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MAKING<br />

Bringing positive change in the lives of those affected by Acquired Brain Injury<br />

Spring 2010 Issue<br />

Making <strong>Headway</strong> is published by<br />

Inside<br />

Fundraising News 2<br />

Telling Tales 3<br />

<strong>Headway</strong>’s First Annual Bikers’ Run 5<br />

Helping Each Other Out... 6<br />

Research into Practice 7<br />

My Story, My Promise 9<br />

Research Round Up 11<br />

1


Welcome to the Summer Edition<br />

of Making <strong>Headway</strong><br />

Having friends and a social life is something we can easily take for granted but it is<br />

important for our wellbeing that we have both. As Julie, one of our contributors<br />

says – “we are all social beings”. Having a brain injury, or looking after someone with a<br />

brain injury can introduce challenges to getting out and about socially. In this summer<br />

edition of Making <strong>Headway</strong>, some of the articles put a focus on this aspect of life<br />

following injury and I hope you find them stimulating and interesting.<br />

We also have our usual round up of fundraising, research and other news, so I hope you<br />

find plenty to enjoy.<br />

Thanks to each and every one of you who chose to receive Making <strong>Headway</strong> either through<br />

email or post by responding to our survey. As ever, please send your comments, ideas or<br />

contributions to me at stablesr@headway.ie and enjoy the summer!<br />

Richard, Editor, Making <strong>Headway</strong><br />

A Message from the Chief Executive<br />

Dear Reader,<br />

News across the political and commercial<br />

world is continuously negative. However,<br />

services in the voluntary disability sector<br />

continue to be delivered in a positive and<br />

professional manner by caring people<br />

operating with a consistent degree of<br />

enthusiasm and creativity.<br />

In times of difficulty, we tend to renew and<br />

identify with the “meitheal” spirit – the old Irish<br />

word for “connection with neighbour” or “spirit of<br />

community”. The meitheal spirit looks to family<br />

and friends, kindred souls, supporters of a cause<br />

and communities of interest. A problem shared<br />

is a problem halved and difficulties are often<br />

opportunities to better things. The meitheal<br />

spirit encourages us to achieve something and<br />

celebrate that achievement with others.<br />

The “Crazy Rankins”<br />

The communities of<br />

interests in our chain are<br />

our wonderful clients,<br />

their families and carers,<br />

staff, our wider partners in<br />

the voluntary sector, the<br />

HSE, other State agencies,<br />

volunteers and fundraisers.<br />

What we can achieve together is much greater<br />

than what we can achieve individually, but break<br />

the chain and the service is potentially weakened<br />

or damaged.<br />

These are difficult times but we will prevail if we<br />

adopt the meitheal spirit. Now is the time for us<br />

all to embrace it.<br />

Kieran<br />

Front Cover: Pictures<br />

reading clockwise from<br />

top left: (a) Alan Murphy,<br />

<strong>Headway</strong> Cork trainee at<br />

the launch of a boat built<br />

by the group. (b) Crowds<br />

at the first <strong>Headway</strong> Biker’s<br />

Run. (c) Paraic Crehan,<br />

<strong>Headway</strong> Cork, at the<br />

launch of the coracle built<br />

by <strong>Headway</strong> trainees. (d)<br />

Hilda Hastings at the Cork<br />

art exhibition with her<br />

piece “Gratefully Accepted.<br />

(f) Bikers at the Biker’s Run.<br />

(g) Deidre Patel (<strong>Headway</strong>),<br />

Simon McBeth and Emma<br />

Hopwood from Eflow who<br />

have adopted <strong>Headway</strong><br />

as one of their charities<br />

to support. (f) <strong>Headway</strong><br />

Cork Service Users<br />

relaxing with a cuppa. (g)<br />

Dublin Day Service Users<br />

relaxing together. (h)<br />

Ruth (<strong>Headway</strong>) and Ellen<br />

collecting for <strong>Headway</strong><br />

during Brain Awareness<br />

Week.<br />

A huge thank you has to go to the “Crazy Rankins”<br />

who are: Andrew Rankin, Robert Searson and<br />

Lyndsey Rankin (pictured right). They all took<br />

part in The Wicklow Adventure Race on 17th<br />

April and ran, kayaked and cycled a staggering<br />

73km around Wicklow. It took 5hours and 30<br />

minutes to complete the challenge. Between<br />

them they raised a very impressive €2,020 in<br />

aid of <strong>Headway</strong>. We are very grateful and very<br />

impressed by their support.<br />

Andrew, Robert and Lyndsey, aka the “Crazy Rankins”<br />

2


Making <strong>Headway</strong> Summer 2010<br />

Telling Tales<br />

<strong>Headway</strong> Finglas Trainees Troy Donnelly, John<br />

Grundy and Tommy Leonard and are in conversation<br />

with Samantha Whelan about their social and work<br />

lives following brain injury.<br />

John: I’m nearly two years discharged from<br />

hospital after my stroke. For the first few months,<br />

my social life wasn’t great. Since then I see friends<br />

now at least on average two to three time a week.<br />

We usually go out as my apartment is very small.<br />

We might go to the local pub for a coffee and a chat<br />

or to a local restaurant. So in that sense, I would<br />

have a social life, I do get out. The only thing is -<br />

my social life is not fully controlled by me. I can’t<br />

just walk out and go to a pub. I won’t go to a pub<br />

on my own, even for a soft drink. I need somebody<br />

to take me. Likewise, visiting is only done strictly<br />

at others invitation and also if I can<br />

get transport. I can’t afford taxis all the<br />

time. So the idea of ringing someone<br />

up and saying “would you mind me<br />

calling up for half an hour” - That’s<br />

gone. So my social life is dependent<br />

on others. Luckily I do have loads of<br />

friends.<br />

Tommy: I’m not as badly off as John is. I<br />

don’t think my social life got too much<br />

affected by the injuries I got. I go out, I always did.<br />

I go for a few pints. I also still enjoy going out with<br />

my wife or my daughter to visit museums and<br />

other places of historical interest. Last week I went<br />

to see a show for the first time in the O2 in Dublin.<br />

Strictly come dancing!<br />

Samantha: Were you under pressure to go there<br />

Tommy or did you go under your own free will<br />

Tommy: I had to be encouraged to go! - But I<br />

enjoyed it. It was grand! One thing that put me off<br />

going again though was the large crowd.<br />

Troy: When I came out of hospital, I went into a<br />

nursing home. When I came out, I didn’t really<br />

have a social life. I’m much more sociable now as<br />

I’m coming to the end of my time here. Attending<br />

<strong>Headway</strong> has helped me to be able to socialise<br />

rather than just vegetating at home. Going on<br />

outings with the group has helped me to be able<br />

to go out with my children -my personality is<br />

more outgoing now. <strong>Headway</strong> has helped me to<br />

deal with a lot of anger that I had so I am able to<br />

socialise better. I find it important to have a sense<br />

of humour to deal with people and situations.<br />

John: I went back to work part time. The first<br />

year after my stroke I never ever thought I would<br />

return to work. I spent seven months in hospital.<br />

During the first two months I was<br />

in danger of not making it. I never<br />

...The first year<br />

after my stroke<br />

I never ever<br />

thought I would<br />

return to work...<br />

thought I would see O’Connell<br />

Street again. I certainly never<br />

believed for one moment that I<br />

would ever be able to go back<br />

to teaching. Emotionally I didn’t<br />

think I could go back. My memory<br />

and my general intellect are fine<br />

-the <strong>Headway</strong> neuropsychological<br />

assessment proved that I am<br />

perfectly ok to teach, but I decided I wasn’t strong<br />

enough. During the second year, in the summer of<br />

2009 I was asked by a guy in charge of the night<br />

school to come back. He said ‘John I don’t see why<br />

you can’t come back. You might have a physical<br />

disability but after a while the students will get<br />

used to that. Concentrate on your ability to teach<br />

rather than your physical disability’. I decided to<br />

give it a go, not thinking for one moment that I<br />

would be successful. I thought I might have to<br />

drop out by Christmas. But now, this is going<br />

extremely well, I’m really enjoying it.<br />

This helped with my social life because I have a<br />

number of teacher friends. One guy was very<br />

good by giving me lifts and I enjoy all the chats in<br />

the staff room.<br />

3


Tommy: I was asked if I would like to do voluntary<br />

work in Collins Barracks and I jumped on the<br />

chance. I never thought that would ever be<br />

allowed to do something like that. Imagine me<br />

coming out of the scrubs in Cabra. I thought,<br />

wow, me going into Collins Barracks to work with<br />

artefacts. I remember hearing about a lot of these<br />

artefacts being dug up in the 70’s and there I end<br />

up... I didn’t think it would happen to me. I felt<br />

privileged. I get to clean the artefacts, cut the foam<br />

and re-bag them to keep them preserved. I also<br />

came up with a more efficient way of doing things<br />

which came from my previous work experience.<br />

This was copied throughout the<br />

project and helped everybody.<br />

Troy: Tommy really enjoys it. When<br />

Tommy comes in from the project<br />

in Collins Barracks we can tell by<br />

Tommy’s face. We can all see the<br />

difference in Tommy since he<br />

started in Collins Barracks.<br />

Tommy:…I get a sense of<br />

achievement from doing the<br />

voluntary work. The only thing<br />

missing now is the money. I hope<br />

that the experience I am getting<br />

will help me to get me a job. The people I work<br />

with in the museum are nice. They make me feel<br />

like one of them.<br />

Troy: That’s good. That’s socialising. It’s getting<br />

you back into society.<br />

Tommy: One day, I was there doing my work<br />

and the phone rang. The girl said ‘Tommy It’s for<br />

you’. I was shocked, I was getting a phone call in<br />

an office. It was one of the other girls who works<br />

there thanking me for work I had done the day<br />

before.<br />

John: You deserve it. What you do is appreciated.<br />

You deserve it.<br />

Tommy: I have to say, fair play to <strong>Headway</strong> even<br />

asking me to go in to Collins Barracks. I never<br />

thought I could do it.<br />

Troy... For<br />

anybody coming<br />

into <strong>Headway</strong>,<br />

acceptance is so<br />

important. After that<br />

it’s onwards and<br />

upwards<br />

John: That’s your lack of confidence.<br />

Tommy: Now I tell everybody in the pub about it!<br />

Troy: I’m on the <strong>Headway</strong> advocacy group which<br />

is great. We’ve all got to know each other. One of<br />

my shortcomings is my loss of short term memory.<br />

I might not remember all of their names but we<br />

meet as friends and we ask how each other’s life<br />

is going. I have travelled to Cork and Limerick for<br />

meetings to meet with group representatives from<br />

both counties. It’s a good way to meet new people.<br />

We come up with ways of how we can make more<br />

people aware of <strong>Headway</strong> and<br />

how to try to come up with ways<br />

of raising funds. I then feedback<br />

the information from the meetings<br />

to the group in Finglas. The best<br />

part for me is making a lot more<br />

friends.<br />

I have also started doing voluntary<br />

work two days a week in a day care<br />

centre that looks after the elderly.<br />

It’s great. It’s all good. I help them<br />

with playing bingo, serving meals<br />

and doing the garden. I will be<br />

going out on social outings. I know<br />

I will gain a lot from doing the voluntary work. It<br />

will help with my confidence and with being able<br />

to socialise with people. That’s a big thing for me -<br />

I had a fear of how I would react to people.<br />

John: Coming to <strong>Headway</strong> has helped me to get<br />

closer to the life I had. It will never be total restored<br />

but I have got a lot better. I am trying slowly to<br />

rebuild my life. <strong>Headway</strong> has been really, really<br />

important.<br />

Tommy: <strong>Headway</strong> must be good because we keep<br />

coming in. Even if sometimes there might be bad<br />

days we still come back the next day. I overheard<br />

people talking about me down in the museum<br />

saying Tommy’s very clever. I give them a lot of<br />

information. I feel equal to everybody else there.<br />

Troy: For anybody coming into <strong>Headway</strong>,<br />

acceptance is so important. After that it’s onwards<br />

and upwards.<br />

4


Making <strong>Headway</strong> Summer 2010<br />

<strong>Headway</strong>’s<br />

First Annual<br />

Bikers’ Run<br />

The country’s capital was over-run on Sunday<br />

March 7th for <strong>Headway</strong>’s first ever Bikers’<br />

event. The sun came out and with it, many<br />

leather-clad motor-bike enthusiasts to help<br />

launch the start of a number of events for<br />

<strong>Headway</strong>’s Brain Awareness Week.<br />

South King St. outside the Gaiety Theatre was<br />

a flush with over 60 bikers who registered<br />

for this very exciting event. This was a first time<br />

outing for <strong>Headway</strong> and as it proved to be highly<br />

successful, we are already making arrangements<br />

for next year’s ride-out. We’d like to take this<br />

opportunity to thank the “Valkyrie<br />

Riders Cruisers Club” (VRCC) whose<br />

committee worked tirelessly to both<br />

promote and round up all the bikers<br />

on the day. With the assistance of<br />

98fm, TR O’Reilly & Cassidy Covers,<br />

Dublin city centre was buzzing with<br />

the sound of motor-bike horns<br />

and the smell of gasoline! Even<br />

An Garda Síochana assisted with a<br />

special escort provided to the bikers<br />

to help them exit the city centre<br />

comfortably! <strong>Headway</strong>’s very own<br />

ambassador, Keith Barry, arrived to<br />

entertain on-lookers, while Siobhan<br />

Lee, a member of <strong>Headway</strong>’s Finance Department,<br />

used her face painting talents to entertain the<br />

younger members of the crowd. There really was<br />

<strong>Headway</strong> Ambassador, Keith<br />

Barry, and friends<br />

a great deal of excitement in the air.<br />

Although this was an awareness raising event for<br />

<strong>Headway</strong>, it also proved very successful from a<br />

fund-raising perspective, in total we collected over<br />

€750 on the morning, all of which<br />

will go towards service provision<br />

here at <strong>Headway</strong>. Again, a very big<br />

thank you to all who supported<br />

<strong>Headway</strong>, it was heart warming to<br />

see such support on a very bright<br />

& early Sunday morning. The bikers<br />

could not have received a better<br />

send off.<br />

<strong>Headway</strong> would also like to say<br />

a huge “Thank you” to Ann and<br />

Paul Nolan, Arthur Smith, Cory<br />

O’Connor, Jo Nolan and Ciaran<br />

Nolan for their support in arranging<br />

the day. Don’t forget to keep an eye out on the<br />

<strong>Headway</strong> web-site for more up-coming events<br />

like these.<br />

A Date with Wellness<br />

Seventeen carers made the most of an invitation to<br />

a “Date with Wellness” to mark the start of National<br />

Carers Week 14th to 20th June in our Manor Street<br />

Dublin centre. As well as the opportunity to offer<br />

each other support and advice for coping with<br />

the consequences of brain injury, the participants<br />

benefitted from sessions on relaxation, meditation<br />

and stress management and were treated to<br />

some muffins and a cream tea on a glorious sunny<br />

Saturday morning.<br />

Carers time out at the “Date with Wellness”<br />

5


Helping Each Other Out – The Cork<br />

Ladies Social Club<br />

The Social Club was set up with the support of the <strong>Headway</strong> Community<br />

Integration Rehabilitation team in Cork. Currently in its early stages, it<br />

comprises three women all local to the Cork area. Julie Slattery writes<br />

about setting up the club.<br />

6<br />

The idea for setting up the Social Club arose<br />

from observing and identifying some particular<br />

challenges faced by people following an injury in<br />

pursuing their social lives. For example, we found<br />

that after their injury, many of our clients’ social<br />

lives revolved primarily around their families. We<br />

noted comments, such as “I was hanging around<br />

with my mum for a lot of the time”, “I spent most<br />

of my time with my family as well, especially my<br />

sisters”. Also, clients reported that during the<br />

period of recovery following injury, friends often<br />

either moved on with their lives or moved away<br />

from the area.<br />

The Social Club aims to increase participation in<br />

social and recreational activities and increase the<br />

members’ confidence in their own social skills. At<br />

the outset, one aim was that this group would<br />

eventually become fully independent following<br />

initial introductions made by <strong>Headway</strong>. The group<br />

would be in charge of arranging and organising<br />

their own activities and maintaining weekly<br />

contact with each other. The members could<br />

however always contact the team should an issue<br />

arise that they needed support with.<br />

This idea was suggested to three clients with<br />

whom <strong>Headway</strong> had been working individually.<br />

Each client had been living and adjusting to their<br />

brain injury for some time and had also expressed<br />

an interest in meeting others socially. One said<br />

“I wanted to meet other people to improve my<br />

confidence in myself and build up my self esteem.<br />

I wanted to have a social life and meet with others.<br />

I wanted to have friendships.” Another lady said “I<br />

wanted to meet other people, even just to have a<br />

cup of tea and a chat with.”<br />

When the group met up they each introduced<br />

themselves, talked about what activities they<br />

might like to do together and exchanged numbers.<br />

The <strong>Headway</strong> team met with them on the first<br />

few occasions but they now, as was hoped, meet<br />

independently of <strong>Headway</strong>. They meet up on<br />

Wednesday afternoons and decide each week<br />

what they will do the following week and where<br />

and when they will meet.<br />

So far the group have sampled a wide range of<br />

activities. They have made trips to the Crawford<br />

Art Gallery, Fitzgerald Park, Cork City Musem and<br />

the Cork Vision Centre and also to Shandon to ring<br />

the bells. The group say that they are particularly<br />

fond of “doing lunch”! As confidence increases, the<br />

group are planning events further afield including<br />

an upcoming trip to Dublin.<br />

Each member of the group has expressed how<br />

much they enjoy meeting and what it means to<br />

them. One lady said “I enjoy the company. I like<br />

meeting every week and knowing that it’s going<br />

to happen again next week. My sisters call to my<br />

house and we sometimes go out but they have<br />

their own lives as well and I want my own social<br />

life outside of them too. Everyone needs friends<br />

and company and in the social club we all have<br />

something in common”. Another member said “I<br />

enjoy meeting the others and having a chat. Its<br />

something I look forward to. It is nice to spend<br />

time with people outside my family. We all have<br />

different injuries but we can talk about it with each<br />

other.” Another lady said “We have a good old laugh<br />

when we meet. We have good times, good chats<br />

and good laughs and I love the company as well.<br />

This social club gives me friends and something<br />

to look forward to. It also means that I’m not alone<br />

in my suffering because I can talk to the others. It’s<br />

nice to meet with people who we have things in<br />

common with. We can help each other out.”<br />

We are all social beings and need social interaction<br />

in our daily lives and <strong>Headway</strong> clients are no<br />

different. As was eloquently explained by one<br />

member, “everyone needs a social life. You get


Making <strong>Headway</strong> Summer 2010<br />

stuck in your own thoughts and troubles if you are<br />

only in your own company all the time... The social<br />

club is part of my routine now and its something I<br />

enjoy being part of”. The social club brings people<br />

together with similar interests to participate in<br />

activities chosen and organised by them. It is their<br />

club and this may explain why it is so important<br />

to them. When asked if they will continue to<br />

meet up, all replied “definitely”. The support and<br />

companionship they give each other cannot be<br />

underestimated.<br />

Research into Practice: Measuring<br />

Clinical Outcomes using CORE<br />

Dr. Barbara Mensenkampff, Senior Clinical Psychologist, explains<br />

CORE, one of the tools <strong>Headway</strong> uses in its evidence-based approach<br />

to therapy.<br />

As Psychologists working in<br />

<strong>Headway</strong> Cork we provide<br />

assessments, therapy and support<br />

to people with acquired brain<br />

injury. This service extends to the family and carers<br />

also. We work on a one-to-one basis as well as with<br />

groups of clients. Many of you will be aware of the<br />

idea of neuropsychological assessments. These are<br />

the tests we undertake to establish what areas of<br />

peoples’ brains have been affected by their injury.<br />

Once we have this information we are in a better<br />

position to plan rehabilitation or retraining for<br />

individuals. Neuropsychological tests can also be<br />

used to monitor peoples’ recovery. This involves<br />

testing the person and keeping account of their<br />

results and then re-testing them at a later date and<br />

comparing the scores. We take a similar approach<br />

to therapy. We use measures to establish where<br />

people are at the beginning of therapy and we<br />

re-test at the end of the therapy. In this way we<br />

can ascertain how effective therapy was as well as<br />

monitoring changes in the persons overall situation.<br />

One of the tools we use to do this is called the<br />

CORE – Clinical Outcomes in Routine Evaluation.<br />

In this article I am going to describe the CORE and<br />

speak a bit about why <strong>Headway</strong> Psychologists use<br />

this measure.<br />

In 1996 the Department of Health in the UK carried<br />

out an extensive review of psychotherapy services.<br />

One of the important findings that emerged from<br />

this review was that outcome measures provide<br />

the link between clinical practice and research. In<br />

other words, the review identified that information<br />

from clinical settings needed to be collected and<br />

compared to research information almost as a<br />

quality control measure. One of the difficulties of<br />

evaluating the effectiveness of therapy was that<br />

different professionals were using different tools<br />

to measure therapeutic outcomes. This meant<br />

that comparisons were not possible. The CORE<br />

was developed in 1998 to resolve this problem. A<br />

group of Clinical Psychologists, Psychotherapists,<br />

Psychiatrists and counsellors came together and<br />

designed one questionnaire that everyone could<br />

use. In this way, comparisons could be drawn<br />

between different types of therapy, or different<br />

therapists or different services etc.<br />

The CORE was also designed to provide audit<br />

information on the service. In common with<br />

business practice everywhere Psychology has<br />

had to provide evidence that what we do is<br />

cost effective and beneficial. However because<br />

human beings are not products, we do not look<br />

at production costs or output instead we examine<br />

how we spend our time with clients and what the<br />

outcome is for the client. The information used to<br />

assess the service itself includes items on waiting<br />

times, the appropriateness of the referral, the nonattendance<br />

rates, etc, which allow us to examine<br />

our efficiency and identify if and where changes<br />

need to be made.<br />

So what is the CORE comprised of The CORE has<br />

three main sections: a Therapy Assessment Form<br />

– filled by the therapist; an Outcome Measure –<br />

filled by the person; and an End of Therapy Form<br />

– filled by the therapist.<br />

The Therapy Assessment form collects the kind of<br />

information that most Psychologists would use<br />

at their first session with a person. Details about<br />

who the person lives with, a brief description of<br />

the problem they want help with, whether they<br />

have had therapy previously, medication they are<br />

7


taking, whether they engage in self harm or not,<br />

how they have tried to address the problem etc,<br />

all help the Psychologist and the individual to<br />

develop a collaborative plan of action. This plan is<br />

Doreen<br />

used to direct<br />

Hoerold<br />

therapy and set out the goals which<br />

the person is hoping to achieve. It can also be used<br />

subseqently to ascertain whether the Psychological<br />

intervention was useful or not.<br />

This form also gathers information about the quality<br />

of the service. It monitors how long the client<br />

had to wait for their first appointment, how many<br />

assessments they received, whether they were<br />

offered a follow-up appointment, who referred the<br />

client etc. These details are used to monitor how<br />

well the service generally is performing. Because<br />

the form is filled whether clients undertake therapy<br />

or not, it provides a type of profile of the clients who<br />

come to the service, the ones who stay and the ones<br />

who do not. This information can then be used to<br />

identify inappropriate referrals and maximise the<br />

opportunities for appropriate referrals.<br />

The Outcome Measure is a list of 34 statements<br />

which the client rates from 0 (Not at all) to 4 (Most<br />

of the time). It is examining four dimensions:<br />

1. Subjective well being – e.g. “I have felt O.K.<br />

about myself.<br />

2. Problems – e.g. “I have been troubled by aches,<br />

pains or other physical problems.<br />

3. Life functioning – e.g. “I have felt able to cope<br />

when things go wrong”.<br />

4. Risk – e.g.”I have thought of hurting myself”.<br />

Higher scores indicate someone who is very<br />

distressed, lower scores indicate fewer problems.<br />

The final section is the End of Therapy Form. This has<br />

to be filled by the therapist for every person who<br />

has had more than one session. This form compiles<br />

information on the individual’s attendance record,<br />

how many sessions were offered, the type of<br />

therapy undertaken, the frequency of therapy and<br />

how therapy ended. It also looks at whether therapy<br />

impacted on the person’s insight, coping, planning,<br />

functioning and personal relationships, how well<br />

the person engaged with the therapist, whether<br />

medication was changed as a result of therapy and<br />

whether the client needs to be followed up in the<br />

future.<br />

By gathering information on the person’s experience<br />

of therapy, any changes to their quality of life,<br />

how the service functioned, who the Psychologist<br />

was, what kind of therapy they provided, etc., the<br />

Psychology team can learn a lot about the service<br />

we are providing. This information helps us to<br />

understand the needs of our clients better. We<br />

learn about what we are doing well, where we need<br />

to improve as well as identifying changes that we<br />

need to make to improve our service. This process<br />

of evaluating outcomes for people and using the<br />

information to shape the service we offer ensures<br />

that we provide a client-centred rehabilitation<br />

service for people with ABI. It guarantees that our<br />

practice is in line with best practice guidelines (e.g.<br />

evidence based practice). It helps us to contribute<br />

to and develop research for brain injury which<br />

in turn can be used to advocate for the rights of<br />

people with acquired brain injury. In today’s world<br />

where the bottom line is always - can you prove<br />

it - we listen what our clients tell us and respond<br />

accordingly. The CORE is one of the tools that helps<br />

us to do this.<br />

8<br />

Thank You, Thank You, Thank You!<br />

...to the 55 wonderful women who volunteered<br />

to walk, jog and run in the Flora women’s mini<br />

marathon on the 7th June in Dublin. We hope<br />

you all enjoyed the day, we truly appreciate your<br />

support, when you have it all collected please<br />

send in your sponsorship money to Fiona Mc<br />

Keon, <strong>Headway</strong>, 1-3 Manor Street Business Park,<br />

Manor Street Dublin 7. Thank you again for your<br />

continued support.<br />

... to the ladies that took part in the Great Limerick<br />

Run on 2nd May we really appreciate your<br />

support.<br />

<strong>Headway</strong> Ringsend Service Users and Staff<br />

...to Ann and Pat Fitzgerald for hosting a wonderful<br />

fundraising Cabaret night on 2nd May in Carlow.<br />

A great night was had by all and Ann and Pat<br />

managed to raise a fantastic €1,680!<br />

…to all that took part in the pub quiz on 11th<br />

June in Russell’s Pub Limerick a great night was<br />

had by all.<br />

This year you helped us raise nearly €3,000 by<br />

raffling off beautiful Baskets of Butlers Easter Eggs,<br />

Thank you to everyone who took an egg.Rodney<br />

Vickers


Making <strong>Headway</strong> Summer 2010<br />

My Story, My Promise<br />

My name is Warren and this is my story. When I was six years old I fell off a<br />

bus shelter onto my head. I remained unconscious for 10-15 minutes and<br />

on the way to the hospital I stopped breathing, but I made a good recovery.<br />

Then one day, when I was fourteen, I was taking a fast way home with<br />

friends. We had to get over a gate and my ring got caught in the gate and<br />

when I jumped, my finger came off. I lost four pints of blood.<br />

I have been in and out of hospital most of my life.<br />

I didn’t return to school over problems with other<br />

pupils saying things about my missing finger. So<br />

I just left school. I always wanted to be a fireman<br />

but couldn’t because I had lost my finger. I do<br />

think I still have a finger but I don’t. When I tried to<br />

pick things up they used to fall through the gap of<br />

my hand where my finger used to be. It is hard to<br />

cope without it but it does get easier each year.<br />

I used to hang around at the train station in my<br />

local area. One evening I was messing around the<br />

stairwell of the stairs. I was joking as to what would<br />

happen if I fell off the balcony 20 ft high and all<br />

of a sudden I slipped and was left hanging on the<br />

ledge. But I couldn’t hold on as I had a weak right<br />

hand with a finger missing, so I fell to the ground<br />

and busted my head open. I lost a lot of blood<br />

and I was taken to hospital.<br />

I was sent for a scan and they discovered that I had<br />

swelling of the brain and two clots. I was put in an<br />

induced coma for a week, but I did make a gradual<br />

recovery.<br />

I had another fall in April 2008. As other people tell<br />

me, we went to the Phoenix Park and climbed the<br />

papal cross and somehow I lost my balance and<br />

fell down the steps and cracked my head on the<br />

concrete. I was taken to Connolly hospital and was<br />

in intensive care for 27 days. When I awoke I was<br />

unable to move my arm or leg and I was unable<br />

to speak.<br />

It was to be a long struggle to get back to myself,<br />

if I ever will. The Warren that awoke on that day is<br />

a different Warren. I now have to stay off drink in<br />

order to control my anger and stay out of situations<br />

that I can’t control.<br />

I owe my recovery to <strong>Headway</strong>. It is a long, long<br />

road to recovery and there is a glimmer at the end.<br />

But I can see it and it will be a light. I have to say<br />

a big thank you to my parents and family. I have<br />

made their lives hard for the past few years but I<br />

will make it up to them by getting the help I need<br />

and work hard at it.<br />

<strong>Headway</strong> Signs Road Safety Charter<br />

At a recent ceremony in Dublin,<br />

<strong>Headway</strong> joined a group of other<br />

Irish organisations in signing up to<br />

the European Road Safety Charter<br />

in the presence of the European<br />

Commission and the Minister for<br />

Transport, Noel Dempsey TD. The<br />

charter has as its aim to reduce<br />

road deaths by 25,000 across the<br />

European Union and has a website<br />

at www.erscharter.eu<br />

“Kieran Loughran, <strong>Headway</strong> CEO (back row 5 from L), joins signatories<br />

to the EU Road Safety Charter<br />

9


Day Rehabilitative<br />

Service Mallow<br />

The <strong>Headway</strong> Day Rehabilitative<br />

Service in Cork now has a new<br />

string to its bow. Since January of this<br />

year, the service has been operating<br />

one day per week to clients living in<br />

the North Cork area. Based in the<br />

newly opened Gilbert Centre in Fair<br />

Street, Mallow, the service operates<br />

from 10.30 until 3.30 on a Tuesday.<br />

At present there are five clients<br />

benefitting from the service on a<br />

weekly basis, supported by two staff<br />

and a volunteer from the <strong>Headway</strong><br />

team in Ballincollig.<br />

So far, the new venture has been a<br />

great success with the five clients<br />

thoroughly enjoying a holistic<br />

rehabilitative service without the need to travel<br />

far from home. The <strong>Headway</strong> staff members also<br />

report a very good atmosphere and camaraderie<br />

amongst the attendees. Activities to date have<br />

included Personal Development, Cognitive<br />

Exercises, Art and Crafts, Exercise and Relaxation<br />

and Brain Injury Awareness. The group were also<br />

involved in putting together an information day<br />

on <strong>Headway</strong> in the Gilbert Centre during Brain<br />

Awareness Week 2010.<br />

<strong>Headway</strong> Limerick celebrated cultural diversity<br />

recently with a Polish-Irish Day held in the centre.<br />

The day was part of the FETAC Level 4 Cultural<br />

Studies module and was delivered by <strong>Headway</strong>’s<br />

own Monika Pilch. Feedback from other clients<br />

was very positive with huge interest in Polish<br />

history and geography and much enjoyment of<br />

the Polish food. ‘Fasolka po bretonsku’ – beans<br />

with pork in tomato sauce and ‘Zurek’ sour rye<br />

soup prepared by clients, proved very popular<br />

with seconds being the order of the day!<br />

<strong>Headway</strong> Service Users Breda Casey and Alan Quinn with Bridget<br />

Hannan (<strong>Headway</strong>, centre)<br />

<strong>Headway</strong> would like to take this opportunity<br />

to thank all of those involved in securing this<br />

vital service for these clients and also to wish<br />

the service further success in the future. If you<br />

would like more details on the North Cork service<br />

please feel free to contact Paul O’Callaghan, Day<br />

Rehabilitative Service Manager Cork at 021 –<br />

4871303 or ocallaghanp@headway.ie<br />

Polish-Irish Day In Limerick<br />

10<br />

Pat O Gorman presenting to fellow clients during<br />

Polish-Irish Day in the <strong>Headway</strong> Limerick centre


Making <strong>Headway</strong> Summer 2010<br />

Research Round Up<br />

In this edition, <strong>Headway</strong> Assistant Psychologist<br />

Doreen Hoerold takes a look at three recent<br />

research papers investigating the theme of social<br />

life and social integration following brain injury.<br />

Levebvrem H., Cloutier, G. & Levert, M.J. (2008).<br />

Perspectives of Survivors of traumatic brain<br />

injury and their caregivers on long-term social<br />

integration. Brain Injury, 22 (7-8), 535-543.<br />

This study used interviews with people affected<br />

by brain injury to explore aspects of long-term<br />

social integration. The researchers spoke to people<br />

who sustained a traumatic brain injury more than<br />

10 years ago, and also their caregivers/family<br />

members. A number of important themes emerged<br />

from the content of these interviews: Firstly, almost<br />

all participants expressed dissatisfaction with<br />

the shortage of services and resources following<br />

rehabilitation. Also, many people reported having<br />

to look to their own resources, and having to<br />

depend heavily on caregivers for their day-today<br />

re-learning of physical, cognitive and social<br />

skills. A survivor’s perception of “successful social<br />

integration” was closely linked with having good<br />

social support, both from friends and family. Social<br />

isolation, by contrast, was linked with depression<br />

and other difficulties, such as addiction, job loss<br />

and subsequent high risk of poverty.<br />

Hux, K., Bush, E., Zickefoose, S., Holmberg, M.,<br />

Henderson, A. & Simanek, G. (2010). Exploring<br />

the study skills and accommodations used by<br />

college student survivors of traumatic brain<br />

injury. Brain Injury, 24 (1), 13 – 26.<br />

An important aspect of successful social and<br />

community integration is meaningful activity.<br />

For many young people who have sustained an<br />

acquired brain injury, this often involves a return<br />

to education or training. This study explored the<br />

difficulties encountered by four college student<br />

survivors of severe traumatic brain injury (TBI).<br />

Most commonly, these challenges include<br />

difficulties with mastering new information and<br />

difficulties with applying known information<br />

to new situations. This often, in turn, creates<br />

unrealistic expectations among those with<br />

TBI, family members, and educators who may<br />

be unfamiliar with the consequences of brain<br />

injury. The results of the study suggest that when<br />

it comes to learning, awareness of one’s own<br />

strengths and limitations is crucial to success in<br />

college. The study also identified much variation<br />

among individual survivors of TBI. The paper<br />

recommends that educators should be made<br />

aware of the potential difficulties experienced by<br />

their students, and should be informed about the<br />

nature of brain injury and its impact on learning<br />

and academic performance.<br />

Fraas, M. & Bellerose, A. (2010). Mentoring<br />

programme for adolescent survivors of acquired<br />

brain injury. Brain Injury, 24 (1), 50-61.<br />

This study describes a 10-week mentoring<br />

programme for survivors of acquired brain injury.<br />

During the programme used in this study, an adult<br />

brain injury survivor mentored an adolescent who<br />

was a survivor of brain injury through encephalitis.<br />

The pair met once per week, to discuss issues of<br />

mutual interest, catch up, play board games, and<br />

attend community meetings together, in a local<br />

health and wellness facility in New Hampshire,<br />

USA. Results from questionnaires administered<br />

prior to and following the 10-week programme<br />

suggest that both the mentor and adolescent<br />

with ABI perceived an improvement in quality<br />

of life. In addition, the adolescent improved on<br />

a number of aspects of adjustment, including<br />

anxiety level, depression, fatigue and appropriate<br />

social interaction. These results are encouraging<br />

in that they indicate the potential efficacy of<br />

such mentoring programmes for survivors of<br />

ABI, however, the authors also caution that these<br />

results are relatively preliminary, and must be<br />

validated in larger group studies in the future.<br />

11


Making <strong>Headway</strong> Summer 2010<br />

Contact Information<br />

Head Office<br />

Unit 1-3 Manor St. Business Park, Manor St., Dublin 7<br />

Tel: (01) 810 2066 Fax: (01) 810 2070<br />

Web: www.headway.ie Email: info@headway.ie<br />

Information and Support Line<br />

1890 200 278<br />

email: helpline@headway.ie<br />

Monday – Friday, 9 am to 1 pm and 2 – 5 pm (local call rate)<br />

Dublin Office<br />

Unit 1-3 Manor Street Business Pk, Shea’s Lane,<br />

off Manor Street, Dublin 7<br />

Tel: 01 810 2066 Fax: 01 810 2070<br />

Web: www.headway.ie Email: info@headway.ie<br />

Rehabilitative Training & Day Rehabilitative Services, Employment<br />

Support, Neuropsychological Assessment,Psychotherapy,<br />

Counselling and Information and Support.<br />

Cork Office<br />

Unit B3, Link Road Business Park, Ballincollig, Cork<br />

Tel: 021 487 1303 Fax: 021 487 1305<br />

Rehabilitative Training & Employment Support,<br />

Rehabilitative Day Services and Community Integration.<br />

Cork Psychology & Family Support Services<br />

Kenny Group House, Carrigrohane Road, Cork<br />

Tel: 021 434 7625 Fax: 021 434 7477<br />

Brain Injury Rehabilitation, Neuropsychological Assessment,<br />

Psychotherapy, Counselling, Family Support,and Social Work<br />

Services.<br />

Limerick Office<br />

Jutland Hall, Steamboat Quay, Dock Rd., Limerick<br />

Tel: 061 469 305 or 061 469 306<br />

Rehabilitative Training, Vocational Training Programme,<br />

Supported Employment, Neuropsychological Assessment,<br />

Psychotherapy,Counselling and Family Support<br />

Kerry Office (Psychological Services)<br />

Fairies Cross, Clounalour, Tralee, Co. Kerry<br />

Tel: 066 711 9320 Fax: 066 711 9321<br />

Psychotherapy and Counselling<br />

South East Office<br />

6B Prior’s Orchard, John’s Quay, Kilkenny<br />

Tel: 056 778 6240<br />

Information and Support, Family Support<br />

Diary Dates<br />

Marathons<br />

Following the success of the women in the Flora<br />

mini-marathon, we are launching an appeal for<br />

volunteers to participate in the various upcoming<br />

runs to raise funds for our services. We will supply<br />

your sponsorship form and T shirts and you<br />

register with the chosen run, for more information<br />

please log onto www.headway.ie/runforheadway<br />

or email mckeonf@headway.ie<br />

• Killarney Women’s Mini Marathon on 26th June<br />

• Evening Echo Women’s Mini Marathon Cork,<br />

26th Sept<br />

• Limerick Leaders Limerick Women’s Mini<br />

Marathon, 3rd Oct<br />

• Adidas Dublin Marathon, 25th Oct<br />

Golf Day<br />

The <strong>Headway</strong> Golf Day is on Thursday 2nd Sept<br />

2010. Simply arrive in the beautiful surrounds<br />

of Roganstown Golf & Country Club, Swords, Co<br />

Dublin for 18 holes of golf on the challenging<br />

course designed by Christy O’Connor Jr. A team<br />

of four costs €280, a lunch will be provided. If you<br />

cannot participate on the day would you consider<br />

sponsoring a team Please contact Fiona or Teresa<br />

on Ph: 01 8102066 to book a tee time.<br />

Limerick Ball 2010<br />

The much anticipated Limerick Ball will be held<br />

on 4th Dec in the Radisson SAS Hotel . We are<br />

taking bookings now please phone Denis on Ph:<br />

061 469305. A table of 10 costs €1,000 individual<br />

tickets are available at €100<br />

Art Auction<br />

Limerick Art Auction, Hunt Museum, August (date<br />

TBC) please check on our website for updates<br />

www.headway.ie<br />

Fashion Show<br />

Fashion Show 1st Oct 2010 – The Strand Hotel,<br />

Limerick. Mr. World will be there on the night!<br />

please contact our Limerick office for Tickets on<br />

061469305<br />

Find us on Facebook at<br />

www.facebook.com/<strong>Headway</strong>.ie<br />

Follow us on Twitter at<br />

www.twitter.com/<strong>Headway</strong>Ireland<br />

12

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