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Behavioural Surveillance Surveys - The Wisdom of Whores

Behavioural Surveillance Surveys - The Wisdom of Whores

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Funders <strong>of</strong> HIV prevention activities<br />

Those who fund HIV prevention activities<br />

have a special interest in knowing whether<br />

their contribution is making any difference.<br />

While this includes local tax-payers, in practice<br />

the demand for evaluation very <strong>of</strong>ten comes<br />

from international investors in prevention.<br />

As part <strong>of</strong> a national surveillance system for<br />

HIV, BSS is not designed to evaluate particular<br />

interventions or the contribution <strong>of</strong> particular<br />

donors. It is designed to monitor whether<br />

the sum total <strong>of</strong> the national response to HIV<br />

is having any effect on the behaviors that<br />

threaten to spread the virus throughout<br />

sub-populations or the general population.<br />

However, public health <strong>of</strong>ficials managing<br />

a surveillance system may be sensitive to the<br />

needs <strong>of</strong> major donors by taking their concerns<br />

into account in designing BSS. This may imply<br />

including particular geographical areas or<br />

population sub-groups in the surveillance<br />

system. It should be stressed, however, that<br />

BSS is designed to be a routine exercise which<br />

meets the long-term information needs <strong>of</strong> a<br />

national AIDS program. <strong>The</strong> concerns <strong>of</strong><br />

individual organizations funding particular<br />

short-term prevention projects should remain<br />

secondary to long-term national needs.<br />

Mechanisms to sustain partnerships<br />

It may be a good idea to formalize the<br />

consultation process so that partners can<br />

continue to contribute ideas and exchange<br />

experience throughout the planning and<br />

implementation <strong>of</strong> BSS, and can coordinate<br />

their responses to its results. One mechanism<br />

that appears to work well is a technical<br />

working group on surveillance that includes<br />

members <strong>of</strong> all the groups mentioned above.<br />

This group should meet very regularly during<br />

the design phase <strong>of</strong> BSS or wider second<br />

generation surveillance systems, and continue<br />

to meet at less frequent intervals during the<br />

implementation and analysis phase to review<br />

progress and plan for the effective use <strong>of</strong> the<br />

emerging data.<br />

Step 2 : Building agreement<br />

on the BSS process<br />

Together, the groups listed above need to<br />

come to agreement on several issues. <strong>The</strong>se<br />

include :<br />

• Which sub-populations will be included in<br />

the surveys ?<br />

• What information will be collected from<br />

these groups ?<br />

• Who will do the data collection and analysis ?<br />

• What mechanisms will ensure that<br />

information gathered will be used to<br />

benefit the communities involved ?<br />

<strong>The</strong>se decisions are interdependent.<br />

For example, the choice <strong>of</strong> respondent groups<br />

may well determine which institution can<br />

most effectively conduct the data collection.<br />

How the information will ultimately be used<br />

will influence what information is collected.<br />

14<br />

C H A PTER 2 B EHAV I OR A L S U R V EI L L A NC E S U R V EY S

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