Current issues in Hereditary Angioedema (HAE) - Ipopi
Current issues in Hereditary Angioedema (HAE) - Ipopi Current issues in Hereditary Angioedema (HAE) - Ipopi
L’s story •2 nd March 2010 – Severe abdominal pain & vomiting – Symptoms had started 2 days previously, not improving – Given icatibant 30mg sc – Symptoms started to improve within 30 mins – Discharged after 2 hours – Fully recovered by the next day
L’s story •15 th March 2010- 2 weeks later…. – Awoke with severe abdominal pain. – Self administered backup icatibant – Similarly good response- but at onset of attack – Able to get up and resume normal duties – Husband amazed – ‘Like magic’ ‘life changing’
- Page 1 and 2: Current issues in Hereditary Angioe
- Page 3 and 4: What is HAE (Hereditary • HAE 1 o
- Page 5 and 6: C1 inhibitor controls inflammation
- Page 7 and 8: What have we learnt about the new
- Page 9 and 10: • Berinert (C1 inhibitor) trials
- Page 11 and 12: Treatment of C1 inhibitor deficienc
- Page 13 and 14: Icatibant (Firazyr) • Recurrent a
- Page 15 and 16: Living with hereditary angioedema:
- Page 17: L’s story: 25 year old with HAE
- Page 21 and 22: Treatment of C1 inhibitor deficienc
- Page 23 and 24: Self administration C1 ınhıbıtor
- Page 25 and 26: C1 inhibitor controls local Healthy
- Page 27: Rational use of steroids….
- Page 30 and 31: Mr B 15 years • Unwilling to trai
- Page 32 and 33: Mrs B 42 years • Danazol 100 mg a
- Page 34 and 35: Need to control acute attacks
- Page 36 and 37: What does everyone want • Patient
- Page 38: Recent initiatives • World consen
L’s story<br />
•15 th March 2010- 2 weeks later….<br />
– Awoke with severe abdom<strong>in</strong>al pa<strong>in</strong>.<br />
– Self adm<strong>in</strong>istered backup icatibant<br />
– Similarly good response- but at onset of<br />
attack<br />
– Able to get up and resume normal duties<br />
– Husband amazed<br />
– ‘Like magic’ ‘life chang<strong>in</strong>g’
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