Section 10 - Cystic Fibrosis Clinical Care Pathway
Section 10 - Cystic Fibrosis Clinical Care Pathway
Section 10 - Cystic Fibrosis Clinical Care Pathway
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Additional services<br />
Compressors - are ordered by the clinic staff. They are available on the<br />
same day.<br />
Portacaths - are flushed in clinic on a monthly basis by the clinical<br />
nurse specialists. If there is no CNS, then they can also be<br />
flushed on the respiratory ward, if the ward staff are given<br />
prior notice.<br />
Information - there is always a variety of literature on aspects of CF<br />
available in the clinic. Ask the clinical nurse specialists if<br />
you need anything specific.<br />
Information dispersal<br />
• A letter is sent to the GP and local hospital paediatrician following each<br />
visit.<br />
• The CF team meets to review patients after each clinic visit. Nutrition,<br />
lung function, microbiological results, psychological problems and<br />
changes in treatment are discussed and plans for future management are<br />
decided. Letters are then sent to GP’s with copies sent to local<br />
consultants, community nurses and other relevant health care<br />
professionals.<br />
1.4 The Annual Review<br />
All CF patients are seen once a year for a detailed clinical review (Tuesdays in<br />
the CF Clinic or Wednesdays on Badger Ward). This annual review provides<br />
a full clinical assessment of an individual’s progress and disease status which<br />
includes the number of hospital admissions, courses of iv and oral antibiotics.<br />
It is also the aim to update the patient and their families on recent<br />
developments and therapeutic modalities and to discuss plans of future<br />
therapy for the forthcoming year. This comprehensive examination is<br />
undertaken against a pre-formatted checklist and includes the parameters<br />
detailed below. All information is entered into a computerised database which<br />
facilitates easy analysis of an individual’s health parameters over the years. All<br />
results obtained are discussed by the CF team and a detailed report sent out<br />
to the shared care centre and/or the GP.<br />
Baseline Data:<br />
• Height and centile<br />
• Weight and centile<br />
• Blood pressure & vital signs<br />
• Oxygen saturation<br />
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