BLOOD matters - SociÃ©tÃ© Canadienne de l'HÃ©mophilie

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Toronto and Central Ontario Region TCOR Regional Spotlight President’s Message TCOR Board Maury Drutz, President Mike Beck, Past President, Signing Officer David Neal, Vice President Ahmed Hassan, Co-Chair, Program Committee Mark Lubinski, Co-Chair, Program Committee Sheldon Rose, Chair Communications Committee Marc LaPrise, Director Mojtaba Kherzy, Director Tim Jessop, Director Staff Susan Turner, Administration and Finance Assistant Robin Nobleman, Regional Service Coordinator Jeenetha Kulasingam, Regional Service Coordinator Contact Information Hemophilia Ontario - TCOR 802 - 45 Charles St. E. Toronto, ON M4Y 1S2 416-972-0641 Toll Free 1-888-838-8846 Once again I have been afforded the opportunity to write a brief summary of TCOR’s recent summer successes and upcoming events. In June we held TCOR’s 11 th Annual Golf Tournament at Station Creek Golf Club at which we netted close to $15,000. This could not have been achieved without the support of our generous pharmaceutical partners, our valuable volunteers and of course the many golfers that continue to lend their support year after year. At the beginning of September, we were lucky to add two new RSCs to the TCOR team. Robin Nobleman and Jeenetha Kulasingam have already been a positive influence on TCOR with their bright innovative ideas and enthusiasm. Keep an eye open for new programming in the coming months. The weekend of September 18-20 was dedicated to Just the Guys. At this event 75 boys accompanied by their fathers or other positive male role models attended the “Wacky World of Sports.” This program was designed to include many educational workshops for both the younger and older participants. Other friendly sports competitions were included to create a fun and friendly atmosphere. This was a huge hit for all of our participants. Great thanks to everyone who came out. Our new RSCs have been avidly attending St. Mike’s every Tuesday to provide continuous support for patients undergoing various treatments. Other volunteers from the Speakers’ Bureau have attended various federal government speaking events as part of the HealthPartners fundraising campaign. Their time and generosity is immensely appreciated and acknowledged. On October 17, runners and volunteers from TCOR and Hemophilia Ontario participated in the Toronto Marathon. Sixteen of our TCOR members took the initiative of collecting pledges and also participating in the 5K run in support of Hemophilia Ontario. This was great fundraising resourcefulness on their behalf. On November 13, the Families in Touch picnic and a puppet show took place. This was an awesome way to involve people of all ages and raise awareness of bleeding disorders creatively. November 20 was a day dedicated to the workshop run by Inalex Communications. The main objective of this workshop was to help build stronger relationships between parents of children with various bleeding disorders. Without the help of our volunteers these wonderful events would cease to exist. They are owed an immense amount of respect and gratitude for their hard work and taking time out of their busy schedules to make a positive difference in the lives of people with bleeding disorders. I wish you good health and happiness. Maury Drutz, President, TCOR 42\ Blood Matters Fall 2010
Volunteer Experiences with TCOR TCOR by David Neal While enrolled as an undergrad at York University, I was approached by Karttik Shah and asked if I was interested in participating in the Youth Committee with Hemophilia Ontario. Unfortunately, I had to decline at the time because I was focused on my studies. I did advise Karttik that I would consider volunteering once my studies were completed. So, upon graduation in the spring of 2003, I approached the Society to see what opportunities existed. At the time there was the opportunity to volunteer on a couple of committees and with Bingo. After a couple of years in these roles, I was approached in spring 2005 to join the TCOR Board of Directors. I felt that this would be a great way to gain exposure within the Society. Once elected, I was introduced to some members who had dedicated many hours (and years) of their spare time to ensure that TCOR (and the Canadian Hemophilia Society) continued to reach out and help members of the bleeding disorders community. I was able to learn from these members, and as a result, I have forged strong friendships that will last well into the future. There are many opportunities to volunteer with TCOR, regardless of whether you are a board member or not. This past fall I was asked for a second time to speak publicly on behalf of the Canadian Hemophilia Society (CHS) through HealthPartners—an organization that consists of several charities in Canada and works in partnership with the federal government ministries. After the great experience last year, I wanted to speak again on behalf of the CHS, and continue to practice my public speaking skills. It can be nerve-wracking to stand up in front of a group of strangers to talk about anything, but this is one way for the Society to gain Are you moving exposure. I am a firm believer that knowledge is power, and by speaking on behalf of the CHS, more people will become aware of hemophilia and the bleeding disorders community. After one speech this year, one of the employees approached me and asked me more about hemophilia. Remember to send us your change of address so you won’t miss a single issue of this magazine and other information. Please fill in the information below and mail, e-mail or fax it to: TCOR Hemophilia Society 802 - 45 Charles St. E. Toronto, ON M4Y 1S2 E-mail: sturner@hemophilia.on.ca Fax: 416-972-0307 Name _________________________________________________________ Old Address ____________________________________________________ City/Prov/PC ____________________________________________________ Telephone _______________________________ Cell ___________________ E-mail _________________________________________________________ New Address ____________________________________________________ City/Prov/PC ____________________________________________________ Telephone _______________________________ Cell ___________________ E-mail _________________________________________________________ Moving date ____________________________________________________ Blood Matters Fall 2010 /43
Page 1 and 2: A publication of BLOOD matters Hemo
Page 3 and 4: Spotlight on the Province Hemophili
Page 5 and 6: the 1980 Olympics in sailing. My Da
Page 7 and 8: somebody who was sure to die before
Page 9 and 10: Hemophilia Ontario Healthy YOU Camp
Page 11 and 12: Hemophilia Ontario would like to th
Page 13 and 14: A publication of where they battle
Page 15 and 16: CWOR’s First Father’s Day Event
Page 17 and 18: Just the Guys Weekend 2010: Wacky W
Page 19 and 20: Pharmaceutical News Start of Phase
Page 21 and 22: CWOR Aging with Hemophilia* by Robe
Page 23 and 24: Liam Barbour Scholarship Award The
Page 25 and 26: Celebrating 40 Years of Service Ope
Page 27 and 28: Just the Guys 2010 by Daniel and Ev
Page 29 and 30: Commemorative Tree This year the NE
Page 31 and 32: North Western Ontario Region Region
Page 33 and 34: Ottawa and Eastern Ontario Region R
Page 35 and 36: South Western Ontario Region SWOR T
Page 37 and 38: Just the Guys Weekend “It was the
Page 39 and 40: Dare to Dream SWOR u Fred in his F1
Page 41: Websites and Resources Below are li
Page 45 and 46: TCOR Holiday Party Join us to celeb
Page 47 and 48: Book Review Birth Marked by Caragh
Page 49 and 50: Clinic Corner TRANSITION PROGRAM TC
Page 51 and 52: Toronto Marathon TCOR The 2011 Toro

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