Current issues in Hereditary Angioedema (HAE) - Ipopi
Current issues in Hereditary Angioedema (HAE) - Ipopi Current issues in Hereditary Angioedema (HAE) - Ipopi
Mrs B 42 years • Danazol 100 mg at prodromal symptoms – One or two doses prevent attack – Initially danazol needed every month- now virtually never • C1 inhibitor for acute attacks in hospital: – 1 /year
Rational use of androgens • Better guidelines* • Low dose – Max. 200mg danazol daily, 4 mg stanozolol • Alternatives to danazol – Stanozolol, oxandrolone, (tibolone) • Intermittent usage/ self management Life transforming (Still need acute treatment) *2010 International consensus algorithm for the diagnosis, therapy and management of hereditary angioedema http://www.aacijournal.com/content/6/1/24
- Page 1 and 2: Current issues in Hereditary Angioe
- Page 3 and 4: What is HAE (Hereditary • HAE 1 o
- Page 5 and 6: C1 inhibitor controls inflammation
- Page 7 and 8: What have we learnt about the new
- Page 9 and 10: • Berinert (C1 inhibitor) trials
- Page 11 and 12: Treatment of C1 inhibitor deficienc
- Page 13 and 14: Icatibant (Firazyr) • Recurrent a
- Page 15 and 16: Living with hereditary angioedema:
- Page 17 and 18: L’s story: 25 year old with HAE
- Page 19 and 20: L’s story •15 th March 2010- 2
- Page 21 and 22: Treatment of C1 inhibitor deficienc
- Page 23 and 24: Self administration C1 ınhıbıtor
- Page 25 and 26: C1 inhibitor controls local Healthy
- Page 27: Rational use of steroids….
- Page 30 and 31: Mr B 15 years • Unwilling to trai
- Page 34 and 35: Need to control acute attacks
- Page 36 and 37: What does everyone want • Patient
- Page 38: Recent initiatives • World consen
Rational use of androgens<br />
• Better guidel<strong>in</strong>es*<br />
• Low dose<br />
– Max. 200mg danazol daily, 4 mg stanozolol<br />
• Alternatives to danazol<br />
– Stanozolol, oxandrolone, (tibolone)<br />
• Intermittent usage/ self management<br />
Life transform<strong>in</strong>g<br />
(Still need acute treatment)<br />
*2010 International consensus algorithm for the<br />
diagnosis, therapy and management of hereditary<br />
angioedema http://www.aacijournal.com/content/6/1/24
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