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ROMP 10 Year Impact Report

A decade of dedication

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2015 IMPACT REPORT<br />

A DECADE OF DEDICATION


mo-bil-i-ty (n.)<br />

• The quality or state of being mobile<br />

• The movement of a people,<br />

as from one social class or level to another<br />

<strong>ROMP</strong> is a mobility organization.


CONTENTS<br />

Founders’ Message ............................................................. 4<br />

Story ......................................................................... 5<br />

Challenge . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 6<br />

Patients ....................................................................... 7<br />

Model . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 8<br />

Vision ........................................................................ 9<br />

Strategy ..................................................................... <strong>10</strong><br />

<strong>Impact</strong> . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 11<br />

Culture. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 12<br />

Team ........................................................................ 13<br />

Partners . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 14<br />

Thanks . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 15<br />

3


FOUNDERS’<br />

MESSAGE<br />

To Our Loyal Supporters,<br />

A lot has changed in the decade since <strong>ROMP</strong> was born, but our<br />

guiding principles remain the same. We believe every patient’s<br />

needs and goals override the socioeconomic constraints in which<br />

they live. We believe that amputees are not disabled because<br />

they’re missing a limb but because they’re missing a prosthesis.<br />

Empowerment through mobility has always been our goal. In our<br />

first <strong>10</strong> years, we grew to more fully understand what<br />

empowerment and mobility mean to our patients’ lives. We<br />

watched as Julexy inspired a generation of Ecuadorians to<br />

question their own understanding of beauty and disability. We<br />

helped amputee mountaineer Santiago summit all 6,000-meter<br />

Bolivian peaks in 60 days. We provided prostheses to Vairo, hired<br />

him to build our clinic in Guatemala, then saluted him as he<br />

returned to law school. We coordinated clinicians and inventors<br />

from world-class institutions and universities to provide care and develop new technologies for all<br />

our patients.<br />

Thank you for the part you’ve played in the substantial impact we’ve already made. <strong>ROMP</strong> exists<br />

because of a global need, yet we couldn’t move ahead without your generosity. Our organization<br />

is growing fast and we need forward-thinking partners who want to join us in empowering others<br />

through mobility. Please continue supporting <strong>ROMP</strong>— and connect us with others like you who<br />

believe that mobility is a powerful force for social change.<br />

We are all in this together,<br />

David Krupa and Eric Neufeld<br />

4


STORY<br />

Loren J. Mallon Centro de Rehabilitación,<br />

a full-service orthotic and prosthetic<br />

clinic and fabrication center,<br />

is constructed in Zacapa, Guatemala<br />

David Krupa, Eric Neufeld,<br />

and Josh Kaplan<br />

establish and incorporate<br />

Range of Motion Project<br />

<strong>10</strong>00th patient fit with prosthesis<br />

2005<br />

2006 2007<br />

20<strong>10</strong> 2011<br />

2013 2014<br />

Full-time operations begin<br />

in Zacapa, Guatemala<br />

<strong>ROMP</strong> begins<br />

treating underserved patients<br />

in the United States<br />

<strong>ROMP</strong> expands mobile clinics to Chiapas, Mexico<br />

First artificial hands are printed with<br />

academic research partners<br />

3D printing labs are created<br />

in Guatemala and Ecuador<br />

Office opened in Quito, Ecuador<br />

Mobile prosthetic clinic makes first trip in Guatemala<br />

2000th patient fit with prosthesis<br />

5


CHALLENGE<br />

Poverty<br />

Disability<br />

80%<br />

OF AMPUTEES LIVE<br />

IN LOW-INCOME COUNTRIES<br />

2%<br />

HAVE ACCESS TO CARE<br />

Vulnerability<br />

Amputees are not disabled by a missing limb, but by a missing prosthesis.<br />

6


PATIENTS<br />

Julexy<br />

Julexy founded the Bionic<br />

Fashion Show, in which<br />

youths proudly display their<br />

prostheses on the runway. It’s<br />

now an annual event in<br />

multiple Latin American<br />

countries. Before she lost her<br />

life to osteosarcoma, Julexy<br />

was named beauty queen of<br />

her hometown, the first<br />

amputee in Ecuador to earn<br />

the title. Though <strong>ROMP</strong><br />

provided her prosthesis,<br />

Julexy provided constant<br />

inspiration. Her spirit truly<br />

exemplified empowerment<br />

through mobility.<br />

Santiago<br />

Santiago Quintero is a<br />

professional mountaineer<br />

who lost part of both feet to<br />

frostbite. Eleven years after<br />

his operation, Santiago<br />

became the first double<br />

amputee to summit Everest.<br />

He’s also summited seven of<br />

the Himalayas’ 14 26,000-<br />

foot peaks and all 15<br />

19,500-foot Bolivian peaks.<br />

<strong>ROMP</strong> is proud to sponsor<br />

Santiago with custom<br />

prostheses so that his<br />

inspirational approach to<br />

disability and life can be<br />

shared with the world.<br />

Vairo<br />

Vairo Chavez came to <strong>ROMP</strong><br />

in 2006 in need of<br />

prostheses for both his<br />

legs—and later was hired to<br />

build the Loren J. Mallon<br />

Centro de Rehabilitación,<br />

<strong>ROMP</strong>’s primary patient care<br />

facility in Guatemala. Vairo<br />

went on to earn his law<br />

degree and is currently an<br />

attorney in Guatemala City.<br />

His story is <strong>ROMP</strong>’s model in<br />

action: provide excellent<br />

patient care based on need,<br />

invest in local talent, and<br />

watch patients unlock their<br />

true potential.<br />

7


MODEL<br />

Component Collection<br />

• Donations from individuals and manufacturers<br />

• Collection sites in Denver, Chicago, Boston and Nashville<br />

• Need-based purchases<br />

Patient Care<br />

• Loren J. Mallon Centro de Rehabilitación in<br />

Zacapa, Guatemala<br />

• US patient care via medical partners in Boston,<br />

Chicago, Denver, Forth Worth, San Antonio<br />

• Mobile prosthetic clinics in Chiapas, Mexico<br />

• High-impact and running prosthesis programs in<br />

Quito, Ecuador<br />

Device Research<br />

• Locally-staffed 3D printer makerlab in Ecuador and Guatemala<br />

• Research partnerships with academic partners<br />

All amputees deserve the best care possible. We refurbish<br />

donated components, purchase new components, and even invent<br />

components—whatever it takes to get our patients what they need.<br />

8


VISION<br />

Prosthetic limbs and orthotic braces are<br />

not simply medical devices, but<br />

instruments of personal empowerment.<br />

We believe in equal access to prosthetic and<br />

orthotic services that facilitate independence<br />

through mobility.<br />

We recognize the dual hardships of living in<br />

poverty with a disability, and stand in solidarity<br />

with those who are made to suffer from an unequal<br />

distribution of care.<br />

We understand that disability is caused by<br />

broken devices and broken healthcare systems—not<br />

broken bodies. We work to increase the mobility,<br />

visibility, and dignity of all those marginalized by<br />

lack of access to rehabilitative technology.<br />

9


STRATEGY<br />

All <strong>ROMP</strong>’s efforts are directed toward maximizing<br />

value for our patients. We reach that goal through a<br />

three-pronged strategy of clinical care, local investment,<br />

and advocacy.<br />

Quality Clinical Care<br />

• Provide medical care based on medical need, not cost<br />

• Apply evidence-based standards that offer the best patient outcomes<br />

• Develop and distribute high-quality technologies at low cost<br />

Local Investment<br />

• Train and employ local practitioners to provide services<br />

• Strengthen local health systems through strategic partnerships<br />

• Stimulate development through buying and hiring locally<br />

Advocacy<br />

• Raise public awareness of global lack of prosthetic and orthotic care<br />

• Enable those with disabilities to redefine their human potential<br />

• Connect people of all backgrounds in a common cause: mobility<br />

<strong>10</strong>


IMPACT<br />

$5,<strong>10</strong>0,000<br />

$1,082,065<br />

2,483<br />

$435<br />

VALUE OF IN-KIND<br />

DONATIONS SINCE 2005<br />

REVENUE RAISED<br />

SINCE 2005<br />

DEVICES DELIVERED<br />

SINCE 2005<br />

COST PER<br />

DEVICE DELIVERED<br />

5,394<br />

4% ABOVE ELBOW<br />

4% BELOW ELBOW<br />

TOTAL PATIENT VISITS<br />

SINCE 2005<br />

66% ABOVE KNEE<br />

26% BELOW KNEE<br />

ECUADOR<br />

(280 PATIENTS)<br />

GUATEMALA<br />

(2013 PATIENTS)<br />

UNITED STATES<br />

(190 PATIENTS)<br />

11


CULTURE<br />

<strong>ROMP</strong> is a mobility organization.<br />

Mobility has multiple meanings for our work. In helping our patients<br />

achieve physical mobility, we endeavor to help them move to greater<br />

economic security. This dual concept forms the heart of <strong>ROMP</strong>’s<br />

mission, and is at the core of our organizational culture.<br />

1<br />

2<br />

3<br />

4<br />

5<br />

Patients first Patient need is greater than everything else.<br />

Speed wins The quicker we move, the quicker our patients<br />

get moving. It’s that simple.<br />

Endurance Beyond mountains, there are more mountains.<br />

Our team is gritty, entrepreneurial, and dedicated to turning<br />

our vision into a reality, no matter how long it takes.<br />

Flexibility Obstacles should be avoided when possible and<br />

tackled when necessary. We’re nimble and strong enough to<br />

do both, and smart enough to know the difference.<br />

Progress Conventional problems can be solved by<br />

unconventional solutions. We invest in technology because<br />

our patients deserve the very best care, even if we have to<br />

invent it ourselves.


TEAM<br />

<strong>ROMP</strong> GLOBAL<br />

Our team is lean on cost, not on impact<br />

1<br />

Full-Time Staff<br />

3<br />

Volunteer Staff<br />

<strong>ROMP</strong> GUATEMALA<br />

Local clinicians—the people closest to<br />

their communities—serve <strong>ROMP</strong> patients<br />

7<br />

Full-Time<br />

Clinical Staff<br />

13


PARTNERS<br />

United States<br />

FUNDING<br />

Louis M. Berkowitz<br />

Foundation<br />

Grand Challenges Canada<br />

Libertyville Noon<br />

Rotary Club<br />

Manaaki Foundation<br />

Scheck and Siress<br />

TripAdvisor Foundation<br />

IN-KIND<br />

Barr Foundation<br />

Ossur Americas<br />

SalesForce Foundation<br />

Google.org<br />

INSTITUTIONAL<br />

Advanced Orthotic and<br />

Prosthetic Solutions<br />

A Step Ahead Prosthetics<br />

Bulow Orthotic and<br />

Prosthetic Solutions<br />

Northwestern University<br />

Prosthetic and Orthotic<br />

Center<br />

Olive Media<br />

Scheck and Siress<br />

Guatemala<br />

FUNDING<br />

Office of the First Lady<br />

IN-KIND<br />

Hospitál Regional de Zacapa<br />

INSTITUTIONAL<br />

Partners In Health<br />

(Compañeros en Salud)<br />

Hearts in Motion<br />

Wuqu Kuwaq -<br />

Mayan Health Alliance<br />

Universidad Mariano Galvez<br />

University of Victoria<br />

Ecuador<br />

FUNDING<br />

United States Embassy<br />

IN-KIND<br />

Protéus<br />

INSTITUTIONAL<br />

Duke University -<br />

DukeEngage Program<br />

University of Illinois<br />

Fundación Hermano Miguel<br />

14


Our volunteers and donors (some of whose handprints are<br />

featured here at our Guatemalan clinic) are the power behind <strong>ROMP</strong>.<br />

THANK YOU<br />

FOR YOUR GENEROSITY AND SUPPORT<br />

15


<strong>ROMP</strong> USA<br />

601 E. HAMPDEN AVE. STE. 250<br />

ENGLEWOOD, CO 80113<br />

<strong>ROMP</strong> GUATEMALA<br />

HOSPITAL REGIONAL DE ZACAPA<br />

+502 7941 0968<br />

<strong>ROMP</strong>.GUATEMALA@<strong>ROMP</strong>GLOBAL.ORG<br />

<strong>ROMP</strong> ECUADOR<br />

FOCH 265 Y 6 DE DICIEMBRE,<br />

EDIFICIO SONELSA, 1ER PISO<br />

<strong>ROMP</strong>.ECUADOR@<strong>ROMP</strong>GLOBAL.ORG<br />

1<br />

LET’S KEEP IN TOUCH<br />

<strong>ROMP</strong>GLOBAL.ORG • INFO@<strong>ROMP</strong>GLOBAL.ORG • @<strong>ROMP</strong>NEWS • FACEBOOK.COM/<strong>ROMP</strong>GLOBAL

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