ROMP 10 Year Impact Report
A decade of dedication
A decade of dedication
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2015 IMPACT REPORT<br />
A DECADE OF DEDICATION
mo-bil-i-ty (n.)<br />
• The quality or state of being mobile<br />
• The movement of a people,<br />
as from one social class or level to another<br />
<strong>ROMP</strong> is a mobility organization.
CONTENTS<br />
Founders’ Message ............................................................. 4<br />
Story ......................................................................... 5<br />
Challenge . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 6<br />
Patients ....................................................................... 7<br />
Model . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 8<br />
Vision ........................................................................ 9<br />
Strategy ..................................................................... <strong>10</strong><br />
<strong>Impact</strong> . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 11<br />
Culture. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 12<br />
Team ........................................................................ 13<br />
Partners . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 14<br />
Thanks . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 15<br />
3
FOUNDERS’<br />
MESSAGE<br />
To Our Loyal Supporters,<br />
A lot has changed in the decade since <strong>ROMP</strong> was born, but our<br />
guiding principles remain the same. We believe every patient’s<br />
needs and goals override the socioeconomic constraints in which<br />
they live. We believe that amputees are not disabled because<br />
they’re missing a limb but because they’re missing a prosthesis.<br />
Empowerment through mobility has always been our goal. In our<br />
first <strong>10</strong> years, we grew to more fully understand what<br />
empowerment and mobility mean to our patients’ lives. We<br />
watched as Julexy inspired a generation of Ecuadorians to<br />
question their own understanding of beauty and disability. We<br />
helped amputee mountaineer Santiago summit all 6,000-meter<br />
Bolivian peaks in 60 days. We provided prostheses to Vairo, hired<br />
him to build our clinic in Guatemala, then saluted him as he<br />
returned to law school. We coordinated clinicians and inventors<br />
from world-class institutions and universities to provide care and develop new technologies for all<br />
our patients.<br />
Thank you for the part you’ve played in the substantial impact we’ve already made. <strong>ROMP</strong> exists<br />
because of a global need, yet we couldn’t move ahead without your generosity. Our organization<br />
is growing fast and we need forward-thinking partners who want to join us in empowering others<br />
through mobility. Please continue supporting <strong>ROMP</strong>— and connect us with others like you who<br />
believe that mobility is a powerful force for social change.<br />
We are all in this together,<br />
David Krupa and Eric Neufeld<br />
4
STORY<br />
Loren J. Mallon Centro de Rehabilitación,<br />
a full-service orthotic and prosthetic<br />
clinic and fabrication center,<br />
is constructed in Zacapa, Guatemala<br />
David Krupa, Eric Neufeld,<br />
and Josh Kaplan<br />
establish and incorporate<br />
Range of Motion Project<br />
<strong>10</strong>00th patient fit with prosthesis<br />
2005<br />
2006 2007<br />
20<strong>10</strong> 2011<br />
2013 2014<br />
Full-time operations begin<br />
in Zacapa, Guatemala<br />
<strong>ROMP</strong> begins<br />
treating underserved patients<br />
in the United States<br />
<strong>ROMP</strong> expands mobile clinics to Chiapas, Mexico<br />
First artificial hands are printed with<br />
academic research partners<br />
3D printing labs are created<br />
in Guatemala and Ecuador<br />
Office opened in Quito, Ecuador<br />
Mobile prosthetic clinic makes first trip in Guatemala<br />
2000th patient fit with prosthesis<br />
5
CHALLENGE<br />
Poverty<br />
Disability<br />
80%<br />
OF AMPUTEES LIVE<br />
IN LOW-INCOME COUNTRIES<br />
2%<br />
HAVE ACCESS TO CARE<br />
Vulnerability<br />
Amputees are not disabled by a missing limb, but by a missing prosthesis.<br />
6
PATIENTS<br />
Julexy<br />
Julexy founded the Bionic<br />
Fashion Show, in which<br />
youths proudly display their<br />
prostheses on the runway. It’s<br />
now an annual event in<br />
multiple Latin American<br />
countries. Before she lost her<br />
life to osteosarcoma, Julexy<br />
was named beauty queen of<br />
her hometown, the first<br />
amputee in Ecuador to earn<br />
the title. Though <strong>ROMP</strong><br />
provided her prosthesis,<br />
Julexy provided constant<br />
inspiration. Her spirit truly<br />
exemplified empowerment<br />
through mobility.<br />
Santiago<br />
Santiago Quintero is a<br />
professional mountaineer<br />
who lost part of both feet to<br />
frostbite. Eleven years after<br />
his operation, Santiago<br />
became the first double<br />
amputee to summit Everest.<br />
He’s also summited seven of<br />
the Himalayas’ 14 26,000-<br />
foot peaks and all 15<br />
19,500-foot Bolivian peaks.<br />
<strong>ROMP</strong> is proud to sponsor<br />
Santiago with custom<br />
prostheses so that his<br />
inspirational approach to<br />
disability and life can be<br />
shared with the world.<br />
Vairo<br />
Vairo Chavez came to <strong>ROMP</strong><br />
in 2006 in need of<br />
prostheses for both his<br />
legs—and later was hired to<br />
build the Loren J. Mallon<br />
Centro de Rehabilitación,<br />
<strong>ROMP</strong>’s primary patient care<br />
facility in Guatemala. Vairo<br />
went on to earn his law<br />
degree and is currently an<br />
attorney in Guatemala City.<br />
His story is <strong>ROMP</strong>’s model in<br />
action: provide excellent<br />
patient care based on need,<br />
invest in local talent, and<br />
watch patients unlock their<br />
true potential.<br />
7
MODEL<br />
Component Collection<br />
• Donations from individuals and manufacturers<br />
• Collection sites in Denver, Chicago, Boston and Nashville<br />
• Need-based purchases<br />
Patient Care<br />
• Loren J. Mallon Centro de Rehabilitación in<br />
Zacapa, Guatemala<br />
• US patient care via medical partners in Boston,<br />
Chicago, Denver, Forth Worth, San Antonio<br />
• Mobile prosthetic clinics in Chiapas, Mexico<br />
• High-impact and running prosthesis programs in<br />
Quito, Ecuador<br />
Device Research<br />
• Locally-staffed 3D printer makerlab in Ecuador and Guatemala<br />
• Research partnerships with academic partners<br />
All amputees deserve the best care possible. We refurbish<br />
donated components, purchase new components, and even invent<br />
components—whatever it takes to get our patients what they need.<br />
8
VISION<br />
Prosthetic limbs and orthotic braces are<br />
not simply medical devices, but<br />
instruments of personal empowerment.<br />
We believe in equal access to prosthetic and<br />
orthotic services that facilitate independence<br />
through mobility.<br />
We recognize the dual hardships of living in<br />
poverty with a disability, and stand in solidarity<br />
with those who are made to suffer from an unequal<br />
distribution of care.<br />
We understand that disability is caused by<br />
broken devices and broken healthcare systems—not<br />
broken bodies. We work to increase the mobility,<br />
visibility, and dignity of all those marginalized by<br />
lack of access to rehabilitative technology.<br />
9
STRATEGY<br />
All <strong>ROMP</strong>’s efforts are directed toward maximizing<br />
value for our patients. We reach that goal through a<br />
three-pronged strategy of clinical care, local investment,<br />
and advocacy.<br />
Quality Clinical Care<br />
• Provide medical care based on medical need, not cost<br />
• Apply evidence-based standards that offer the best patient outcomes<br />
• Develop and distribute high-quality technologies at low cost<br />
Local Investment<br />
• Train and employ local practitioners to provide services<br />
• Strengthen local health systems through strategic partnerships<br />
• Stimulate development through buying and hiring locally<br />
Advocacy<br />
• Raise public awareness of global lack of prosthetic and orthotic care<br />
• Enable those with disabilities to redefine their human potential<br />
• Connect people of all backgrounds in a common cause: mobility<br />
<strong>10</strong>
IMPACT<br />
$5,<strong>10</strong>0,000<br />
$1,082,065<br />
2,483<br />
$435<br />
VALUE OF IN-KIND<br />
DONATIONS SINCE 2005<br />
REVENUE RAISED<br />
SINCE 2005<br />
DEVICES DELIVERED<br />
SINCE 2005<br />
COST PER<br />
DEVICE DELIVERED<br />
5,394<br />
4% ABOVE ELBOW<br />
4% BELOW ELBOW<br />
TOTAL PATIENT VISITS<br />
SINCE 2005<br />
66% ABOVE KNEE<br />
26% BELOW KNEE<br />
ECUADOR<br />
(280 PATIENTS)<br />
GUATEMALA<br />
(2013 PATIENTS)<br />
UNITED STATES<br />
(190 PATIENTS)<br />
11
CULTURE<br />
<strong>ROMP</strong> is a mobility organization.<br />
Mobility has multiple meanings for our work. In helping our patients<br />
achieve physical mobility, we endeavor to help them move to greater<br />
economic security. This dual concept forms the heart of <strong>ROMP</strong>’s<br />
mission, and is at the core of our organizational culture.<br />
1<br />
2<br />
3<br />
4<br />
5<br />
Patients first Patient need is greater than everything else.<br />
Speed wins The quicker we move, the quicker our patients<br />
get moving. It’s that simple.<br />
Endurance Beyond mountains, there are more mountains.<br />
Our team is gritty, entrepreneurial, and dedicated to turning<br />
our vision into a reality, no matter how long it takes.<br />
Flexibility Obstacles should be avoided when possible and<br />
tackled when necessary. We’re nimble and strong enough to<br />
do both, and smart enough to know the difference.<br />
Progress Conventional problems can be solved by<br />
unconventional solutions. We invest in technology because<br />
our patients deserve the very best care, even if we have to<br />
invent it ourselves.
TEAM<br />
<strong>ROMP</strong> GLOBAL<br />
Our team is lean on cost, not on impact<br />
1<br />
Full-Time Staff<br />
3<br />
Volunteer Staff<br />
<strong>ROMP</strong> GUATEMALA<br />
Local clinicians—the people closest to<br />
their communities—serve <strong>ROMP</strong> patients<br />
7<br />
Full-Time<br />
Clinical Staff<br />
13
PARTNERS<br />
United States<br />
FUNDING<br />
Louis M. Berkowitz<br />
Foundation<br />
Grand Challenges Canada<br />
Libertyville Noon<br />
Rotary Club<br />
Manaaki Foundation<br />
Scheck and Siress<br />
TripAdvisor Foundation<br />
IN-KIND<br />
Barr Foundation<br />
Ossur Americas<br />
SalesForce Foundation<br />
Google.org<br />
INSTITUTIONAL<br />
Advanced Orthotic and<br />
Prosthetic Solutions<br />
A Step Ahead Prosthetics<br />
Bulow Orthotic and<br />
Prosthetic Solutions<br />
Northwestern University<br />
Prosthetic and Orthotic<br />
Center<br />
Olive Media<br />
Scheck and Siress<br />
Guatemala<br />
FUNDING<br />
Office of the First Lady<br />
IN-KIND<br />
Hospitál Regional de Zacapa<br />
INSTITUTIONAL<br />
Partners In Health<br />
(Compañeros en Salud)<br />
Hearts in Motion<br />
Wuqu Kuwaq -<br />
Mayan Health Alliance<br />
Universidad Mariano Galvez<br />
University of Victoria<br />
Ecuador<br />
FUNDING<br />
United States Embassy<br />
IN-KIND<br />
Protéus<br />
INSTITUTIONAL<br />
Duke University -<br />
DukeEngage Program<br />
University of Illinois<br />
Fundación Hermano Miguel<br />
14
Our volunteers and donors (some of whose handprints are<br />
featured here at our Guatemalan clinic) are the power behind <strong>ROMP</strong>.<br />
THANK YOU<br />
FOR YOUR GENEROSITY AND SUPPORT<br />
15
<strong>ROMP</strong> USA<br />
601 E. HAMPDEN AVE. STE. 250<br />
ENGLEWOOD, CO 80113<br />
<strong>ROMP</strong> GUATEMALA<br />
HOSPITAL REGIONAL DE ZACAPA<br />
+502 7941 0968<br />
<strong>ROMP</strong>.GUATEMALA@<strong>ROMP</strong>GLOBAL.ORG<br />
<strong>ROMP</strong> ECUADOR<br />
FOCH 265 Y 6 DE DICIEMBRE,<br />
EDIFICIO SONELSA, 1ER PISO<br />
<strong>ROMP</strong>.ECUADOR@<strong>ROMP</strong>GLOBAL.ORG<br />
1<br />
LET’S KEEP IN TOUCH<br />
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