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If I kept it to myself - World YWCA

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<strong>If</strong> I <strong>kept</strong> <strong>it</strong> <strong>to</strong> <strong>myself</strong><br />

advocacy plans for SRR, coordinating research<br />

projects and development of information<br />

materials, contracting and managing research<br />

consultants and associates. I represent ICW’s<br />

views and calls on SRR in key strategic and<br />

policy meetings and at other international<br />

events. I highlight the stigma, discrimination,<br />

and hardship that women living w<strong>it</strong>h HIV face in<br />

the context of sexual and reproductive rights at<br />

events that I attend.<br />

As a young woman living w<strong>it</strong>h HIV and AIDS, I<br />

affirm the need for reproductive health services<br />

<strong>to</strong> support young women on issues around<br />

sexual<strong>it</strong>y. Sexual pleasure is a right even for<br />

those who are HIV pos<strong>it</strong>ive. I am disturbed that<br />

when a young woman discloses her pos<strong>it</strong>ive<br />

status, <strong>it</strong> is taken for granted that she has ceased<br />

<strong>to</strong> be sexually active. The s<strong>it</strong>uation is worse<br />

when we wish <strong>to</strong> have babies. When HIV pos<strong>it</strong>ive<br />

woman is found <strong>to</strong> be pregnant, she can expect<br />

<strong>to</strong> be asked, “How did you get pregnant in the<br />

first place?”<br />

The research undertaken by ICW on sexual<br />

and reproductive health for women living w<strong>it</strong>h<br />

AIDS in French speaking African countries has<br />

revealed that HIV pos<strong>it</strong>ive women’s sexual and<br />

reproductive health is not a prior<strong>it</strong>y in national<br />

and international policies in the response <strong>to</strong> HIV<br />

and AIDS in the 12 countries studied.<br />

I act as an advisor on SRR issues <strong>to</strong> ICW<br />

partners; women’s organisations and UN bodies<br />

like UNAIDS, WHO and UNFPA. HIV pos<strong>it</strong>ive<br />

women lack access <strong>to</strong> knowledge about their<br />

status and they face obstacles in preventing<br />

and terminating unwanted pregnancy. Many<br />

lack access <strong>to</strong> prevent mother <strong>to</strong> child (PMTCT)<br />

transmission and they are normally stigmatised<br />

and discriminated against when seeking<br />

reproductive health care. I believe that there<br />

should be no separation between HIV and AIDS<br />

and reproductive health services because people<br />

need the right information <strong>to</strong> decide their future,<br />

given that more than 90 percent of adult HIV<br />

infections, particularly in Africa, occur through<br />

heterosexual transmission.<br />

Although each woman living w<strong>it</strong>h HIV and AIDS<br />

has her own s<strong>to</strong>ry <strong>to</strong> tell, many of our s<strong>to</strong>ries<br />

are similar and reflect the pos<strong>it</strong>ion of women in<br />

society. HIV can take away your health, but <strong>it</strong><br />

cannot take love away. As a woman living w<strong>it</strong>h<br />

HIV, I still have relationships w<strong>it</strong>h friends, family<br />

and colleagues. Sometimes these relationships<br />

are destroyed because of fear and lack of<br />

knowledge about HIV and AIDS, however, things<br />

are not all negative. It is possible <strong>to</strong> live a pos<strong>it</strong>ive<br />

life w<strong>it</strong>h HIV. Stigma and discrimination can be<br />

overcome.<br />

Postscript<br />

Promise Mthembu is the founder of the African<br />

Microbicides Advocacy Group, the Gender AIDS<br />

Forum of South Africa. She is also a steering<br />

comm<strong>it</strong>tee member for the Global Campaign for<br />

Microbicides of the Global Coal<strong>it</strong>ion on Women<br />

and AIDS, and is a member of the South African<br />

Youth Council, Treatment Action Campaign,<br />

Young Women’s Network, the Global Network of<br />

People Living w<strong>it</strong>h HIV and AIDS, the KwaZulu<br />

Natal Cerebral Palsy Association, Society for<br />

International Development, Reproductive Rights<br />

Alliance of South Africa, Catholic Inst<strong>it</strong>ute for<br />

International Relations, AIDS Legal Network,<br />

and an advisory member on HIV and AIDS and<br />

women for the Ethical Globalisation In<strong>it</strong>iative.<br />

90<br />

Born: 1974<br />

Country: South Africa<br />

Organisations: ICW, TAC,<br />

African Microbicides<br />

Advocacy Group (AMAG)<br />

Campaigns for: sexual<br />

and reproductive rights<br />

of HIV pos<strong>it</strong>ive women

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