Current issues in Hereditary Angioedema (HAE) - Ipopi

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L’s story •2 nd March 2010 – Severe abdominal pain & vomiting – Symptoms had started 2 days previously, not improving – Given icatibant 30mg sc – Symptoms started to improve within 30 mins – Discharged after 2 hours – Fully recovered by the next day
L’s story •15 th March 2010- 2 weeks later…. – Awoke with severe abdominal pain. – Self administered backup icatibant – Similarly good response- but at onset of attack – Able to get up and resume normal duties – Husband amazed – ‘Like magic’ ‘life changing’
Page 1 and 2: Current issues in Hereditary Angioe
Page 3 and 4: What is HAE (Hereditary • HAE 1 o
Page 5 and 6: C1 inhibitor controls inflammation
Page 7 and 8: What have we learnt about the new
Page 9 and 10: • Berinert (C1 inhibitor) trials
Page 11 and 12: Treatment of C1 inhibitor deficienc
Page 13 and 14: Icatibant (Firazyr) • Recurrent a
Page 15 and 16: Living with hereditary angioedema:
Page 17: L’s story: 25 year old with HAE
Page 21 and 22: Treatment of C1 inhibitor deficienc
Page 23 and 24: Self administration C1 ınhıbıtor
Page 25 and 26: C1 inhibitor controls local Healthy
Page 27: Rational use of steroids….
Page 30 and 31: Mr B 15 years • Unwilling to trai
Page 32 and 33: Mrs B 42 years • Danazol 100 mg a
Page 34 and 35: Need to control acute attacks
Page 36 and 37: What does everyone want • Patient
Page 38: Recent initiatives • World consen

Current issues in Hereditary Angioedema (HAE) - Ipopi

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