guidebook. - Fanconi Anemia Research Fund

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Appendix: Participants and Contributors 323 Teresa Kennedy, MA Family Support Coordinator Fanconi Anemia Research Fund, Inc. 1801 Willamette Street, Suite 200 Eugene, OR 97401 Telephone: (541) 687-4658 Fax: (541) 687-0548 E-mail: teresa@fanconi.org H. Jeffrey Kim, MD Senior Staff Clinician, Otolaryngology Branch National Institute on Deafness and Other Communication Disorders National Institutes of Health, Bethesda Department of Otolaryngology, Pediatrics First Floor, Gorman Building Georgetown University Hospital Washington, DC 20007 Telephone: (202) 444-8186 E-mail: HK7@gunet.georgetown.edu Scott Kozin, MD* Shriners Hospital for Children 3551 North Broad Street Pennsylvania, Philadelphia 19140 Telephone: (215) 430-4000 E-mail: skozin@shrinenet.org
324 Fanconi Anemia: Guidelines for Diagnosis and Management Jeffrey M. Lipton, MD, PhD Director, Pediatric Hematology/Oncology and Stem Cell Transplantation Schneider Children’s Hospital Professor of Pediatrics Albert Einstein College of Medicine New Hyde Park, NY Telephone: (718) 470-3470 Fax: (718) 343-4642 E-mail: jlipton@lij.edu Margaret MacMillan, MD Fanconi Anemia Comprehensive Care Program University of Minnesota Medical School 420 Delaware Street SE, MMC 484 Minneapolis, MN 55455 Telephone: (612) 626-2778 Fax: (612) 626-2815 E-mail: macmi002@umn.edu Deane Marchbein, MD Board Member Fanconi Anemia Research Fund, Inc. 33 Robbins Road Arlington, MA 02174 Telephone: (781) 646-2330 Fax: (781) 641-0975 E-mail: dokdm@aol.com Diane Pearl FA Parent 608 Thorntree Lane Eureka, MO 63025-2066 Telephone: (636) 938-3143 E-mail: dipearl57@hotmail.com
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Chapter 4 Gastrointestinal, Hepatic
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Chapter 7 Endocrine Disorders in Fa
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Chapter 9 Matched Sibling Donor Hem
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Chapter 12 Novel Treatment Options
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Chapter 13 Head and Neck Squamous C
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Chapter 14 The Adult Fanconi Anemia
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