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The Commonwealth Medical Law Society<br />
Ethical Guidelines<br />
Part A: An introduction to medical ethics in the Commonwealth<br />
1. An introduction to the common law.<br />
2. Medical law in the Commonwealth.<br />
3. The medical practitioner as a professional.<br />
4. The exercise of judgment.<br />
5. Obligations regarding legal or disciplinary proceedings.<br />
6. The relationship of trust.<br />
8. Partnerships with patients.
7. Communicating information.<br />
Part B: Medical professionalism and the physician-patient relationship.<br />
The qualities of the physician as a professional.<br />
The relationship between physician and patient. Patient rights and the doctor-patient<br />
relationship. The relationship of trust Consent to treatment.<br />
Exceptions to informed consent by competent patients. Decision-making for<br />
mentally incompetent patients.<br />
Medical confidentiality.<br />
Exceptions to the duty of confidentiality.<br />
Disclosures required by law<br />
Disclosures to the healthcare team.<br />
Disclosures in the public interest.<br />
Disclosures made to protect the patient Disclosures made to protect others.<br />
Disclosures about patients who lack capacity to consent<br />
Sharing information with a patient's partner, carers, relatives or friends Genetic and<br />
other shared information.<br />
Disclosure after a patient's death<br />
Interprofessionalism.<br />
The practitioner’s duty to the courts and the legal process.
Part C: The maintenance of professional standards: knowledge, skills and<br />
performance.<br />
Develop and maintain your professional performance.<br />
Record your work clearly.<br />
Respond to risks to safety.<br />
Honesty Honesty in financial dealings<br />
Consent<br />
Consent to treatment.<br />
Exceptions to informed consent by competent patients.<br />
Decision-making for mentally incompetent patients.<br />
The patient’s best interests.<br />
Medical confidentiality.<br />
5. The general duty to respect confidentiality.<br />
a. Disclosures required by law.<br />
6. Consent to disclosure of information.<br />
a. Circumstances in which patients may give implied consent to<br />
disclosure.<br />
b. Disclosures for which express consent should be sought.<br />
c. Disclosures in the public interest.<br />
7. Disclosures to protect the patient.
8. Disclosures to protect others.<br />
9. Disclosures about patients who lack capacity to consent.<br />
10. Sharing information with a patient's partner, carers, relatives or friends.<br />
11. Genetic and other shared information<br />
12. Disclosure after a patient's death<br />
13.<br />
Part A: An introduction to medical ethics in the Commonwealth<br />
8. An introduction to the common law.<br />
One third of the world's population (approximately 2.3 billion people) live in<br />
common law jurisdictions or in systems mixed with civil law. Common law<br />
originated during the Middle Ages in England, and from there was propagated to the<br />
colonies of the British Empire, including India, the United States, Pakistan, Nigeria,<br />
Bangladesh, Canada and all its provinces (except Quebec), Malaysia, Ghana,<br />
Australia, Sri Lanka, Hong Kong, Singapore, Burma, Ireland, New Zealand,<br />
Jamaica, Trinidad and Tobago, Cyprus, Barbados, South Africa, Zimbabwe,<br />
Cameroon, Namibia, Liberia, Sierra Leone, Botswana, Guyana, and Fiji. 1<br />
1<br />
For a full list of Commonwealth member states, see Appendix A.
The common law forms the basis of the legal systems of most states in the<br />
Commonwealth, formally known as the Commonwealth of Nations, which is made<br />
up of 53 member states united by language, history, culture, and their shared values<br />
of democracy, human rights, and the rule of law.<br />
The Commonwealth dates back to the mid-20th century with the decolonisation of<br />
the British Empire through increased self-governance of its territories. The<br />
Commonwealth was formally constituted by the London Declaration in 1949, which<br />
established the member states as "free and equal". The Commonwealth covers more<br />
than 29,958,050 km2 (11,566,870 sq mi), almost a quarter of the world land area,<br />
and spans all continents. The Commonwealth in 2014 produced a nominal gross<br />
domestic product (GDP) of $10.45 trillion, representing 17% of the gross world<br />
product when measured in purchasing power parity (PPP) and 14% of the gross<br />
world product when measured nominally.<br />
9. Medical law in the Commonwealth.<br />
Although there are marked similarities between the legal systems of the<br />
Commonwealth countries, each jurisdiction has developed its own principles and<br />
structures. The specific legal principles therefore vary from one country to the next.<br />
However, a good deal of common ground exists. This is becoming increasingly so<br />
as the effects of information technology make their impact felt. The Ethical<br />
Guidelines are a collection of principles which reflect a broad international<br />
consensus on the applicable principles governing medical law, seen through the lens<br />
of the foundational values of the Commonwealth: the promotion of democracy and<br />
development, commitment to democracy, good governance, human rights, gender<br />
equality, and a more equitable sharing of the benefits of globalisation.
Due to the multinational character of the duties and principles contained in the<br />
Ethical Guidelines, the expression “the practitioner should” is frequently used. This<br />
reflects the guidance as a set of foundational principles which supplement and<br />
inform the applicable national principles. Practitioners should ensure that they<br />
understand the legal principles which apply in their country, and should use these<br />
guidelines as supplementary to those legal principles. Whenever in any doubt, proper<br />
legal advice and, if necessary, representation should be obtained.<br />
10. The medical practitioner as a professional.<br />
10.1. The practitioner should make the care of their patients their first concern.<br />
10.2. Patients must be able to trust doctors with their lives and health. To justify<br />
that trust the practitioner must show respect for the rights of the patients,<br />
colleagues and other parties, and ensure that their practice meets the standards<br />
of competence of the reasonable medical practitioner.<br />
Practitioners should ensure that they are competent, keep their knowledge and<br />
skills up to date, establish and maintain good relationships with patients and<br />
colleagues, respect the rights of pateients, are honest and trustworthy, and act<br />
with integrity and within the law.<br />
11. The exercise of judgement.<br />
11.1. The proper practise of medicine requires that practitioners use their judgement<br />
in applying ethical and legal principles to a variety of situations.
11.2. The exercise of judgement is an integral part of the practitioner’s professional<br />
duties, whatever field of medicine the practitioner works in, and regardless of<br />
whether the practitioner routinely sees patients.<br />
11.3. The practitioner should exercise their judgement:<br />
11.3.1. in accordance with what the reasonable medical practitioner in the<br />
particular branch of the profession would do; and<br />
11.3.2. with due regard for and consideration of the rights of others.<br />
11.4. The practitioner should be able to provide a rationally defensible explanation<br />
for any decision made, based on the criteria referred to in paragraph 5.3.<br />
12. Obligations regarding legal or disciplinary proceedings.<br />
12.1. Practitioners should be honest and trustworthy when giving evidence to courts<br />
or tribunals and that any evidence you give or documents you write or sign<br />
are not false or misleading.<br />
12.2. Practitioners should take reasonable steps to ensure that any information<br />
provided is accurate, reliable and complete.<br />
12.3. Practitioners should co-operate with formal inquiries and complaints<br />
procedures and must offer all relevant information while ensuring that the<br />
confidentiality of personal information is respected.
12.4. Practitioner should make clear the limits of their competence and knowledge<br />
when giving evidence or acting as a witness.<br />
13. The relationship of trust.<br />
13.1. As professionals, practitioners should ensure that their conduct justifies and<br />
contributes to the patient’s trust in the individual practitioner and the public’s<br />
trust in the profession as a whole.<br />
13.2. Practitioners should at all times demonstrate competence, honesty and<br />
integrity in the practise of their profession.<br />
13.3. Practitioners should at all times show respect for their patients, and should<br />
not:<br />
13.3.1. express their personal beliefs (including political, religious and moral<br />
beliefs) to patients in ways that exploit the patient’s vulnerability or are<br />
likely to cause them distress.<br />
13.3.2. use their professional position to pursue a sexual or improper<br />
emotional relationship with a patient or someone close to them.<br />
14. Partnerships with patients.<br />
Practitioners should strive to work in partnership with patients. This should include<br />
providing such information as will enable the patient to make decisions about their<br />
care, respecting the confidentiality of the patient’s personal information, supporting
patients in caring for themselves and improving and maintaining their health, and<br />
working with patients to serve their best interests.<br />
Practitioners should listen to patients, encourage patients to share their views, and<br />
respond honestly to patients’ questions.<br />
Information should be provided to patients in a way that they can understand. The<br />
practitioner should take reasonable steps to meet patients’ language, communication<br />
and cultural needs.<br />
Practitioners must provide support to those close to the patient and be sensitive and<br />
responsive in their dealings with them, while respecting the rights of the patient.<br />
Written documents (including clinical records) should be clear, accurate and legible.<br />
Written records of events should be made as soon as reasonably after such events.<br />
Clinical records should include:<br />
a) relevant clinical findings<br />
b) the decisions made and actions agreed, and who is making the decisions and<br />
agreeing the actions<br />
c) the information given to patients<br />
d) any drugs prescribed or other investigation or treatment<br />
e) who is making the record and when.<br />
8. Communicating information.
i. The practitioner should show reasonable skill, care and diligence when<br />
communicating in writing, such as when writing reports, medical notes,<br />
prescriptions and any other document.<br />
ii.<br />
The practitioner should take reasonable steps to ensure that any information<br />
given is accurate and reliable.<br />
iii.<br />
The practitioner should not leave out relevant information, whether<br />
deliberately or through oversight.<br />
iv.<br />
The practitioner should indicate the limits of his or her knowledge when<br />
communicating information to patients.<br />
1. Part B: Medical professionalism and the physician-patient relationship.<br />
1. The qualities of the physician as a professional.<br />
1.1. The physician is expected to display a standard of skill, care and diligence<br />
in practising his or her profession which is in keeping with the standard of<br />
the ordinary skilled person in that particular branch of the profession.<br />
1.2. The physician need not possess the highest expert level of skill.<br />
1.3. The physician is judged according to the standard of the ordinary<br />
practitioner in the particular field under consideration. That means that<br />
specialists may be judged according to a higher level of skill than<br />
generalists.
1.4. The level of experience of the practitioner is ordinarily irrelevant to the<br />
determination of whether the physician complied with the standard of the<br />
ordinary practitioner. However, where the inexperienced practitioner seeks<br />
advice or consults with a more experienced colleague, this will very often<br />
result in the conduct being regarded as complying with the necessary<br />
standard.<br />
2. The relationship between physician and patient.<br />
The relationship between physician and patient has undergone a profound change in<br />
the last few decades, and seems set to continue. The traditional emphasis on the<br />
physician’s judgment to the exclusion of patients’ involvement has given way to an<br />
approach where the autonomy and self-determination of the patient is playing an<br />
increasing role. In many countries, the law is placing an increasing emphasis on the<br />
rights of patients to be involved in the process, and traditional deference to the<br />
physician is being replaced by a balancing of rights and duties between physician<br />
and patient.<br />
3. Patient rights and the doctor-patient relationship.<br />
3.1. Practitioners should at all times honour patients’ rights, treat patients<br />
with respect, and honour the patient’s dignity and privacy.<br />
3.2. Practitioners should not discriminate against or victimize a person in<br />
relation to the terms on which the health service is provided on any<br />
arbitrary ground such as religion, gender, race, sex, pregnancy, marital
status, ethnic or social origin, colour, sexual orientation, age, disability,<br />
conscience, belief, culture or language.<br />
4. The relationship of trust.<br />
5. Consent to treatment.<br />
5.1. The physician should respect the patients’ right to self-determination,<br />
that is, their right to make their own decisions. The patient has the right<br />
to such information as is reasonably necessary to make such decisions.<br />
5.2. Physicians should not be compelled to provide treatment against their<br />
clinical judgment.<br />
5.3. Seeking a patient’s consent to disclosure of information shows respect,<br />
and is part of good communication between doctors and patients. The<br />
patient should understand clearly the purpose of any test or treatment,<br />
what the results would mean, and the implications of withholding<br />
consent.<br />
5.4. A mentally competent adult person has the right to give or withhold<br />
consent to any diagnostic procedure or therapy, even where such refusal<br />
may result in the patient’s disability or death.<br />
5.5. Effective communication is essential to obtaining informed consent.<br />
Patients should be given the information they want or need to know in<br />
a way that they can understand. Reasonable arrangements should be
made to meet the patient’s language or communication needs. Maintain<br />
record-keeping. Record your work clearly, accurately and legibly.<br />
5.6. On-duty physicians should be accessible to patients and colleagues<br />
seeking information, advice or support.<br />
6. Exceptions to informed consent by competent patients.<br />
Practitioners should encourage the patient to make their own decisions and should<br />
be reluctant to accept the authority to make such decisions. Where this is<br />
unavoidable, the decision should be made in the patient’s overall best interests.<br />
6.1. Where the patient voluntarily gives authority to the practitioner or a third party<br />
to make a decision.<br />
6.2. Where disclosure of information could cause harm to the patient, the concept<br />
of therapeutic privilege may allow the physician to withhold medical<br />
information. The privilege is potentially open to abuse and should only be<br />
relied on in extreme circumstances.<br />
7. Decision-making for mentally incompetent patients.<br />
7.1. In certain circumstances, patients are not competent to make legally valid<br />
decisions. Examples of such patients are young children, individuals affected<br />
by certain psychiatric or neurological conditions and patients which are<br />
unconscious or comatose.<br />
7.2. Proxy consent should be obtained from a legally authorized substituted<br />
decision-maker.
7.3. Where the consent of a substituted decision-maker is not possible,<br />
consideration should always be given to obtaining the authority of a court.<br />
Where the situation is one of such urgency that to obtain such authority would<br />
result in harm to the patient. In these narrow circumstances, a decision in<br />
accordance with the best interests of the patient must be made.<br />
7.4. In the event of conflict between parties claiming to be substitute decisionmakers,<br />
or in the event that the substitute decision-maker and the practitioner<br />
disagree as to the best interests of the patient, the authority of a court should<br />
be obtained.<br />
7.5. The principles applicable to informed consent (discussed at paragraph) are<br />
equally applicable to substituted decision-making.<br />
7.6. The physician should strive to give effect to the patient’s wishes where these<br />
are known, such as when an advance directive has been given, or the patient’s<br />
wishes have been communicated to the substituted decision-maker.<br />
8. Medical confidentiality.<br />
8.1. The general duty to respect confidentiality. The physician should respect a<br />
patient's right to confidentiality, and is under a duty to not to disclose, without<br />
the consent of the patient, information which the physician has gained in his<br />
or her professional capacity.
8.2. Confidentiality is central to the relationship between practitioners and patients<br />
in that:-<br />
8.2.1. it accords with the principle that physicians should respect the rights of<br />
their patients, particularly their right to self-determination; and<br />
8.2.2. it promotes a relationship of trust between practitioner and patient and<br />
encourages patients to share information which is necessary for good<br />
medical care.<br />
8.2.3. Many regulatory bodies have codes of practice governing how they will<br />
access and use personal information, and practitioners should have<br />
knowledge of and comply with these codes.<br />
8.3. It is recognised that appropriate information-sharing is essential to the<br />
efficient provision of safe, effective care for the patient and the broader<br />
community. Such information-sharing should occur on the following basis:<br />
8.3.1. The general approach should be that such information should only be<br />
shared with the consent of the patient. and reasonable steps to ensure<br />
that the patient is properly advised should be taken.<br />
8.3.2. Reasonable attempts should be made to advise patients of the extent to<br />
which information will be shared and, in particular:<br />
(a) whether their personal information may be disclosed only for the<br />
sake of their own care within the healthcare team, or
(b) whether the information will be disclosed for any other purpose.<br />
8.4. The patient should be specifically advised of:<br />
8.4.1. disclosure of information for purposes which they may not reasonably<br />
expect or<br />
8.4.2. which are made for reasons other than their own care, such as service<br />
planning or medical research.<br />
8.5. Practitioners should be alert not to disclose information unintentionally, and<br />
care should be taken about unintentionally disclosing information in a public<br />
setting, or where access to information can be obtained by third parties (such<br />
as codewords or patient files). Practitioners should bear in mind that<br />
communications made in the social media or which are intended for friends<br />
or family are subject to the same rule regarding confidentiality.<br />
8.6. When communicating publicly, including speaking to or writing in the media,<br />
you must maintain patient confidentiality.<br />
8.7. Patient records or other patient information should be stored securely.<br />
8.8. Exceptions to the duty of confidentiality.<br />
Although confidentiality is an important duty, it is not absolute. Appropriate<br />
information-sharing is essential to the efficient provision of safe, effective care, both<br />
for the individual patient and for the wider community of patients.
8.9. Personal information can be disclosed if:<br />
8.9.1. it is required by law.<br />
8.9.2. the patient implicitly or expressly consents. As a general rule, such<br />
consent may be made:<br />
8.9.2.1. implicitly for the sake of their own care;<br />
8.9.2.2. expressly for other purposes.<br />
8.9.3. it is justified in the public interest.<br />
8.10. It is recommended that even where such circumstances exist, information<br />
about a patient is anonymised or coded information wherever possible.<br />
8.11. Disclosures required by law<br />
8.11.1. In certain circumstances, practitioners are obliged to disclose<br />
information to satisfy a specific statutory or legal requirement, such as<br />
provisions relating to notification of a known or suspected case of<br />
certain infectious diseases.<br />
8.11.2. Where such circumstances appear to exist, reasonable steps should be<br />
taken to ensure that any such disclosure is in fact required by law.
8.11.3. It is generally desirable that patients are informed about such<br />
disclosures even if their consent is not required. However, it is not<br />
necessary to provide such information where that would undermine<br />
the purpose of the disclosure.<br />
8.12. Practitioners should disclose information if ordered to do so by a judge or<br />
presiding officer of a court.<br />
8.13. Practitioners should not disclose personal information to a third party such as<br />
a solicitor, police officer or officer of a court without the patient’s express<br />
consent, unless it is required by law or can be justified in the public interest.<br />
8.14. In circumstances where information is requested, but not required by law,<br />
practitioners should seek the patient’s express consent before disclosing<br />
personal information. If a patient refuses to consent, or if it is not practicable<br />
to seek their consent, the practitioner should contact the appropriate regulatory<br />
body for advice on whether the disclosure can be justified in the public<br />
interest.<br />
9. Disclosures to the healthcare team.<br />
9.1. As a general rule, practitioners should seek a patient’s express consent before<br />
disclosing identifiable information within the healthcare team or with others<br />
providing care.
9.2. The practitioner should respect the wishes of any patient who objects to<br />
particular information being shared within the healthcare team or with others<br />
providing care, unless disclosure would be justified in the public interest.<br />
9.3. If a patient objects to a disclosure that the practitioner considers essential to<br />
the provision of safe care, the practitioner should explain that the patient<br />
cannot be treated or referred without disclosing the information.<br />
9.4. The practitioner should ensure that anyone who receives personal information<br />
is aware that the information is being given in confidence, and that such<br />
person is under a duty to respect the confidentiality of the personal<br />
information.<br />
9.5. Where a patient cannot provide consent to the disclosure of information, for<br />
example in a medical emergency, the practitioner should pass on necessary<br />
and relevant information promptly to those providing the patient’s care. If and<br />
when the patient is capable of understanding, the fact tthat the information ws<br />
passed on should be disclosed to the patient.<br />
9.6. Where a practitioner is asked to provide information to third parties, such as<br />
a patient’s insurer or employer or a government department or an agency<br />
assessing a claimant’s entitlement to benefits the practitioner should:<br />
(a) be satisfied that the patient has sufficient information about the scope,<br />
purpose and likely consequences of the examination and disclosure, and<br />
that relevant information cannot be concealed or withheld.
(b) Obtain written consent to the disclosure from the patient or a person<br />
properly authorised to act on the patient’s behalf.<br />
(c) only disclose factual information you can substantiate, presented in an<br />
unbiased manner, relevant to the request. The handing over of the whole<br />
record is not generally advisable.<br />
(d) It is generally advisable to offer to show the patient, or give them a copy<br />
of, any report you write about them for employment or insurance purposes<br />
before it is sent, unless there are good reasons not to do so. Such reasons<br />
may include the fact that disclosure would be likely to cause serious harm<br />
to the patient or anyone else, or disclosure would be likely to reveal<br />
information about another person who does not consent.<br />
10. Disclosures in the public interest.<br />
10.1. In exceptional cases, personal information may be disclosed in the public<br />
interest without the patient’s consent, if the benefits to an individual or to<br />
society of the disclosure outweigh both the public and the patient’s interest in<br />
keeping the information confidential.<br />
10.2. Disclosure in the public interest may occur where it is necessary to protect<br />
individuals or society from risks of serious harm, such as serious<br />
communicable diseases or serious crime.
10.3. The patient’s consent should still be sought, unless it is not practicable to do<br />
so, or the putpose of the disclosure would be defeated.<br />
10.4. The practitioner should weigh the harms that are likely to arise from nondisclosure<br />
of information against the possible harm both to the patient, and to<br />
the overall trust between doctors and patients, arising from the release of that<br />
information.<br />
10.5. Where reasonably practicable, the information should be anonymised or<br />
coded.<br />
11. Disclosures made to protect the patient.<br />
11.1. A competent adult patient’s refusal to consent to disclosure should be<br />
respected, even if their decision leaves them, but nobody else, at risk of serious<br />
harm or death.<br />
11.2. The practitioner should take reasonable steps to provide patients with the<br />
information and support the patient needs to make decisions in their own<br />
interests, and to this end it may be appropriate for the practitioner to encourage<br />
patients to consent to disclosures which are considered necessary for the<br />
protection of the patient, and to warn the patient of the risks of refusing to<br />
consent.<br />
11.3. Disclosure without consent may be justified if it is not practicable to seek a<br />
patient’s consent.
12. Disclosures made to protect others.<br />
12.1. Disclosure of personal information about a patient without consent may be<br />
justified in the public interest if failure to disclose may expose others to a risk<br />
of death or serious harm.<br />
12.2. In such circumstances the practitioner should, if reasonably practicable, seek<br />
the patient’s consent to disclosure.<br />
12.3. The reasons for any refusal must be considered in the circumstances.<br />
12.4. The practitioner should, notwithstanding the patient’s refusal to consent,<br />
disclose the information promptly to an appropriate person or authority:<br />
12.4.1. Where a patient’s refusal to consent to disclosure leaves others<br />
exposed to a risk so serious that it outweighs the patient’s and the<br />
public interest in maintaining confidentiality, or<br />
12.4.2. if it is not practicable or safe to seek the patient’s consent.<br />
12.4. The practitioner should inform the patient before disclosing the information,<br />
if practicable and safe, even if the information will be disclosed without the<br />
patient’s consent.<br />
13. Disclosures about patients who lack capacity to consent.
13.1. When making decisions about whether to disclose information about a patient<br />
who lacks capacity, the practitioner should:<br />
(a) make the care of the patient their first concern;<br />
(b) respect the patient’s dignity and privacy; and<br />
(c) support and encourage the patient to be involved, as far as they want and are able,<br />
in decisions about disclosure of their personal information.<br />
13.2. the patient should take the following factors into consideration:<br />
(a) whether the patient's lack of capacity is permanent or temporary and, if<br />
temporary, whether the decision to disclose could reasonably wait until the<br />
patient regains capacity;<br />
(b) any evidence of the patient's previously expressed preferences;<br />
(c) the views of any person:<br />
the patient requests the practitioner to consult, or<br />
who has legal authority to make a decision on their behalf, or<br />
has been appointed to represent the patient.<br />
(d) the views of people close to the patient on the patient’s preferences, feelings,<br />
beliefs and values, and whether they consider the proposed disclosure to be in<br />
the patient's best interests, and<br />
(e) what the practitioner, in consultation with the healthcare team, know about the<br />
patient's wishes, feelings, beliefs and values.
If a patient who lacks capacity asks you not to disclose personal information about<br />
their condition or treatment, you should try to persuade them to allow an appropriate<br />
person to be involved in the consultation. If they refuse, and you are convinced that<br />
it is essential in their best interests, you may disclose relevant information to an<br />
appropriate person or authority. In such a case you should tell the patient before<br />
disclosing the information and, if appropriate, seek and carefully consider the views<br />
of an advocate or carer. You should document in the patient’s record your<br />
discussions and the reasons for deciding to disclose the information.<br />
You may need to share personal information with a patient’s relatives, friends or<br />
carers to enable you to assess the patient’s best interests. But that does not mean they<br />
have a general right of access to the patient’s records or to have irrelevant<br />
information about, for example, the patient’s past healthcare. You should also share<br />
relevant personal information with anyone who is authorised to make decisions on<br />
behalf of, or who is appointed to support and represent, a mentally incapacitated<br />
patient. Disclosures when a patient may be a victim of neglect or abuse. If you<br />
believe that a patient may be a victim of neglect or physical, sexual or emotional<br />
abuse, and that they lack capacity to consent to disclosure, you must give<br />
information promptly to an appropriate responsible person or authority, if you<br />
believe that the disclosure is in the patient’s best interests or necessary to protect<br />
others from a risk of serious harm. If, for any reason, you believe that disclosure of<br />
information is not in the best interests of a neglected or abused patient, you should<br />
discuss the issues with an experienced colleague. If you decide not to disclose<br />
information, you should document in the patient’s record your discussions and the<br />
reasons for deciding not to disclose. You should be prepared to justify your decision.<br />
A. Disclosures about patients who lack capacity to consent.
B. Sharing information with a patient's partner, carers, relatives or friends<br />
You should establish with the patient what information they want you to share,<br />
who with, and in what circumstances. This will be particularly important if the<br />
patient has fluctuating or diminished capacity or is likely to lose capacity, even<br />
temporarily. Early discussions of this nature can help to avoid disclosures that<br />
patients would object to. They can also help to avoid misunderstandings with, or<br />
causing offence to, anyone the patient would want information to be shared with.<br />
If a patient lacks capacity, you should share relevant information in accordance with<br />
the advice in paragraphs 57 to 63. Unless they indicate otherwise, it is reasonable to<br />
assume that patients would want those closest to them to be kept informed of their<br />
general condition and prognosis.<br />
If anyone close to the patient wants to discuss their concerns about the patient’s<br />
health, you should make it clear to them that, while it is not a breach of<br />
confidentiality to listen to their concerns, you cannot guarantee that you will not tell<br />
the patient about the conversation. You might need to share with a patient<br />
information you have received from others, for example, if it has influenced your<br />
assessment and treatment of the patient. You should not refuse to listen to a patient’s<br />
partner, carers or others on the basis of confidentiality. Their views or the<br />
information they provide might be helpful in your care of the patient. You will,<br />
though, need to consider whether your patient would consider you listening to the<br />
concerns of others about your patient’s health or care to be a breach of trust,<br />
particularly if they have asked you not to listen to particular people.
Genetic and other shared information.<br />
Genetic and some other information about your patient might at the same time also<br />
be information about others the patient shares genetic or other links with. The<br />
diagnosis of an illness in the patient might, for example, point to the certainty or<br />
likelihood of the same illness in a blood relative.<br />
Most patients will readily share information about their own health with their<br />
children and other relatives, particularly if they are advised that it might help those<br />
relatives to:<br />
(a) get prophylaxis or other preventative treatments or interventions<br />
(b) make use of increased surveillance or other investigations, or<br />
(c) prepare for potential health problems.<br />
However, a patient might refuse to consent to the disclosure of information that<br />
would benefit others, for example where family relationships have broken down, or<br />
if their natural children have been adopted. In these circumstances, disclosure might<br />
still be justified in the public interest (see paragraphs 36 to 56). If a patient refuses<br />
consent to disclosure, you will need to balance your duty to make the care of your<br />
patient your first concern against your duty to help protect the other person from<br />
serious harm. If practicable, you should not disclose the patient’s identity in<br />
contacting and advising others of the risks they face.<br />
Disclosure after a patient's death<br />
Your duty of confidentiality continues after a patient has died. Whether and what<br />
personal information may be disclosed after a patient’s death will depend on the<br />
circumstances. If the patient had asked for information to remain confidential, you
should usually respect their wishes. If you are unaware of any instructions from the<br />
patient, when you are considering requests for information you should take into<br />
account:<br />
(a) whether the disclosure of information is likely to cause distress to, or be of benefit<br />
to, the patient’s partner or family.<br />
(b) whether the disclosure will also disclose information about the patient’s family<br />
or anyone else<br />
(c) whether the information is already public knowledge or can be anonymised or<br />
coded, and<br />
(d) the purpose of the disclosure.<br />
There are circumstances in which, by law, you should disclose relevant information<br />
about a patient who has died.<br />
Interprofessionalism. 2<br />
The practitioner’s duty to the courts and the legal process. 3<br />
Show respect to patients and colleagues. Work collaboratively with colleagues to<br />
maintain or improve patient care. Show respect for patients.<br />
Teaching, training, supporting and assessing.<br />
The best interests of the patient.<br />
2<br />
Work collaboratively with colleagues to maintain or improve patient care.<br />
3<br />
Openness and legal or disciplinary proceedings.
Physicians should be sensitive to cultural as well as personal factors in assessing the<br />
patient’s best interests.<br />
Medical law is complex and fast-changing, and differs across the Commonwealth.<br />
Practitioners will need some understanding of the law as it applies where they<br />
practise. This guidance cannot be a substitute for up-to-date legal advice in<br />
individual cases. When in doubt as to their responsibilities, doctors should seek the<br />
advice of experienced colleagues, named or designated doctors for child protection,<br />
or professional or regulatory bodies.<br />
Children and Young People<br />
General principles<br />
1. Practitioners should be aware of the ethical and legal principles which apply<br />
to children and young people, irrespective of whether they routinely see<br />
children and young people as patients.<br />
2. Children and young people are individuals with their own rights, and<br />
practitioners should at all times protect and respect those rights. These<br />
include:<br />
a. their right to be heard, their views taken into account and their decisions<br />
respected;<br />
and<br />
b. their right to confidentiality;<br />
3. All actions taken and decisions made by a practitioner should take into<br />
account and protect, promote and respect the best interests of children and<br />
young people.<br />
4. Practitioners should recognise that children and young people are a vulnerable<br />
group, and should safeguard and protect their health, welfare and best<br />
interests.
5. Practitioners should take into account the particular emotional,<br />
communication and security needs of children and young people.<br />
6. When treating children and young people, doctors must also consider parents<br />
and others close to them; but their patient must be the doctor’s first concern.<br />
Assessing best interests.<br />
7. Practitioners who act or make decisions on behalf of a child or young person<br />
who lacks decision-making capacity must do so in the best interests of the<br />
child or young person.<br />
8. The practitioner should take all relevant circumstances, both medical and nonmedical,<br />
into account. In considering the best interests of the child or young<br />
person, the practitioner should:<br />
8.1. have regard to the child or young person as an individual with his or her<br />
own values, likes and dislikes;<br />
8.2. consider the child or young person’s best interests in a holistic way,<br />
including what is clinically indicated in a particular case;<br />
8.3. incorporate a strong element of 'substituted judgment', taking into<br />
account both the past and present wishes and feelings of the child or<br />
young person and, where appropriate, also the factors which the child<br />
or young person would consider, if he or she were able to do so,<br />
including the beliefs and values which would be likely to influence his<br />
or her decision; and<br />
8.4. engage in appropriate consultation and consider the views of parents<br />
and others with a valid interest in the child or young person's welfare.<br />
Communication.<br />
9. Practitioners have the same duty of confidentiality to children and young<br />
people as they have to adults as set out in paragraphs.
10. Information should be shared with parents, persons with parental<br />
responsibility and others interested in the child or young person’s welfare in<br />
accordance with the law and the guidance in paragraphs .<br />
Making decisions.<br />
11. Practitioners should always attempt to obtain parental authority for treatment.<br />
Practitioners should involve children and young people as much as possible<br />
in decisions about their care, even when they are not able to make decisions<br />
on their own.<br />
Practitioners can provide medical treatment to a child or young person with<br />
their consent if they are legally competent to make such decisions.<br />
12. Where a child or young person is not legally competent to make such<br />
decisions, the consent of a parent is required.<br />
In the event of a dispute between the practitioner and the parent the authorization of<br />
a court should be obtained. It may be permissible, where such consent or court<br />
authorization is not reasonably possible, for emergency treatment to be provided<br />
without consent in order to save the life of, or prevent serious deterioration in the<br />
health of, a child or young person.<br />
13. Where the law permits young people to consent to treatment, the practitioner<br />
must decide whether the young person is able to understand the nature,<br />
purpose and possible consequences of the proposed investigations or<br />
treatments, as well as the consequences of not having treatment. Only if the<br />
young person is able to understand, retain, use and weigh this information,<br />
and communicate their decision to others can they consent to the proposed<br />
investigation or treatment.<br />
14. Practitioners should ensure that all relevant information has been provided<br />
and thoroughly discussed before deciding whether or not a child or young<br />
person has the capacity to consent.<br />
15. Where a child or young person lacks the capacity to consent, parental<br />
authority should be obtained. It is usually sufficient to have consent from one<br />
parent.
16. Where a young person has capacity to consent, the practitioner should<br />
encourage the involvement of parents in making decisions. However, as a<br />
general rule, the practitioner should respect any decision by a young person<br />
who has the capacity to make decisions. Where a practitioner has any<br />
concerns or misgivings, other members of the multi-disciplinary team or other<br />
suitable persons can be involved.<br />
17. Where a young person refuses treatment, particularly treatment that could<br />
save their life or prevent serious deterioration in their health, the practitioner<br />
should seek legal advice. The right to refuse treatment is a valid exercise of a<br />
patient’s autonomy and the young person’s decision should be respected.<br />
However, a court should assess the young person’s capacity to make the<br />
decision, and whether the decision is in the young person’s best interests.<br />
Procedures undertaken mainly for religious, cultural, social or emotional reasons<br />
18. Practitioners should be permitted to undertake procedures that do not offer<br />
immediate or obvious therapeutic benefits for children or young people,<br />
provided this is in their best interests and performed with consent.<br />
19. In assessing best interests, the practitioner should consider the religious and<br />
cultural beliefs and values of the child or young person and their parents as<br />
well as any social, psychological and emotional benefits.<br />
Conscientious objections<br />
20. If carrying out a particular procedure or giving advice about such procedure<br />
conflicts with a practitioner’s religious beliefs or conscience, the practitioner<br />
should attempt to provide alternative treatment options. This should, where<br />
appropriate, include an approach to the practitioner’s employer or colleagues.<br />
21. The conflict should be explained to the patient, who should be advised that<br />
they have the right to see another practitioner. Reasonable steps should be<br />
taken to assist in making such arrangements as soon as possible.
Glossary<br />
References to “children” are usually to younger children who lack the maturity to<br />
make important decisions for themselves.<br />
References to “young people” are to persons who are mature enough to make such<br />
decisions, but have not reached the recognised age of majority (in most jurisdictions<br />
this is either 18 or 21 years of age).<br />
References to “parent” in this guidance usually means a person with parental<br />
responsibility for the child or young person in question.<br />
“Parental responsibility” means the rights and responsibilities that parents have in<br />
law for their child, including the right to consent to medical treatment for them<br />
Part C: The maintenance of professional standards: knowledge, skills and<br />
performance.<br />
1. Develop and maintain your professional performance.<br />
2. Record your work clearly.<br />
3. Respond to risks to safety.<br />
4. Honesty<br />
Honesty in financial dealings<br />
Consent<br />
1. Consent to treatment.<br />
2. Exceptions to informed consent by competent patients.<br />
3. Decision-making for mentally incompetent patients.<br />
4. The patient’s best interests.
Medical confidentiality.<br />
5. The general duty to respect confidentiality.<br />
a. Disclosures required by law<br />
6. Consent to disclosure of information.<br />
a. Circumstances in which patients may give implied consent to<br />
disclosure<br />
b. Disclosures for which express consent should be sought<br />
c. Disclosures in the public interest<br />
7. Disclosures to protect the patient<br />
8. Disclosures to protect others<br />
9. Disclosures about patients who lack capacity to consent<br />
10. Sharing information with a patient's partner, carers, relatives or friends<br />
11. Genetic and other shared information<br />
12. Disclosure after a patient's death.<br />
13.
Part D: Medical professionalism and the relationship with colleagues and the<br />
public.<br />
1. Interprofessionalism. 4<br />
2. The practitioner’s duty to the courts and the legal process. 5<br />
3.<br />
4.<br />
5.<br />
6. Glossary<br />
7. “Practitioner” and “medical practitioner” means any person qualified to<br />
practise medicine, no matter what their speciality.<br />
4<br />
Work collaboratively with colleagues to maintain or improve patient care.<br />
5<br />
Openness and legal or disciplinary proceedings.