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e-health networks and social transformations 295early as 1997, in what appears to be the first national random surveycomparing users to non-users regarding healthcare, 41 percent of USInternet users had gone online to access healthcare information resources(Aspden and Katz, 2001). By 2002, surveys commonly reported that in theregion of 60 percent of online users in America have sought healthcareresources on line, notably for other people besides themselves (Pew, 2002).(Some research, however, suggests that this percentage is exaggerated; forexample Tu and Hargraves, 2003.)Table 13.1 shows the percentage distribution of the US population interms of Internet use, and various types of medical and health informationseeking behaviors, in 1997, 2000, and 2002. Over half of the population usesthe Internet; of that half, two-thirds use it to seek healthcare information,with perhaps one out of 20 using it for that purpose within any given day.Clearly, then, at least in the US, the populace has embraced the online worldas an important health resource. Those with more education are disproportionatelymore likely to be health seekers than just Internet users.Concerning race, whites and “other” use the Internet more than blacks, butare even greater health information seekers than Hispanics and blacks.Table 13.1Use of the Internet and Internet healthcare resources by the USpublic, 1997–2002Allrespondents(%) Internet users (%)SoughtWent toEver seek online Ever go healthInternet online health info to health websiteDate user health info yesterday websites yesterdayDecember 57 66 6 54 42002September 59 62 6 47 52002June 47 55 5 36 32000November 30 41 n.a. n.a. n.a.1997Health website = a site that provides information or support for specific conditions or personalsituations.Source:Katz and Aspden (2001); Pew Internet and American Life Project (2003b)
296 James E. Katz, Ronald E. Rice, and Sophia K. AcordThose with higher income are more likely to be Internet users, and morelikely to be health seekers.People with a specific question or issue they need addressing are oftenmotivated to access the web for health information. One study found that 77percent of patients did this (Boston Consulting Group, 2001).Understandably, people engage in wide-ranging search behavior in order tomeet these specific aims (Malin, 2002). In 2001, 65 percent of health seekersused general search engines and banner ads to find information, 24percent used general health portals, and 11 percent used disease-specificwebsites (Boston Consulting Group, 2001). Whether searching for moreinformation on clinical diagnoses or alternative treatments, 80 percent ofhealth seekers say that they found most or all of the information they werelooking for the last time they logged on (Pew, 2002). Of those in theSeptember 2002 survey (n = 2092 respondents, 1318 Internet users) who doseek healthcare information online, 58 percent reported that they would firstgo online for reliable healthcare information, while 35 percent said theywould first contact a medical professional. Percentages for all Americanswere 31 percent turning to the Internet and 59 percent contacting a medicalprofessional.We will now turn to our four analytical themes to explore the issues andconundrums regarding healthcare in a network society.THEME 1: CENTRALIZED ONLINE VENTURES HAVESTRENGTHS, BUT THEIR WEAKNESSES CREATE NEEDSFOR SELF-ORGANIZED LOCAL SYSTEMSCentralization FailuresCentralized medical initiatives dominated the early Internet expectations forhealth resources. Government resources such as Healthfinder.com, academicallyoriented databases such as The National Library of Medicine’s PubMedfor Medline, commercial offerings such as drkoop.com orPointcastnetwork.com, institutional sites such as the Healthscout or AmericanMedical Association, and search engines such as the Medical World Search allhad an early presence online. Those centralized sources that have survivedplay an important role in distributing quality health information. Indeed, theirtechnological infrastructures make health seeking accessible to the largerpopulation, and a bridge to span various digital divides. They also have thestrategic location, if not the resources, to engage in vigorous website certificationand verification roles for quality information. Medical documents thatwere conventionally out of reach in terms of patient access and circulation are
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296 James E. Katz, Ronald E. Rice, and Sophia K. AcordThose with higher income are more likely to be Internet users, and morelikely to be health seekers.People with a specific question or issue they need addressing are oftenmotivated to access the web for health information. One study found that 77percent of patients did this (Boston Consulting Group, 2001).Understandably, people enga<strong>ge</strong> in wide-ranging search behavior in order tomeet these specific aims (Malin, 2002). In 2001, 65 percent of health seekersused <strong>ge</strong>neral search engines and banner ads to find information, 24percent used <strong>ge</strong>neral health portals, and 11 percent used disease-specificwebsites (Boston Consulting Group, 2001). Whether searching for moreinformation on clinical diagnoses or alternative treatments, 80 percent ofhealth seekers say that they found most or all of the information they werelooking for the last time they log<strong>ge</strong>d on (Pew, 2002). Of those in theSeptember 2002 survey (n = 2092 respondents, 1318 Internet users) who doseek healthcare information online, 58 percent reported that they would firstgo online for reliable healthcare information, while 35 percent said theywould first contact a medical professional. Percenta<strong>ge</strong>s for all Americanswere 31 percent turning to the Internet and 59 percent contacting a medicalprofessional.We will now turn to our four analytical themes to explore the issues andconundrums regarding healthcare in a network society.THEME 1: CENTRALIZED ONLINE VENTURES HAVESTRENGTHS, BUT THEIR WEAKNESSES CREATE NEEDSFOR SELF-ORGANIZED LOCAL SYSTEMSCentralization FailuresCentralized medical initiatives dominated the early Internet expectations forhealth resources. Government resources such as Healthfinder.com, academicallyoriented databases such as The National Library of Medicine’s PubMedfor Medline, commercial offerings such as drkoop.com orPointcastnetwork.com, institutional sites such as the Healthscout or AmericanMedical Association, and search engines such as the Medical World Search allhad an early presence online. Those centralized sources that have survivedplay an important role in distributing quality health information. Indeed, theirtechnological infrastructures make health seeking accessible to the lar<strong>ge</strong>rpopulation, and a brid<strong>ge</strong> to span various digital divides. They also have thestrategic location, if not the resources, to enga<strong>ge</strong> in vigorous website certificationand verification roles for quality information. Medical documents thatwere conventionally out of reach in terms of patient access and circulation are