30.11.2014 Views

Facilitator Handbook 2005 - PRIMIS

Facilitator Handbook 2005 - PRIMIS

Facilitator Handbook 2005 - PRIMIS

SHOW MORE
SHOW LESS

Create successful ePaper yourself

Turn your PDF publications into a flip-book with our unique Google optimized e-Paper software.

<strong>PRIMIS</strong><br />

<strong>Facilitator</strong> <strong>Handbook</strong><br />

August <strong>2005</strong>


This <strong>Facilitator</strong> <strong>Handbook</strong> is interactive, allowing you to jump directly from<br />

the Contents page to where you wish to go - and back again.<br />

All the website addresses listed in this document are also interactive - click<br />

on a website address and your internet browser will automatically open the<br />

correct page.<br />

To navigate:<br />

Simply position your curser over a heading on the Contents page (your curser<br />

hand will change to show it’s a ‘clickable’ area) and click your left mouse<br />

button.<br />

To return to the Contents page from anywhere within this handbook, simply<br />

go to the top of the page and click on ‘<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong>’.


Contents<br />

Introduction 1<br />

The <strong>PRIMIS</strong> National Team 2<br />

Your Local <strong>PRIMIS</strong> Scheme 7<br />

The <strong>PRIMIS</strong> Training Agenda 13<br />

Training Needs Assessment and Scheme Management 17<br />

What is Primary Care? 21<br />

Quality Data, Quality Outcomes 25<br />

Clinical Coding 29<br />

The MIQUEST Process 33<br />

Data Analysis, Interpretation and Feedback 37<br />

Facilitation Skills 39<br />

Annual Review 43<br />

CHART 47<br />

Action Planning and Supporting Change 51<br />

Information Governance 55<br />

Path to Paperless 59<br />

Data Quality and Patient Safety 63<br />

Supporting Quality Outcomes 67<br />

Supporting Quality Services 71<br />

Supporting Quality Review 75<br />

Primary Care Data Uses and Abuses 79<br />

Glossary 83


Introduction<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Introduction<br />

The aim of the Primary Care Information Services (<strong>PRIMIS</strong>) <strong>Facilitator</strong> <strong>Handbook</strong> is to support<br />

the information facilitator’s individual learning portfolio by introducing each of the training topics<br />

offered as part of the <strong>PRIMIS</strong> training programme. The <strong>Handbook</strong> does not replace the need to<br />

attend the training, but serves to prepare the facilitator for the training and give references for<br />

additional reading which facilitators can choose to pursue, either in preparation for the training<br />

day or for further information following the training. Detailed information on the setting up and<br />

running of a local <strong>PRIMIS</strong> scheme is contained within the <strong>PRIMIS</strong> Guidelines.<br />

In addition to the <strong>Facilitator</strong> <strong>Handbook</strong> and <strong>PRIMIS</strong> Guidelines there are also workbooks to<br />

support the majority of the <strong>PRIMIS</strong> training modules. These workbooks, made available to<br />

those attending the training, include background information and practical exercises and<br />

scenarios, and are designed to build up a full resource for future use. A manual for the<br />

MIQUEST data extraction software is made available separately to those attending the<br />

MIQUEST Process training module.<br />

This <strong>Handbook</strong> is divided into sections that mirror the training modules offered by <strong>PRIMIS</strong>, as<br />

shown below:<br />

<strong>PRIMIS</strong> Training Modules<br />

• Training Needs Analysis and Scheme Management<br />

• What Is Primary Care?<br />

• Quality Data, Quality Outcomes<br />

• Clinical Coding<br />

• The MIQUEST Process<br />

• Data Analysis, Interpretation and Feedback<br />

• Facilitation Skills<br />

• Annual Review<br />

• CHART<br />

• Action Planning and Supporting Change<br />

• Information Governance<br />

• Path to Paperless<br />

• Data Quality and Patient Safety<br />

• Supporting Quality Outcomes<br />

• Supporting Quality Services<br />

• Supporting Quality Review<br />

• Primary Care Data Uses and Abuses<br />

<strong>PRIMIS</strong> 1


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Introduction<br />

The <strong>PRIMIS</strong> National Team<br />

Introduction<br />

<strong>PRIMIS</strong> is a free training and support service to help GPs provide quality patient care by<br />

making the best use of their clinical computer systems and improving data quality and<br />

information management. Launched in April 2000, <strong>PRIMIS</strong> is currently managed by NHS<br />

Connecting for Health and is based in the Division of Primary Care at the University of<br />

Nottingham.<br />

<strong>PRIMIS</strong> works with local information facilitators, employed by Primary Care Organisations<br />

(PCOs) or local Health Informatics Services across England, to provide GPs and practice staff<br />

with:<br />

• training in information management skills<br />

• analysis of data quality and key clinical topics<br />

• feedback and interpretation of analyses<br />

• support in developing and delivering action plans to improve data quality.<br />

The benefits to practices and PCOs of participating in a local <strong>PRIMIS</strong> scheme are outlined<br />

below.<br />

Benefits of participating in a local <strong>PRIMIS</strong> scheme<br />

• Training for local information facilitators whose role is to help GPs and<br />

other members of primary health care teams assess and improve data<br />

quality and information management, ultimately improving patient care<br />

and ensuring patient safety<br />

• Tools and techniques to assist PCOs in comparative analysis, which will<br />

provide benchmarks as a basis for tackling inequality in access<br />

• Improved chronic disease registers. This facilitates the proactive<br />

management, comprehensive treatment and monitoring of "at risk"<br />

patients<br />

• Assistance for practices in meeting clinical governance agendas and<br />

national service framework requirements<br />

• Support in building and maintaining quality primary care electronic<br />

patient records to support the information requirements of primary care<br />

medical contracts<br />

• Support and advice for practices participating in the quality and<br />

outcomes framework of the new GMS contract<br />

• Better use of clinical information systems to ensure patient safety<br />

• Support for large national information-dependent projects, such as<br />

Electronic Transmission of Prescriptions (ETP), Choose and Book and<br />

GP to GP transfer of data, and data migration to the NHS Care Records<br />

Service, ensuring that data uploaded follows uniform quality standards<br />

2 <strong>PRIMIS</strong>


Introduction<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Data quality has now been recognised as a crucial element of the ongoing development of<br />

primary care, as part of the wider NHS community. As quality payments in the new GMS<br />

contract are calculated on recorded clinical data, data quality is no longer just the domain of<br />

‘techy GPs’. Virtually all practices now have clinical computer systems, but the level and<br />

effectiveness of their use is variable. <strong>PRIMIS</strong> helps practices to improve their information<br />

management skills and their use of technology to support improved patient care.<br />

The <strong>PRIMIS</strong> Team<br />

<strong>PRIMIS</strong> consists of the following teams:<br />

Directors<br />

The four Directors are responsible for aligning the service with national policy, the overall<br />

organisation and delivery of the service, ensuring appropriate clinical input to the service, and<br />

overseeing the technical resources used by the <strong>PRIMIS</strong> Team.<br />

Clinical Advisers<br />

The team of Clinical Advisers provides support to the Learning Consultants and facilitators on<br />

a cluster basis, as well as contributing to the development of queries and software through the<br />

Clinical Advisory Group, under the chairmanship of the Clinical Director.<br />

Training and Support Team<br />

Training and support for facilitators are provided by a team of Learning Consultants based<br />

across the five clusters in England:<br />

North East<br />

North West<br />

and West<br />

Midlands<br />

Eastern<br />

Cluster Map<br />

London<br />

Southern<br />

This team is responsible for the delivery of the training set out later in this <strong>Handbook</strong>, as well<br />

as ongoing support for schemes through such means as scheme reviews and <strong>Facilitator</strong>s’<br />

Forums.<br />

<strong>PRIMIS</strong> 3


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Introduction<br />

Information Team<br />

Based in Nottingham, the Information Team is responsible for:<br />

• provision of a data analysis service using carefully developed MIQUEST queries<br />

• the analysis and reporting of anonymised practice data submitted through the data<br />

analysis service<br />

• the provision of a comparative analysis service (CAS) to enable schemes to<br />

compare their data on selected clinical topics with aggregated data from other<br />

participating <strong>PRIMIS</strong> schemes<br />

• the provision of helpdesk support for facilitators<br />

• the development and support of CHART (Care and Health Analysis in Real Time)<br />

software to support practices with their own data analysis.<br />

Communications Team<br />

The Communications Team is responsible for all internal and external communications about<br />

the service.<br />

Technical Support Team<br />

The Technical Support Team is responsible for the provision of IT support to the <strong>PRIMIS</strong> Team.<br />

They are also responsible for facilitators’ access to the <strong>PRIMIS</strong> website.<br />

Technical Consultants<br />

The Technical Consultants are responsible for advice and support on MIQUEST software, and<br />

also for the development and ongoing maintenance and support of a number of software<br />

applications, including Rush, CHART and CHARTOnline. They work closely with the<br />

Information and Technical Support Teams.<br />

4 <strong>PRIMIS</strong>


Introduction<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

<strong>PRIMIS</strong><br />

University of Nottingham<br />

14th Floor Tower Building<br />

University Park<br />

Nottingham<br />

NG7 2RD<br />

www.primis.nhs.uk<br />

General enquiries<br />

enquiries@primis.nottingham.ac.uk<br />

Tel: 0115 846 6420<br />

Fax: 0115 846 6432<br />

Information Team enquiries<br />

information.team@primis.nottingham.ac.uk<br />

Tel: 0115 846 6320<br />

Fax: 0115 846 6432<br />

Helpdesk enquiries<br />

helpdesk@primis.nottingham.ac.uk<br />

Tel: 0115 846 6320<br />

Training enquiries<br />

Useful <strong>PRIMIS</strong> contacts<br />

Individual Learning Consultants will give facilitators their mobile number and email address<br />

Website access enquiries<br />

enquiries@primis.nottingham.ac.uk<br />

Tel: 0115 846 6427<br />

<strong>PRIMIS</strong> 5


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Introduction<br />

6 <strong>PRIMIS</strong>


Your Local <strong>PRIMIS</strong> Scheme<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Your Local <strong>PRIMIS</strong> Scheme<br />

A local project or scheme wishing to improve the use of primary care clinical systems may be<br />

organised in various ways and at different organisational levels, such as a PCO or local Health<br />

Informatics Service.<br />

Before <strong>PRIMIS</strong> is able to begin training or data quality analysis work with a PCO, a project<br />

plan must have been approved and a facilitator or team of facilitators employed.<br />

The role of the facilitator<br />

Depending on how much work has been already achieved by the scheme, facilitators may<br />

need to be proactive in setting up or finalising the project plan. Alternatively, facilitators may be<br />

recruited to an established scheme. Either way, training and support are provided by <strong>PRIMIS</strong>.<br />

For new schemes, following initial<br />

training by <strong>PRIMIS</strong>, facilitators will<br />

begin to work directly with practices.<br />

For each one, this involves getting to<br />

know the practice team, evaluating<br />

training and development needs, and<br />

examining current use of the clinical<br />

system. Data quality may be assessed<br />

by running sets of MIQUEST queries<br />

and feeding back the analysed results<br />

with suitable interpretation. Action<br />

plans can then be formulated and<br />

agreed, which may include identifying<br />

training needs, changes in the way the<br />

system is used and indicators of<br />

progress.<br />

Once the initial quality improvement<br />

work has been started, the local<br />

scheme can consider incorporating<br />

other <strong>PRIMIS</strong> activities, such as<br />

joining the comparative analysis<br />

service or using the CHART software.<br />

By this stage, schemes tend to move<br />

away from a standard pattern in order<br />

to support local needs. The variety of<br />

work carried out by <strong>PRIMIS</strong> facilitators<br />

across England can be seen on the<br />

Schemes Showcase pages of the<br />

<strong>PRIMIS</strong> website.<br />

Keys to Successful<br />

Planning for Data Quality<br />

Primary care organisations that have<br />

successfully implemented <strong>PRIMIS</strong> projects<br />

have capitalised on the following key factors:<br />

• Clear vision and objectives<br />

• Activity plan with targets<br />

• Adequate resources<br />

• Management commitment and support<br />

• Clinical ownership<br />

• Recruiting the right people<br />

• Realistic expectations<br />

• Control and risk management<br />

• Linking in with other activities and<br />

initiatives<br />

• Clearly defined reporting structures<br />

• Commitment to monitor progress<br />

The role of the facilitator is discussed in detail during the Scheme Management training<br />

module. Also, more information is available in the Introducing <strong>PRIMIS</strong> booklet available from<br />

<strong>PRIMIS</strong>.<br />

<strong>PRIMIS</strong> 7


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Your Local <strong>PRIMIS</strong> Scheme<br />

Other key factors identified as important for project success by <strong>PRIMIS</strong> schemes:<br />

• Good communication<br />

• Clear and realistic project milestones<br />

• Willingness to change<br />

• Training<br />

• Understanding the importance of data quality<br />

• Adopting an educational approach, not performance management<br />

The first year<br />

The plan shown in the box below outlines a suggested initial timetable for a new facilitator<br />

starting with a new <strong>PRIMIS</strong> scheme. In addition to the core training modules listed, facilitators<br />

may access other <strong>PRIMIS</strong> training as required (see page 1).<br />

Extract from a typical facilitator’s plan for the first year of a new <strong>PRIMIS</strong> project<br />

<strong>Facilitator</strong> induction with PCO<br />

<strong>PRIMIS</strong> Training - Training Needs Analysis<br />

and Scheme Management, Quality Data,<br />

Quality Outcomes, Clinical Coding<br />

Develop Baseline<br />

Recruit/first visit to Practices<br />

Report to PCO - baseline findings<br />

Review/develop recording processes<br />

<strong>PRIMIS</strong> Training - The MIQUEST Process<br />

Data extraction - PDQ and RPDQ queries<br />

<strong>PRIMIS</strong> Training - Data Analysis, Interpretation<br />

and Feedback, Facilitation Skills<br />

Feedback to practices<br />

Develop/deliver training for practices<br />

Apr May Jun Jul Aug Sep Oct Nov<br />

8 <strong>PRIMIS</strong>


Your Local <strong>PRIMIS</strong> Scheme<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Information Governance issues and the <strong>PRIMIS</strong> process<br />

Information about patients held by a general practice is confidential. Under certain<br />

circumstances, data can be released to a PCO or other external enquirer. Scheme managers<br />

and practices need to be clear about their respective responsibilities.<br />

There are several issues to be addressed, as follows:<br />

Confidentiality of patients<br />

Data by which any patient could be identified must not be extracted from a practice system by<br />

or for the use of an external enquirer. This clearly rules out such items as the names of<br />

patients or their addresses. It also rules out combinations of data items – such as age, sex and<br />

postcode – which, if considered together, could identify a patient.<br />

The MIQUEST Protocols<br />

The MIQUEST protocols contain full data security and confidentiality safeguards as outlined in<br />

the box below.<br />

Data security and confidentiality safeguards built into the MIQUEST protocols<br />

Before a query is run, the practice has:<br />

• the opportunity to scrutinise the query<br />

• to authorise the query before it can be<br />

run<br />

• the safeguard that an external<br />

enquirer may not access any strong<br />

patient identifiers, such as name,<br />

address, full date of birth, full<br />

postcode, etc.<br />

After a query has run, the practice has:<br />

• the opportunity to scrutinise the<br />

response<br />

• to authorise the response before it is<br />

released to an enquirer<br />

The <strong>PRIMIS</strong> Guidelines contains extensive recommendations about steps that must be taken<br />

to protect the confidentiality of individual patients and of practices. Where anonymised<br />

information is sufficient for a purpose, information that would enable the patient’s identity to be<br />

traced must be omitted.<br />

<strong>PRIMIS</strong> 9


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Your Local <strong>PRIMIS</strong> Scheme<br />

There are purposes, other than for delivering personal care and treatment, for which it is<br />

legitimate to use personal information about patients, provided that patients in general are<br />

made aware that personal information may be used to prepare statistics to support such<br />

purposes. These purposes include:<br />

• assuring and improving the quality of care and treatment (e.g. through clinical audit)<br />

• monitoring and improving public health<br />

• managing and planning services<br />

• statistical analysis and medical or health services research to support any of the<br />

above.<br />

Although the data extracted will not in itself identify individual patients, it will still be necessary<br />

to avoid ill-considered aggregation of data which may threaten the confidentiality of the<br />

individual. This is especially important with rare conditions involving small numbers of patients,<br />

or conditions associated with recognisable characteristics, or where patients with combinations<br />

of conditions are being selected. Both participating GPs and the data quality improvement<br />

scheme must be alert to these potential problems and seek to prevent them.<br />

Aggregating selective information about a small number of patients may not always safeguard<br />

confidentiality adequately. Those with control of the information must make a judgement, taking<br />

into account clinical and other relevant considerations, as to the point at which there is no<br />

perceptible risk of patient identities being discovered from the aggregated material, either by<br />

itself or in combination with other information available to, or potentially accessible by,<br />

recipients of the information.<br />

Confidentiality is an essential component of the clinical consultation in the provision of health<br />

care. The clinical professions have stringent requirements with regard to confidentiality in their<br />

codes of ethics. The NHS Confidentiality Code of Practice is a guide to required practice, for<br />

those who work within or under contract to NHS organisations concerning confidentiality and<br />

patients’ consent to using their health records.<br />

A copy of the NHS Confidentiality Code of Practice or further information about the ways in<br />

which patient information is used in the NHS, and the need to ensure confidentiality, can be<br />

obtained from:<br />

www.dh.gov.uk/PolicyAndGuidance/InformationPolicy/PatientConfidentialityAndCaldicottGuardians/fs/en<br />

Agreements between the data quality improvement scheme and each practice<br />

The responsibilities of the practices and the managers of the data quality improvement scheme<br />

need to be clarified by a formal agreement. A skeleton agreement is provided in the <strong>PRIMIS</strong><br />

Guidelines. Such agreements are necessary for a variety of reasons, including the need to<br />

fulfil the requirements of confidentiality.<br />

Data must not be extracted which go beyond the terms of the agreement between the<br />

practices and the scheme managers, nor must data be used for purposes outside the formal<br />

agreement. Any new uses may need special agreements and due consideration of the<br />

confidentiality aspects. In the scenario where a practice contributes to a national data quality<br />

improvement scheme, such as the <strong>PRIMIS</strong> Comparative Analysis Service, but is also part of a<br />

10 <strong>PRIMIS</strong>


Your Local <strong>PRIMIS</strong> Scheme<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

local scheme (PCO, MAAG, research network, etc.), the practice would have several data<br />

collection agreements.<br />

Scheme managers are advised to review and, where necessary, update agreement terms on a<br />

regular basis.<br />

Confidentiality of practices<br />

Practices must be anonymised in feedback or other reports that present analyses of data in a<br />

comparative fashion. This implies that each practice must have a code number or name<br />

assigned to it, and that the key to the code is itself kept securely. Different data quality<br />

improvement schemes may require different anonymised codes. If all practices in a scheme<br />

agree, then practice identities may be disclosed. However, preservation of anonymity should<br />

be the starting point.<br />

Even when using an anonymised code to identify practices, schemes must still take extra care<br />

when presenting analyses showing a small number of practices that share certain<br />

characteristics. For example, if a scheme produced a graph highlighting results for a subset of<br />

practices in a small geographical area that contained only two or three practices, it might be<br />

possible to infer the identity of those practices.<br />

Security of IT systems<br />

The possibility of unauthorised access to data held in the scheme’s computer systems must be<br />

considered. Although any data extract may, in itself, conform to the requirements of patient<br />

confidentiality, linking or otherwise cross-referencing it to other data sets may make it possible<br />

to identify patients.<br />

Anti-virus software<br />

If the scheme is receiving any data directly from practices using MIQUEST, then – as with the<br />

receipt of any external disks – arrangements will need to be made to ensure thorough and<br />

comprehensive use of anti-virus software. The scheme will require virus-scanning software that<br />

is regularly updated. It will also need internal security policies and procedures to be reviewed<br />

and revised appropriately. This issue also needs to be discussed with practices.<br />

Practices will need to review their own internal security arrangements and ensure that good<br />

quality and updated anti-virus software is in place to scan disks received from their local<br />

facilitator. Internal procedures may have to be reviewed and revised to ensure that these<br />

issues are dealt with comprehensively. See the latest version of the <strong>PRIMIS</strong> Guidelines for<br />

further details.<br />

Personal integrity<br />

During the course of their work, the staff of data quality improvement schemes will encounter<br />

confidential information, perhaps in the form of documents or letters in practice offices.<br />

Absolute personal integrity is essential. The subject is complex and reference should be made<br />

to the section on confidentiality in the <strong>PRIMIS</strong> Guidelines.<br />

Data Protection Act 1998<br />

Practices involved in the scheme must be appropriately registered for the Data Protection Act<br />

and ensure that registration is kept in order. See<br />

www.hmso.gov.uk/acts/acts1998/19980029.htm#aofs for more information.<br />

<strong>PRIMIS</strong> 11


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Your Local <strong>PRIMIS</strong> Scheme<br />

Records management<br />

As part of a data quality improvement scheme, the facilitator and/or scheme manager may well<br />

be creating and storing a number of documents, such as practice-based reports and action<br />

plans, data quality audits, minutes of meetings, progress reports, guidance, newsletters and so<br />

on.<br />

It is recommended that records management systems are in place that meet the needs of the<br />

scheme and the requirements of the organisation’s records management policy. The Freedom<br />

of Information Act 2000 gives a general right of access to information held by public bodies,<br />

including GP practices and PCTs, and has also established a code of practice on records<br />

management. Further information regarding the Freedom of Information Act 2000 and the NHS<br />

can be found at www.foi.nhs.uk/<br />

The following issues should be considered:<br />

• records should be easily located and retrieved<br />

• information should be recorded legibly and jargon-free<br />

• data should be stored with suitable anonymisation and security.<br />

<strong>Facilitator</strong>s and/or scheme managers are advised to follow their organisation’s records<br />

management policy when creating, storing and disposing of information.<br />

12 <strong>PRIMIS</strong>


The <strong>PRIMIS</strong> Training Agenda<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

The <strong>PRIMIS</strong> Training Agenda<br />

<strong>PRIMIS</strong> training is based on the adult learning approach developed by influential American<br />

adult educator, Malcolm Knowles, who put forward the theory of andragogy – where students<br />

are guided by tutors, rather than taught. This approach takes account of prior knowledge and<br />

experience and involves learners in planning their own training programmes.<br />

<strong>PRIMIS</strong> training is tailored to the needs of individual facilitators, determined by a Training<br />

Needs Assessment (TNA) carried out by the <strong>PRIMIS</strong> Learning Consultant at the beginning of<br />

the training. The complete learning process is a cyclical one as shown below, and<br />

incorporates:<br />

• acquiring new skills<br />

• applying those skills<br />

• reviewing the effects of those skills.<br />

Concrete<br />

Experience<br />

Putting it into practice<br />

Reflective<br />

Observation<br />

Objectively analyse the<br />

outcome<br />

Active<br />

Experimentation<br />

Experimenting to find<br />

solutions<br />

David A. Kolb<br />

Abstract<br />

Conceptualisation<br />

Reviewing your conceptual<br />

understanding<br />

<strong>PRIMIS</strong> 13


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

The <strong>PRIMIS</strong> Training Agenda<br />

Reflecting on what has been learned and how it can be applied is a very important part of the<br />

learning process. By using a learning diary, the learner can take control of this learning cycle<br />

and use it to their best advantage. Learners are recommended to record:<br />

• the learning that has taken place<br />

• the learner’s feelings, reactions and judgements about the learning or training<br />

• the learner’s assessment of the relevance of that learning<br />

• the learner’s application of what has been learned<br />

The <strong>PRIMIS</strong> Training Modules<br />

<strong>PRIMIS</strong> offers a complete programme of training, education and support for information<br />

facilitators working in primary care. <strong>PRIMIS</strong> training equips facilitators with the knowledge and<br />

expertise needed to help GP practices improve and maintain data quality and information<br />

management skills.<br />

Training topics are taught by different methods, including individual scheme training sessions<br />

and group workshops, depending on the nature of the subject and the facilitator’s needs. The<br />

training programme is made up of a number of days, allocated according to the needs of the<br />

individual facilitator, from the following modules. Each module is explained in some detail in<br />

later chapters within this <strong>Handbook</strong>.<br />

Training Needs Assessment and Scheme Management<br />

<strong>PRIMIS</strong> helps facilitators assess their existing skills and knowledge, taking the<br />

learner’s prior knowledge and experience into account and involving them in<br />

planning their own training. <strong>PRIMIS</strong> provides guidance on scheme management,<br />

obtaining resources and equipment and networking within organisations, as well as<br />

recruiting and carrying out baseline assessments with practices and covering<br />

issues of security and confidentiality.<br />

What is Primary Care?<br />

In this module, facilitators are introduced to the complexities of primary care,<br />

including practice structure, funding and the new GMS contract.<br />

What is <strong>PRIMIS</strong>?<br />

This module provides facilitators with an understanding of what <strong>PRIMIS</strong> is and why<br />

it is needed. The <strong>PRIMIS</strong> training, data quality analysis and comparative analysis<br />

services are described in detail. <strong>Facilitator</strong>s gain an understanding of their role in<br />

improving data quality and the critical factors that can impact on the success of a<br />

<strong>PRIMIS</strong> scheme.<br />

Quality Data, Quality Outcomes<br />

This module provides facilitators with an understanding of the importance of data<br />

quality. Actual practice scenarios are used to demonstrate situations that might<br />

confront practices in achieving good data quality.<br />

14 <strong>PRIMIS</strong>


The <strong>PRIMIS</strong> Training Agenda<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Clinical Coding<br />

In this module, facilitators are given a basic understanding of the history, principles<br />

and structure of clinical codes, together with an understanding of the benefits of<br />

using clinical codes for recording in primary care.<br />

The MIQUEST Process<br />

This two-day module provides facilitators with an understanding of the functions of<br />

the MIQUEST Query Manager and Response Manager, including configuring sets<br />

of queries, importing response files and aggregating and anonymising response<br />

files.<br />

Data Analysis, Interpretation and Feedback<br />

This module provides <strong>PRIMIS</strong> facilitators with the skills to understand analysed<br />

data, identify questions raised by the data, and feed back to practices in a<br />

supportive way. It also guides facilitators in how to help practices design action<br />

plans to improve data quality.<br />

CHART<br />

<strong>Facilitator</strong>s are trained to use CHART (Care and Health Analysis in Real Time), a<br />

clinical information feedback tool developed by <strong>PRIMIS</strong>. CHART enables practices<br />

to analyse and view their data using a number of different query libraries, including<br />

one for the new GMS contract.<br />

The following modules are more generic than the above scheme-based modules. For many of<br />

the topics, it would benefit the facilitator to have undertaken the above modules to provide a<br />

rounded understanding of information management in primary care before undertaking these<br />

training sessions, although this is not a necessity.<br />

Facilitation Skills<br />

This module is run on a group basis and gives tools and techniques for identifying<br />

different behaviours and learning styles, managing different situations, and<br />

preparing for and managing meetings. It also provides guidance on other<br />

facilitation skills, like listening and negotiating.<br />

Annual Review<br />

A regular review with <strong>PRIMIS</strong> enables both the facilitator and their organisation to<br />

continually evaluate their aims and objectives, and to be responsive and proactive<br />

in making suitable changes.<br />

Action Planning and Supporting Change<br />

<strong>Facilitator</strong>s are given an understanding of change management theory and<br />

techniques, enabling them to support the development, implementation and review<br />

of practice-based action plans.<br />

<strong>PRIMIS</strong> 15


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

The <strong>PRIMIS</strong> Training Agenda<br />

Information Governance<br />

With increasing emphasis on confidentiality and security in health care, this module<br />

is based on the policy and legal context of Caldicott, the Data Protection Act,<br />

BS7799 and the Freedom of Information Act. <strong>Facilitator</strong>s gain an understanding of<br />

risk management and information governance, and how these interact with the<br />

<strong>PRIMIS</strong> process and agreements.<br />

Path to Paperless<br />

This module provides facilitators with guidance on the legal considerations and<br />

protocols required to be able to support their practices through the transition from<br />

paper to electronic patient records.<br />

Data Quality and Patient Safety<br />

<strong>Facilitator</strong>s learn about the role of the National Patient Safety Agency and the<br />

safety features inherent in GP clinical computer systems, as well as the impact of<br />

data quality on patient safety.<br />

Supporting Quality Outcomes<br />

This module helps facilitators to guide practices in implementing the quality and<br />

outcomes framework of the new GMS contract. The training provides an<br />

understanding of the structure, process and outcomes for each of the clinical<br />

indicators and the ten disease areas in the clinical domain.<br />

Supporting Quality Services<br />

This training session looks at changes to the provision of primary health care<br />

services in the new GMS contract. It focuses on particular issues around Directed<br />

Enhanced Services and National Enhanced Services so that facilitators can help<br />

practices with data recording.<br />

Supporting Quality Review<br />

<strong>Facilitator</strong>s are given an overview of the recording and review arrangements for the<br />

new GMS contract and an awareness of the data needed to support the reporting<br />

and verification process.<br />

Primary Care Data Uses and Abuses<br />

This module helps facilitators and others in their PCO to understand how to use<br />

aggregated primary care data to support their work, as well as becoming aware of<br />

some of the pitfalls to avoid.<br />

16 <strong>PRIMIS</strong>


Training Needs Assessment and Scheme Management<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Training Needs Assessment and Scheme Management<br />

Background<br />

There are many factors that determine how successful a project is in meeting its objectives.<br />

Setting up a project to improve information management skills and data quality in primary care<br />

is no easy task. Many of the existing <strong>PRIMIS</strong> schemes have taken different approaches to their<br />

scheme management. For example, in Cambridgeshire the emphasis was put on:<br />

• having a clear vision of what was<br />

expected from the initiative<br />

• recruiting the right people<br />

• management support<br />

• clinical ownership<br />

Management support, recruiting the right people,<br />

having clear objectives and a detailed activity<br />

plan are common themes across many schemes.<br />

"The whole emphasis has been on<br />

actually setting up the process and<br />

making sure that there is ownership of the<br />

problems within the practice. We need to<br />

put in place a process that keeps it going<br />

when we walk away as facilitators."<br />

Cambridgeshire <strong>PRIMIS</strong><br />

The aim of this training module is to provide guidance on project management, obtaining<br />

resources and equipment, networking within organisations, and recruiting and carrying out<br />

baseline assessments with practices, including issues of security and confidentiality.<br />

<strong>Facilitator</strong>s are also provided with an awareness of the MIQUEST process, an understanding<br />

of issues surrounding data confidentiality, and an understanding of how to construct an action<br />

plan. The training includes the development of an individual action plan for the first few months<br />

of the facilitator’s work, based on their own training needs. Also covered are the skills and<br />

techniques required for the facilitator to assess the information training needs of the practices<br />

that they will be supporting.<br />

The Training<br />

The training takes place over a half or full day, and is run on an individual scheme basis. The<br />

training session starts with the facilitator completing a Training Needs Assessment (TNA) to<br />

enable the Learning Consultant to tailor the <strong>PRIMIS</strong> training package to their individual needs.<br />

The exact format of the training will then depend on the previous experience of the facilitator<br />

and the current status of the project, but is likely to include discussion around some or all of<br />

the following topics:<br />

• reasons for setting up a data quality improvement scheme<br />

• how a data quality improvement scheme is organised<br />

• managing the scheme and maintaining enthusiasm<br />

• the role of the local project board and who should be involved<br />

• information governance issues<br />

• the role of the facilitator<br />

• recruiting practices<br />

<strong>PRIMIS</strong> 17


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Training Needs Assessment and Scheme Management<br />

• an overview of general practice computer systems<br />

• how to carry out a baseline assessment<br />

By the end of the session, the facilitator will have developed their own short term activity plan.<br />

Learning Objectives<br />

The training will provide information facilitators with:<br />

• an understanding of what a TNA is and why one is needed<br />

• a training plan based on their own needs<br />

• an understanding of how the results of a TNA can be used to develop an action plan<br />

to help a practice team improve their ability to record high-quality patient data by<br />

identifying gaps in training and understanding of roles<br />

• an understanding of the different stages in the management of a scheme and how to<br />

plan each stage<br />

• an understanding of how to conduct a baseline assessment of practices’ computer<br />

usage and recruit practices to participate in the scheme<br />

• an awareness of the MIQUEST process and an understanding of the issues of<br />

confidentiality<br />

• an understanding of how to compile an action plan and the completion of a shortterm<br />

action plan for their individual scheme<br />

• an understanding of their role and the critical factors that can impact on the success<br />

of a scheme<br />

Further Reading<br />

<strong>PRIMIS</strong> Guidelines<br />

www.primis.nhs.uk<br />

Roth J. Needs and Needs Assessment Process. Evaluation Practice. 1990; 11:141-3.<br />

Department of Health: Patient Confidentiality and Access to Health Records<br />

www.dh.gov.uk/PolicyAndGuidance/InformationPolicy/PatientConfidentialityAndCaldicottGuardians/fs/en<br />

Data Protection Act<br />

www.hmso.gov.uk/acts/acts1998/19980029.htm#aofs<br />

18 <strong>PRIMIS</strong>


Training Needs Assessment and Scheme Management<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Training Plan - Links to other <strong>PRIMIS</strong> training<br />

<strong>Facilitator</strong>s attending the Scheme Management training module would also find the<br />

following training modules of interest:<br />

What is Primary Care?<br />

What is <strong>PRIMIS</strong>?<br />

Clinical Coding<br />

The MIQUEST Process<br />

Data Analysis, Interpretation and Feedback<br />

Facilitation Skills<br />

<strong>PRIMIS</strong> 19


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Training Needs Assessment and Scheme Management<br />

20 <strong>PRIMIS</strong>


What Is Primary Care?<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

What Is Primary Care?<br />

Background<br />

What does it all mean? In a period when primary<br />

care has seen some of the largest structural<br />

changes in decades, with new contracts for GPs<br />

and new organisations cropping up virtually<br />

weekly, how does someone new to primary care<br />

find their way around?<br />

One thing that has been consistent throughout<br />

all the changes is the need for good quality data.<br />

<strong>Facilitator</strong>s working in information management<br />

within primary care are now more in demand<br />

than ever.<br />

The Training<br />

• LDP<br />

This training module is intended for those<br />

facilitators who are new to the NHS or have<br />

never worked within a primary care organisation before. It may also prove to be a useful<br />

source of information for those who require a refresher on what is happening in and around<br />

primary care. The main aim is to introduce the facilitator to topics and sources of information<br />

what they will need to be familiar with in order to fulfil their role successfully.<br />

This training is delivered via an electronic program which the facilitator can obtain from his or<br />

her Learning Consultant. The facilitator can then individually run the program and determine<br />

their own pace and route through the module and can re-run the program again at any time in<br />

the future. Use is made of web hyperlinks in the program to take the reader to the home web<br />

page of various organisations for further in-depth reading as required. This can be followed up<br />

by a half or full day session as required.<br />

The main sections of the training course are:<br />

What is Primary Care?<br />

What is it and how is it defined? What is a General Medical Practitioner? Using links to various<br />

NHS organisations’ websites, answers to the above questions and more are provided.<br />

Relationship between primary care and other NHS agencies<br />

An organisational diagram is used to chart the NHS from the Department of Health through to<br />

Strategic Health Authorities and then down to the providers of local services, such as acute<br />

and community care trusts. Each organisation’s responsibilities are documented.<br />

Relationship between different organisations in primary care<br />

What Does it All Mean?<br />

• PCO<br />

• SHA<br />

• DoH<br />

• NPfIT<br />

• NHS Connecting for Health<br />

• Clusters<br />

• nGMS<br />

• QOF<br />

The responsibilities and links between Primary Care Organisations, Out of Hours, doctors’<br />

surgeries, dentists, opticians and pharmacists are outlined. NHS walk-in centres and NHS<br />

Direct are also covered in the analysis. A pen picture of <strong>PRIMIS</strong> itself is also included.<br />

<strong>PRIMIS</strong> 21


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

What Is Primary Care?<br />

Structure of General Practice<br />

The organisation of general practice is dissected in detail, with the emphasis on the new<br />

working arrangements since the arrival of the new GMS contract in April 2004. The services<br />

offered by general practice now under nGMS are outlined along with the funding available. A<br />

background to the workings of the quality and outcomes framework (QOF) and the differences<br />

between GMS and PMS (Personal Medical Services) practices are detailed.<br />

Primary Health Care Team (PHCT)<br />

A comprehensive insight is provided into the roles operating within the PHCT, from different<br />

types of GPs, including GPs with Special Interests (GPwSI) to other clinical roles such as the<br />

Practice Nurse and the Health Care Assistant. The managerial and clinical roles within a<br />

practice are also discussed, with numerous web links to professional bodies representing each<br />

profession.<br />

Computerisation and General Practice<br />

The history of the background and use of computers in general practice since 1970 is traced.<br />

Important landmarks such as the background of Requirements for Accreditation (RFA), the<br />

NHS Plan, the 1990 GP Contract and the Wanless Report are included. More recently, NHS<br />

Connecting for Health and its stated aims are documented.<br />

Abbreviations used in Primary Care<br />

A simple listing is collected together in one place of a number of organisations operating in the<br />

NHS and their acronyms. Where available, a web link to each organisation’s home web page<br />

is made available for further reading.<br />

Learning Objectives<br />

The training will provide information facilitators with:<br />

• understanding of what primary care is<br />

• awareness of the relationships between primary care and other NHS agencies<br />

• understanding of the relationships between the different organisations in primary<br />

care<br />

• understanding of the structure of, and relationships within, general practice<br />

• awareness of events that have brought primary care to its present position<br />

• understanding of internal and external forces that can have an impact on data<br />

quality in primary care<br />

• understanding of how <strong>PRIMIS</strong> can support primary care in improving data quality<br />

22 <strong>PRIMIS</strong>


What Is Primary Care?<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Further Reading<br />

<strong>PRIMIS</strong> Guidelines<br />

www.primis.nhs.uk<br />

Department of Health<br />

http://www.dh.gov.uk<br />

National Association of Primary Care<br />

www.primarycare.co.uk<br />

National Primary Care Development Team<br />

www.npdt.org<br />

Primary Health Care Specialist Group of the British Computer Society<br />

www.phcsg.org.uk<br />

National PCT Database<br />

www.primary-care-db.org.uk<br />

Training Plan - Links to other <strong>PRIMIS</strong> training<br />

<strong>Facilitator</strong>s completing the What is Primary Care? training module would also find the<br />

following training modules of interest:<br />

• Scheme Management<br />

• Quality Data, Quality Outcomes<br />

• Clinical Coding<br />

• Facilitation Skills<br />

• Action Planning and Supporting Change<br />

• Information Governance<br />

• Path to Paperless<br />

• Supporting Quality Services<br />

• Supporting Quality Review<br />

• Primary Care Data Uses and Abuses<br />

<strong>PRIMIS</strong> 23


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

What Is Primary Care?<br />

24 <strong>PRIMIS</strong>


Quality Data, Quality Outcomes<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Quality Data, Quality Outcomes<br />

Background<br />

The effective use of information<br />

management and technology is at the<br />

heart of the strategy to modernise the<br />

NHS, with quality information seen as<br />

the key to improving patient care and<br />

public health.<br />

"The most valuable repository about the current<br />

health of the population may well be GP records."<br />

Information for Health, NHS Executive, 1998<br />

The new GMS contract puts an emphasis on data quality for measuring achievement.<br />

“In order to measure achievement, practices will have to enter and retrieve high quality<br />

information from their practice clinical systems. To qualify for payment, quality framework<br />

data will be recordable, repeatable, reliable, consistent and auditable. IM&T systems are<br />

required in order to deliver such requirements. Education and training of practice staff will<br />

be supported through funded national programmes.”<br />

New GMS Contract 2003 - Investing in General Practice<br />

However, the primary care clinical system is more than just a data repository, being used as an<br />

integral part of the GP’s decision-making process during the consultation. Data quality is<br />

therefore essential at many levels.<br />

In 2000, electronic records were granted medico-legal status. Although provision is made for<br />

non-computerised practices, the expectation is that complete and accurate data will be<br />

recorded on a GP clinical system. There are certain areas of the patient’s medical history<br />

under the new GMS contract where there is consensus on how data should be entered.<br />

However, this is not always the case, especially in general practice where patients often<br />

present with problems which are not necessarily clear-cut and easy to record, are seen by<br />

different professionals and in different places. It is, therefore, essential to understand the<br />

processes involved in capturing data from the various sources within and outside of the<br />

practice in an accurate format.<br />

Data which are not accurate, complete, relevant, up-to-date and accessible may be dangerous<br />

to patients. For example, if a repeat prescription is not recorded accurately, severe harm to the<br />

patient could ensue; if an allergy is not entered, the record is not complete – such<br />

inadequacies could lead to medico-legal problems for the clinician and the practice.<br />

The Quality Data, Quality Outcomes training module provides new <strong>PRIMIS</strong> facilitators with<br />

knowledge and understanding of the importance of data quality and the recording of data for<br />

the quality and outcomes indicators of the new GMS contract. It will raise an awareness of the<br />

issues around the flow of data in and around a general practice and the difficulties in recording<br />

data and validating the quality of the data when they are entered and when they are later<br />

retrieved.<br />

The information facilitator will be able to encourage practices to use their GP clinical systems<br />

for recording data for quality outcomes, and apply change management theory to general<br />

practice.<br />

<strong>PRIMIS</strong> 25


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Quality Data, Quality Outcomes<br />

The Training<br />

The training takes place over a full day and is run on an individual scheme basis covering the<br />

following topics:<br />

• why data quality is important<br />

• how data quality is defined<br />

• the baseline essential elements of a patient record and how they are created<br />

• the importance of capturing data from home visits and other locations outside of<br />

the GP surgery<br />

• mapping data flows from secondary care into a practice to eventual entry onto the<br />

clinical system<br />

• the differences and similarities between the NSFs, National Institute for Clinical<br />

Excellence (NICE) guidelines and Quality and Outcomes Framework (QOF)<br />

indicators and the essential data recording requirements for each<br />

• practical knowledge of clinical coding structures<br />

• problems faced by many practices with consistency in methods of data capture and<br />

entry between all practice staff<br />

• methods of entering and capturing data onto a clinical system<br />

• how to raise the issue of data quality and help practices to address any problems<br />

and share best practice.<br />

Learning Objectives<br />

The training will provide information facilitators with:<br />

• an awareness of what is meant by the patient’s story and their contact with the<br />

healthcare professionals in a GP practice, including what data recording is required<br />

at each step<br />

• an awareness of the importance of data quality and its relevance to recording<br />

issues pertaining to the patient’s story<br />

• an understanding of the necessity to identify all relevant information coming into<br />

the practice<br />

• an awareness of what is required to collect all the relevant information in the<br />

correct format<br />

• an awareness of the range of options for storing the data<br />

• an understanding of the knowledge required to retrieve the data in an accurate<br />

format<br />

• knowledge and understanding of data quality theory and its application to the<br />

patient’s story<br />

• an understanding of future issues that may affect primary care data.<br />

26 <strong>PRIMIS</strong>


Quality Data, Quality Outcomes<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Further Reading<br />

<strong>PRIMIS</strong> Guidelines<br />

www.primis.nhs.uk/pages/download_template.asp?r=Guidelines_Sept01.pdf<br />

Good Practice Guidelines for General Practice Electronic Patient Records. 2000. GMC GPs<br />

Committee and the RCGP on behalf of the NHS Executive. London: GMC.<br />

www.dh.gov.uk/PublicationsAndStatistics/Publications/PublicationsPolicyAndGuidance/Publicati<br />

onsPolicyAndGuidanceArticle/fs/en?CONTENT_ID=4008657&chk=rr8fQT<br />

Maintaining Good Medical Practice 2. London: GMC; 1998.<br />

Medical Records. London: Medical Protection Society; 1999.<br />

Morris D. Acquiring computer literacy. British Medical Journal. 1998; 317:2.<br />

Roscoe T. Paper vs electronic medical records (special paper). Wisdom website; 2000<br />

http://wisdomnet.co.uk/paper.html<br />

Report on the Review of Patient-identifiable Information. The Caldicott Committee. London:<br />

Department of Health; 1997.<br />

Play IT Safe – a practical guide to IT Security for everyone working in General Practice<br />

www.connectingforhealth.nhs.uk/publications/comms_tkjune05/NHSnumberarticleforsyndicatio<br />

n.pdf/view?searchterm=Play%20IT%20safe<br />

Pringle M. Using a computer in the consultation. In: Sheldon M, Stoddart N, eds. Trends in<br />

General Practice computing. London: Royal College of General Practitioners; 1985.<br />

Waring N. To what extent are practices “paperless” and what are the constraints to them<br />

becoming more so? British Journal of General Practice. 2000; 50: 46-7.<br />

Watkins C et al. General practitioners’ use of computers during the consultation. British Journal<br />

General Practice. 1999; 49:481-3.<br />

Training Plan - Links to other <strong>PRIMIS</strong> training<br />

<strong>Facilitator</strong>s attending the Quality Data Quality Outcomes training module would<br />

also find the following training modules of interest:<br />

• Clinical Coding<br />

• Data Analysis, Interpretation and Feedback<br />

• Facilitation Skills<br />

• Action Planning and Supporting Change<br />

• Path to Paperless<br />

• Data Quality and Patient Safety<br />

• Primary Care Data Uses and Abuses<br />

<strong>PRIMIS</strong> 27


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Quality Data, Quality Outcomes<br />

28 <strong>PRIMIS</strong>


Clinical Coding<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Clinical Coding<br />

Background<br />

General practice systems use ‘clinical coding’ to store data. To record data, the user enters a<br />

medical term or concept. The computer system then presents a set of ‘terms’ or ‘rubrics’,<br />

together with ‘codes’. Assisted by the rubric, a choice is made and the data item is thereby<br />

recorded. An important part of setting recording guidelines is to ensure that appropriate codes<br />

are assigned for the items in the data set and that these codes are used for entering data in<br />

the patient’s record at the appropriate stage in the cycle of care.<br />

In the early 1980s, Dr James Read developed a coding system for general practice for the<br />

purpose of maintaining a computerised patient record. It allowed for increased efficiency and<br />

improved preventative procedures. This coding system became known as the ‘Read Code’ and<br />

remains as the accepted standard for British general practice. The coding system copyright<br />

was purchased by the Secretary of State for Health in 1990 and the Read Code became<br />

Crown Copyright. It has been subsequently developed in later versions to include terminology<br />

content appropriate for a wider range of health care specialities and professional groups. All<br />

versions of the Read Code are maintained and developed by NHS Connecting for Health.<br />

There are three versions of the Read Code currently in use as shown in the box below:<br />

The current three versions of Read Code in general practice<br />

• GP 4 byte set (referred to as Version 0)<br />

• GP 5 byte set (referred to as Version 2)<br />

• Clinical Terms Version 3 (referred to as CTV3)<br />

The GP 4 byte set was developed for use in GP systems and the codes are four characters<br />

long, allowing four levels of detail. The GP 5 byte set extended the codes to five characters -<br />

and thus a fifth level of detail - and included cross reference to the International Classification<br />

of Diseases tenth revision ICD-10. Clinical Terms version 3 (CTV3) incorporates<br />

comprehensive codes for the acute sector, as well as general practice, allowing for storage,<br />

retrieval, cross-mapping and analysis of patient information. The mostly widely used set within<br />

GP clinical systems at present is the GP 5 byte set.<br />

The important point to be aware of is the ‘hierarchical’ nature of Read codes, as demonstrated<br />

in the example shown below. As the diagnosis becomes more specific, so the appropriate<br />

Read code carries more significant characters to reflect the greater level of detail. The coding<br />

scheme is a structured collection of ‘terms’ with each clinical entity, known as a concept, being<br />

represented by a preferred term. Each concept has a unique alphanumeric code, known as the<br />

Read code.<br />

<strong>PRIMIS</strong> 29


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Clinical Coding<br />

Example of the hierarchical nature of Read codes<br />

Level Term Read 4-byte Read Version 2<br />

1 Circulatory system disease G… G....<br />

2 Ischaemic heart disease G4.. G3...<br />

3 Acute myocardial infarction G41. G30..<br />

4 Anterior myocardial infarction G301.<br />

5 Acute anteroseptal infarction G3011<br />

The NHS Executive and the College of American Pathologists (CAP) have developed a new<br />

collaborative work, SNOMED Clinical Terms. This coding system combines CAP’s SNOMED<br />

RT with the Clinical Terms Version 3 (Read Codes) and is called SNOMED CT. This single<br />

unified terminology will underpin the development of the integrated electronic patient record<br />

and is a pivotal part of the National Programme for Information Technology National Care<br />

Record Service. <strong>PRIMIS</strong> is currently developing a training module on SNOMED CT.<br />

The Training<br />

The training takes place over a half day and is run on an individual scheme basis.<br />

It covers the advantages and disadvantages of coding, the different coding schemes in use<br />

across health care and a detailed overview of Read codes, including the structure, the<br />

hierarchy and the Read code chapters. The training also provides practical techniques and<br />

exercises for searching for Read codes within a browser.<br />

Further information on the background and subject matter included in this training is available<br />

in the form of a workbook. This is provided to facilitators during the training.<br />

Learning Objectives<br />

The training will provide information facilitators with:<br />

• an understanding of the history, principles and structure of the Read codes in the<br />

various versions<br />

• skills in finding and selecting appropriate codes for specified conditions/<br />

investigations/procedures, etc., using a variety of Read Code browsers (including<br />

GP systems, CLUE and NHS Connecting for Health)<br />

• an understanding of the limitations of Read codes when grouped for analysis<br />

• skills to enable them to teach practice team members how to find and select the<br />

appropriate Read code using the Read code browser available to them<br />

30 <strong>PRIMIS</strong>


Clinical Coding<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Further Reading<br />

<strong>PRIMIS</strong> Guidelines<br />

www.primis.nhs.uk/pages/download_template.asp?r=Guidelines_Sept01.pdf<br />

NHS Connecting for Health<br />

www.connectingforhealth.nhs.uk<br />

Training Plan - Links to other <strong>PRIMIS</strong> training<br />

<strong>Facilitator</strong>s attending the Clinical Coding training module would also find the following<br />

training modules of interest:<br />

• The MIQUEST Process<br />

• Data Analysis, Interpretation and Feedback<br />

• CHART<br />

• Data Quality and Patient Safety<br />

• Primary Care Data Uses and Abuses<br />

<strong>PRIMIS</strong> 31


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Clinical Coding<br />

32 <strong>PRIMIS</strong>


The MIQUEST Process<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

The MIQUEST Process<br />

Background<br />

MIQUEST stands for: Morbidity Information Query and Export Syntax and is a software tool to<br />

extract and aggregate comparable data from disparate GP systems. It is a method for<br />

extracting data in a computer-readable form that uses a common query language for health<br />

known as Health Query Language (HQL) and can therefore be used with a variety of different<br />

GP clinical computer systems, using the system’s own MIQUEST interpreter. Both MIQUEST<br />

and the system interpreters incorporate various security and confidentiality safeguards which<br />

enforce security constraints to prevent unauthorised extraction of patient-identifiable data.<br />

MIQUEST has been endorsed by the NHS as the recommended method of expressing queries<br />

and extracting data from different types of practice systems and it has therefore been adopted<br />

as the standard method for <strong>PRIMIS</strong>.<br />

MIQUEST in itself is not a data quality improvement method, but is one of the many tools that<br />

an information facilitator will use when working with a practice to improve their data quality.<br />

MIQUEST Enquirer software is Crown Copyright, for use only by authorised personnel within<br />

the NHS. Technical maintenance and development support for MIQUEST Enquirer is provided<br />

by NHS Connecting for Health, but the suppliers of each GP computer system are responsible<br />

for support and maintenance of their system’s own MIQUEST interpreter.<br />

MIQUEST is available on the majority of GP clinical computer systems that are in use today.<br />

This is because it is part of the General Medical Practice Computer Systems – Requirements<br />

for Accreditation (RFA99) scheme. Where MIQUEST is available for a particular GP clinical<br />

system, it should be used as the preferred method of extraction of data from that system for<br />

<strong>PRIMIS</strong> purposes.<br />

MIQUEST Enquirer software includes a Query Manager to facilitate the distribution of queries<br />

and a Response Manager to organise and aggregate the responses received from participants<br />

in a local or national data collection scheme. An HQL Editor is also available to facilitate the<br />

writing of queries. However, it should be noted that the construction of a MIQUEST query set<br />

and the coding required for it can be complex and often time consuming, requiring both clinical<br />

and technical input.<br />

The responses from a MIQUEST-generated query are created as Comma Separated Value<br />

(CSV) files. Analytical tools such as <strong>PRIMIS</strong> Rush and CHART use these files to create easyto-view<br />

graphs, summary sheets and spreadsheets, enabling trained information facilitators to<br />

interpret and make sense of the data extracted.<br />

The Training<br />

The training takes place over two full days and is run on an individual scheme basis.<br />

Prior to training, information facilitators will be required to install the MIQUEST software on<br />

their PC or laptop. This is available from Connecting for Health on a CD-ROM. Contact the<br />

Connecting for Health helpdesk on 01392 251289, or email helpdesk@nhsia.nhs.uk or visit<br />

www.nhsia.nhs.uk/nhais/pages/products/vaprod/miquest/ to fill out an online request form.<br />

<strong>PRIMIS</strong> 33


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

The MIQUEST Process<br />

The first day concentrates on the benefits and process of using MIQUEST as part of a data<br />

quality improvement scheme. It will provide an understanding of Query structure and the use<br />

of the MIQUEST Query Manager. An overview is given on how the data extraction process<br />

works, as shown in the box below, once the preliminary steps of agreeing objectives and<br />

setting up the scheme have been implemented.<br />

Five steps of <strong>PRIMIS</strong> data extraction process<br />

• Confidentiality Agreement<br />

• Query Manager<br />

• MIQUEST Interpreter (Clinical System)<br />

• Response Manager<br />

• Analysis Package (<strong>PRIMIS</strong> Rush)<br />

The training shows the information facilitator how to download Data Quality query sets, how to<br />

populate the Query Manager with their allocated practice details and how to prepare the<br />

practice query disk using the Query Manager.<br />

The second day’s training focuses on the MIQUEST Interpreters. It includes on-site visits to<br />

local GP practices in order to run a set of training MIQUEST queries. This is then followed by<br />

training on the use of the Response Manager to aggregate and anonymise the data extracted.<br />

Finally information facilitators are shown how to submit their data extraction to <strong>PRIMIS</strong> for<br />

analysis.<br />

Further information on the background and subject matter included in this training is available<br />

in the <strong>PRIMIS</strong> MIQUEST Manual. This is provided to facilitators during the training.<br />

Learning Objectives<br />

The first day’s training (MIQUEST Overview and Query Manager) will provide information<br />

facilitators with an understanding of:<br />

• the functions of MIQUEST Query Manager<br />

• how to set up scheme details (Remote and Local), practices, agreements, etc.<br />

• how to add new practices, new agreements, etc.<br />

• how to configure sets of queries for their scheme/PCO/practices<br />

34 <strong>PRIMIS</strong>


The MIQUEST Process<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

The second day’s training (MIQUEST System Interpreters and Response Manager) will<br />

provide information facilitators with an understanding of:<br />

• the functions of MIQUEST interpreters on clinical systems<br />

• how to import and run queries from different enquirers with appropriate security<br />

safeguards<br />

• how to export response files to disk or to transmit on a network when this option is<br />

available<br />

• how to work with volunteer practices and the <strong>PRIMIS</strong> Learning Consultant to teach<br />

practice staff the appropriate use of their MIQUEST interpreter<br />

• functions of MIQUEST Response Manager and how to aggregate anonymised data<br />

for analysis.<br />

Further Reading<br />

<strong>PRIMIS</strong> Guidelines<br />

www.primis.nhs.ukpages/download_template.asp?r=Guidelines_Sept01.pdf<br />

<strong>PRIMIS</strong> MIQUEST Manual<br />

Training Plan - Links to other <strong>PRIMIS</strong> training<br />

<strong>Facilitator</strong>s attending the MIQUEST training module would also find the following training<br />

modules of interest:<br />

• Scheme Management<br />

• Quality Data, Quality Outcomes<br />

• Clinical Coding<br />

• Data Analysis, Interpretation and Feedback<br />

• Project Review<br />

• Information Governance<br />

• CHART<br />

<strong>PRIMIS</strong> 35


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

The MIQUEST Process<br />

36 <strong>PRIMIS</strong>


Data Analysis, Interpretation and Feedback<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Data Analysis, Interpretation and Feedback<br />

Background<br />

The use of MIQUEST in the <strong>PRIMIS</strong> process is twofold. Firstly, it provides a mechanism for the<br />

easy extraction of data recorded on a practice’s clinical system, enabling the practice to<br />

examine and improve data recording techniques. This method can be supplemented by using<br />

various analysis software tools such as CHART, the use of which is covered in a later module.<br />

Secondly, it enables practices to compare their data recording to that of other practices or<br />

against their own recording over time. In order to enable the effective use of MIQUEST,<br />

<strong>PRIMIS</strong> has developed several query sets. Each set has a different focus and is designed to<br />

meet a variety of needs.<br />

A key query set, and the one used most<br />

frequently, is the <strong>PRIMIS</strong> Data Quality set.<br />

This set has been designed to enable<br />

facilitators and participating practices to<br />

begin to identify areas where the data<br />

recorded on the clinical system is not of<br />

good quality: that is, it does not have the<br />

five characteristics of good quality listed in<br />

the box to the right.<br />

Five characteristics of good quality data<br />

• Completeness • Accessibility<br />

• Accuracy • Timeliness<br />

• Relevance<br />

The <strong>PRIMIS</strong> Data Quality query set is one of the most valuable sets in supporting information<br />

facilitators in their role. <strong>Facilitator</strong>s run this set with all new practices joining the scheme, and<br />

repeat the run at regular intervals. Once a practice has identified the strengths and<br />

weaknesses of their data capture methods, they are then in a position to make improvements.<br />

The queries are intended to provide a basis for discussion and debate from which an action<br />

plan can be derived. By repeating data extractions at regular intervals, the practice will be able<br />

to demonstrate improvements over time and see the effectiveness of actions taken.<br />

The Training<br />

The training takes place over a half or full day and is run on an individual scheme basis. Data<br />

extracted from practices and submitted to <strong>PRIMIS</strong> by a scheme are analysed and reported<br />

back to the facilitator in an Excel format known as Rush. This format enables the facilitator to<br />

view the data in a variety of ways. Throughout the training, the facilitator is taken through their<br />

own practices’ data and shown how to use the analyses listed in the box below to identify<br />

where there are potential data quality issues.<br />

Analyses used in the <strong>PRIMIS</strong> Data Quality<br />

query set to highlight potential quality issues<br />

• Baseline prevalence • Risk factor recording<br />

• Apparent prevalence • Screening data recording<br />

• Comparison with proxy indicators • Data validity checks<br />

<strong>PRIMIS</strong> 37


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Data Analysis, Interpretation and Feedback<br />

The training also covers techniques for feeding data back to practices and other appropriate<br />

bodies, such as the PCT or employing organisation, and the steps to be taken in developing<br />

an action plan for tackling changes that need to be made. An important part of the training is<br />

the management of confidentiality issues.<br />

On completion of the training, facilitators will be able to submit further data to the <strong>PRIMIS</strong><br />

Information Team and receive the analysed data back via the <strong>PRIMIS</strong> secure website.<br />

Learning Objectives<br />

The training will provide information facilitators with:<br />

• an understanding of how to download feedback and configure Rush<br />

• an understanding of Rush graph construction including the difference between<br />

morbidity, mortality, prevalence and incidence<br />

• an understanding of data quality issues that contribute to feedback results<br />

• an understanding of limitations and use of aggregated feedback data<br />

• an awareness of confidentiality issues relating to aggregated data<br />

• an awareness of additional methods, including clinical systems’ own search<br />

engines, to complement feedback.<br />

Further Reading<br />

<strong>PRIMIS</strong> Guidelines<br />

www.primis.nhs.uk/pages/download_template.asp?r=Guidelines_Sept01.pdf<br />

Training Plan - Links to other <strong>PRIMIS</strong> training<br />

Before attending the Data Analysis, Interpretation and Feedback module, facilitators<br />

should already have attended the following <strong>PRIMIS</strong> training modules:<br />

• Quality Data, Quality Outcomes<br />

• Clinical Coding<br />

• The MIQUEST Process<br />

<strong>Facilitator</strong>s attending this training module would also find the following training modules<br />

of interest:<br />

• Facilitation Skills<br />

• Action Planning and Supporting Change<br />

• Information Governance<br />

• Path to Paperless<br />

• Primary Care Data Uses and Abuses<br />

38 <strong>PRIMIS</strong>


Facilitation Skills<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Facilitation Skills<br />

Background<br />

“Managers are under increasing pressure to implement major structural reform in the NHS<br />

as well as achieving demanding national performance targets. At the same time they are<br />

expected to deliver changes in the culture of NHS organisations - changes which some<br />

regard as fundamental if real improvements are to be sustained.<br />

“The political imperative to deliver rapid objective change can lead managers to adopt an<br />

increasingly authoritarian style. Such an approach may be effective in producing short term<br />

measurable change, but it is likely to bring managers into direct conflict with doctors who<br />

value their professional autonomy and resist current attempts to ‘manage’ their<br />

performance. Management styles that make doctors unhappy may adversely affect both the<br />

quality of care and patients’ satisfaction.<br />

“Tension exists between the performance management role of managers and their<br />

responsibilities to produce changes in the culture of the NHS. This tension is becoming<br />

increasingly important for managers who work in primary care trusts - relatively new<br />

organisations that are expected to lead the reform of the NHS.”<br />

Marshall et al. Managing change in the culture of general practice: qualitative case studies<br />

in primary care trusts. British Medical Journal. 2003; 327:599-602.<br />

Facilitated change is key to helping organisations meet the demands of the current NHS. The<br />

input of a facilitator can have a very positive effect in smoothing the transition from one way of<br />

working to another. The facilitator works, either formally or informally, with the practice team to<br />

create a climate of trust and confidence where barriers to change can be acknowledged,<br />

discussed and addressed.<br />

It is recognised that when most changes go<br />

wrong, it is because too little time is spent<br />

exploring the background and the context for<br />

change, and helping people recognise the<br />

imperative for change. An effective change<br />

programme tends to adopt certain key<br />

characteristics as outlined in the box on the right.<br />

The facilitator is there to ensure a productive<br />

group process, whether this is brainstorming new<br />

ideas or improving existing processes. The role<br />

of the facilitator is to help and support the group<br />

to work as a constructive and cohesive unit and<br />

to enable them to take ownership of the process<br />

and undertake the task to achieve the objectives.<br />

Characteristics of a successful<br />

change programme<br />

• A clear understanding of the context<br />

and external factors driving change<br />

• Recognition of the implications for<br />

the organisation resulting in the<br />

recognition that the status quo will<br />

not do<br />

• A well devised change plan which<br />

highlights the application of change<br />

and how it will be delivered<br />

• An opportunity to be engaged in the<br />

implementation<br />

<strong>PRIMIS</strong> 39


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Facilitation Skills<br />

The Training<br />

The training takes place over a half or full day and is run as a group session. The aim of the<br />

training is to equip participants with the skills to effectively facilitate teams, particularly general<br />

practice teams. The training comprises interactive exercises using tools and techniques in<br />

facilitation based on the following topics:<br />

• definition of facilitation and the attributes that make an effective facilitator<br />

• understanding the core competencies needed in the process of facilitation<br />

• listening skills<br />

• communication styles<br />

• managing and making meetings effective<br />

• dealing with difficult behaviours<br />

• agreeing priorities<br />

• the importance of review<br />

• tools and techniques used in facilitation<br />

Further information on the background and subject matter included in this training is available<br />

in the form of a workbook. This is provided to facilitators during the training.<br />

Learning Objectives<br />

The training will provide information facilitators with:<br />

• a knowledge of the definition of a facilitator<br />

• an awareness of a selection of communication styles and skills<br />

• an understanding of how to deal with differing behavioural styles and how to facilitate<br />

meetings<br />

• an understanding of team working and negotiation skills<br />

Further Reading<br />

Bray T. Training Sessions for Effective Meeting. Aldershot: Gower Publishing; 1995.<br />

Dobson A. Managing Meetings. Plymouth: How to Books; 1999.<br />

Duffy M, Griffin E. Facilitating Groups in Primary Care. Abingdon: Radcliffe Medical Press;<br />

2000.<br />

Hart L. The Faultless <strong>Facilitator</strong>. London: Kogan Page; 1992.<br />

Hunter D, Bailey A, Taylor B. The Facilitation of Groups. Aldershot: Gower Publishing; 1996.<br />

40 <strong>PRIMIS</strong>


Facilitation Skills<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Johnson D, Johnson F. Joining Together: group theory and group skills. New Jersey: Prentice-<br />

Hall; 1991.<br />

Sharman D. The Perfect Meeting. London: Century Business Books; 1992.<br />

Primary Care Facilitation: what is it and what is the evidence of its effectiveness? Oxford: The<br />

National Primary Care Facilitation Programme; 1998.<br />

Middleton J. The Team Guide to Communication. Abingdon: Radcliffe Medical Press; 2000.<br />

Elwyn G, Greenhalgh T, Macfarlane F, Groups: a guide to small group work in healthcare,<br />

management, education and research. Abingdon: Radcliffe Medical Press; 2001.<br />

King J. Effective Facilitation. British Medical Journal 2002; 324:S36.<br />

Training Plan - Links to other <strong>PRIMIS</strong> training<br />

<strong>Facilitator</strong>s attending the Facilitation Skills training module would also find the following<br />

training modules of interest:<br />

• Quality Data, Quality Outcomes<br />

• Data Analysis, Interpretation and Feedback<br />

• Action Planning and Supporting Change<br />

<strong>PRIMIS</strong> 41


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Facilitation Skills<br />

42 <strong>PRIMIS</strong>


Annual Review<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Annual Review<br />

Background<br />

Since April 2000 <strong>PRIMIS</strong> has been working, through local PCOs, to help GPs to make the best<br />

use of their clinical computer systems, both in meeting their organisational needs and in<br />

supporting good quality patient care as part of an ongoing programme of development.<br />

However, as with any work programme, regular progress reviews are essential.<br />

“The underlying objective for a project review is to improve the overall outcome. To achieve<br />

this, the review must be forward looking, constantly seeking to identify how current lessons<br />

can be exploited for future advantage. For a review to add real value, it must go beyond<br />

the superficial and drill down to the underlying capabilities. By doing this it can identify<br />

fundamental improvements that are the key to consistently improved performance in the<br />

future.”<br />

www.amtec.co.uk/private-sector-consulting/foundation/project_review/project_rev_overview.xhtml<br />

Many project and change management theories extol the virtue of ongoing review to ensure<br />

that projects remain on course, identify and address any issues as they arise, and constantly<br />

strive towards achieving the original aims and objectives of the project. A local <strong>PRIMIS</strong> project<br />

or scheme is no exception.<br />

The <strong>PRIMIS</strong> approach to training and working with an information facilitator is adaptive and the<br />

principles of the scheme review follow the broader principles of PRINCE 2 (PRojects IN<br />

Controlled Environments) methodology, a structured method for effective project management<br />

used extensively by UK Government organisations.<br />

The Training<br />

The training takes place over a half or full day and is run on an individual scheme basis,<br />

involving the information facilitator and preferably their line manager. It is usually held at the<br />

end of the first year of the project. Subsequent reviews may be conducted by correspondence.<br />

The training will be introduced with a presentation and discussion on what an annual review<br />

should include, what steps are involved and an explanation as to why it is an essential<br />

process. The various methods of conducting an annual review are also discussed.<br />

The aim of this training is twofold: to carry out a review of the local scheme and to equip the<br />

information facilitator with the skills to facilitate their practices to carry out reviews.<br />

The review itself will involve a guided discussion around key stages and events as outlined in<br />

the box on the following page. The experiences and the reflections from the facilitator will be<br />

documented.<br />

<strong>PRIMIS</strong> 43


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Annual Review<br />

Typical key stages and events for discussion at a project review<br />

• The specific objectives for the scheme<br />

• Progress against objectives<br />

• Reasons for non-achievement<br />

• Encountered problems and how they were resolved<br />

• Changes in direction<br />

• Unexpected benefits<br />

• Collaboration with other projects<br />

• Overall satisfaction<br />

• Funding, and further requirements<br />

• Action plan for the way forward<br />

The information facilitator may also be encouraged to conduct a self-evaluation SWOT<br />

(strengths, weaknesses, opportunities and threats) exercise to help highlight any areas of<br />

achievement or strengths that could be utilised further. The SWOT analysis will also help<br />

identify any areas that may be causing concern for the facilitator. The SWOT analysis process<br />

may be held in confidence between the facilitator and the Learning Consultant.<br />

Learning Objectives<br />

The training should provide the information facilitator with an understanding of:<br />

• what an annual review should include<br />

• why an scheme review is needed<br />

• what steps are required when conducting an annual review<br />

• what methods can be used in an annual review<br />

The training will also help the information facilitator identify:<br />

• how the results of an annual review can be used to develop an action plan to improve<br />

their ability to project manage their <strong>PRIMIS</strong> programme<br />

• any gaps in training and missed milestones and the reasons for these<br />

• where the project has succeeded and any lessons that could be shared.<br />

44 <strong>PRIMIS</strong>


Annual Review<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Further reading<br />

<strong>PRIMIS</strong> Guidelines<br />

www.primis.nhs.uk/pages/download_template.asp?r=Guidelines_Sept01.pdf<br />

PRINCE 2<br />

www.prince2.com/whatisp2.html<br />

Training Plan - Links to other <strong>PRIMIS</strong> training<br />

Before attending the Scheme Review training module, facilitators should have attended the<br />

following <strong>PRIMIS</strong> training modules and have completed a whole cycle of data flow mapping,<br />

data extraction and feedback:<br />

• Scheme Management<br />

• Quality Data, Quality Outcomes<br />

• Clinical Coding<br />

• The MIQUEST Process<br />

• Data Analysis, Interpretation and Feedback<br />

<strong>Facilitator</strong>s attending this training module would also find the following training modules of<br />

interest:<br />

• Facilitation Skills<br />

• Action Planning and Supporting Change<br />

• Supporting Quality Outcomes<br />

<strong>PRIMIS</strong> 45


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Annual Review<br />

46 <strong>PRIMIS</strong>


CHART<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

CHART<br />

Background<br />

CHART stands for Care and Health Analysis in Real Time. It is a software program based on<br />

Excel that enables the quick and easy viewing of data from clinical queries. The software,<br />

which has been developed by <strong>PRIMIS</strong> as an upgraded alternative to Rush for Practices, is<br />

designed to be used within practices allowing the practice staff or <strong>PRIMIS</strong> facilitator to produce<br />

health query language (HQL) queries, taken from a library, which are then run on their clinical<br />

system. The query responses are imported back into CHART. Results are displayed either as<br />

easy-to-read graphs, summary sheets or a spreadsheet. CHART gives a practice the option to<br />

run local, patient-identifiable queries or, if preferred, anonymised queries should they wish to<br />

share data confidentially.<br />

CHART can be used in conjunction with any RFA accredited clinical system with a functioning<br />

MIQUEST interpreter. As the responses are converted into Excel format, the software retains<br />

much of the original Excel functionality, including the ability to sort or filter the extracted data<br />

and drill down through graphical displays to quickly identify groups of patients by type of<br />

recording. Responses take the form of a spreadsheet with one line for each patient included in<br />

the cohort. Each column represents an indicator included in the query, giving a whole patient<br />

picture for that specific clinical area. Viewing the clinical data in this way enables gaps in the<br />

patients’ data relating to the specific query topic to be highlighted and, by using multi-factor<br />

filtering, complex data and/or clinical quality issues can be picked up: for example, identifying<br />

patients with a recorded diabetes diagnosis who have a raised HbA1c and a BMI greater than<br />

25. By archiving results and comparing them with later extractions, any changes or<br />

improvements can be identified.<br />

<strong>PRIMIS</strong> 47


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

CHART<br />

The CHART queries<br />

Each clinical topic is arranged into groups of queries known as query libraries. The libraries<br />

currently available are shown in the box below. Each query library can be downloaded<br />

separately and used as and when needed. Date ranges within queries are controlled by the<br />

user and are automatically updated through the use of a reference date. New query libraries<br />

can be installed directly into existing CHART software.<br />

The CHART query sets have been<br />

developed by the <strong>PRIMIS</strong> Team, with<br />

significant clinical input from the<br />

<strong>PRIMIS</strong> Clinical Advisory Group. They<br />

have then undergone a process of beta<br />

testing before release.<br />

At the time of writing, the <strong>PRIMIS</strong> Team<br />

is currently working on a data quality<br />

library which will allow practices to<br />

identify gaps and errors in their patient<br />

records.<br />

CHART query libraries available (April <strong>2005</strong>)<br />

• the nGMS query library - focusing on the<br />

new contract<br />

• the Flu query library - looking at influenza<br />

vaccinations<br />

• the original Rush query library - focusing on<br />

the Quality and Outcomes Framework<br />

Using CHART as a Data Quality Improvement Tool<br />

One of the big advantages of CHART is that it remains in the practice and is relatively simple<br />

for practice staff to use, following training provided by the facilitator. This gives practice staff<br />

the ability to look at their own data quality and patient care whenever they need to, for<br />

example in relation to the New GMS Contract. Responses are displayed in a format that allows<br />

the user to analyse the patient record, using filters to review various criteria. This can be done<br />

either through the datasheet, or by drilling down through the various graphical displays.<br />

The Training<br />

The CHART training module takes place over a half or full day and is run on an individual<br />

scheme basis. During the training, facilitators will be shown how to download the software and<br />

query libraries and how to use the software to customise HQL queries. Analysis of responses<br />

and how to use the CHART display functionality to identify data quality issues is also covered<br />

in some detail, as is how to train practice staff to use the software. On completion of the<br />

training, facilitators will have access to the CHART software and CHART query libraries on the<br />

<strong>PRIMIS</strong> secure website.<br />

Further information on the subject matter included in this training is available in the form of<br />

printed CHART instructions and a computer-based tutorial. These are provided to facilitators<br />

during the training.<br />

48 <strong>PRIMIS</strong>


CHART<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Learning Objectives<br />

The training will provide facilitators with:<br />

• the skills to download and install CHART software and query libraries<br />

• an understanding of the functionality of the software<br />

• the skills to analyse and interpret the query responses when viewed using CHART<br />

software<br />

• the ability to train practice staff in the use of the software<br />

• an understanding of the confidentiality aspects of the software.<br />

Training Plan - Links to other <strong>PRIMIS</strong> training<br />

Before attending the CHART training module, facilitators should have attended the<br />

following <strong>PRIMIS</strong> training and have completed some data quality improvement work with<br />

their local practices:<br />

• Quality Data, Quality Outcomes<br />

• Clinical Coding<br />

• The MIQUEST Process<br />

• Data Analysis, Interpretation and Feedback<br />

<strong>Facilitator</strong>s attending this training module would also find the following training modules of<br />

interest:<br />

• Data Quality and Patient Safety<br />

• Supporting Quality Outcomes<br />

• Primary Care Data Uses and Abuses<br />

<strong>PRIMIS</strong> 49


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

CHART<br />

50 <strong>PRIMIS</strong>


Action Planning and Supporting Change<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Action Planning and Supporting Change<br />

Background<br />

The NHS is constantly changing due to the political agenda. Recent changes to the GP<br />

contract and the increased priority for use of information technology in the NHS are affecting<br />

the culture of primary care, with emphasis on recording data on the computer as opposed to<br />

paper-based records.<br />

This training module follows on from the Data Analysis, Interpretation and Feedback module<br />

and is designed to assist the information facilitator in helping practices to manage change, and<br />

develop and implement action plans. Following on from the facilitator’s initial feedback session,<br />

the practice can identify areas where data quality issues have been highlighted. It gives a<br />

platform to start from in deciding:<br />

• where are they now?<br />

• where do they want to get to?<br />

• how are they going to get there?<br />

One method for instigating change is to raise dissatisfaction with the current situation, in this<br />

case in the quality of the practice’s data. This should be a whole practice process with all<br />

members of staff involved. There are various techniques that a facilitator may use with a<br />

practice. Some examples are given in the box below:<br />

Suggested Information Management tasks for practice use<br />

• Planning data collection and storage processes<br />

• Understanding how members of the practice team use data<br />

• Developing data entry policies and procedures<br />

• Monitoring information handling systems<br />

The Training<br />

The training takes place over a full day and is run on either an individual scheme or group<br />

basis. The training consists of a presentation about the stages of change management and<br />

several exercises to be undertaken by the participants during the training; it covers the<br />

following topics:<br />

• reducing resistance to change<br />

• knowing what causes change<br />

• raising dissatisfaction with the current way of doing things<br />

• reaching agreement on a common way forward<br />

• identifying who is involved in the change process<br />

<strong>PRIMIS</strong> 51


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Action Planning and Supporting Change<br />

• building confidence that the target is achievable<br />

• implementing the change and the new ways of working<br />

• understanding how change affects the people involved<br />

• addressing issues that will hinder the implementation of change•<br />

• using practical management tools and techniques<br />

• supporting the changes<br />

• embracing the new methods<br />

• skills needed for a change agent.<br />

Further information on the background and subject matter included in this training is available<br />

in the form of a workbook. This is provided to facilitators during the training.<br />

Learning Objectives<br />

The training will provide information facilitators with:<br />

• an understanding of change management theory<br />

• an understanding of change management techniques<br />

• an understanding of how to support the development, implementation and review of<br />

practice based action plans<br />

• an understanding of their role as a change agent<br />

References and further reading<br />

<strong>PRIMIS</strong> Guidelines<br />

www.primis.nhs.uk/pages/download_template.asp?r=Guidelines_Sept01.pdf<br />

New GMS Contract 2003 – Investing in General Practice<br />

www.nhsconfed.org<br />

Good practice guidelines for practice electronic patient records. GPC/DoH<br />

www.dh.gov.uk/PublicationsAndStatistics/Publications/PublicationsPolicyAndGuidance/Publicati<br />

onsPolicyAndGuidanceArticle/fs/en?CONTENT_ID=4008657&chk=rr8fQT<br />

Brooks B, Upton T. Managing Change in the NHS. Maidenhead: Open University Press; 1999.<br />

Drucker P. Managing the Non-Profit Organisation. Oxford: Butterworth-Heinemann; 1992.<br />

Handy C. Understanding Organisations. London: Penguin; 1985.<br />

Kolb DA et al. Organisational Psychology: An experiential approach. Paramus, NJ: Prentice-<br />

Hall; 1974.<br />

Lewin K. Group Decisions and Social Change. In: Readings in Social Psychology. Maccoby<br />

EE, Newcomb TM, Hartley EL, eds. New York: Holt, Rinehart, and Winston; 1965.<br />

52 <strong>PRIMIS</strong>


Action Planning and Supporting Change<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Pringle M et al. Managing Change in Primary Care. Abingdon: Radcliffe Medical Press; 1991.<br />

Schein E. Organisational Psychology. Paramus, NJ: Prentice Hall; 1980.<br />

Teasdale K. Managing the Changes in Health Care. Wolfe; 1992.<br />

Pease A. Language: How to read others’ thoughts by their gestures. London: Sheldon Press;<br />

1997<br />

Brookfield S. Understanding and Facilitating Adult Learning. Maidenhead: Open University<br />

Press; 1986.<br />

Training Plan - Links to other <strong>PRIMIS</strong> training<br />

<strong>Facilitator</strong>s attending the Action Planning and Supporting Change training module would<br />

also find the following training modules of interest:<br />

• Quality Data, Quality Outcomes<br />

• Clinical Coding<br />

• Data Analysis, Interpretation and Feedback<br />

• Facilitation Skills<br />

• Data Quality and Patient Safety<br />

<strong>PRIMIS</strong> 53


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Action Planning and Supporting Change<br />

54 <strong>PRIMIS</strong>


Information Governance<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Information Governance<br />

Background<br />

Information Governance is a broad-based approach to looking at all aspects of how<br />

information is processed by NHS organisations – how it is Held, Obtained, Recorded, Used<br />

and Shared (HORUS). And just like other governance initiatives, e.g. research, corporate and<br />

clinical governance, information governance is about setting standards – standards for<br />

handling information in a confidential and secure manner. These standards are derived from<br />

law, policy and agreed best practice, such as:<br />

• the Common Law Duty of Confidence<br />

• the Data Protection Act 1998<br />

• the Freedom of Information Act 2000<br />

• the NHS Code of Conduct for Confidentiality<br />

• the Caldicott Report 1997<br />

• Information Security Management – BS7799<br />

• records management – HSC 1999/053<br />

• a strategy for information quality assurance<br />

Broadly speaking, information governance can be divided into five main components:<br />

confidentiality and consent<br />

data protection<br />

IM&T security<br />

records management<br />

information quality assurance<br />

Confidentiality and Consent<br />

Under the common law duty of confidence, patient information is generally held under legal<br />

and ethical obligations of confidentiality. Information provided in confidence should not be used<br />

or disclosed in a form that might identify a patient without his or her consent. There are a<br />

number of important exceptions, but these obligations apply in most circumstances.<br />

Data Protection<br />

The Data Protection Act 1998 is built around a set of enforceable principles. These are<br />

intended to protect personal privacy, to encourage good practice in the handling of personal<br />

information, and to give individuals a right of access to information about themselves, for<br />

example to their own health or financial records. The Data Protection Act applies to all bodies<br />

that process personal information, not only to public authorities.<br />

<strong>PRIMIS</strong> 55


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Information Governance<br />

IM&T Security<br />

The NHS and its partners handle vast quantities of sensitive information every day, including<br />

both clinical and non-clinical information. Comprehensive policy and guidance on information<br />

security and relevant risk management need to be in place, thereby ensuring that all<br />

reasonable care and safeguards to protect both the physical security of information technology<br />

and the data contained have been taken. This is often referred to as CIA – protecting the<br />

Confidentiality, Integrity and Availability of NHS systems and the data held within them.<br />

Records Management<br />

An organisation’s records represent the organisation’s corporate memory, providing evidence<br />

of actions and decisions, while also supporting daily functions and operations. Records support<br />

policy formation and managerial decision-making; they protect the interests of the organisation,<br />

and also the rights of patients, staff and members of the public.<br />

Information Quality Assurance<br />

All health care is information-driven, be it for the provision of direct clinical care of the patient,<br />

for disease surveillance, for medical research or for health care management. Any threat to the<br />

quality of that information is therefore a direct risk to the quality of the service provided by the<br />

NHS and those who access that service. Clearly, setting standards for assuring good data<br />

quality is an important element of information governance.<br />

The Information Governance Toolkit, which provides a route map for the achievement of best<br />

practice in information governance for NHS organisations, makes it a requirement for general<br />

practices to participate in a recognised scheme of data quality, such as <strong>PRIMIS</strong>, or to<br />

undertake regular detailed in-house checks on data quality.<br />

These five key areas, including the relevant legislation, policy and guidance, are covered in the<br />

<strong>PRIMIS</strong> Information Governance training module.<br />

Information Governance and the <strong>PRIMIS</strong> Process<br />

Throughout the <strong>PRIMIS</strong> process, there are many aspects of the work where information<br />

governance needs to be considered. These include:<br />

• data quality - an important component of information governance<br />

• confidentiality agreements with participating practices<br />

• protocols for sharing named practice data<br />

• confidentiality safeguards inherent within MIQUEST<br />

• using report style MIQUEST queries run as a local enquirer, such as CHART<br />

• records management policies<br />

• access to the computers in general practice<br />

• confidentiality and security of information held on computers.<br />

56 <strong>PRIMIS</strong>


Information Governance<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

The Training<br />

The training takes place over a full day and is run on either an individual scheme or group<br />

basis. The aim of the Information Governance module is to provide information facilitators with<br />

an overview of the relevant information governance legislation, policy and guidance, placing it<br />

in the context of the <strong>PRIMIS</strong> process and their role as information facilitators.<br />

Further information on the background and subject matter included in this training is available<br />

in the form of a workbook. This is provided to facilitators during the training.<br />

A refresher module is also available, which provides an overview of legislation, policy and<br />

guidance only. This is designed for information facilitators who have already attended the full<br />

training module session but who wish to keep up to date with the latest information<br />

governance standards.<br />

Learning Objectives<br />

The training will provide information facilitators with:<br />

• an awareness of the key factors that need to be taken into account in relation to<br />

information governance<br />

• an understanding of how information governance interacts with the <strong>PRIMIS</strong><br />

process<br />

• an awareness of relevant security and confidentiality legislation<br />

• an understanding of the impact of information governance on the role of the<br />

facilitator<br />

• an awareness of the Caldicott principles and definitions<br />

• an understanding of risk management and analysis.<br />

Further Reading<br />

Between You and Me, Protecting Personal Information. NHS Information Authority 2001<br />

(Caldicott toolkit Document reference No: 2001-1A-730)<br />

www.nhsia.nhs.uk/caldicott<br />

General Medical Council. Confidentiality: Providing and Protecting Information, 2000<br />

Guidelines for Professional Practice, 1966. United Kingdom Central Council for Nursing,<br />

Midwifery and Health Visiting (UKCC).<br />

Code of Conduct 2000. Association of Medical Secretaries, Practice Managers, Administrators<br />

and Receptionists (AMSPAR).<br />

Clinical Records in Primary Care: Access and Confidentiality 1999. The Royal College of<br />

General Practitioners<br />

www.rcgp.org.uk<br />

<strong>PRIMIS</strong> 57


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Information Governance<br />

Information Policy Unit<br />

www.dh.gov.uk/PolicyAndGuidance/InformationPolicy/fs/en<br />

Data Protection Registrar<br />

www.dataprotection.gov.uk<br />

British Medical Association<br />

www.bma.org.uk<br />

NHS Lifehouse – Protecting named and anonymised patient data, Department of Health<br />

www.dh.gov.uk/PolicyAndGuidance/ResearchAndDevelopment/NHSLightHouseProject/NHSLig<br />

htHouseProjectArticle/fs/en?CONTENT_ID=4049404&chk=Dsc0AS<br />

Training Plan - Links to other <strong>PRIMIS</strong> training<br />

<strong>Facilitator</strong>s attending the Information Governance training module would also find the<br />

following training modules of interest:<br />

• Scheme Management<br />

• Quality Data, Quality Outcomes<br />

• Data Analysis, Interpretation and Feedback<br />

• CHART<br />

• Path to Paperless<br />

• Data Quality and Patient Safety<br />

• Supporting Quality Review<br />

• Primary Care Data Uses and Abuses<br />

58 <strong>PRIMIS</strong>


Path to Paperless<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Path to Paperless<br />

Background<br />

“Going paperless has been a major hurdle for many. It is the golden egg of medical<br />

information technology and many believe offers great promise for medical care. UK<br />

primary care computing leads the way in the world. It has a long history stretching back<br />

over 20 years. The systems have been developed, primarily by experienced GPs, into<br />

medical records that are more sophisticated and more comprehensive than those in other<br />

countries. The ‘cradle to grave’ NHS record, the need for lifelong total care and the<br />

registered list of patients have given us the opportunity to explore what computer systems<br />

can do. However, their full potential has been recognised by only the dedicated few, with<br />

most just using the computer for basic data collection. Now, UK general practice has<br />

changed. The increasing bureaucracy, the need for accountability and the removal of the<br />

legal impediments mean that every practice now has to move towards fuller<br />

computerisation and the paperless practice.”<br />

Glyn Hayes, August 2001, in Going Paperless, Shaw N, Radcliffe Medical Press<br />

Questions to consider before attending this module:•<br />

• Do you know what the legal position is for practices regarding the keeping of<br />

wholly electronic patient health records?<br />

• Are you aware of your PCO's responsibilities with regard to approving<br />

applications to maintain electronic patient health records?<br />

• Do you know who is responsible for the approval and accreditation process at<br />

your PCT?<br />

• Are you able to offer help and guidance to your practices?<br />

• Do you know anything about scanned image file formats?<br />

This training module is intended for those facilitators who are working with practices moving<br />

towards developing electronic patient health records. Many practices have already made<br />

considerable inroads into moving away from paper-based recording. However, they will all be<br />

at differing stages and need differing individual help and guidance.<br />

The latest guidance published by the Royal College of General Practitioners, the British<br />

Medical Association and the Department of Health forms the basis for much of the Path to<br />

Paperless training session. Experiences learned and shared by other facilitators are also<br />

included.<br />

<strong>PRIMIS</strong> 59


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Path to Paperless<br />

The Training<br />

The training takes place over a full day, is run on a group workshop basis and covers the<br />

following topics:<br />

What is the Electronic Patient Record?<br />

This covers a brief history of the growing capabilities and use of IT systems in general practice<br />

and the landmark legislation permitting the keeping of electronic-only patient health records.<br />

The advantages for the patient and the health professionals of using electronic patient health<br />

records are analysed, as well as any perceived barriers. The capabilities of the electronic<br />

patient health record are discussed, together with some proven techniques and tools for<br />

helping a practice to plan and undertake this fundamental change in the way they operate.<br />

Approval process for going paperless<br />

In-depth information on the accreditation and approval process is included in the training. The<br />

skills required to transfer written legacy notes are outlined with the focus on the need to plan to<br />

achieve a quality result. An example exploring the sources of data flowing into a fictitious<br />

practice is used to demonstrate the importance of data flow mapping tools in preparing to<br />

become paperless.<br />

References are made to the sections of the Quality and Outcomes Framework of the New<br />

GMS Contract that have a bearing on records management.<br />

Practical Tips<br />

Advice on the scanning of documents and capturing of images for inclusion in the patient’s<br />

electronic health record is given, together with some necessary recommendations on such<br />

things as suitable file formats.<br />

Further information on the background and subject matter included in this training is available<br />

in the form of a workbook. This is provided to facilitators during the training.<br />

Learning Objectives<br />

The training will provide information facilitators with:<br />

• an awareness of the background and history of electronic records in primary care<br />

• an awareness of the information governance issues that need to be considered when<br />

supporting practices in the transition to using electronic patient records<br />

• an understanding of the benefits to PCOs, practices and patients in the use of<br />

electronic patient records<br />

• an understanding of the processes required to summarise medical records<br />

• an understanding of the need for an ongoing data input and maintenance policy<br />

• an awareness of the other elements related to “e-commerce” and the NHS<br />

60 <strong>PRIMIS</strong>


Path to Paperless<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Further Reading<br />

Good Practice Guidelines for General Practice Electronic Records (Version 3), The Joint<br />

Computing Group of the General Practitioners Committee and the Royal College of General<br />

Practitioners, 2003.<br />

www.dh.gov.uk/PublicationsAndStatistics/Publications/PublicationsPolicyAndGuidance/Publicati<br />

onsPolicyAndGuidanceArticle/fs/en?CONTENT_ID=4008657&chk=rr8fQT<br />

The Computer Misuse Act 1990, Data Protection Act 1998, Human Rights Act, Freedom of<br />

Information Act, Health and Social Care Act<br />

www.hmso.gov.uk<br />

www.dh.gov.uk<br />

www.dataprotection.gov.uk<br />

A proposed generic scheme for approving paperless practice – Guidance for GPs, 2001. GPC.<br />

www.bma.org.uk<br />

The NHS Confidentiality Code of Practice<br />

www.dh.gov.uk/PublicationsAndStatistics/Publications/PublicationsPolicyAndGuidance/Publicati<br />

onsPolicyAndGuidanceArticle/fs/en?CONTENT_ID=4069253&chk=jftKB%2B<br />

New GMS Contract 2003 – Investing in General Practice<br />

www.nhsconfed.org<br />

Morris DE. General Practice: Going Paperless (2004)<br />

careerfocus.bmjjournals.com/cgi/reprint/328/7439/97.pdf<br />

Shaw N. Going Paperless, a guide to computerisation in primary care. Abingdon: Radcliffe<br />

Medical Press; 2001.<br />

Training Plan - Links to other <strong>PRIMIS</strong> training<br />

<strong>Facilitator</strong>s attending the Path to Paperless training module would also find the<br />

following <strong>PRIMIS</strong> training modules of interest:<br />

• Quality Data, Quality Outcomes<br />

• Clinical Coding<br />

• Facilitation Skills<br />

• Action Planning and Supporting Change<br />

• Information Governance<br />

Please note: many of the above training modules overlap with one another and offer<br />

a certain amount of core content and studying.<br />

<strong>PRIMIS</strong> 61


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Path to Paperless<br />

62 <strong>PRIMIS</strong>


Data Quality and Patient Safety<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Data Quality and Patient Safety<br />

Background<br />

In 2003 the National Patient Safety Agency (NPSA) commissioned the University of<br />

Nottingham to carry out research aimed at:<br />

• identifying the important safety issues regarding GP computer systems<br />

• assessing systems in terms of these safety features<br />

• determining GPs’ knowledge, use and training needs in relation to computerised<br />

safety features<br />

• working with stakeholders to produce specifications for GP computer suppliers<br />

• developing training for GPs and practice staff<br />

Research Findings<br />

The research concluded that GP computer systems have considerable potential to help ensure<br />

patient safety, but that this potential is sometimes limited by systems not having adequate<br />

functionality, and by user knowledge or skills, including practitioners not always making full use<br />

of safety features that currently exist and issues with consistency in recording morbidity data.<br />

As part of the research process, interviews were carried out with various stakeholders<br />

including doctors, system suppliers and system users. Through these interviews, it was found<br />

that some of the limiting factors, as shown below, are common to those that arise when<br />

working with information management in primary care.<br />

Factors that limit the use of the clinical system in ensuring patient safety<br />

• a need to ensure that users record data so that system functionality is available when<br />

required<br />

• a need to ensure that users have accurate and safe information to guide decisionmaking<br />

• the need to make best use of computerised systems for ensuring that intended<br />

actions such as patient referrals and medication monitoring are complete<br />

• a need for GPs to be better trained in the effective use of their computer systems<br />

<strong>PRIMIS</strong> 63


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Data Quality and Patient Safety<br />

The stakeholder interviews also identified other areas of concern with current clinical systems<br />

and their usage:<br />

The Training<br />

• the need for a drug dictionary for the NHS to improve communication between<br />

systems<br />

• the need for drug ontologies that provide sensible alerts and decision support<br />

• the need to develop audit trails<br />

• ensuring that account is taken of human ergonomics in the design of computerised<br />

alerts<br />

• the need for healthcare staff to be trained in the safe and effective use of systems<br />

• the need to produce safety specific regulations, requirements and guidelines<br />

• the need to build a safety culture and raise safety awareness in primary care.<br />

The NPSA commissioned <strong>PRIMIS</strong> to develop a training module for information facilitators. The<br />

training takes place over a full day and is run on a group workshop basis. It includes<br />

presentation of the research findings and discussion around the following topics:<br />

Known clinical system features and problems<br />

• Hazard alerts for contraindicated drugs, drug interactions, allergies, frequency of<br />

dose and the need for monitoring<br />

• Safety checks for repeat prescribing<br />

• Decision support software<br />

• Avoiding spurious or irrelevant alerts<br />

• Avoiding overriding critical alerts<br />

• The use of audit trails<br />

• Call and recall systems for patient monitoring<br />

• Alerts for missed referrals and abnormal results<br />

• The effect of poor-quality data on the effectiveness of safety features<br />

All the currently used systems have a number of in-built warning messages that are designed<br />

to alert the user to a potential hazard if the chosen course of action is pursued. Unfortunately,<br />

these messages are of differing sensitivity, appearance, visibility and reliability.<br />

Other areas where data quality can affect patient care<br />

• Tracking if patients attended referral<br />

• Tracking lab test requests/results<br />

• Identifying patients at risk<br />

64 <strong>PRIMIS</strong>


Data Quality and Patient Safety<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Patient safety in the GMS Contract<br />

• Clinical quality indicators and those identified for additional services all support<br />

patient care and patient safety<br />

• Organisational indicators also identify issues that are related to patient safety,<br />

specifically in records and information about patients and medicines management<br />

• Some contractual and statutory requirements are also relevant to patient safety.<br />

Further information on the background and subject matter included in this training is available<br />

in the form of a workbook. This is provided to facilitators during the training.<br />

Learning Objectives<br />

The training will provide information facilitators with:<br />

• an awareness of the role of the National Patient Safety Agency<br />

• an understanding of the potential impact of data quality on patient safety<br />

• an awareness of the functionality of safety features inherent in GP clinical computer<br />

systems as identified by the University of Nottingham’s research<br />

• an awareness of the range of tools used to identify areas of risk to patient safety<br />

• an understanding of the knowledge required to support practices to improve data<br />

quality and implement change.<br />

References and further reading<br />

<strong>PRIMIS</strong> Guidelines<br />

www.primis.nottingham.ac.uk/pages/download_template.asp?r=Guidelines_Sept01.pdf<br />

New GMS Contract 2003 – Investing in General Practice<br />

www.nhsconfed.org<br />

National Patient Safety Agency<br />

www.npsa.nhs.uk<br />

An Organisation with a memory, Department of Health, 2000.<br />

Seven steps to Patient safety: A guide for NHS Staff, National Patient Safety Agency, 2003.<br />

Yantis G, Lownhaupt, M. This time it’s personal. E-Health Insider. 19 Jan <strong>2005</strong>.<br />

www.e-health-insider.com/comment_and_analysis/index.cfm?ID=45<br />

Protti DJ. Computers Can Reduce Errors And Improve Patient Safety.<br />

www.informatics.nhs.uk/item/1225<br />

Avery AJ, Savelyich BS, Teasdale S. Improving the safety features of general practice<br />

computer systems. Informatics in Primary Care. 2003; 11:203-6.<br />

<strong>PRIMIS</strong> 65


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Data Quality and Patient Safety<br />

Fernando B, Savelyich BS, Avery AJ et al. Prescribing safety features of general practice<br />

computer systems: evaluation using simulated test cases. British Medical Journal 2004;<br />

328:1171-2<br />

Avery AJ, Savelyich BSP, Sheikh A et al. Identifying and establishing consensus on the most<br />

important safety features of GP computer systems: e-Delphi study. Informatics in Primary<br />

Care. <strong>2005</strong>;3:11<br />

Training Plan - Links to other <strong>PRIMIS</strong> training<br />

<strong>Facilitator</strong>s attending the Data Quality and Patient Safety training module would also<br />

find the following <strong>PRIMIS</strong> training modules of interest:<br />

• Quality Data, Quality Outcomes<br />

• Clinical Coding<br />

• Information Governance<br />

• Primary Care Data Uses and Abuses<br />

66 <strong>PRIMIS</strong>


Supporting Quality Outcomes<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Supporting Quality Outcomes<br />

Background<br />

The new GMS contract represents a landmark in the development of UK general practice.<br />

It provides demonstrable benefits to GMS practices to primary healthcare professionals, to<br />

the NHS and - most importantly - to patients. These, coupled with the largest sustained<br />

investment in primary care ever made, will create the platform for a step change in<br />

improved health and health services, boosting morale and creating greater and fairer<br />

rewards for GPs.<br />

Department of Health press release<br />

http://www.nhsconfed.org/press/releases/walesgms.asp<br />

The contract provides a major focus on quality and outcomes. Practices have the opportunity<br />

to receive additional funding to support aspiration to achievement of a range of quality<br />

standards. The new quality framework rewards practices for delivering quality care with extra<br />

incentives to encourage even higher standards.<br />

The four domains included in the Quality and Outcomes Framework<br />

• Clinical standards, covering coronary heart disease including left ventricular<br />

dysfunction, stroke or transient ischaemic attacks, hypertension, diabetes,<br />

chronic obstructive pulmonary disease (COPD), epilepsy, cancer, mental health,<br />

hypothyroidism and asthma<br />

• Organisational standards, covering records and information about patients,<br />

information for patients, education and training, practice management and<br />

medicines management<br />

• Experience of patients covering the services provided, how they are provided<br />

and their involvement in service development plans. This includes patient<br />

satisfaction surveys and consultation length<br />

• Additional services covering cervical screening, child health surveillance,<br />

maternity services and contraceptive services<br />

The framework contains four domains as outlined in the box below. Each domain contains a<br />

range of areas described by key indicators, which describe different aspects of performance.<br />

The aim of this training module is to provide information facilitators with an understanding of<br />

the implications of the Quality and Outcomes Framework, to explain the key terminology, and<br />

to provide knowledge of the structure, process and outcomes of each clinical domain.<br />

<strong>PRIMIS</strong> 67


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Supporting Quality Outcomes<br />

The Training<br />

The training takes place over a full day and is run on a group workshop basis. It covers the<br />

following topics:<br />

Introduction to the Quality and Outcomes Framework<br />

The principles of the four domains and ten clinical indicators are explained in terms of<br />

structure, process and outcome.<br />

Structure:<br />

Process:<br />

Outcome:<br />

How the disease registers are constructed<br />

The interventions, treatment and requirements for each clinical domain<br />

Monitoring patient health by proxy of achievement of targets and the<br />

management of data recording<br />

The organisational indicators<br />

The organisational indicators underpin the core philosophy of the <strong>PRIMIS</strong> data quality training<br />

and the information facilitator’s role. The training looks at each of the organisational indicators<br />

and discusses the processes in place to collect data and ensure quality.<br />

The clinical domains<br />

The structure of each clinical domain disease register is discussed examining the inclusion and<br />

exclusion criteria in terms of appropriate diagnosis codes, including medication and date<br />

ranges. The issues around data quality and validation of diagnosis are highlighted.<br />

The clinical indicators<br />

The structure and management of the disease registers require that data recording is kept to a<br />

minimum suitable for an accurate assessment of patient care and does not distort the<br />

consultation through over emphasis on data collection.<br />

The indicators are examined in terms of data quality and recording issues, and how these<br />

might affect validation processes such as QMAS.<br />

Exception reporting<br />

Practices are able to record reasons why a patient may not have been given appropriate<br />

treatment or allow certain patients not to be included on disease registers. There are two broad<br />

types of exception reporting available: an entire indicator group exception and a single<br />

indicator exception.<br />

The concept of exception reporting and the rules around when an exception may be applied<br />

are explained both in terms of disease register structure and clinical indicator process.<br />

68 <strong>PRIMIS</strong>


Supporting Quality Outcomes<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Calculations<br />

The calculations within the Quality and Outcomes Framework require an understanding of<br />

which patients or groups of patients are included in denominator and numerator populations for<br />

each indicator. This is explained through practical examples.<br />

Action Planning<br />

The training is summarised through the development of an action plan identifying where the<br />

information facilitator may influence or help practices target issues around disease registers,<br />

patient monitoring, exceptions and organisational issues.<br />

The tools and resources available to help with this process, such as the <strong>PRIMIS</strong> Data Quality<br />

query set and CHART, are also discussed.<br />

Learning Objectives<br />

The training will provide information facilitators with:<br />

• an understanding of the implications of the Quality and Outcomes Framework<br />

• an understanding of the key terminology contained in the Quality and Outcomes<br />

Framework<br />

• an understanding of the structure, process and outcomes for each of the clinical<br />

indicators<br />

• an awareness of the ten disease areas in the clinical domains<br />

• an understanding of numerators and denominators and the various exception<br />

codes<br />

• an awareness of ongoing monitoring and interventions<br />

• an awareness of the data collection and organisational issues<br />

• an understanding of outcome, review and maximum tolerated doses<br />

Further Reading<br />

New GMS Contract 2003 – Investing in General Practice<br />

www.nhsconfed.org<br />

Good Practice Guidelines for General Practice Electronic Records (Version 3. The Joint<br />

Computing Group of the General Practitioners Committee and the Royal College of General<br />

Practitioners; 2003.<br />

www.dh.gov.uk/PublicationsAndStatistics/Publications/PublicationsPolicyAndGuidance/Publicati<br />

onsPolicyAndGuidanceArticle/fs/en?CONTENT_ID=4008657&chk=rr8fQT<br />

The Computer Misuse Act 1990, Data Protection Act 1998, Human Rights Act, Freedom of<br />

Information Act, Health and Social Care Act<br />

www.hmso.gov.uk<br />

www.dh.gov.uk<br />

www.dataprotection.gov.uk<br />

www.nhsia.nhs.uk/caldicott/pages/links.asp<br />

<strong>PRIMIS</strong> 69


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Supporting Quality Outcomes<br />

Preservation, Retention and Destruction of GP General Medical Services records relating to<br />

patients. HSC 1998/217<br />

A proposed generic scheme for approving paperless practice – Guidance for GPs, GPC, 2001.<br />

www.bma.org.uk<br />

The NHS Confidentiality Code of Practice<br />

www.dh.gov.uk/PublicationsAndStatistics/Publications/PublicationsPolicyAndGuidance/Publicati<br />

onsPolicyAndGuidanceArticle/fs/en?CONTENT_ID=4069253&chk=jftKB%2B<br />

Training Plan - Links to other <strong>PRIMIS</strong> training<br />

<strong>Facilitator</strong>s attending the Supporting Quality Outcomes training module would also find<br />

the following <strong>PRIMIS</strong> training modules of interest:<br />

• Data Quality and Patient Safety<br />

• Path to Paperless<br />

• Supporting Quality Services<br />

• Supporting Quality Review<br />

Please note: many of the above training modules overlap and offer a certain amount<br />

of core content and study. It would benefit the facilitator to have undertaken these<br />

previous modules to provide a rounded understanding of information management<br />

before undertaking this training module, although this is not a necessity.<br />

70 <strong>PRIMIS</strong>


Supporting Quality Services<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Supporting Quality Services<br />

Background<br />

The New GMS Contract incorporated significant changes to the provision of primary health<br />

services, including the categorisation of services. PCOs are placed under a new legal duty to<br />

ensure that patients receive access to the full range of primary medical services. The<br />

categorisation and provision arrangements for services under the new Contract include the<br />

following:<br />

• Practices will be required to provide essential services<br />

These cover the management of patients who are ill or believe themselves to be ill,<br />

with conditions from which recovery is generally expected, for the duration of that<br />

condition, including relevant health promotion advice and referral as appropriate,<br />

reflecting patient choice wherever practicable; the general management of patients<br />

who are terminally ill; and the management of chronic disease in the manner<br />

determined by the practice, in discussion with the patient.<br />

• Practices will have a preferential right to provide additional services<br />

These cover cervical screening, contraceptive services, vaccinations and<br />

immunisations, child health surveillance, maternity services (excluding intra partum<br />

care) and the minor surgery procedures of curettage, cautery, cryocautery of warts<br />

and verrucae, and other skin lesions.<br />

Practices may opt out of providing additional services with the agreement of their<br />

PCO.<br />

• The PCO will commission enhanced services, of which there are three types:<br />

Directed – under national direction with national specifications and benchmark<br />

pricing, which all PCOs must commission to cover their relevant population. For<br />

example, improved access to GMS, child vaccinations and immunisations and<br />

advanced minor surgery.<br />

National – with national minimum specifications and benchmark pricing, but not<br />

directed. For example, anticoagulation monitoring and enhanced care of the<br />

homeless.<br />

Local – developed locally. For example, enhanced medical care of asylum seekers<br />

and area-wide home visiting schemes.<br />

• There are also new arrangements for out-of-hours care and services for nonregistered<br />

patients.<br />

Through the new contract more emphasis is placed on rewarding quality and outcomes, with<br />

payments based on recorded data. The need for high quality clinical data has never been<br />

greater.<br />

The implementation of the new contract raises many information management issues. This<br />

training module is intended to raise information facilitators’ awareness of these issues,<br />

particularly around enhanced services.<br />

<strong>PRIMIS</strong> 71


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Supporting Quality Services<br />

The Training<br />

The training takes place over a full day and is run on a group workshop basis. It covers<br />

explanations of the different services and practical exercises that highlight the information<br />

management issues with commissioning and monitoring an enhanced service. It highlights how<br />

the facilitator is able to support both the practices and the PCO.<br />

The main sections of the training course are as follows:<br />

• What are essential, additional and enhanced services?<br />

An explanation of each type of service and how they apply to primary care,<br />

including when and who should carry them out. What is meant by a preferred<br />

service provider.<br />

• The Financial Provision for Services<br />

A brief look at the statement for financial entitlement and an explanation of how the<br />

services are funded, including a discussion of the differences between GMS and<br />

PMS practices.<br />

• Identifying issues around providing a clinical specification<br />

This practical exercise looks at the difficulty in providing an accurate clinical<br />

specification and issues that need to be considered for both practices and PCOs in<br />

recording and extracting clinical data.<br />

• The provision of a service by an outside provider<br />

This practical exercise raises the items for consideration by a team or outside<br />

supplier providing services for a practice, and the practice for whom those services<br />

are being supplied. The exercise and following debate highlight issues of concern<br />

to PCOs, practices and facilitators around the provision and monitoring of these<br />

services.<br />

• What can the facilitator do?<br />

A summary of the previous issues and a discussion on how the issues raised relate<br />

to an information facilitator, and how the facilitator can help practices and PCOs<br />

with their information management requirements.<br />

Further information on the background and subject matter included in this training is available<br />

in the form of a workbook. This is provided to facilitators during the training.<br />

72 <strong>PRIMIS</strong>


Supporting Quality Services<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Learning Objectives<br />

The training will provide information facilitators with knowledge and understanding of:<br />

• flexible provision of services within the New GMS Contract, and allocation of<br />

resources<br />

• categorisation of the full range of primary medical services<br />

• data and information requirements of the full range of primary medical services<br />

• audit and review requirements of the full range of primary medical services<br />

• outline requirements of the services<br />

• appraisal criteria requirements for the services<br />

• involvement of various primary care team members<br />

• role of the facilitator in supporting both practices and PCOs.<br />

Further reading<br />

New GMS Contract 2003 – Investing in General Practice<br />

www.nhsconfed.org<br />

New GMS contract 2003 Supplementary Documents<br />

Statement of Finance Entitlements<br />

www.dh.gov.uk<br />

Contract Regulations<br />

www.legislation.hmso.gov.uk/si/si2004/20040291.htm<br />

<strong>PRIMIS</strong> 73


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Supporting Quality Services<br />

Training Plan - Links to other <strong>PRIMIS</strong> training<br />

<strong>Facilitator</strong>s attending the Supporting Quality Services training module would also find<br />

the following <strong>PRIMIS</strong> training modules of interest:<br />

• Quality Data, Quality Outcomes<br />

• Clinical Coding<br />

• Facilitation Skills<br />

• Action Planning and Supporting Change<br />

• Information Governance<br />

• Path to Paperless<br />

• Supporting Quality Outcomes<br />

• Supporting Quality Review<br />

• Primary Care Data Uses and Abuses<br />

Please note: many of the above training modules overlap and offer a certain amount<br />

of core content and study. It would benefit the facilitator to have undertaken these<br />

previous modules to provide a rounded understanding of information management<br />

before undertaking this training module, although this is not a necessity.<br />

74 <strong>PRIMIS</strong>


Supporting Quality Review<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Supporting Quality Review<br />

Background<br />

The New GMS Contract, and in particular the Quality and Outcomes Framework (QOF), is<br />

designed to reward health care providers for the quality of care they provide rather than the<br />

quantity. The incentives for practices to deliver good chronic disease management across a<br />

range of diseases are strong both clinically and financially.<br />

In order for practices to deliver good quality care to their patients as required under the QOF,<br />

they need to work constructively with their PCO. The PCO can assist practices by identifying<br />

areas that need further support at practice level and areas that require a cross-practice<br />

approach.<br />

Part of that process is the QOF Assessment Visit, the first of which were carried out between<br />

October 2004 and January <strong>2005</strong>.<br />

The first part of this process is the collection of data, 75% of which can be collected by means<br />

of an automated process of data collection and points calculation. These are the data items<br />

recorded in the patient’s electronic record and used by the clinical system’s own tool for<br />

calculating points. These data are sent to a centralised Quality Management Analysis System<br />

(QMAS) on a monthly basis for analysis. The remaining 25% is not collectable in this way as<br />

the data do not feature in an easily identifiable way within the clinical record. The PCO must<br />

proactively collect these data in partnership with practices. These items of data need to be<br />

collected in advance of any meeting with the practice for a meaningful discussion and<br />

development of action plans. In addition, there are other strands of information regularly fed to<br />

the PCO about practices that can be brought together to inform the discussion about the QOF.<br />

The Training<br />

The training takes place over a full day and is run on a group workshop basis. It covers the<br />

following topics:<br />

Overview of the QOF and QMAS<br />

The recording and reviewing arrangements of the New GMS Contract and an awareness of<br />

the data needed to support the reporting and verification process are discussed.<br />

The annual review principles and timetable<br />

This includes discussion on the role and make up of the visiting team and a look at the review<br />

visit timetable and confidentiality issues.<br />

Supporting data and evidence<br />

Tools and techniques at the disposal of facilitators to support practices during the review<br />

process are discussed, together with a look at some possible post-review outcomes.<br />

Further information on the background and subject matter included in this training is available<br />

in the form of a workbook. This is provided to facilitators during the training.<br />

<strong>PRIMIS</strong> 75


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Supporting Quality Review<br />

Learning Objectives<br />

The training will provide information facilitators with knowledge and understanding of:<br />

• the recording and reviewing arrangements of the new GMS contract<br />

• data available to support the reporting and verification process<br />

• change management theory and techniques<br />

• how to facilitate and support the development, implementation and review of<br />

practice-based action plans<br />

• the tools available to provide good quality data in their role as a change agent and<br />

facilitator<br />

Further Reading<br />

<strong>PRIMIS</strong> Guidelines<br />

www.primis.nhs.uk/pages/download_template.asp?r=Guidelines_Sept01.pdf<br />

Annual QOF Review Guidance<br />

http://www.dh.gov.uk/assetRoot/04/08/21/71/04082171.PDF<br />

Good Practice Guidelines for GP EPR (v3)<br />

http://www.rcgp.org.uk/clinspec/docs/goodpracticeguidelineselectronicrecords.pdf<br />

NHS Code of Confidentiality<br />

www.dh.gov.uk/PolicyAndGuidance<br />

BMA – nGMS Quality and Outcomes Framework<br />

www.bma.org.uk/ap.nsf/Content/QualityOutcomes<br />

BMA – nGMS QOF visits and patient confidentiality<br />

www.bma.org.uk/ap.nsf/Content/QOFvisits1104<br />

Confidentiality and Disclosure of Information, General Medical Services, Personal Medical<br />

Services, and Alternative Provider Medical Services code of practice<br />

www.dh.gov.uk/PublicationsAndStatistics<br />

NatPaCT QOF Training Menu<br />

www.natpact.nhs.uk/qof/assessortraining/<br />

NatPaCT Primary Care Contracting<br />

www.natpact.nhs.uk/primarycarecontracting/<br />

NPfIT: QMAS<br />

www.npfit.nhs.uk/programmes/qmas/<br />

<strong>PRIMIS</strong> resource area of website – Supporting Quality Review<br />

www.primis.nhs.uk<br />

76 <strong>PRIMIS</strong>


Supporting Quality Review<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Training Plan - Links to other <strong>PRIMIS</strong> training<br />

<strong>Facilitator</strong>s attending the Supporting Quality Review training module would also find the<br />

following <strong>PRIMIS</strong> training modules of interest:<br />

• Quality Data, Quality Outcomes<br />

• Clinical Coding<br />

• Facilitation Skills<br />

• CHART<br />

• Action Planning and Supporting Change<br />

• Information Governance<br />

• Supporting Quality Outcomes<br />

• Supporting Quality Services<br />

• Primary Care Data Uses and Abuses<br />

Please note: many of the above training modules overlap and offer a certain amount of<br />

core content and study. It would benefit the facilitator to have undertaken these<br />

previous modules to provide a rounded understanding of information management<br />

before undertaking this training module, although this is not a necessity.<br />

<strong>PRIMIS</strong> 77


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Supporting Quality Review<br />

78 <strong>PRIMIS</strong>


Primary Care Data Uses and Abuses<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Primary Care Data Uses and Abuses<br />

Background<br />

“Healthcare is an information-rich activity, in that it involves the collection, use and<br />

disclosure of large quantities of sensitive personal data. Such information is not only<br />

required by health professionals directly involved in patient treatment, but also the<br />

many groups who indirectly contribute to the delivery of quality healthcare.<br />

Administrators, policy makers, researchers, educators, public health bodies and<br />

auditors are just some of the groups that require access to patient data to ensure that<br />

high quality, cost-effective medical treatment is delivered in a timely and appropriate<br />

manner. Making this information available, without compromising the patients’ rights [to<br />

privacy], is a complex task.”<br />

Medical Records Use and Abuse, Heidi Tranberg and Jem Rashbass<br />

Better information leading to better health and care for every patient is at the heart of the<br />

National Programme for IT. With programmes such as the NHS CRS, which aims to transform<br />

the way health and social care information is managed by giving health and care professionals<br />

access to patients’ information where and when it is needed, the emphasis on data and<br />

information within the NHS has never been greater. It is recognised that currently health<br />

information is held as a mixture of paper-based and computer records that cannot easily be<br />

shared. Even records held electronically are effectively ‘locked away’ on computers that cannot<br />

talk to one another.<br />

Although great progress has been made over recent years, we are still some way from the<br />

ideal of a fully integrated health care record. In the meantime, for healthcare information to be<br />

used for planning purposes, it is imperative that the data, the building blocks that together can<br />

give the required information, are accurate. Additionally, the way in which the information is<br />

interpreted needs to take into account the sources of data and the methods of recording and<br />

extraction. The aim of this module is to help information facilitators and other PCO staff<br />

understand how to use aggregated primary care data appropriately and avoid some of the<br />

common pitfalls.<br />

The Training<br />

The training takes place over a full day and is run on either an individual scheme or a group<br />

workshop basis. It is open to PCO staff as well as <strong>PRIMIS</strong> information facilitators. It comprises<br />

presentation, discussion and group work exercises on the following topics:<br />

The information management cycle<br />

This explores the difference between data and information and how the same information can<br />

be interpreted differently when viewed away from the context of direct patient care.<br />

<strong>PRIMIS</strong> 79


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Primary Care Data Uses and Abuses<br />

Methods of recording data in primary care and how to improve quality<br />

The attributes of high quality data are explored together with how we may test for quality,<br />

looking at data flows within and outside of the practice. Data recording and extraction methods<br />

are reviewed and the limitations of such methods and the problems of analysing data out of<br />

context are discussed.<br />

Who uses primary care data and what are their needs?<br />

An important part of the training is to identify who within the group has access to what data<br />

and to explore how they are used. One of the problems practices face is that the same data<br />

are being requested from many different sources and for many different purposes. This<br />

exercise aims to initiate discussions around removing duplication and avoiding “reinventing the<br />

wheel”.<br />

An important discussion is to identify the difference between a perceived requirement (what<br />

you think you want) and an actual need.<br />

Which data are appropriate to use and which are not?<br />

Data are often analysed and used without adequate reference to appropriate legislation. This<br />

exercise explores if the current or proposed information requirements identified by the group<br />

comply with law and what (if any) changes in practice may be required.<br />

Problems and pitfalls in data analysis<br />

The way in which data are manipulated or used inappropriately is explored and a summary of<br />

the common pitfalls and mistakes made in analysing and interpreting data is provided.<br />

Further information on the background and subject matter included in this training is available<br />

in the form of a workbook. This is provided to facilitators during the training.<br />

Learning Objectives<br />

The training will provide information facilitators and PCO staff with an understanding of:<br />

• the issues around the recording, extraction and analysis of primary care data<br />

• the dangers of using primary care data without a proper assessment of data quality<br />

and context<br />

• the ways in which information derived from primary care data can be used<br />

appropriately and legitimately<br />

• the ways in which a data quality and information strategy can be supported at PCT<br />

level.<br />

80 <strong>PRIMIS</strong>


Primary Care Data Uses and Abuses<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Further Reading<br />

Tranberg H, Rashbass J. Medical Records Use and Abuse. Abingdon: Radcliffe Publishing<br />

Ltd.; 2004.<br />

NHS Connecting for Health<br />

www.connectingforhealth.nhs.uk<br />

Patient confidentiality and Access to Health Records guidance. Department of Health.<br />

www.dh.gov.uk/PolicyAndGuidance/InformationPolicy/PatientConfidentialityAndCaldicottGuardi<br />

ans/fs/en<br />

Data Protection Act<br />

www.dataprotection.gov.uk<br />

Freedom of Information Act<br />

www.informationcommissioner.gov.uk (Freedom of Information Act 2000)<br />

Training Plan - Links to other <strong>PRIMIS</strong> training<br />

<strong>Facilitator</strong>s attending the Primary Care Data Uses and Abuses training module would<br />

also find the following <strong>PRIMIS</strong> training modules of interest:<br />

• Quality Data Quality Outcomes<br />

• Clinical Coding<br />

• Data Analysis, Interpretation and Feedback<br />

• Information Governance<br />

• Path to Paperless<br />

• Data Quality and Patient Safety<br />

Please note: many of the above training modules overlap and offer a certain amount of<br />

core content and study. It would benefit the facilitator to have undertaken these<br />

previous modules to provide a rounded understanding of information management<br />

before undertaking this training module, although this is not a necessity.<br />

<strong>PRIMIS</strong> 81


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Primary Care Data Uses and Abuses<br />

82 <strong>PRIMIS</strong>


Glossary<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Glossary<br />

Adult Learning Approach<br />

A training approach which takes account of the learner’s prior knowledge and experience and<br />

involves them in planning their own training programme.<br />

Beta testing<br />

Operational testing of query sets by facilitators in live general practice sites.<br />

CHART<br />

Care and Health Analysis in Real Time. A software program developed by <strong>PRIMIS</strong> and based<br />

on Excel that enables the quick and easy viewing of data from clinical queries. Designed to be<br />

used in-house by general practice staff.<br />

Choose and Book<br />

A programme to allow patients, in partnership with health and care professionals, to book first<br />

outpatient appointments at the most appropriate date, time and place for the patient.<br />

Chronic Disease Registers<br />

Lists of patients who have been diagnosed with a particular chronic disease, such as asthma<br />

or diabetes.<br />

Clinical Governance<br />

A framework through which NHS organisations are accountable for continually improving the<br />

quality of their services and safeguarding high standards of care by creating an environment in<br />

which excellence in clinical care will flourish.<br />

Clusters<br />

A group of strategic health authorities working together by region to implement the new<br />

technology and information systems of the National Programme for IT.<br />

EPR<br />

Electronic Patient Records. A record containing a patient’s personal details, plus information<br />

about their diagnosis, condition and treatment in an electronic format; also sometimes called<br />

EHR (Electronic Health Records).<br />

ETP<br />

Electronic Transmission of Prescriptions. A scheme to enable GPs to send prescriptions<br />

electronically to pharmacies.<br />

GMS<br />

General Medical Services. The rules used to manage payments to family doctors as part of the<br />

GPs’ contract.<br />

<strong>PRIMIS</strong> 83


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Glossary<br />

GP to GP Transfer<br />

A project to develop the technical ability to transfer patient records electronically when a<br />

patient changes practices.<br />

ICD10 Terminology<br />

International Classification of Diseases version 10. The international standard diagnostic<br />

classification for all general epidemiological and many health management purposes.<br />

Information facilitator<br />

A person employed by a PCO whose role is to provide general practice staff with support and<br />

training to enable them to improve the provision of patient care through the effective use of<br />

their information systems.<br />

Information Governance<br />

A broad-based approach to looking at all aspects of how information is processed by NHS<br />

organisations, including how it is held, obtained, recorded, used and shared.<br />

MIQUEST<br />

Morbidity Information QUery and Export SynTax. Software to enable enquirers to execute<br />

queries and extract data from different types of general medical practice computer systems<br />

using a common query language and providing a common output format.<br />

nGMS Contract<br />

The New GMS Contract is the mechanism for providing funding to individual GP practices and<br />

was introduced in 2003. It has two elements of funding: a basic payment for every practice and<br />

further payments for specified quality measures and outcomes.<br />

NHS Connecting for Health<br />

On 1 April <strong>2005</strong>, the National Programme for Information Technology (see NPfIT) joined with<br />

the IS/IT services from the NHSIA to form a single new organisation - NHS Connecting for<br />

Health.<br />

NHS CRS<br />

NHS Care Records Service. Currently under development. This will be an electronic store of<br />

over 50 million health and care records which can be accessed by health professionals where<br />

and when they are needed. It will also give patients secure internet access to their own health<br />

record.<br />

NHS Plan<br />

The NHS Plan recognises that the NHS has achieved much but needs to keep pace with<br />

change to meet patient needs. Increased investment and modernisation are the steps<br />

described in the document (published July 2000).<br />

84 <strong>PRIMIS</strong>


Glossary<br />

<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

NPfIT<br />

The National Programme for Information Technology, delivered by the Department of Health<br />

agency, NHS Connecting for Health, is responsible for procurement and delivery of the multibillion<br />

pound investment in new information and technology systems to modernise the NHS.<br />

NSF<br />

National Service Framework. A set of minimum national standards for clinical quality and<br />

access to services for the major care and disease groups.<br />

PCO<br />

Primary Care Organisation. A generic term to mean Primary Care Trust, Teaching Primary<br />

Care Trust, Primary Care Partnership, etc. Organisations responsible for commissioning all<br />

health care in their community.<br />

PDQ<br />

<strong>PRIMIS</strong> Data Quality query set. A set of HQL queries that allows a practice to start to identify<br />

areas where there are quality issues with the data recorded on the clinical system.<br />

PMS<br />

Payment schemes intended to give GPs, nurses and community trusts the opportunity to<br />

provide new, more flexible ways of offering primary care services that are sensitive to local<br />

needs.<br />

<strong>PRIMIS</strong><br />

Primary Care Information Services. A free service to primary care organisations to help them<br />

improve patient care through the effective use of their clinical computer systems.<br />

<strong>PRIMIS</strong> CAS<br />

<strong>PRIMIS</strong> Comparative Analysis Service. Data analyses designed to assist primary care<br />

organisations with their clinical audit, clinical governance and commissioning requirements, by<br />

providing comparative data of specified clinical topics with national results.<br />

QMAS<br />

Quality Management and Analysis System. A system to give GP practices feedback on the<br />

quality of care delivered to patients measured against national achievement targets detailed in<br />

the new GMS contract, which sets out the way GPs work and the way they are financially<br />

rewarded.<br />

QOF<br />

Quality and Outcomes Framework. Part of the New GMS Contract, a tool for improving the<br />

services being delivered by general practice by targeting the key areas of clinical care,<br />

organisation, patient experience and additional services.<br />

<strong>PRIMIS</strong> 85


<strong>PRIMIS</strong> <strong>Facilitator</strong> <strong>Handbook</strong><br />

Glossary<br />

Read Code<br />

A thesaurus of clinical terms linked to alpha numeric codes that allow the user to record a wide<br />

range of topics in categories such as signs and symptoms, treatments and therapies,<br />

investigations, occupations, diagnoses and drugs and appliances, in a way that can be<br />

retrieved and analysed.<br />

RFA 99<br />

Requirements for Accreditation. A specified core set of requirements, which all GP systems<br />

should be capable of performing.<br />

Rush<br />

An Excel-based program developed by <strong>PRIMIS</strong> to allow comparative results of the query sets<br />

to be shown in a graphical form.<br />

SNOMED CT<br />

A coding scheme that covers the terminology requirements of all areas of health care,<br />

including medicine, nursing and the professions allied to medicine, as well as social services<br />

and administration terms.<br />

TNA<br />

Training Needs Assessment. An analysis tool for identifying an individual’s training needs, in<br />

line with job or organisational goals.<br />

86 <strong>PRIMIS</strong>

Hooray! Your file is uploaded and ready to be published.

Saved successfully!

Ooh no, something went wrong!