Current issues in Hereditary Angioedema (HAE) - Ipopi
Current issues in Hereditary Angioedema (HAE) - Ipopi Current issues in Hereditary Angioedema (HAE) - Ipopi
What does everyone want • Patients – Freedom from symptoms – Ability to prevent & treat attacks – Avoid side effects • Companies – Profit • Effective drugs • Minimal side effects • Drug better than competitors – Welfare of patients • Doctors – Healthcare/welfare of patients (and society) – Good income – Status – Time with family – Freedom from administrative hassle – Paternalistic/partnership • Funding authorities – Remain within budget – Make a ‘surplus’/ ‘profit’ – Welfare of patients
Working with… •Doctors – Attitudes – Consensus documents • Pharmaceutical companies –Trıals – Access programmes • Publicity – HAE- personal stories- lay press – Medical publications/ conferences
- Page 1 and 2: Current issues in Hereditary Angioe
- Page 3 and 4: What is HAE (Hereditary • HAE 1 o
- Page 5 and 6: C1 inhibitor controls inflammation
- Page 7 and 8: What have we learnt about the new
- Page 9 and 10: • Berinert (C1 inhibitor) trials
- Page 11 and 12: Treatment of C1 inhibitor deficienc
- Page 13 and 14: Icatibant (Firazyr) • Recurrent a
- Page 15 and 16: Living with hereditary angioedema:
- Page 17 and 18: L’s story: 25 year old with HAE
- Page 19 and 20: L’s story •15 th March 2010- 2
- Page 21 and 22: Treatment of C1 inhibitor deficienc
- Page 23 and 24: Self administration C1 ınhıbıtor
- Page 25 and 26: C1 inhibitor controls local Healthy
- Page 27: Rational use of steroids….
- Page 30 and 31: Mr B 15 years • Unwilling to trai
- Page 32 and 33: Mrs B 42 years • Danazol 100 mg a
- Page 34 and 35: Need to control acute attacks
- Page 38: Recent initiatives • World consen
Work<strong>in</strong>g with…<br />
•Doctors<br />
– Attitudes<br />
– Consensus documents<br />
• Pharmaceutical companies<br />
–Trıals<br />
– Access programmes<br />
• Publicity<br />
– <strong>HAE</strong>- personal stories- lay press<br />
– Medical publications/ conferences
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