guidebook. - Fanconi Anemia Research Fund

vi
Fanconi Anemia: Guidelines for Diagnosis and Management
Chapter 10: Unrelated Donor Hematopoietic
Stem Cell Transplantation
John E. Wagner, MD, Jakub Tolar, MD, K. Scott
Baker, MD, and Margaret L. MacMillan, MD..........197
Chapter 11: Late Effects in Fanconi Anemia Patients
Post-Transplant
Margaret L. MacMillan, MD, K. Scott Baker, MD,
and John E. Wagner, MD...........................................223
Chapter 12: Novel Treatment Options
Jakub Tolar, MD, PhD...............................................236
Chapter 13: Head and Neck Squamous Cell
Carcinoma in Fanconi Anemia Patients
Bhuvanesh Singh, MD, PhD.....................................250
Chapter 14: The Adult FA Patient
Alfred Gillio, MD and Eva Guinan, MD...................264
Chapter 15: Genetic Counseling
Heather Zierhut, MS, CGC, and edited by
Ann Carr, MS, CGC..................................................275
Chapter 16: Psychosocial Issues
Nancy F. Cincotta, MSW, CCLS...............................291
Chapter 17: A Mother’s Perspective: The Grieving
Process and the Physician’s Role
Lynn Frohnmayer, MSW...........................................307
Appendix: Participants and Contributors.................317
Glossary.....................................................................331
Index..........................................................................372