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BEARS Brochure

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It’s heartbreaking when you hear from a parent<br />

that their child was just diagnosed with autism.<br />

You want to wrap your arms around them and<br />

T H E M I N D I N S T I T U T E<br />

BRAIN ENDOWMENT for AUTISM<br />

RESEARCH SCIENCES (<strong>BEARS</strong>)<br />

say, I’m so sorry. Our hope is that one day, with<br />

the help of the <strong>BEARS</strong> program, we can say,<br />

There’s a cure for that.<br />

– Chuck & Sarah Gardner<br />

MIND Institute, Founding Family<br />

Our<br />

TEAM<br />

From left to right: Melanie Norris, Administrative Manager;<br />

Susan Bacalman, Licensed Clinical Social Worker; Leonard<br />

Abbeduto, Ph.D., MIND Institute Director; Cyndi Schumann, Ph.D.,<br />

<strong>BEARS</strong> Tissue Program Director; Lily Luong, Research and Outreach<br />

Coordinator; Terri Contenti, Community Relations Officer; David<br />

Amaral, Ph.D., MIND Institute Research Director<br />

UC Davis MIND Institute<br />

Brain Endowment for Autism Research Sciences (<strong>BEARS</strong>)<br />

2825 50th Street • Sacramento, CA 95817<br />

(855) 221-HOPE (4673)<br />

MIND<strong>BEARS</strong>@ucdavis.edu • www.MIND<strong>BEARS</strong>.ucdavis.edu<br />

(855) 221-HOPE (4673)<br />

MIND<strong>BEARS</strong>@ucdavis.edu • www.MIND<strong>BEARS</strong>.ucdavis.edu


U C D A V I S M I N D I N S T I T U T E<br />

B E A R S T I S S U E P R O G R A M<br />

Our VISION<br />

The MIND Institute Brain Endowment for Autism Research<br />

Sciences (<strong>BEARS</strong>) is dedicated to advancing research around the world by<br />

providing scientists the necessary brain tissue to find the causes of, develop<br />

treatments for, and ultimately cures for autism and other neurodevelopmental<br />

disorders. In addition to our own diverse, discovery-driven, translational<br />

research programs, our objective is to foster worldwide collaborations with<br />

scientists across multiple disciplines to share the extraordinarily valuable<br />

resource of human brain tissue. Our mission is to continually translate<br />

knowledge acquired through basic research on the genetics, biology, and<br />

neuropathology of neurodevelopmental disorders into novel approaches for<br />

today’s treatments and tomorrow’s cures.<br />

The RESEARCH<br />

Brain research progress has been severely<br />

hampered by a lack of available brain tissue for<br />

scientists to study. Many medical researchers have<br />

devoted their careers to investigating brain development<br />

in children and adults with a neurodevelopmental<br />

disorder. The skills of these talented scientists are world-renowned, their<br />

dedication and compassion inspiring, but their efforts are slowed by a lack<br />

of available brain tissue. Although one in every 110 children is affected with<br />

an autism spectrum disorder, fewer than 100 cases have been studied over<br />

the past 30 years of autism brain research. To make a significant impact,<br />

scientists, national advocacy organizations, and the community need to work<br />

together to transform current thinking on brain donations for research. It<br />

is only through collaboration that we will dramatically advance research on<br />

neurodevelopmental disorders.<br />

Your GIFT<br />

The gift of human tissue is a rare and<br />

valuable resource on which medical researchers<br />

depend to understand neurodevelopmental<br />

disorders at the cellular and molecular level.<br />

With these gifts, scientists will be able to<br />

develop biological treatments and ultimately<br />

find a cure. Researchers will have the ability to<br />

study the complexity of the brain using a wide<br />

range of approaches from cellular development<br />

to immunology to genetics.<br />

We ask that you consider registering<br />

yourself and your family to become a<br />

brain donor in the event of death. Brain<br />

donations from individuals with autism, other<br />

neurodevelopmental disorders, as well as those<br />

unaffected by a neurodevelopmental disorder<br />

are equally important and necessary for progress<br />

to be made. The passing of a loved one is a very<br />

difficult time for families. Consequently, it is<br />

important that you inform family members of<br />

your decision to make the precious gift of<br />

tissue donation upon your passing.<br />

It is only by examining human tissue<br />

from individuals with a neurodevelopmental<br />

disorder, compared to unaffected individuals,<br />

that researchers can begin to find the causes,<br />

treatments, and cures for these life-changing<br />

disorders.<br />

“We miss Grayson very<br />

much, although being<br />

able to allow him to give<br />

back to autism research<br />

has been very comforting<br />

to us. Your efforts give us<br />

hope that someday we will<br />

all be closer to finding that<br />

needle in the haystack,<br />

to best help others. How<br />

amazing your work is.”<br />

– Valerie Hund (Mother of donor)<br />

“Neuroscience has exceptionally<br />

powerful tools to accelerate research<br />

progress. Yet, without adequate donor<br />

brain tissue, these fundamental studies<br />

are not possible. Every donation will<br />

make a phenomenal impact on the<br />

future of brain research.”<br />

– David G. Amaral, Ph.D., Director of<br />

Research, UC Davis MIND Institute<br />

“Our mission is to support research<br />

on neurodevelopmental disorders<br />

around the world in order to gain as<br />

much knowledge as possible from<br />

every single precious donation.”<br />

– Cynthia Schumann, Ph.D., Director,<br />

<strong>BEARS</strong> Tissue Program<br />

Ways to HELP<br />

Inform others about the vital need for brain tissue for neurodevelopmental research.<br />

Register as a donor for yourself and your family at www.MIND<strong>BEARS</strong>.ucdavis.edu.<br />

Encourage others, with or without a disorder, to register as a brain donor.<br />

Volunteer for outreach at the MIND Institute and community events.<br />

Support this program with a financial contribution.

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