancer are very clear and patients should bereferred on the 2 week rule.SB: asked if it would be possible to do aretrospective audit of time from GP tospecialist/diagnosis.TL: believed this could be done.Tristan Grey ResearchNurseResearch Participation presentationJPB: Thanked Tristan for his presentation andstated that the TE24 study is nationally about oneyear behind recruitment targets.SB: stated that the option of one cycle ofCarboplatin was very tempting to men due theminimal toxicity with reduced recurrence rate.Some men had also did not like the idea of MRIdue to claustrophobia.JPB: believed our overall recruitment was verygood.SB: There were 10 patients in the Sexual FunctionStudy; this is a bit behind target due to the reducednumbers of patients presenting with stage onedisease. She asked the status of 111 Study, as theservice has had 2 referral who would have beeneligible.TG: It could be any time, now as CTU are ready,once the issues with the contract are resolved.SA & SB: to presentto the NSSGmeeting 17 thDecember 2010.SB & TL to look atlogistics of doingan audit GP –diagnosis by endNovember 2010.TG: to ensure teamare informed ofstart of 111 studyand ensure wesubmit anexpression ofinterest for TICEstudy.Dr Susanna Alexander and Results of Patient Survey JPB: good results, some more extraction of the SA & SB: to present
Page 1 and 2: Attendees (part one)Attendees (part
Page 3: Dr Amit Bahl11A & 11B Seminoma RT a

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Minutes Bristol Testicular Cancer Service AGM â 9th July 2010 ...