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Chapter 14: The Adult FA Patient 273 References 1. Butturini A, Gale RP, Verlander PC, Adler-Brecher B, Gillio A, Auerbach AD. Hematologic abnormalities in Fanconi anemia: an International Fanconi Anemia Registry study. Blood 1994; 84: 1650-1655. 2. Kutler DI, Singh B, Satagopan J, et al. A 20-year perspective on the International Fanconi Anemia Registry (IFAR). Blood 2003; 101: 1249-1256. 3. Rosenberg PS, Greene MH, Alter BP. Cancer incidence in persons with Fanconi anemia. Blood 2003; 101: 822-826. 4. McLaughlin SE, Diener-West M, Indurkhya A, Rubin H, Heckmann R, Boyle MP. Improving transition from pediatric to adult cystic fibrosis care: lessons from a national survey of current practices. Pediatrics 2008; 121: e1160-1166. 5. Rosenberg PS, Socie G, Alter BP, Gluckman E. Risk of head and neck squamous cell cancer and death in patients with Fanconi anemia who did and did not receive transplants. Blood 2005; 105: 67-73. 6. McDonagh JE, Kelly DA. Transitioning care of the pediatric recipient to adult caregivers. Pediatric Clinics of North America 2003; 50: 1561-1583, xi-xii. 7. Reiss JG, Gibson RW, Walker LR. Health care transition: youth, family, and provider perspectives. Pediatrics 2005; 115: 112-120. 8. Boyle MP, Farukhi Z, Nosky ML. Strategies for improving transition to adult cystic fibrosis care, based on patient and parent views. Pediatric Pulmonology 2001; 32: 428-436. 9. Scal P, Evans T, Blozis S, Okinow N, Blum R. Trends in transition from pediatric to adult health care services for young adults with chronic conditions. Journal of Adolescent Health 1999; 24: 259-264. 10. Flume PA, Anderson DL, Hardy KK, Gray S. Transition programs in cystic fibrosis centers: perceptions of pediatric and adult program directors. Pediatric Pulmonology 2001; 31: 443-450.
274 Fanconi Anemia: Guidelines for Diagnosis and Management 11. Flume PA, Taylor LA, Anderson DL, Gray S, Turner D. Transition programs in cystic fibrosis centers: perceptions of team members. Pediatric Pulmonology 2004; 37: 4-7. 12. Mody R, Li S, Dover DC, et al. Twenty-five-year follow-up among survivors of childhood acute lymphoblastic leukemia: a report from the Childhood Cancer Survivor Study. Blood 2008; 111: 5515-5523.
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Chapter 4 Gastrointestinal, Hepatic
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