Current issues in Hereditary Angioedema (HAE) - Ipopi
Current issues in Hereditary Angioedema (HAE) - Ipopi Current issues in Hereditary Angioedema (HAE) - Ipopi
Mr B 15 years • Unwilling to train for C1 inh self-admin • Danazol 200mg daily on temporary basis over exams
Mrs B 45 years • Swellings once/ month- usually abdominal • Some facial swellings • 2 days off school • 2-3 days ‘under the weather’ • FFP at local hospital once/ month – Prodromal rash/ fatigue • Tranexamic acid 500mg twice daily – Slight reduction in severity & frequency of attacks
- Page 1 and 2: Current issues in Hereditary Angioe
- Page 3 and 4: What is HAE (Hereditary • HAE 1 o
- Page 5 and 6: C1 inhibitor controls inflammation
- Page 7 and 8: What have we learnt about the new
- Page 9 and 10: • Berinert (C1 inhibitor) trials
- Page 11 and 12: Treatment of C1 inhibitor deficienc
- Page 13 and 14: Icatibant (Firazyr) • Recurrent a
- Page 15 and 16: Living with hereditary angioedema:
- Page 17 and 18: L’s story: 25 year old with HAE
- Page 19 and 20: L’s story •15 th March 2010- 2
- Page 21 and 22: Treatment of C1 inhibitor deficienc
- Page 23 and 24: Self administration C1 ınhıbıtor
- Page 25 and 26: C1 inhibitor controls local Healthy
- Page 27: Rational use of steroids….
- Page 32 and 33: Mrs B 42 years • Danazol 100 mg a
- Page 34 and 35: Need to control acute attacks
- Page 36 and 37: What does everyone want • Patient
- Page 38: Recent initiatives • World consen
Mrs B 45 years<br />
• Swell<strong>in</strong>gs once/ month- usually abdom<strong>in</strong>al<br />
• Some facial swell<strong>in</strong>gs<br />
• 2 days off school<br />
• 2-3 days ‘under the weather’<br />
• FFP at local hospital once/ month<br />
– Prodromal rash/ fatigue<br />
• Tranexamic acid 500mg twice daily<br />
– Slight reduction <strong>in</strong> severity & frequency of<br />
attacks
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