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Literature Review on Provision of Appropriate and Accessible ...

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PAGE 181<br />

5.10 Key findings<br />

Key findings from this secti<strong>on</strong> are presented below, including the<br />

learning from the secti<strong>on</strong> which highlights features <strong>of</strong> effective support<br />

for parents with intellectual disability:<br />

<str<strong>on</strong>g>Literature</str<strong>on</strong>g> <str<strong>on</strong>g>Review</str<strong>on</strong>g> <strong>on</strong> Provisi<strong>on</strong> <strong>of</strong> <strong>Appropriate</strong> <strong>and</strong> <strong>Accessible</strong><br />

Support to People with an Intellectual Disability who are<br />

Experiencing Crisis Pregnancy<br />

Parenting <strong>and</strong> intellectual disability<br />

• Research from a number <strong>of</strong> countries has dem<strong>on</strong>strated<br />

that there is an increasing number <strong>of</strong> parents with learning<br />

disabilities in c<strong>on</strong>tact with services.<br />

• Llewellyn <strong>and</strong> McC<strong>on</strong>nell (2005) identified key less<strong>on</strong>s based <strong>on</strong><br />

their research with parents with learning disabilities including<br />

the heterogeneity <strong>of</strong> parents with intellectual disability; the<br />

predictable challenges they face related to the intellectual<br />

disability label (e.g. low expectati<strong>on</strong>s about their abilities, difficult<br />

pers<strong>on</strong>al <strong>and</strong> socio-ec<strong>on</strong>omic circumstances) <strong>and</strong> finally their<br />

shared achievements, <strong>and</strong> resilience in the face <strong>of</strong> hardship,<br />

as well as their efforts to dem<strong>on</strong>strate their ability to do things<br />

‘normally’.<br />

• Tools for identifying parents with learning difficulties have been<br />

developed.<br />

• A c<strong>on</strong>sistent finding from the literature is that mothers with<br />

intellectual disability typically experience poverty <strong>and</strong> hardship in<br />

raising their children (McC<strong>on</strong>nell et al., 2003b). They are usually<br />

socially isolated <strong>and</strong> c<strong>on</strong>sequently lack the supports necessary to<br />

escape psychological stress.<br />

Family <strong>and</strong> social support networks<br />

• The centrality <strong>of</strong> family members in the support networks<br />

<strong>of</strong> mothers with intellectual disability emerged. Despite the<br />

development <strong>of</strong> formal support services, assistance from<br />

extended family c<strong>on</strong>tinued to be crucial in determining whether<br />

or not mothers with intellectual disabilities retained custody<br />

<strong>of</strong> their children. This assistance typically came from female<br />

relatives, <strong>and</strong> involved practical <strong>and</strong> emoti<strong>on</strong>al assistance, as

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