BLOOD matters - Société Canadienne de l'Hémophilie

Hemophilia Ontario
Don’ts for Parents:
• “They shouldn’t follow us around.”
• “Don’t think we can take care of ourselves.”
• “Worry that if we make one wrong move we are going to wind up in the
emergency room.”
• “Don’t isolate us from activities that we would normally do if we have a
small injury.”
• “Stop saying “don’t do that” and “don’t do this.”
Do’s for Parents:
• “Should let us play more variety of sports; more hands-on sports.”
• “Parents should try to see things from our perspective.”
• “Compromise”—e.g., enjoy horseback riding
• “If they let us do a contact sport we should be taking extra precautions.”
• “Give us more freedom to choose what we want to do.”
• “Parents should get hobbies instead of stalking us, following us around.”
Comments from Parents from the weekend:
• “Everything was good—not sure what or if anything could be better.”
• “It was an action-packed weekend and we enjoyed it all.”
• “It was a great weekend, the kids certainly loved it all and in the end it is
all about them.”
• “Have the camp in warmer weather.”
• “This has been an amazing experience. YMCA staff are enthusiastic and
fresh, not “oh yeah, we have to do this again…” The hemophilia folks are
kind, caring and really down to earth. I get weepy thinking about the support
I alone have received here. Thank you Heather, Steph, Colin, Eli and
everyone!”
• “Everything was fabulous. Wanakita is a great place to come to. The speakers
were fantasitic.”
• “All was so wonderful.”
• “Thank you for the opportunity to connect with other families.”
q L to R: Sarah Dakran, Megan Dakran,
Sarah Thomas, Angela Dakran and Micaela
Bauman.
10\ Blood Matters Fall 2010