HOPE Protocol [PDF, 420KB] - National Cancer Survivorship Initiative

Aim to recruit minimum of 20 participants on the basis of drop out.
Raise awareness with key nurses as to the presence of the course – so that they can
promote and inform patients from diagnosis onwards – AL to have some one to one
meetings.
Provide supplies of the course information leaflet in strategic places – clinics etc, and for
Breast Friends, and get some poster size leaflets to put up in strategic places – AL
Post Treatment Groups:
Dec/Jan/Feb/Mar – AL 15 minute presentation and discussion
Full contact details from admin – with NHS numbers and
telephone contact as well as addresses
Administration /completion of the baseline questionnaires at
the end of the session – all
Inform all that irrespective of participation on the course –
would like to complete the Qs
Attempt to have one of the participants from course 1 in
attendance – to describe experience. If this is not possible –
include the co-tutor from course 1.
If Dec group takes place, - send invite letters out before
Christmas – latest 21 st Dec if possible. AL
*21 st January – presentation and discussion to post-treatment
group, accompanied by a cohort 1 attendee who shared a
poem about her experience; 5 BENPCT patients in attendance
and will return forms if interested in attending HOPE.
Venue
Review the experience of the current venue, and consider the need for alternative settings –
non hospital based. AL *To continue at Good Hope Hospital, based on patient preference.
However, held 12-3pm, as opposed to in the evening, based on feedback from tutors.
3.2. Delivery of Course
a) Tutor Recruitment
Each course will be delivered via a co-tutor approach by one trained nurse and one trained
peer (a breast cancer survivor):
Two nurses from Birmingham PCT have volunteered to train as professional tutors
for the SMP. Training will be carried out over three days (2 + 1).
Peer tutors will be invited in the following ways:
o Selected patients who have completed treatment and have been identified by
the Breast Clinical Nurse Specialists at Good Hope Hospital and the
Community Cancer Specialist Nurse
o Breast Friends – the local breast support charity
o Macmillan Cancer Voices – Opportunities Exchange,
the only criteria being that they must have completed their treatment. Interested women will
be invited to an ‘Information Day’ organised to provide them with the necessary details to
make an informed decision regarding their involvement. For those who remain interested,
training will be carried out over 3/4 days.
20/08/09
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