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Behavioural Surveillance Surveys - The Wisdom of Whores

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If successful prevention initiatives contribute<br />

to new norms <strong>of</strong> safe behavior, annual data<br />

collection may no longer be needed. While<br />

less frequent data collection will save cash, it<br />

also bears a cost. Annual data collection feeds<br />

into programming, providing information for<br />

the constant re-evaluation <strong>of</strong> prevention<br />

needs. Undertaking the exercise regularly<br />

maintains skills and capacity within local<br />

institutions. And regular publication <strong>of</strong> this<br />

information has the added advantage <strong>of</strong><br />

keeping HIV prevention needs in the public<br />

eye, and on the agenda <strong>of</strong> policy-makers.<br />

<strong>The</strong> cost <strong>of</strong> BSS<br />

<strong>The</strong> cost <strong>of</strong> collecting behavioral data varies<br />

greatly from country to country and depends<br />

on the number <strong>of</strong> respondents, the geographic<br />

coverage, the sampling design, and the<br />

frequency and methods <strong>of</strong> data collection.<br />

Nationally-representative household surveys<br />

are typically the most expensive, costing<br />

around US$250,000 in a developing country <strong>of</strong><br />

30 million people. Where other information<br />

are being collected simultaneously, these costs<br />

can be shared with other users such as maternal<br />

and child health programs.<br />

BSS are less expensive (partly because<br />

sample sizes are much smaller and geographical<br />

coverage more limited). <strong>The</strong>y tend, however,<br />

to be more frequent. Initial rounds <strong>of</strong> BSS,<br />

which may include formative research to<br />

determine the most appropriate population<br />

groups, and extensive training and mapping<br />

work, are likely to be more expensive than<br />

subsequent rounds. As BSS becomes a routine<br />

part <strong>of</strong> monitoring and evaluation <strong>of</strong> the<br />

national response to HIV, costs drop because<br />

more experience is gained about how to<br />

efficiently sample and interview sub-population<br />

groups.<br />

Behavioral data collection is generally a<br />

fairly resource-intensive business, and it is<br />

especially heavy on human resources. But if<br />

the results <strong>of</strong> the data collection are combined<br />

with other elements <strong>of</strong> a surveillance system to<br />

improve programs that successfully prevent<br />

HIV or minimize its impact, these costs are<br />

more than justified. Set against the costs <strong>of</strong><br />

behavioral data collection are the economic<br />

benefits <strong>of</strong> targeting prevention activities<br />

most effectively. This would not be possible<br />

without a systematic and reliable way <strong>of</strong><br />

tracking trends in risk behavior over time,<br />

such as that provided by BSS.<br />

Issues and limitations in<br />

behavioral data collection<br />

Validity <strong>of</strong> self-reported data about sex and<br />

drug-taking<br />

One reason there has not been more<br />

behavioral data collected in the past is that<br />

many people are deeply skeptical about the<br />

validity <strong>of</strong> self-reported data on sexual<br />

behavior or illegal activities such as drug<br />

injection. Growing experience in collecting<br />

data on sexual behavior indicates that people<br />

do not generally lie. <strong>The</strong>y are, however, more<br />

likely to tell the truth in some situations than<br />

in others. <strong>The</strong> more stigmatized the behavior,<br />

the more likely people are to lie about it.<br />

<strong>The</strong> extent to which people answer questions<br />

about sex openly and truthfully also depends<br />

on the setting <strong>of</strong> the question. Are privacy<br />

and confidentiality assured ? Is the interviewer<br />

sympathetic, and <strong>of</strong> the same sex and age<br />

bracket as the respondent ? Are questions<br />

non-judgmental ?<br />

B EHAV I OR A L S U R V EI L L A NC E SURV EY S CHAPTER 1<br />

7

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