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Literature Review on Provision of Appropriate and Accessible ...

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PAGE 26<br />

c<strong>on</strong>tracepti<strong>on</strong>, sexual <strong>of</strong>fences, sexual abuse, capacity, c<strong>on</strong>sent.<br />

Relevant retrieved citati<strong>on</strong>s were approximately 200 papers<br />

published between 1990 <strong>and</strong> 2009.<br />

<str<strong>on</strong>g>Literature</str<strong>on</strong>g> <str<strong>on</strong>g>Review</str<strong>on</strong>g> <strong>on</strong> Provisi<strong>on</strong> <strong>of</strong> <strong>Appropriate</strong> <strong>and</strong> <strong>Accessible</strong><br />

Support to People with an Intellectual Disability who are<br />

Nursing Programme pers<strong>on</strong>nel providing intellectual disability courses<br />

Experiencing Crisis Pregnancy<br />

at third level (DCU, Dundalk IT, Letterkenny IT, St. Angela’s College,<br />

Sligo, TCD, UCC, UL, Waterford IT) <strong>and</strong> other nursing programme<br />

pers<strong>on</strong>nel (UCD, NUIG) were c<strong>on</strong>tacted via email to find out if they were<br />

aware <strong>of</strong> good practice in supporting women with intellectual disabilities<br />

experiencing pregnancy.<br />

Key internati<strong>on</strong>al researchers <strong>and</strong> research institutes in the field were<br />

c<strong>on</strong>tacted for copies <strong>of</strong> articles <strong>and</strong> for other informati<strong>on</strong> as well as<br />

relevant organisati<strong>on</strong>s, for example, fpa (family planning associati<strong>on</strong>) in<br />

L<strong>on</strong>d<strong>on</strong>.<br />

1.4.3 Limitati<strong>on</strong>s<br />

The following issues were identified in the literature:<br />

• The majority <strong>of</strong> empirical work is carried out with women<br />

with mild to moderate learning disabilities. Dots<strong>on</strong>, Stins<strong>on</strong><br />

<strong>and</strong> Christian (2003) point out that women with more severe<br />

disabilities, i.e. lower cognitive abilities <strong>and</strong> verbal skills, are<br />

routinely absent from sexuality research studies due to a lack <strong>of</strong><br />

appropriate tools <strong>and</strong> research designs.<br />

• Studies <strong>on</strong> sexuality <strong>and</strong> intellectual disability which have<br />

not taken into account different levels <strong>of</strong> disability have found<br />

overall lower levels <strong>of</strong> sexual activity, which may be due in part<br />

to the lower sexual activity <strong>of</strong> people with moderate <strong>and</strong> severe<br />

intellectual disability (C<strong>on</strong>od & Servais, 2008).<br />

• Data regarding incidence rates <strong>of</strong> unplanned pregnancies is<br />

either lacking, dated, or restricted to certain subgroups (e.g.,<br />

instituti<strong>on</strong>alised) that are not representative <strong>of</strong> the larger<br />

populati<strong>on</strong>.

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