BLOOD matters - Société Canadienne de l'Hémophilie
BLOOD matters - Société Canadienne de l'Hémophilie
BLOOD matters - Société Canadienne de l'Hémophilie
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Websites and Resources<br />
Below are links to various sponsored websites and resources that may be of interest:<br />
Bayer<br />
www.frankly.net (click on Speaking Frankly). Bayer pharmaceuticals hosts this<br />
website for youth 17 and up living with hemophilia and takes on some of the<br />
questions that youth may not be comfortable discussing with their family, friends<br />
and healthcare provi<strong>de</strong>rs.<br />
K Comic – the newest edition is fresh off the press. Contact your RSC for registration<br />
forms if you don’t already receive it.<br />
Kojo for ol<strong>de</strong>r youth (un<strong>de</strong>r 12) / Kogee for younger youth (un<strong>de</strong>r seven) Register<br />
to receive these activity sheets. Send a request to Kojo OR Kogee Club, 67 Mowat<br />
Ave, Suite 433 Toronto, ON M6K 3E3.<br />
SWOR<br />
Pfizer<br />
www.embracelife.ca Pfizer (formerly Wyeth) hosts this website as an online resource<br />
for individuals living with hemophilia and their caregivers. It provi<strong>de</strong>s information<br />
on active living, resources and hemophilia management gui<strong>de</strong>s, feature stories and<br />
general information on hemophilia. Additionally, they have produced a booklet,<br />
Living with Hemophilia that is available by contacting your RSC<br />
Baxter<br />
Baxter has recently donated “Green Bags” to the Bleeding Disor<strong>de</strong>rs Program. Making<br />
it more convenient for you to pick up your product, these reuseable bags replace<br />
the clear plastic bags used at many sites. Ma<strong>de</strong> from 85 percent post consumer<br />
recycled plastic bottles, these green bags will help you make a positive difference<br />
in our environment. Ask about these bags when you place your next Factor or<strong>de</strong>r.<br />
A Bright Future – DVD Series Hope, Information and Inspiration for Families and<br />
Educators. This three-set DVD Series is <strong>de</strong>signed to assist families, the exten<strong>de</strong>d<br />
family and educators about living with hemophilia. The Hemophilia Diagnosis (The<br />
Parents), The Hemophilia Diagnosis (The Exten<strong>de</strong>d Family), explores the process<br />
families navigate from diagnosis and how family relationships can be affected.<br />
Hemophilia – Teaching the Educators benefits the busy educator who has a child<br />
with hemophilia in their school. www.baxter.ca<br />
Novo Nordisk<br />
www.novonordisk.ca – Novo Nordisk provi<strong>de</strong>s <strong>de</strong>tails about inhibitors on their<br />
Canadian weblink or on the American website on the National Hemophilia Foundation<br />
website http://www.hemophilia.org/NHFWeb/MainPgs/MainNHF.aspxm<br />
enuid=227&contentid=424&rptname=inhibitors (click on Changing Possibilities)<br />
inclu<strong>de</strong>s case studies and a facebook link.<br />
CSL Behring<br />
www.cslbehring.ca – CSL Behring hosts this website noting their passion is to<br />
help improve the quality of life for people with rare diseases, hemophilia and von<br />
Willebrand Disease. Recently they announced that their vWD product is the only<br />
product produced from Canadian plasma collected by Canadian Blood Services. <br />
Blood Matters Fall 2010 /41