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IC Special Report Diet - Interstitial Cystitis Network

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<strong>IC</strong>N special report: DIET<br />

published by the <strong>Interstitial</strong> <strong>Cystitis</strong> <strong>Network</strong> • volume 1, issue 2 • Summer 2004<br />

Understanding<br />

<strong>Diet</strong> and <strong>IC</strong><br />

How Some Foods<br />

Make Symptoms Worse<br />

Patient Reactions<br />

to Food<br />

The <strong>IC</strong> <strong>Diet</strong>:<br />

A List of Problem Foods<br />

Our Five Worst Foods<br />

Plus An <strong>IC</strong>N<br />

Guest Lecture<br />

by Bev Laumann,<br />

author of<br />

“A Taste of the<br />

Good Life: A<br />

Cookbook for<br />

an <strong>IC</strong> <strong>Diet</strong>”


<strong>IC</strong>N special<br />

report: DIET<br />

from the editor<br />

Published by the <strong>Interstitial</strong><br />

<strong>Cystitis</strong> <strong>Network</strong><br />

Editor: Jill Osborne<br />

Advertising Sales: 707-538-9442<br />

e-mail: jill@ic-network.com<br />

<strong>Interstitial</strong> <strong>Cystitis</strong> <strong>Network</strong>:<br />

http://www.ic-network.com<br />

info@ic-network.com<br />

Administrative Offices:<br />

4983 Sonoma Highway, Suite L<br />

Santa Rosa, CA USA 95409<br />

The cornerstone of most effective <strong>IC</strong><br />

treatment programs begins at home with<br />

diet modification. <strong>IC</strong> patients often have<br />

irritation, inflammation, small petechial<br />

hemorrhages and, for some, larger Hunner’s<br />

Ulcers in their bladders. As a result, these<br />

tender, wounded tissues are vulnerable.<br />

Would you pour coffee on a skinned knee<br />

Would you bathe a blister in diet soda or<br />

tomato sauce Of course not!<br />

I once talked with a woman who said<br />

that she had tried “everything” for her <strong>IC</strong>,<br />

including undergoing Interstim. When I<br />

asked her what she was drinking, she confessed<br />

that she was drinking twelve cans of Ginger Ale a day. I was<br />

stunned. Can you imagine what that amount of acid was doing to her the<br />

wounds in her bladder It’s no wonder that she was struggling with pain<br />

and that she wasn’t responding to therapies.<br />

The husband of a young <strong>IC</strong> patient in Finland called our office out of<br />

desperation. His wife was suffering horribly with pain. She had several<br />

Hunner’s Ulcers and had recently had a hydrodistention that she hadn’t<br />

yet recovered from. The pain was out of control. What was she drinking<br />

each day Four to six cups of coffee a day, as well as a pack of cigarettes.<br />

She was paying a huge price in greater pain.<br />

Far more frequently, I talk with patients who confess that they have<br />

one cup of coffee a day, usually decaf. Yet, the acid in that one cup of coffee<br />

can create enough irritation and inflammation to cause more <strong>IC</strong><br />

symptoms and, perhaps, counteract some of the new tissue growth and<br />

healing that may have been occurring.<br />

It’s not worth it! If you’re struggling with <strong>IC</strong> symptoms and/or pain,<br />

your first objective should be to reduce irritation in your bladder, not add<br />

to it. It takes discipline to follow the <strong>IC</strong> diet but it can payoff with<br />

reduced symptoms. We carry several <strong>IC</strong> friendly foods and beverages in<br />

our <strong>IC</strong>N shop that you can also explore!!!<br />

Sincerely,<br />

Jill Osborne<br />

Editor and <strong>IC</strong>N Founder


contents<br />

4 Understanding <strong>Diet</strong> and <strong>IC</strong><br />

by Jill Osborne and Bev Laumann<br />

4 How Some Foods Make<br />

<strong>IC</strong> Symptoms Worse<br />

by Jill Osborne and Bev Laumann<br />

6 The <strong>IC</strong> <strong>Diet</strong>: A List of Problem Foods<br />

by Jill Osborne and Bev Laumann<br />

9 Our Five Worst Foods<br />

by Jill Osborne and Bev Laumann<br />

11 <strong>IC</strong>N Guest Lectures:<br />

The Role of <strong>Diet</strong> and <strong>IC</strong><br />

featuring Bev Laumann<br />

16 The Fish Story<br />

by Bev Laumann<br />

18 Sweets for My Sweet<br />

by Bev Laumann<br />

19 The Vitamin C Vegetables<br />

by Bev Laumann<br />

Copyright ©2004. Any reproduction is prohibited without prior written permission from<br />

the <strong>IC</strong>N.<br />

The necessary disclaimer: Active and informed <strong>IC</strong> patients understand that no patient,<br />

or web site or presentation on a web site should be considered medical advice. We<br />

strongly encourage you to discuss your medical care and treatments with a trusted<br />

medical care provider. Only your personal provider can and should give you medical<br />

advice.<br />

Opinions expressed in articles are those of the authors and do not necessarily reflect<br />

those of the <strong>IC</strong>N or its editorial board. The <strong>IC</strong>N assumes no liability for any material<br />

published herein.<br />

<strong>IC</strong>N SPECIAL REPORT ON DIET • SUMMER 2004 • 3


Understanding<br />

<strong>Diet</strong> and <strong>IC</strong><br />

by Jill Osborne and Bev Laumann<br />

"For almost six<br />

months, I drank a<br />

quart of cranberry<br />

juice every two days.<br />

Why Because everyone<br />

said it would help.<br />

I had no idea that cranberry<br />

juice was an <strong>IC</strong><br />

trigger. They were<br />

wrong. It hurt and<br />

made my <strong>IC</strong> much<br />

worse!"<br />

—J. Osborne<br />

PATIENTS’ REACTIONS TO FOOD:<br />

WE’RE ALL ALIKE, BUT<br />

DIFFERENT<br />

Though a few people with <strong>IC</strong><br />

have bladders that are not sensitive<br />

to food, for the overwhelming majority<br />

of us, what we consume plays a<br />

significant role in how severe our<br />

symptoms are. While it’s true that<br />

some common trigger foods, such as<br />

coffee or cranberry juice, provoke <strong>IC</strong><br />

symptoms for nearly everyone, it’s<br />

also true that each of us has a different<br />

tolerance level for many of the<br />

trigger foods. For instance, some <strong>IC</strong><br />

patients may comfortably eat a small<br />

quantity of a specific food, yet if they<br />

eat more, they will have an <strong>IC</strong> flare.<br />

Others, to their great frustration,<br />

may not be able to tolerate even a<br />

single bite of that same trigger food<br />

without suffering increased symptoms.<br />

Still others may be able to<br />

consume all they want of that food<br />

with no trouble at all. This variation<br />

in our response is why no one can<br />

create a list of foods to avoid that<br />

will apply uniformly to absolutely<br />

everyone with <strong>IC</strong>.<br />

<strong>IC</strong> patients usually spend their<br />

first six months to a year discovering<br />

the ways in which their <strong>IC</strong> food triggers<br />

are similar to others’, and the<br />

ways in which their bladder reacts<br />

differently. They do this either<br />

through random trial and error, or<br />

via a systematic approach with an<br />

elimination diet. We’ve outlined<br />

here the most common <strong>IC</strong> triggers as<br />

well as a variety of elimination diet<br />

approaches and some <strong>IC</strong> friendly<br />

foods.<br />

HOW SOME FOODS MAKE <strong>IC</strong><br />

SYMPTOMS WORSE<br />

While it hasn’t been scientifically<br />

established exactly why the foods on<br />

the <strong>IC</strong> diet list cause flares, urologists<br />

4 • <strong>IC</strong>N SPECIAL REPORT ON DIET • SUMMER 2004


and <strong>IC</strong> researchers have proposed<br />

some credible explanations based on<br />

what we currently know about the<br />

foods and about <strong>IC</strong>.<br />

If you recall the physiology of <strong>IC</strong><br />

then you understand that <strong>IC</strong><br />

involves mast cells in the bladder.<br />

These mast cells are not unlike the<br />

mast cells that line our sinuses and<br />

give us hay fever symptoms. Many of<br />

the foods on our <strong>IC</strong> <strong>Diet</strong> list are<br />

quite high in histamine, an irritating<br />

substance that can provoke mast<br />

cells.<br />

Another problem <strong>IC</strong> patients may<br />

have is increased nerve sensitivity in<br />

the bladder. Some of the items on<br />

the diet list actually stimulate and<br />

sensitize nerves, and that’s not something<br />

we want to do to an already<br />

oversensitive bladder.<br />

Dr. Lowell Parsons, a renowned<br />

<strong>IC</strong> researcher at the University of<br />

San Diego, has noticed that several<br />

foods on the list contain large<br />

amounts of potassium. Because some<br />

patients’ bladders are known to react<br />

when potassium salts are instilled in<br />

the bladder, Dr. Parsons has suggested<br />

that for those patients, part of the<br />

problem may be the foods’ potassium.<br />

Many people have noticed that<br />

some foods on the <strong>IC</strong> diet list, particularly<br />

fruits and tomatoes, contain<br />

a substantial amount of acid. Food<br />

acids and their potential effect on <strong>IC</strong><br />

symptoms have been the focus of<br />

much discussion over the years.<br />

While we don’t have any concrete<br />

answers yet to questions of why these<br />

foods bother <strong>IC</strong> patients, <strong>IC</strong><br />

researchers do know that certain<br />

explanations for the acid food effect<br />

are not credible.<br />

Sometimes referred to “pseudo-science”,<br />

the myths explaining the acid<br />

food effect may sound plausible, but<br />

are not founded on known medical<br />

facts or unbiased scientific evidence.<br />

Typically these myths are touted by<br />

someone trying to sell <strong>IC</strong> patients<br />

something.<br />

The pseudo-scientific food myth<br />

<strong>IC</strong> patients run into most often on<br />

the internet is the one that claims<br />

that <strong>IC</strong> urine (or the <strong>IC</strong> body in general)<br />

is too acidic and if it was alkaline,<br />

the patient wouldn't suffer.<br />

Acid foods, it says, bother the bladder<br />

because they make the body<br />

chemistry, and thus the urine, more<br />

acid. In truth, the effect of wellknown<br />

urinary alkalinizers such as<br />

PolyCitra is not universal among <strong>IC</strong><br />

patients. Some patients say it makes<br />

their <strong>IC</strong> better, others tell their doctors<br />

it actually makes their <strong>IC</strong> worse.<br />

What’s more, some acid foods make<br />

the urine acid while others actually<br />

turn it alkaline. Drink a lot of cranberry<br />

juice and your urine will reliably<br />

turn acid, and if you’re an <strong>IC</strong><br />

patient, your <strong>IC</strong> will flare up. Do the<br />

same with orange juice and your<br />

urine will become alkaline. But even<br />

though your urine is alkaline, you’ll<br />

probably have quite an <strong>IC</strong> flare-up!<br />

Why does one acidic food turn the<br />

urine acid and the other turn it alkaline<br />

Because each substance is utilized<br />

by the body differently.<br />

There are a variety of lists floating around the<br />

<strong>IC</strong> community which document some of<br />

the diverse <strong>IC</strong> food irritants.<br />

<strong>IC</strong>N SPECIAL REPORT ON DIET • SUMMER 2004 • 5


The <strong>IC</strong> <strong>Diet</strong>: A List of Problem Foods<br />

There are a variety of lists<br />

floating around the <strong>IC</strong> community<br />

which document<br />

some of the diverse <strong>IC</strong> food irritants.<br />

Many lists are similar, yet not identical.<br />

Whether or not a particular food<br />

is listed is sometimes a matter of the<br />

beliefs, priorities, or personal experience<br />

of the author(s).<br />

The problem foods we’ve listed<br />

below are the most common ones<br />

that thousands of <strong>IC</strong> patients have<br />

reported trouble with. Your goal is to<br />

determine IF these foods irritate you,<br />

perhaps by using an elimination diet!<br />

If you are like most, you’ll probably<br />

be able to eat a few of the foods listed<br />

as “problematic”. You also might<br />

have to avoid a few others listed as<br />

“okay”. Remember, this list is only a<br />

rough guide. Be prepared to be creative<br />

with your meals and in your<br />

kitchen!<br />

Please note: About 15% of<br />

women with <strong>IC</strong> also have vulvar<br />

pain (vulvodynia). Some of the<br />

foods in the “May Be Okay” column<br />

have high levels of oxalates, which<br />

women with vulvodynia react to.<br />

Those who don’t have vulvodynia<br />

typically don’t react to the oxalates,<br />

so they may have a much easier time<br />

getting away with foods in the “May<br />

Be Okay” column.<br />

Usually OK May Be OK Usually Problematic<br />

Beverages<br />

chamomile tea<br />

Evian® water<br />

Gerber® pear juice<br />

milk<br />

mint tea<br />

alfalfa tea<br />

bottled water<br />

coffee substitutes<br />

low acid decaf coffee<br />

low acid juices<br />

gin<br />

rice milk<br />

root beer w/ ice<br />

rum<br />

tap water<br />

vodka<br />

beer<br />

carbonated water<br />

chocolate milk<br />

citrus juices<br />

cranberry juice<br />

herb teas w/rose hips<br />

most fruit juices<br />

regular coffee<br />

sodas<br />

soy milk<br />

tea<br />

wines<br />

Grain<br />

Products<br />

buckwheat<br />

corn bread<br />

couscous<br />

matzo<br />

millet<br />

oat bread<br />

pasta<br />

pitas<br />

potato bread<br />

quinoa<br />

rice<br />

spelt<br />

white bread<br />

amaranth<br />

grits<br />

oatmeal<br />

rye bread<br />

sourdough bread<br />

some graham crackers w/o<br />

problem ingredients<br />

whole wheat bread<br />

bread or cereal<br />

w/preservatives<br />

soy flour<br />

Fats<br />

and<br />

Nuts<br />

butter<br />

canola oil<br />

coconut w/o preservatives<br />

coconut oil<br />

corn oil<br />

margarine<br />

olive oil<br />

peanut oil<br />

safflower oil<br />

sesame oil<br />

shortening<br />

soy oil<br />

almonds<br />

cashews<br />

tahini<br />

sunflower<br />

seeds<br />

filberts<br />

hazelnuts<br />

macadamia nuts<br />

mayonnaise<br />

most salad dressings<br />

peanuts<br />

pecans<br />

pistachio nuts<br />

English and black walnuts<br />

6 • <strong>IC</strong>N SPECIAL REPORT ON DIET • SUMMER 2004


Usually OK May Be OK Usually Problematic<br />

Soups<br />

homemade soups<br />

from ok meats<br />

and vegetables<br />

Health Valley® chicken broth<br />

some canned soups<br />

w/o problem ingredients<br />

bouillon cubes<br />

bouillon powder<br />

most packaged and canned<br />

soups<br />

Meat,<br />

Fish<br />

and<br />

Poultry<br />

beef<br />

chicken<br />

eggs<br />

fish<br />

lamb<br />

liver (beef or chicken)<br />

pork<br />

shellfish<br />

shrimp<br />

turkey<br />

veal<br />

anchovies<br />

bacon<br />

Canadian bacon<br />

caviar<br />

corned beef<br />

liverwurst<br />

prosciutto<br />

some sausages w/o problem<br />

ingredients<br />

bologna<br />

ham<br />

hot dogs<br />

most sausage<br />

pepperoni<br />

salami<br />

smoked fish<br />

Cheeses<br />

and<br />

Other<br />

Dairy<br />

cream cheese<br />

cottage cheese<br />

feta<br />

mozzarella<br />

ricotta<br />

string cheeses<br />

whipped cream<br />

vanilla ice cream<br />

buttermilk<br />

canned Parmesan<br />

Cool Whip®<br />

Monterey jack<br />

some sherbets<br />

some frozen yogurt<br />

Rice Dream®<br />

aged cheeses<br />

blue cheese<br />

brie<br />

brick parmesan<br />

camembert<br />

cheddar<br />

edam<br />

emmenthaler<br />

gruyer<br />

hard jack<br />

roquefort<br />

sorbet<br />

soy milk<br />

soy cheese<br />

sour cream<br />

stilton<br />

swiss<br />

yogurt<br />

Vegetables<br />

and<br />

Dried<br />

Beans<br />

broccoli<br />

brussels sprouts<br />

cabbage<br />

carrots<br />

cauliflower<br />

chives<br />

collard greens<br />

corn<br />

cucumber<br />

kale<br />

lentils<br />

lettuce<br />

mustard greens<br />

mushrooms<br />

most dried beans<br />

okra<br />

parsley<br />

peas<br />

potatoes<br />

pumpkin<br />

radishes<br />

snow peas<br />

split peas<br />

summer squash<br />

turnips<br />

winter squash<br />

yams<br />

zucchini<br />

avocado<br />

beets<br />

chicory<br />

cooked bulb onions<br />

cooked leeks<br />

dandelion greens<br />

eggplant<br />

low acid tomatoes<br />

purslane<br />

raw green onions<br />

rhubarb<br />

rutabagas<br />

swiss chard<br />

spinach<br />

turnip greens<br />

watercress<br />

chili peppers<br />

fava beans<br />

lima beans<br />

pickles<br />

raw bulb onions<br />

sauerkraut<br />

soy beans (edamame)<br />

tomato<br />

tomato sauces<br />

tomato juice<br />

tofu<br />

<strong>IC</strong>N SPECIAL REPORT ON DIET • SUMMER 2004 • 7


Fruits<br />

Usually OK May Be OK Usually Problematic<br />

dates w/o preservatives<br />

coconut w/o preservatives<br />

pears<br />

bananas<br />

blueberries<br />

brown raisins<br />

cherimoya<br />

citrus peels<br />

crenshaw melon<br />

dried currants<br />

Gala apples<br />

honeydew<br />

mango (small amt)<br />

maraschino<br />

cherries<br />

rhubarb<br />

watermelon<br />

apricots<br />

all citrus fruit<br />

cantaloupe<br />

cherries<br />

dried fruit w/ preservatives<br />

peaches<br />

most plums<br />

most dried figs<br />

golden raisins<br />

grapes<br />

guava<br />

kiwi fruit<br />

most berries<br />

passion fruit<br />

papaya<br />

persimmon<br />

pineapple<br />

starfruit<br />

Desserts<br />

and<br />

Sweets<br />

brown sugar<br />

carob<br />

carrot cake<br />

creme brulee<br />

custards<br />

divinity<br />

homemade pound cake<br />

homemade white and yellow<br />

cakes<br />

homemade vanilla frosting<br />

homemade caramel frosting<br />

honey<br />

licorice<br />

maple syrup<br />

pear pastries<br />

sugar<br />

sugar cookies<br />

tapioca<br />

vanilla ice cream<br />

vanilla pudding<br />

banana bread<br />

blueberry pastries<br />

caramel candies<br />

peppermint ice cream<br />

plain pastries w/ almonds<br />

plain cheesecakes<br />

some frozen yogurt<br />

some hard candies w/o<br />

acids<br />

some popsicles<br />

Splenda® (sucralose)<br />

stevia<br />

white chocolate<br />

acesulfame K<br />

aspartame<br />

catsup<br />

chocolate<br />

coffee ice cream<br />

desserts w/ problem nuts<br />

mustard<br />

pastries w/ problem fruits<br />

pecan pie<br />

sorbets<br />

store-bought<br />

fruitcakes<br />

mincemeat pie<br />

Nutrasweet®<br />

saccharine<br />

Seasonings<br />

and<br />

Additives<br />

allspice<br />

almond extract<br />

anise<br />

basil<br />

caraway seed<br />

coriander<br />

dill<br />

fennel<br />

garlic<br />

mace<br />

marjoram<br />

oregano<br />

poppy seed<br />

rosemary<br />

sage<br />

salt<br />

thyme<br />

tarragon<br />

vanilla extract<br />

black pepper<br />

celery seed<br />

cilantro<br />

cinnamon<br />

cumin (small amt)<br />

dried parsley<br />

dried chervil<br />

ginger<br />

lemon extract<br />

malt powder<br />

nutmeg<br />

onion powder<br />

orange extract<br />

turmeric<br />

ascorbic acid<br />

autolyzed yeast<br />

BHA and BHT<br />

benzoates<br />

caffeine<br />

cayenne<br />

cloves<br />

chili powder<br />

citric acid<br />

hot curry powder<br />

hydrolyzed protein<br />

meat tenderizers<br />

miso<br />

oleoresin paprika<br />

paprika<br />

red pepper<br />

soy sauce<br />

tamari<br />

vinegar<br />

worcestershire sauce<br />

MSG (monosodium glutamate)<br />

metabisulfites<br />

sulfites<br />

8 • <strong>IC</strong>N SPECIAL REPORT ON DIET • SUMMER 2004


Our Five Worst Foods<br />

These foods win our vote as the<br />

biggest misery makers for people<br />

with <strong>IC</strong>! These are the<br />

foods we hear about from <strong>IC</strong> patients<br />

all the time. Of course just because<br />

they cause trouble for so many others,<br />

that doesn’t guarantee they’ll<br />

make you miserable too. But if you<br />

do eat these, watch out! Be sure to<br />

pay close attention to how you feel<br />

afterwards. If you feel worse, then<br />

there is a good chance that this is a<br />

trigger food for you. Information is<br />

power. Whenever possible, talk with<br />

other patients and compare your<br />

trigger foods. They may help you discover<br />

some hidden triggers in your<br />

own diet.<br />

#1: Cranberry juice<br />

Otherwise known as the ACID<br />

BOMB when it hits, cranberry juice<br />

may be the biggest<br />

bladder irritant in an<br />

<strong>IC</strong> patient’s diet. It's<br />

often recommended<br />

for consumption during<br />

urinary tract<br />

infections because it<br />

is believed to have<br />

substances in it that<br />

help keep bacteria<br />

from sticking to the<br />

bladder wall. (If they<br />

can't stick, they can't<br />

infect. They just get<br />

flushed out). But<br />

cranberry juice can<br />

be difficult for an <strong>IC</strong><br />

bladder to tolerate. If<br />

you have to have it,<br />

try diluting it by half<br />

or more!<br />

#2: Coffee<br />

Yes, we know that “lattes” and<br />

other coffee products are all the rage<br />

these days. However, in a sensitive<br />

bladder, the caffeine and tannins in<br />

coffee have little competition for<br />

causing intense irritation. Some people<br />

can tolerate low-acid decaf coffees,<br />

while others try (less caffeinated)<br />

teas. But for the most sensitive<br />

<strong>IC</strong> patient, by far the safest option<br />

for a hot drink in the morning is hot<br />

water and honey.<br />

#3: Carbonated beverages<br />

Whether it be plain carbonated<br />

Perrier water or flavored sodas, <strong>IC</strong><br />

patients often complain about their<br />

effects on the bladder. The biggest<br />

problem appears to be the acid,<br />

though most flavored sodas also have<br />

big doses of caffeine.The most difficult<br />

carbonated beverage for an <strong>IC</strong><br />

bladder to tolerate appears to be diet<br />

cola. <strong>Diet</strong> colas are a quadruple<br />

whammy of acidic carbonation, citric<br />

and other acids, caffeine, and<br />

artificial sweeteners—four wellknown<br />

bladder irritants. Taken all at<br />

once it can be an <strong>IC</strong> bladder’s nightmare!<br />

If you must have a soda, try a<br />

non-diet, usually non-caffeinated,<br />

root beer—and load the cup with<br />

plenty of ice to dilute<br />

it!<br />

Low<br />

acid tomatoes may be<br />

good substitutes for<br />

some people. A Taste<br />

of the Good Life: A<br />

Cookbook for an<br />

<strong>Interstitial</strong> <strong>Cystitis</strong><br />

<strong>Diet</strong>, has a lengthy list<br />

of lower-acid tomato<br />

#4: Tomatoes<br />

They’re found in so<br />

many foods these days,<br />

tomatoes and tomato<br />

products are darn hard<br />

to avoid. Though we<br />

think of them as mild<br />

mannered vegetables,<br />

those tempting red<br />

globes are really a very<br />

acidic fruit. A few <strong>IC</strong><br />

patients can tolerate<br />

tomato sauces on pizzas<br />

and pasta, but most<br />

cannot.<br />

varieties you can grow at home!<br />

#5: Tobacco<br />

Ok, we admit it, we cheated to<br />

get this one on the list... tobacco<br />

isn’t really a food. But it does have<br />

some significant effects on an <strong>IC</strong><br />

bladder. For one, it acts to constrict<br />

the bladder’s blood vessels, interfering<br />

with the body’s natural way of<br />

washing out inflammatory substances<br />

from the bladder tissues. Veteran <strong>IC</strong><br />

patients prefer less pain rather than<br />

more. Is that cigarette worth a night<br />

and day of pain<br />

Otherwise known as<br />

the ACID BOMB when<br />

it hits, cranberry juice<br />

may be the biggest<br />

bladder irritant in an<br />

<strong>IC</strong> patient’s diet.<br />

<strong>IC</strong>N SPECIAL REPORT ON DIET • SUMMER 2004 • 9


THE TWO HARDEST FOODS<br />

TO GIVE UP<br />

As a support group leader, every<br />

once in a while I encounter an <strong>IC</strong><br />

patient who, despite their horrible,<br />

continuous pain, insists on drinking<br />

coffee and/or eating chocolate bars.<br />

Coffee and chocolate are<br />

among the most common<br />

comfort foods. We<br />

depend on these to wake<br />

up, soothe our bad mood,<br />

or just give us a cheerful<br />

lift. In addition to caffeine,<br />

these both have a load of<br />

substances any one of which<br />

can potentially affect an <strong>IC</strong><br />

bladder.<br />

For me, as an <strong>IC</strong> patient, it was a<br />

choice between pain and frequency<br />

or coffee. I chose not to be in pain.<br />

But, still, some coffee addicts insist<br />

that they can drink coffee and not<br />

experience discomfort. I say, PROVE<br />

IT!<br />

Coffee and chocolate<br />

are among the most<br />

common comfort foods.<br />

We depend on these<br />

to wake up, soothe our<br />

bad mood, or just give<br />

us a cheerful lift.<br />

TAKING A PRO-ACTIVE ROLE<br />

IN YOUR DIET<br />

As a support group leader, I sometimes<br />

talk to patients who won’t take<br />

the time to explore the connection<br />

between pain and diet. I don’t understand<br />

why. If I am eating something<br />

which is flaring my bladder, my<br />

pain requires that I stop. It’s an<br />

easy choice... and, yes,<br />

even chocolate isn’t<br />

worth it. If you want to<br />

TAKE CHARGE of your<br />

<strong>IC</strong> flares, your first step may be<br />

exploring the world of dietary<br />

triggers and <strong>IC</strong>.<br />

Information is<br />

power. Whenever possible,<br />

talk with other<br />

patients about their forbidden foods.<br />

The best approach is to TAKE<br />

ACTION and keep a food diary.<br />

Your starting list should include<br />

those foods which you suspect<br />

inflame and irritate your bladder.<br />

Then, as you eat suspect food, keep<br />

track of how you feel afterwards. Is<br />

your frequency and pain increased If<br />

it is, place it on your forbidden list<br />

and avoid it for a while.<br />

Another approach that <strong>IC</strong><br />

patients with determination take is<br />

to try an elimination diet. By avoiding<br />

foods which you suspect are triggers<br />

for awhile, you can then reintroduce<br />

suspected foods one at a<br />

time, and honestly assess whether it<br />

causes your symptoms to worsen. If<br />

you feel fine, with no increase in<br />

symptoms, you may be able to return<br />

this food to your diet in moderate<br />

quantities. If it causes pain, definitely<br />

avoid it!<br />

SUGGESTED READING<br />

A Taste of the Good Life: A<br />

Cookbook for an <strong>IC</strong> <strong>Diet</strong> by Bev<br />

Laumann. Currently available in the<br />

<strong>IC</strong>N Shop!<br />

The Best Guide to Allergy,<br />

Consumers Union Edition (by A.<br />

Giannin, N.D. Schultz, T.T. Chang<br />

& D.C. Wong) has an outstanding<br />

and comprehensive listing of food<br />

allergies, food groups & a variety of<br />

elimination diets.<br />

The only way to know if coffee,<br />

chocolate, (or any other comfort<br />

food) bothers your bladder is to do<br />

your own research! How Complete<br />

a voiding diary for a few days, WITH<br />

COFFEE AND CHOCOLATE, in<br />

your diet. Then, keep the same diary<br />

and avoid drinking and/or eating<br />

either for a week!<br />

If your voiding diary shows that<br />

you urinate less and/or are in less<br />

pain when you’re not consuming<br />

them, then they are clearly irritating<br />

you! Do you need any more evidence<br />

than that<br />

10 • <strong>IC</strong>N SPECIAL REPORT ON DIET • SUMMER 2004


<strong>IC</strong>N Guest Lectures:<br />

The Role of <strong>Diet</strong> and <strong>IC</strong><br />

Featuring Bev Laumann<br />

Author of A Taste of the Good Life: A Cookbook for an <strong>IC</strong> <strong>Diet</strong><br />

Event date: June 29, 2004<br />

Founded in 1999, the <strong>IC</strong>N Guest Lecture<br />

series brings the world’s best researchers,<br />

doctors and advocates for <strong>IC</strong> directly to the<br />

homes and offices of patients in need. This<br />

lecture was sponsored by Akpharma, makers<br />

of Prelief (http://www.prelief.com), and<br />

AstraTech, makers of the Lo-Fric® Catheter<br />

(http://www.astratech.com)<br />

Tonight we welcome Bev<br />

Laumann, author of A Taste of<br />

the Good Life: A Cookbook for<br />

an <strong>IC</strong> <strong>Diet</strong>. Bev is one of the most talented,<br />

educated and enthusiastic <strong>IC</strong><br />

experts in the country today. She is a<br />

former <strong>IC</strong> support group leader in<br />

Orange County, California. In addition,<br />

she has written what is, by far, the<br />

most popular <strong>IC</strong> book today.<br />

In “A Taste of the Good Life” she<br />

answers many of the questions that<br />

we all face in handling diet and <strong>IC</strong>.<br />

She has written dozens of columns on<br />

the <strong>IC</strong> network in her “Fresh Tastes”<br />

series that are designed to give you <strong>IC</strong><br />

friendly food and meal ideas. Bev is<br />

also a consummate researcher. She<br />

has worked, and continues to work,<br />

with a number of researchers around<br />

the country in various food/diet related<br />

issues.Welcome Bev!!!<br />

Thank you very much. I’m glad to<br />

be here.<br />

Is diet important to <strong>IC</strong> patients<br />

Most people who have <strong>IC</strong> find<br />

that changes in their daily diet make<br />

a profound difference in their bladder<br />

symptoms. Of more than 550 <strong>IC</strong><br />

patients responding to a recent<br />

online survey conducted by the <strong>IC</strong>A,<br />

84% of those who had tried the <strong>IC</strong><br />

diet said that it helped reduce their<br />

symptoms. How did those patients<br />

find out about the diet Almost half<br />

of the survey respondents found out<br />

about it not from their doctors but<br />

from other sources such as fellow <strong>IC</strong><br />

patients, support groups, or web sites.<br />

Historically, the <strong>IC</strong> diet is not something<br />

doctors came up with. It's a<br />

discovery that thousands of patients<br />

made over the years and shared with<br />

each other.<br />

So, while we now can ace out<br />

which foods tend to be troublemakers,<br />

little is known scientifically<br />

about how and why they cause us<br />

misery. Various doctors and organizations<br />

offer slightly different versions<br />

of the diet but the most reliable ones<br />

to start out with are those offered<br />

here on the <strong>IC</strong> <strong>Network</strong> and at the<br />

<strong>IC</strong>A’s website. Because no two people<br />

are alike, no two diets will be<br />

exactly alike. So, regardless of which<br />

diet version you start with, over time<br />

you will learn to customize it to suit<br />

your body.<br />

How should a patient approach<br />

the diet<br />

For newly diagnosed patients the<br />

idea that I like the most is a threestep<br />

process that confirms whether<br />

your bladder is affected by diet, identifies<br />

the major problems, then finetunes<br />

the diet to your needs. Here’s<br />

what you do:<br />

(1) Keep track of your symptoms,<br />

rating them on a scale of 1-10.<br />

(2) Begin a very restricted diet<br />

that includes only relatively safe<br />

foods such as Evian water, carrots,<br />

lettuce, rice, and cooked chicken.<br />

You can have all you want of these<br />

foods... but no seasonings, no butter,<br />

nothing else!!!! Continue rating your<br />

symptoms while you stick to this<br />

stringent diet about THREE days. A<br />

person can’t survive on just these<br />

foods. We need as broad a diet as<br />

possible to insure good nutrition so<br />

you have to expand your diet by<br />

adding foods as quickly as possible. If<br />

you are diet sensitive, your symptoms<br />

should begin to wane by the third<br />

<strong>IC</strong>N SPECIAL REPORT ON DIET • SUMMER 2004 • 11


day of the strict diet. Gradually add<br />

foods to your diet while watching<br />

your symptom level.<br />

(3) Try a new food every two days.<br />

If you get no reaction, try another<br />

food. If your bladder reacts, let it<br />

calm down before you add another<br />

food. Start with foods that are not<br />

listed on the <strong>IC</strong> diet as “problematic.”<br />

Test the problem foods LAST...<br />

after you already have a diverse diet.<br />

This technique is what doctors call<br />

an elimination diet. For more information<br />

on how to do this safely, take<br />

a look at the <strong>IC</strong> <strong>Network</strong>s’ patient<br />

handbook which has a chapter on<br />

elimination diets. With an elimination<br />

diet... it may take a while to sort<br />

out what you can eat, but be patient.<br />

In the end, you will have an <strong>IC</strong> diet<br />

customized just for you.<br />

What are the most common <strong>IC</strong><br />

diet pitfalls<br />

By far the biggest pitfall we need<br />

to avoid when manipulating our diet<br />

is jumping to conclusions. When you<br />

try a food, make sure you are trying<br />

just the food—not the food and also<br />

preservatives, spices, or other substances.<br />

Test foods in their purest<br />

forms. If you want to test pears, for<br />

instance, eat a fresh pear. Do not<br />

test pears by eating pear bread, pear<br />

jelly or other foods that contain<br />

pears.<br />

Be aware, too, that not all ingredients<br />

in prepared food have to be on<br />

the label. Have you ever wondered<br />

why milk stays homogenized rather<br />

than separating Milk has emulsifiers<br />

in it that keep the<br />

cream from rising to the<br />

top. Those emulsifiers<br />

are not required to<br />

be listed on the<br />

label. Federal law<br />

has many loopholes<br />

and peculiarities like<br />

that.<br />

What are the high-risk foods<br />

The foods <strong>IC</strong> patient bladders<br />

react to typically fall into one of four<br />

categories:<br />

Be aware, too,<br />

that not all<br />

ingredients in<br />

prepared food<br />

have to be<br />

on the label.<br />

(1) Nerve stimulants<br />

(2) Foods that taste acidic<br />

(3) Foods that have high levels of<br />

potassium<br />

(4) Foods that the patient may<br />

be allergic to<br />

The worst foods are those that fall<br />

into more than one category such as<br />

coffee. Coffee has caffeine, a nerve<br />

stimulant. It also has several strong<br />

acids. The same came be said of tea<br />

and soft drinks. Other nerve stimulants<br />

that are big problems are aspartame<br />

and monosodium glutamate<br />

(MSG). Fruit and fruit juice is<br />

another big problem<br />

for us.<br />

Food acids come in<br />

two types: (1) acids<br />

that the body uses up<br />

and (2) acids that the<br />

body doesn’t use. The<br />

acids it uses, such as citric<br />

acid, are changed and become<br />

part of other chemicals rather than<br />

going into the urine and turning it<br />

acidic. The food acids that the body<br />

doesn’t use, however, just go directly<br />

into the urine and can turn the urine<br />

acidic. But, for us, it doesn’t matter<br />

whether the food makes our urine<br />

acid or not. The important tell tale<br />

indicator is whether or not the food<br />

tastes acid. Take orange juice and<br />

cranberry juice, for instance. Both<br />

are notorious for causing bladder<br />

pain, but cranberry juice will turn<br />

the urine acidic and orange juice will<br />

do just the opposite... it will turn the<br />

urine alkaline.<br />

To go back to the nerve stimulants,<br />

let’s look at MSG. It is naturally<br />

occurring in lima beans. Lima<br />

beans are often a problem for <strong>IC</strong><br />

patients. MSG also occurs as a result<br />

of processing in such substances as<br />

hydrolyzed protein, soy sauce, and<br />

autolyzed yeast. Caffeine, another<br />

nerve stimulant, is also found in<br />

chocolate and is found in maté and<br />

guarana. Those last two are now<br />

being added to beverages without<br />

any warning about the caffeine they<br />

contain. So, you would be foolish to<br />

try some of the new drinks that come<br />

with a lot of extra herbs in it.<br />

12 • <strong>IC</strong>N SPECIAL REPORT ON DIET • SUMMER 2004


Start with foods that are<br />

not listed on the <strong>IC</strong> diet<br />

as “problematic." Test<br />

the problem foods<br />

LAST... after you<br />

already have a diverse<br />

diet. This technique is<br />

what doctors call an<br />

elimination diet.<br />

Are there any <strong>IC</strong> Friendly<br />

Beverages<br />

Water, of course, is the most <strong>IC</strong><br />

friendly beverage available. Evian<br />

water has a very good reputation<br />

with <strong>IC</strong> patients. It is not acidic and<br />

has a little natural sodium bicarbonate,<br />

which neutralizes a little bit of<br />

stomach acid. Another choice would<br />

be milk, unless you’re<br />

allergic to it. I also<br />

wrote a column on<br />

the many brands of<br />

bottled water that<br />

you can also read to<br />

compare the different<br />

types of water available.<br />

A few select herb<br />

teas are mint and<br />

chamomile. Spearmint is milder than<br />

peppermint and if you drink a lot of<br />

it, it would be better accepted by<br />

your intestinal tract. Chamomile is<br />

soothing. Another choice that some<br />

<strong>IC</strong> patients find helpful for their<br />

bladder is Marshmallow Root Tea.<br />

If you’re looking for something<br />

that has a coffee flavor, consider trying<br />

first Teeccino Herbal Coffees.<br />

These are carob based and have no<br />

caffeine... and come in a number of<br />

flavors. They are in the <strong>IC</strong>N shop if<br />

you want to look at the ingredients,<br />

etc. We can talk about coffees for<br />

hours and I do want to cover other<br />

things so check out the columns that<br />

I’ve written on the <strong>IC</strong>N “Fresh<br />

Tastes” column series for more information.<br />

Hot water and honey, though it<br />

sounds bland, rarely irritates the<br />

bladder and is easy to drink especially<br />

when out at a restaurant, etc. etc.<br />

Another choice for something to<br />

drink, particularly if you’re sick with<br />

a cold is Pacific Brand Free Range<br />

Chicken Broth. If you can find it, it<br />

comes in little individual one-cup<br />

servings that you can heat up. It<br />

makes a delicious warm cup in cold<br />

weather and has no MSG unlike<br />

most brands of chicken broth.<br />

For a summer drink, you might<br />

like the Davidson’s Children’s Tea<br />

chilled over ice or, iced pear juice.<br />

The Children’s tea (made by<br />

Davidson’s) has only chamomile and<br />

hibiscus. It’s very fruity, but not bitter<br />

or acid. It smells almost like fruit<br />

punch. Cold pear juice is probably<br />

your best choice on a hot summer<br />

day if you’re looking for a fruit drink.<br />

Jill and I were just comparing the<br />

fruit juices that we each can drink<br />

and it proves just how individual our<br />

<strong>IC</strong> diets can be. I, for<br />

example, can drink<br />

blueberry juice, but it<br />

bothers Jill’s bladder.<br />

Jill can drink pineapple<br />

juice, but it bothers<br />

my bladder. This<br />

is why that elimination<br />

diet that I<br />

talked about earlier is<br />

so important. You<br />

will find foods that you can tolerate<br />

easily, but you've got to try them<br />

carefully.<br />

Are eggs <strong>IC</strong> friendly<br />

Eggs and high protein foods, in<br />

general, will turn your urine acid but<br />

we’ve always said that that doesn’t<br />

seem to matter. However, the egg<br />

white is very alkaline even though it<br />

has protein in it, which can turn<br />

your urine acid. In general, eggs are a<br />

<strong>IC</strong>N SPECIAL REPORT ON DIET • SUMMER 2004 • 13


good source of protein and mild for<br />

the bladder. Unless you are very<br />

allergic to eggs, it shouldn’t be a<br />

problem.<br />

It’s summer and we want our<br />

salad dressings. What <strong>IC</strong> friendly<br />

ideas do you have<br />

Here are several ideas to try. Some<br />

may work for you, and some may<br />

not.<br />

#1. Avoid salad dressings with any<br />

preservatives or chemicals. Newman’s<br />

Own Oil & Vinegar dressing is pretty<br />

mild and you may be able to get<br />

away with it.<br />

#2. If that’s too acid, here’s another<br />

idea to try: Sprinkle dried herbs<br />

over a damp salad and toss. You’ll get<br />

the flavor without the vinegar. Herbs<br />

like basil, parsley, oregano, marjoram,<br />

garlic powder would be worth<br />

trying.<br />

#3. Flavored oils are another great<br />

alternative, such as basil or garlic flavored<br />

olive oils. Just stay away from<br />

the chili or pepper flavored oils.<br />

#4. Mayonnaise and mayonnaise<br />

type salad dressings are good for<br />

some people but not others. It's very<br />

individual.<br />

Are all soda pops bad for you<br />

They all are very acid. They all<br />

contain citric and phosphoric acid<br />

and some contain caffeine also. In<br />

addition, canned soft drinks usually<br />

contain sodium benzoate or potassium<br />

benzoate as a preservative. The<br />

potassium benzoate will not only<br />

become acid in your stomach but it<br />

will also supply potassium, which<br />

may stimulate pain-conducting<br />

nerves. This is why foods that are<br />

high in potassium can trigger some<br />

problems. Other high potassium<br />

foods include: orange juice and<br />

bananas. If you have to have a soda<br />

while you’re out try a root beer<br />

because it doesn’t usually contain<br />

caffeine. And, if it’s on tap as<br />

opposed to being in a can, it may not<br />

have preservatives either.<br />

Are bananas <strong>IC</strong> friendly<br />

Although bananas are high in potassium,<br />

they are not acidic. So, if you<br />

are not very potassium sensitive, you<br />

may be able to get away with<br />

bananas. A banana, in fact, is a good<br />

test for potassium sensitivity because<br />

they are the food that contains the<br />

most potassium. Potatoes would not<br />

be a problem. Most <strong>IC</strong> patients eat<br />

lots of potatoes without a problem.<br />

The level of potassium is nowhere<br />

near the potassium in a banana, for<br />

example.<br />

Can some alcoholic beverages,<br />

like white wine, be taken in moderation<br />

without hurting the bladder<br />

White wine has less histamine<br />

than red wine... but both have<br />

enough histamine to bother <strong>IC</strong> bladders.<br />

It just depends on how sensitive<br />

your bladder is to both the acid and<br />

the histamine in wines.<br />

Unfortunately, the wines that are<br />

the most acidic have the least histamine<br />

and vice versa. If you want to<br />

try a wine, try a white wine (like a<br />

chardonnay) rather than a red wine.<br />

Is it Safe<br />

Don’t feel bad about putting ice in<br />

your wine to dilute it. You’ll still get<br />

the flavor, but you just don’t look<br />

cool!<br />

Do you encounter patients who<br />

say that diet doesn’t make a difference<br />

in their symptoms<br />

Yes, there are people who can<br />

seemingly eat anything without a<br />

change in their symptoms. They<br />

tend to be very severe cases or very<br />

mild cases. For those who are newly<br />

diagnosed and are in severe pain<br />

they may not notice that their symptoms<br />

are fluctuating. Therefore, they<br />

may not notice, at first, the effect<br />

that diet would have. But, after<br />

they've been on a treatment for a<br />

while, and their symptoms become<br />

better, then they will notice the difference<br />

that diet makes. For the people<br />

who have very mild cases, often<br />

treatment does so well at controlling<br />

their symptoms that they simply do<br />

not pay attention to the little ups<br />

and downs that diet makes.<br />

Why won’t a product that reduces<br />

stomach acid help reduce bladder<br />

acid<br />

It depends upon what it is and<br />

how it reduces the stomach acid.<br />

Many stomach acid reducers DO<br />

help <strong>IC</strong>. Prelief neutralizes stomach<br />

acid, as does Tums or baking soda in<br />

some water and even Zantac and<br />

Tagamet may also help <strong>IC</strong> bladders.<br />

What’s the difference between a<br />

sensitivity and an allergy<br />

An allergy is mediated by a substance<br />

called IgE and sensitivity is<br />

not. A true allergy can be tested for<br />

at an allergist’s office. You may or<br />

14 • <strong>IC</strong>N SPECIAL REPORT ON DIET • SUMMER 2004


may not react with your bladder to<br />

foods that you have a confirmed<br />

allergy to. Most patients probably<br />

have a sensitivity rather than an<br />

allergy.<br />

Do you have any suggestions for<br />

patients who are thinking about seeing<br />

a nutritionist<br />

Anyone can call himself or herself<br />

a nutritionist, but what we need to<br />

see is a registered dietitian. The<br />

American <strong>Diet</strong>etic Association has<br />

an 800 number and they can refer<br />

you to a dietician in your area.<br />

<strong>Diet</strong>icians are licensed and after you<br />

explain to them what foods you cannot<br />

eat without experiencing discomfort,<br />

they can work with you to<br />

find alternatives that will give you a<br />

balanced diet.<br />

I have <strong>IC</strong> and IBS...are there certain<br />

foods that I should stay away<br />

from for both of these conditions<br />

And are there certain foods that are<br />

safe for both of these conditions<br />

Caffeine is bad for both conditions.<br />

Anything that is a nerve stimulant<br />

is going to be bad for both conditions<br />

including aspartame,<br />

Nutrasweet, and MSG. Two things<br />

that are not necessarily bad for an <strong>IC</strong><br />

bladder but will cause a flare for IBS<br />

are high fructose corn syrup and sorbitol.<br />

The International Foundation<br />

for Functional Gastrointestinal<br />

Disorders (IFFGD) has identified<br />

these as two of the most problematic<br />

food substances. Just how they cause<br />

a problem is unclear<br />

How about foods that can help<br />

keep our bowels together without<br />

irritating our IBS or <strong>IC</strong><br />

Suggestions for high fiber foods<br />

Constipation is a problem for<br />

most <strong>IC</strong> patients whether or not they<br />

have IBS because many of the meds<br />

used to treat <strong>IC</strong> are constipating.<br />

There are several foods that are fairly<br />

bladder safe and will help out with<br />

the constipation, including: oatmeal,<br />

whole wheat bread, Ezekiel<br />

Breads (are very high in fiber and,<br />

because they aren’t processed and<br />

have no preservatives, seem to be<br />

favorites for many <strong>IC</strong> patients),<br />

cooked and fresh vegetables, and salads.<br />

Is chocolate safe<br />

Chocolate has histamines that<br />

will affect the mast cells in the bladder.<br />

It also has caffeine, acids and<br />

lots of substances to irritate the bladder<br />

when it’s in urine. If you have to<br />

try chocolate and just can’t stand it,<br />

try very expensive dark chocolate.<br />

Stay away from cheap supermarket<br />

candy bars. The cheaper chocolate<br />

seems to be more irritating perhaps<br />

due to the way it’s refined and/or it<br />

could be additives and/or preservatives.<br />

Personally, I can get away with<br />

Godiva chocolate a whole lot better<br />

than Hershey’s. Some people can get<br />

away with white chocolate but not<br />

the brown chocolate. Also, don’t forget<br />

carob which is not the world’s<br />

greatest substitute but it can do in a<br />

pinch and is safer than chocolate for<br />

the bladder.<br />

Now Available in the <strong>IC</strong>N Shop at:<br />

http://www.ic-network.com/shop/<br />

or by calling (707) 433-0413<br />

• ”A Taste of the Good Life: A Cookbook for an <strong>IC</strong> <strong>Diet</strong>”<br />

by Bev Laumann<br />

• Organic Chamomile & Organic Peppermint Teas<br />

• Teeccino Brand Herbal Coffees<br />

• Golden Orchards Creamed Honeys<br />

• RW Knudson Organic Pear Juice<br />

• Sunridge Farms Carob Almonds, Raisins & Maltballs<br />

• A Perfect Pears Cinnamon Pear Jelly, Pear & Fig Jam, Cinnamon<br />

Pear Maple Syrup & More!<br />

Is sodium and salt a bladder irritant<br />

In general, <strong>IC</strong> patients don't have<br />

a problem with salty foods. However,<br />

since we’re all different, if you think<br />

that salt may be an issue for you try<br />

and test it out first. Moderation in<br />

everything is recognized as a healthy<br />

lifestyle. So, mild to moderate<br />

amount of salt may be fine, but<br />

heavy use may cause other issues<br />

such as high blood pressure, etc.<br />

Where can I get a complete list of<br />

the <strong>IC</strong> diet<br />

In my book! That’s a great question.<br />

In A Taste of the Good Life...<br />

I have extensive lists of <strong>IC</strong> foods that<br />

will help you learn the safe versus<br />

risky foods. You can buy that from<br />

the <strong>IC</strong> <strong>Network</strong> Shop.<br />

Is homemade better than readymade<br />

Yes, simply because it doesn’t have<br />

the additives.<br />

Is smoking also bad for the bladder<br />

Yes, because one of the things that<br />

it does is constrict blood vessels<br />

thereby cutting off blood supply to<br />

the bladder. Smoking is the #1 cause<br />

of bladder cancer. Just think about...<br />

all of the chemicals from tobacco sitting<br />

in your bladder for hours.... its a<br />

risky chemical stew... and it would be<br />

far better to quit smoking. You think<br />

<strong>IC</strong> is bad Bladder cancer is far<br />

worse!<br />

Active and informed <strong>IC</strong> patients<br />

understand implicitly that no patient, or<br />

website or presentation on a web site<br />

should be considered medical advice.<br />

We strongly encourage you to discuss<br />

your medical care and treatments with a<br />

trusted medical care provider. Only<br />

your personal provider can and should<br />

give you medical advice. The opinions<br />

expressed by our speaker may not represent<br />

the opinions of the <strong>IC</strong> <strong>Network</strong>.<br />

© 2004, The <strong>IC</strong> <strong>Network</strong>, All<br />

Rights Reserved.<br />

This transcript is copyright protected<br />

and may not be reproduced or distributed<br />

without written consent from the<br />

<strong>Interstitial</strong> <strong>Cystitis</strong> <strong>Network</strong>. For information,<br />

please contact the <strong>IC</strong>N at<br />

(707) 538-9442.<br />

<strong>IC</strong>N SPECIAL REPORT ON DIET • SUMMER 2004 • 15


The Fish Story<br />

by Bev Laumann<br />

Low in fat, high in Omega-3<br />

fatty acids that protect the<br />

heart and arteries...nutrition<br />

experts recommend serving<br />

fish at least twice a week!<br />

There’s no doubt that eating<br />

fish is a healthy habit, and in<br />

recent years it has become<br />

more popular too. Fish is not only<br />

lower in fat than beef or poultry, but<br />

it is also rich in omega-3 fatty acids,<br />

a fact that no doubt has led to its<br />

popularity. Omega-3 fatty acids are<br />

substances that research suggests may<br />

protect the heart and arteries.<br />

Nutrition experts recommend eating<br />

some form of seafood at least twice a<br />

week.<br />

Most people with <strong>IC</strong> can eat fish<br />

and unless you have an allergy to it<br />

(fish is a common allergen), chances<br />

are you won't have any trouble from<br />

your bladder. <strong>IC</strong> patients with food<br />

allergies may find their bladder also<br />

seems to react to foods they are allergic<br />

to.<br />

FISH ALLERGY<br />

So how do you know if you’re<br />

allergic to fish Just because you<br />

don’t break out in a rash or start<br />

sneezing when you eat a particular<br />

food, doesn’t mean you aren’t allergic<br />

to it. An allergist can test you for<br />

food allergies. Several kinds of tests<br />

are available including a skin-prick<br />

test, a blood test, or a challenge test<br />

(where you eat the food and watch<br />

for symptoms). You may have to<br />

hunt around to find an allergist who<br />

does blood-based food allergy testing.<br />

Many do not. One kind of blood test<br />

for food allergy may be called a<br />

RAST test or an ELISA test. One<br />

manufacturer of such a test, US<br />

Biotek, has an informative web site<br />

you may find interesting<br />

(www.usbiotek.com).<br />

One lady who had had <strong>IC</strong> for several<br />

years was clued in to the possibility<br />

of food allergies when she<br />

noticed that she had a runny nose<br />

quite often during dinner. Another<br />

<strong>IC</strong> patient who was recently tested,<br />

was surprised when her doctor told<br />

her she had food allergies. She didn’t<br />

sneeze or break out in an obvious<br />

rash in response to any food. But<br />

when she eliminated the allergenic<br />

foods from her diet, her <strong>IC</strong> improved.<br />

If your bladder seems to react to<br />

fish (and it may be a delayed-type<br />

reaction where the symptoms come<br />

on 12 to 24 hours after eating fish),<br />

you might also consider the possibility<br />

that you are reacting to preservatives,<br />

not the fish itself. Sulfites and<br />

phosphates are sometimes used as a<br />

dip to preserve seafood. (You may<br />

not taste sulfites, but if they've used<br />

too much phosphate dip the fish may<br />

taste “soapy”.) Sulfites are known to<br />

be especially allergenic. Try preservative-free<br />

fish from a natural foods<br />

store, or fish you catch yourself.<br />

When buying fish, be sure it is<br />

fresh, not old. Fish shouldn’t have a<br />

strong “fishy” odor. That’s a sure sign<br />

that the fish is decomposing. Be sure<br />

that you buy from a reputable dealer<br />

too, one who does not sell fish<br />

caught in contaminated waters. If fat<br />

content is important to you, remember<br />

that fish that is white or lightcolored<br />

(orange roughy, perch, snapper,<br />

or sole) is leaner than fish that is<br />

darker in color (Atlantic salmon,<br />

tuna, or mackerel).<br />

SPECIES TO KEEP AN EYE ON<br />

A few alarming studies over the<br />

last several years have shown that<br />

some Americans are consuming too<br />

much mercury. And despite being<br />

otherwise a very healthy food choice,<br />

a few fish species have routinely<br />

been found to contain dangerously<br />

high levels of mercury. Other species<br />

16 • <strong>IC</strong>N SPECIAL REPORT ON DIET • SUMMER 2004


found in supermarkets may have<br />

high levels of PCB’s (polychlorinated<br />

biphenyls)—an industrial chemical<br />

whose use has been banned, though<br />

it persists in the environment.<br />

Mercury, a toxic metal that can<br />

cause permanent nervous system<br />

damage, is particularly harmful for<br />

pregnant women and children. PCB’s<br />

have long been suspected of causing<br />

cancer and compromised immune<br />

systems. Certain fish species absorb<br />

these dangerous chemicals because<br />

the food they eat is laden with it. As<br />

big fish eat small fish and then are in<br />

turn eaten by bigger fish, toxic substances<br />

become concentrated. These<br />

harmful chemicals are the most concentrated<br />

in species of large fish at<br />

the top of the food chain—swordfish<br />

and tuna for instance. Because <strong>IC</strong><br />

has aspects of immune system<br />

involvement as well as involvement<br />

of the central nervous system, we'd<br />

be well advised to keep tabs on our<br />

intake of these fish. Who needs to<br />

add any more fuel to the fire<br />

The federal government advises<br />

that sensitive populations avoid<br />

these species altogether, because they<br />

are very high in mercury: swordfish,<br />

shark, king mackerel, and tilefish<br />

(which is sometimes called “golden<br />

snapper” or “golden bass” in stores<br />

and restaurants). Farmed salmon and<br />

catfish may have high levels of<br />

PCB's. Although there is some disagreement<br />

over the situation with<br />

tuna steaks and canned tuna, many<br />

toxicology experts think one should<br />

limit the intake of these. Michael<br />

Bender, director of the non-profit<br />

Mercury Policy Project, was quoted<br />

in the Wall Street Journal in<br />

September 2003 as saying, “Based on<br />

the data, yeah, we think that tuna<br />

steaks and sushi should be in the ‘do<br />

not eat’ category for pregnant<br />

women and kids.”<br />

SAFER SPECIES<br />

The following species are both<br />

low in toxins and a good source of<br />

protein and omega-3’s: oysters,<br />

clams, scallops, shrimp, cod, tilapia,<br />

perch, flounder, sole, wild salmon,<br />

and farm-raised rainbow trout,<br />

among others. With all the debate<br />

over fish safety you might be tempted<br />

to pop a few fish oil supplement<br />

pills, or reel in your own fish.<br />

Fish oil may not be a good idea<br />

because PCB’s reside in the fats and<br />

oils of fish. With unregulated dietary<br />

supplements, you have no way of<br />

knowing what kind of fish was used<br />

in the manufacture, and whether or<br />

not it came from polluted waters.<br />

Before eating any fish you catch,<br />

check the local advisory on the EPA’s<br />

web site: www.epa.gov/ost/fish/.<br />

There, you can check on the body of<br />

water where you fish by clicking on<br />

“National Listing of Advisories”.<br />

Here are two delicious, bladder-friendly, and easy-to-prepare fish recipes.<br />

Cousin Addy’s Oven-Baked Catfish<br />

serves 2<br />

2 servings cleaned fish filets<br />

3 Tbsp. olive oil<br />

2 cloves garlic, sliced<br />

1-1/4 tsp. dried thyme<br />

1/2 tsp. dried parsley<br />

1/4 tsp. dried basil<br />

1/8 tsp. ground cardamom<br />

1/4 cups unseasoned, preservative-free bread crumbs<br />

Pat fish dry and preheat oven to 400 degrees F. Coat a baking dish lightly<br />

with oil. In a small skillet, cook garlic in the olive oil just until tender.<br />

Remove from heat and stir spices into the hot oil. Place filets in the baking<br />

dish and pour oil and herbs over fish, scraping bits of herbs from the skillet.<br />

Bake uncovered in 400 degree F. oven for 10 minutes. Sprinkle bread<br />

crumbs on top of fish and return to oven. Bake another 15 minutes until<br />

fish is opaque (test by cutting a small slit in the thickest part).<br />

NOTE: This recipe was originally meant for catfish, but I’ve tried it with<br />

tilapia and red snapper with great results!<br />

Nut-Topped Orange Roughy<br />

serves 4<br />

4 orange roughy filets, cleaned, skinned and patted dry<br />

6 Tbsp. olive oil<br />

3/4 cup almonds (or cashews)<br />

3 tsp. dried basil<br />

Preheat oven to 350 degrees F. Spray a covered baking dish with nonstick<br />

spray or lightly coat it with olive oil. Arrange the fish filets in the baking<br />

dish. Chop the almonds in a food processor or chopper until they are<br />

fine particles. Combine the olive oil, chopped almonds, and basil. Spread<br />

the nut mixture over the tops of the fish. Cover and bake in a 350 degree F.<br />

oven for 15-18 minutes, or until fish is opaque and flakes easily with a fork.<br />

This article originally published April 1999, revised and updated by the author<br />

Oct. 2003.<br />

<strong>IC</strong>N SPECIAL REPORT ON DIET • SUMMER 2004 • 17


Sweets for my Sweet by Bev Laumann<br />

Ilike to snack on candy now and<br />

then but Valentine’s Day has<br />

always been a great excuse for me<br />

to temporarily pig out. And until<br />

recently I was lucky to have never<br />

gained any weight from my mid-winter<br />

spree. In fact, for many years I<br />

was the family’s unabashed chocoholic.<br />

So understandably, avoiding<br />

chocolate due to my <strong>IC</strong> isn’t easy<br />

or pleasant. But at least with chocolate<br />

I instantly recognize it and know<br />

what I’m letting myself in for.... a lot<br />

of bladder pain.<br />

Artificial sweeteners though, are<br />

not like chocolate. They’re sneaky.<br />

Unless you carefully read the label,<br />

they lurk unsuspected in candies, ice<br />

creams, snacks, drinks, and other<br />

treats. Aspartame is one of the bladder<br />

burning artificial sweeteners we<br />

encounter the most.<br />

Aspartame enables many people<br />

to enjoy sweet foods—diabetics,<br />

hypoglycemics, and people looking<br />

to shed a few pounds, for instance.<br />

But for those of us with <strong>IC</strong>, aspartame<br />

is far from good news. It can<br />

increase our urgency, frequency and<br />

bladder pain. Troubles with aspartame<br />

are not limited to <strong>IC</strong> sufferers<br />

though. People with phenylketonuria<br />

shouldn’t consume it. (Their<br />

bodies can’t properly deal with one<br />

of its breakdown products, phenylalanine).<br />

And many migraine sufferers<br />

find that aspartame provokes<br />

headaches too.<br />

Aspartame is broken down in the<br />

digestive tract into other compounds,<br />

two of which are aspartic<br />

acid and phenylalanine. No one<br />

knows why <strong>IC</strong> patients have trouble<br />

with aspartame, but these two breakdown<br />

products are likely suspects.<br />

Phenylalanine is found in the protein<br />

of many foods. Some susceptible<br />

people seem to be sensitive to<br />

increased amounts of it, regardless of<br />

the source. The body can convert<br />

phenylalanine in food to tyrosine,<br />

which can in turn be converted to<br />

tyramine (a substance that constricts<br />

blood vessels and affects blood pressure,<br />

among other things). Many of<br />

the foods that people with <strong>IC</strong> or<br />

migraines find troubling are high in<br />

tyrosine and/or tyramine—foods like<br />

red wine and cheddar cheese.<br />

So if your Valentine’s Day plans<br />

include sharing a few sweets with<br />

your sweet, be sure the treats are the<br />

old-fashioned kind—made with<br />

sugar. Some candies that <strong>IC</strong> patients<br />

can often tolerate include: divinity,<br />

caramels, licorice, taffy, butterscotch<br />

drops, carob candies, nougats, some<br />

mint gumdrops, horehound drops,<br />

and peppermint sticks. And speaking<br />

of sweet treats (the non-chocolate<br />

kind) here is a recipe for one quickto<br />

make delicious homemade candy.<br />

Easy Butterscotch Fudge<br />

makes about 3 lbs. candy (108 pieces); preparation time, 20 minutes<br />

3/4 cup margarine<br />

2/3 cup evaporated milk (NOT condensed milk)<br />

3 cups sugar<br />

1 pkg (12 oz) Nestle's butterscotch morsels<br />

1 jar (7oz to 8 oz) Marshmallow creme<br />

1 cup chopped almonds (optional)<br />

1 tsp. vanilla extract<br />

candy thermometer<br />

Lightly grease a 12 x 9-inch cake pan or a casserole dish. Mix margarine, milk,<br />

and sugar together in a large (2 or 3 quart) heavy saucepan. Stir constantly while<br />

bringing the mixture to a full rolling boil over medium heat.<br />

Continue boiling until candy thermometer reaches 235 degrees F., stirring constantly<br />

to prevent scorching (this takes about 5 minutes). Remove from heat.<br />

Quickly stir in butterscotch morsels, marshmallow creme, nuts and vanilla until all<br />

are mixed in well. (Butterscotch morsels will be melted and evenly distributed<br />

throughout). Pour into a prepared pan. Set aside to cool at room temperature. When<br />

cooled, carefully cut into 1-inch squares. (Candy will be relatively soft).<br />

Note: If you live at an altitude of 1000 above sea level or more, decrease the temperature<br />

on candy thermometer 2 degrees for every 1000 feet above sea level. If the<br />

butterscotch morsels provoke your bladder, there are many other variations of this<br />

recipe to try!<br />

Variations: There are so many fun variations on this recipe that you'll be tempted<br />

to try them all. Here are a few.<br />

Butterscotch-carob marbled fudge: Make butterscotch fudge as above, but omit<br />

almonds and substitute 1 cup of carob morsels, stirred in quickly after adding the<br />

butterscotch morsels.<br />

Basic vanilla fudge: Prepare recipe as above, but use Ghirardelli’s white baking<br />

chips instead of butterscotch (these contain a little cocoa butter, but taste like vanilla,<br />

not chocolate).<br />

Orange-creme fudge: Substitute 2 tsp. orange extract for the vanilla, and add 3<br />

drops yellow food coloring and 2 drops red if desired. (You can also stir in 2/3 cup of<br />

chopped orange slice gumdrop-style candies if they are low enough in citric acid for<br />

your bladder).<br />

Vanilla-Mint fudge: Make basic vanilla fudge but use 3/4 tsp. mint extract and 1/4<br />

tsp. vanilla. Add 5 drops of green food coloring, and omit the almonds. Pour into pan<br />

to cool. Immediately sprinkle top of fudge with 2/3 cup of finely cut up mint gumdrops.<br />

Cut when cool.<br />

Any of these candy squares can be decorated with white or colored icing (powdered<br />

sugar mixed with egg white), using a pastry tube and a fine writing tip.<br />

For Valentine’s day, draw hearts... or write words on each piece to spell out a<br />

message.<br />

This article originally published Feb 1999, revised and updated by the author Jan<br />

2004.<br />

18 • <strong>IC</strong>N SPECIAL REPORT ON DIET • SUMMER 2004


The Vitamin C Vegetables by Bev Laumann<br />

Ever wonder if you’re getting<br />

enough vitamin C It’s something<br />

that a lot of us think<br />

about (or perhaps we should think<br />

about). Of course we can eat pears<br />

without suffering, but when it comes<br />

to vitamin C, pears just don't measure<br />

up to such “high-C” fruits as<br />

oranges, guavas, or strawberries.<br />

So what bladder-friendly foods do<br />

have plenty of vitamin C Although<br />

most people don’t realize it, broccoli<br />

and bell peppers are excellent<br />

sources of this important vitamin.<br />

In fact, according to the American<br />

<strong>Diet</strong>etic Association, a half-cup of<br />

raw red bell pepper has about 50%<br />

more vitamin C than a medium-sized<br />

fresh orange. Even cooked, a halfcup<br />

of broccoli boasts of just as much<br />

vitamin C as an orange.<br />

Several other vegetables also contain<br />

vitamin C in healthy doses. For<br />

instance, most adults can get all the<br />

daily vitamin C they need by eating<br />

about 2/3 of a cup of fresh green bell<br />

pepper, 1/3 cup of fresh red bell pepper,<br />

or 2/3 cup of cooked kohlrabi.<br />

Even a medium-sized baked potato<br />

has about 40 percent of the adult<br />

requirement of vitamin C (if you eat<br />

the skin).<br />

Hearty homemade soups are one<br />

way to get vitamins from vegetables<br />

as well as warm yourself up on a<br />

blustery, bone-chilling January day.<br />

Just remember not to overcook<br />

your soup and use a lid on the soup<br />

pot to retain as many vitamins as<br />

possible.<br />

Here is an easy-to-make soup from<br />

my cookbook, A Taste of the Good<br />

Life: A Cookbook for an<br />

<strong>Interstitial</strong> <strong>Cystitis</strong> <strong>Diet</strong>. Served<br />

with some crusty bread and a fresh<br />

pear, this soup makes a delicious and<br />

vitamin-packed meal.<br />

Busy Day Chicken-Broccoli Soup<br />

(serves 2)<br />

4 c. bladder-safe chicken broth<br />

(see note*)<br />

3 cloves garlic, chopped<br />

1/4 c. fresh carrots, peeled and<br />

chopped<br />

3/4 c. cooked chicken, in bite-sized<br />

pieces<br />

2 c. frozen broccoli florets<br />

1/4 tsp. dried thyme<br />

1/8 tsp. onion powder<br />

1 bay leaf<br />

salt (and/or pepper) to taste<br />

1/3 cup dry egg noodles<br />

Add all ingredients except noodles<br />

to a soup pot and bring to a simmer.<br />

Simmer about 12 minutes. Add noodles<br />

to the soup. Simmer a few minutes<br />

more, just until noodles are tender.<br />

Remove bay leaf before serving.<br />

This recipe also is delicious when<br />

using leftover turkey. Vitamin C:<br />

approx. 74 mg. per serving (about<br />

120% of the adult RDA for vitamin<br />

C).<br />

*Note: The key to making this recipe<br />

bladder-safe is the chicken broth. Be<br />

sure to use a brand that does not contain<br />

bladder provokers like monosodium<br />

glutamate (MSG), yeast extract,<br />

or hydrolyzed protein. Most chicken<br />

broth and chicken soups do contain<br />

some form of MSG. Either it is added<br />

in pure form (which means<br />

“monosodium glutamate” will be on<br />

the label), or it is contained in other<br />

ingredients in the broth (which<br />

means that though the bladder irritants<br />

are there, they won’t be listed<br />

on the label).<br />

Health Valley makes an excellent<br />

canned, low-fat, MSG-free chicken<br />

broth that also has significantly less<br />

salt than most brands. The company<br />

is a division of Hain Celestial Group,<br />

whose products are marketed nationally.<br />

Many, many grocery chains<br />

carry Hain products so it may be relatively<br />

easy for your local store’s<br />

manager to special order the Health<br />

Valley chicken broth for you. Here is<br />

the company’s toll-free number,<br />

manned from 8:00 am to 4:00 pm<br />

Pacific time: 1-800-423-4846.<br />

You may be able to find out from<br />

them which stores near you carry<br />

Hain or Health Valley products.<br />

If you cannot locate a bladder-safe<br />

chicken broth, you can also make<br />

your own broth and freeze it.<br />

SOUP TOPPERS<br />

Give any soup a festive look and<br />

boost its vitamin C by topping it<br />

with a couple tablespoons of your<br />

favorite raw vegetable garnish. Any<br />

of these work well: alfalfa sprouts;<br />

shredded carrot; finely chopped<br />

green, yellow, or red bell pepper;<br />

minced fresh parsley; chopped fresh<br />

broccoli florets; or finely shredded<br />

raw red cabbage.<br />

REFERENCES<br />

Roberta Larson Duyff. The American<br />

<strong>Diet</strong>etic Association’s Complete<br />

Food and Nutrition Guide. 1998.<br />

Chronimed Publishing. Minneapolis,<br />

MN.<br />

USDA Nutrient Database for<br />

Standard Reference, release<br />

12. Oct. 13, 1998. U.S.<br />

Department of<br />

Agriculture,<br />

Nutrient Data<br />

Laboratory.<br />

This article<br />

originally published<br />

Jan<br />

1999, revised<br />

and updated by<br />

the author Jan<br />

2004.<br />

<strong>IC</strong>N SPECIAL REPORT ON DIET • SUMMER 2004 • 19


Urinary Urgency,<br />

Frequency,<br />

Pain...<br />

My symptoms are real. And what I eat does affect me.<br />

People like me are sensitive to the acid in<br />

food. Many foods we eat cause us discomfort<br />

in our stomach, in our digestive system; even<br />

our bladder.<br />

You may already know that certain foods can<br />

cause heartburn but what you may not know<br />

is that these same foods can also cause urinary<br />

urgency, frequency, pain, bloating, even<br />

diarrhea. If these symptoms sound familiar,<br />

you might want to know about Prelief.<br />

Until I, myself, found Prelief, I thought that<br />

I would no longer be able to eat so many of<br />

the foods I enjoy...<br />

Now I just take Prelief with every<br />

meal*, and I don't have to worry about<br />

being uncomfortable.<br />

Prelief is clinically proven.<br />

Ask your doctor.<br />

*So easy! Two small tablets<br />

three times a day!<br />

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From the<br />

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Rite-Aid, Savon Drugs, Walgreen's and many other fine stores in the antacid section.<br />

For literature and a coupon, call 1-800-994-4711 or visit www.prelief.com

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