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Literature Review on Provision of Appropriate and Accessible ...

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PAGE 238<br />

Capacity<br />

A patient will lack capacity to c<strong>on</strong>sent to a particular interventi<strong>on</strong> if he or<br />

she is:<br />

• unable <str<strong>on</strong>g>Literature</str<strong>on</strong>g> to comprehend <str<strong>on</strong>g>Review</str<strong>on</strong>g> <strong>on</strong> <strong>and</strong> Provisi<strong>on</strong> retain <strong>of</strong> informati<strong>on</strong> <strong>Appropriate</strong> material <strong>and</strong> <strong>Accessible</strong> to the<br />

Support to People with an Intellectual Disability who are<br />

decisi<strong>on</strong>, especially as to the c<strong>on</strong>sequences <strong>of</strong> having, or not<br />

Experiencing Crisis Pregnancy<br />

having, the interventi<strong>on</strong> in questi<strong>on</strong>; <strong>and</strong>/or<br />

• unable to use <strong>and</strong> weigh this informati<strong>on</strong> in the decisi<strong>on</strong>-making<br />

process.<br />

Before making a judgement that a patient lacks capacity you must<br />

take all steps reas<strong>on</strong>able in the circumstances to assist the patient in<br />

taking their own decisi<strong>on</strong>s (this will clearly not apply if the patient is<br />

unc<strong>on</strong>scious). This may involve explaining what is involved in very simple<br />

language, using pictures <strong>and</strong> communicati<strong>on</strong> <strong>and</strong> decisi<strong>on</strong>-aids as<br />

appropriate. People close to the patient (spouse/partner, family, friends<br />

<strong>and</strong> carers) may <strong>of</strong>ten be able to help, as may specialist colleagues such<br />

as speech <strong>and</strong> language therapists or learning disability teams, <strong>and</strong><br />

independent advocates or supporters.<br />

Capacity is ‘decisi<strong>on</strong>-specific’: a patient may lack capacity to take<br />

a particular complex decisi<strong>on</strong>, but be quite able to take other more<br />

straight-forward decisi<strong>on</strong>s or parts <strong>of</strong> decisi<strong>on</strong>s.<br />

Best interests<br />

A patient’s best interests are not limited to their best medical interests.<br />

Other factors which form part <strong>of</strong> the best interests decisi<strong>on</strong> include:<br />

• the wishes <strong>and</strong> beliefs <strong>of</strong> the patient when competent<br />

• their current wishes<br />

• their general well-being<br />

• their spiritual <strong>and</strong> religious welfare.<br />

Two incapacitated patients, whose physical c<strong>on</strong>diti<strong>on</strong> is identical, may<br />

therefore have different best interests. Unless the patient has clearly<br />

indicated that particular individuals should not be involved in their care,<br />

or unless the urgency <strong>of</strong> their situati<strong>on</strong> prevents it, you should attempt to

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